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,

I am doing the same thing....some days I can NOT go back to bed in the

am.....but then I fall asleep in my recliner if I sit down after lunch...and

I try to go to bed by 9 (usually more like 8:30) at night since I have to be

up at 5:30....and I'm going non-stop until 8:25 am then I can do what I

need, be it rest or do something if I feel up to it...lately I have had a

tendonitis dx added to my elbows and doing anything is twice the joy with

additional pain....so I think I understand what you're saying.....Dee

Hi

> Great to have another new 'face' here. Both CFS and Fms are confusing

> illnesses

> with different symptoms that seem to continue to appear. I'm from

> Ontario,

> Canada , married 24 years to Bruce and have three daughters , all of whom

> have FMS.

> I find I am sleeping more now just to get through a few routine chores

than

> I was

> a year ago.

> Welcome to the group , I hope you enjoy it.

> Hugs

>

>

>

>

> ~*~CHAT TIME:~*~

> MON & THURS

> Day Eastern 4 PM, Central 3 PM, Mt 2 PM Pacific 1 PM

> Night Eastern 9 Pm, Central 8 Pm, Mt 7 PM Pacific 6 PM

> WHERE: /chat/

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>

> Add or view links about fibro/CFS.

> http://www.onelist.com/links/

>

> TO unsubscribe.

> Go to: http://www.onelist.com/ to this list and unsub from it.

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>

>

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>

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  • 1 month later...

,

I am from Ontario as well. Kitchener, Ontario. Is that close to where you

are?

Do you have a decent Dr.? I'm going to be seeing Hyde in Ottawa soon.

Hi

> I am sorry you are having such a rough time. Adjusting to this illness

does

> take

> time and I was fortunate enough to have the help of my husband's

therapist.

> We do all have purpose and it is important to remember that.

> A quick note about me : 43, married 24 years to a truck driver/

> professional clown,

> 3 daughters, 16,21, 23 all of whom share the fibro as well as other

> illnesses.

> We live in Ontario , Canada in a rural area with two cats and a dog who

are

> my

> companions when everyone is at work /school.

> I am glad your sister found us and I hope you enjoy the understanding and

> friendship

> here . I certainly like it very much.

> Take care and remember we are always here !

> Hugs

>

>

>

> List owner Bierman

>

> Add or view webpage links about Fibromyalgia/CFS.

> http://www.onelist.com/links/

>

>

> ~*~CHAT TIME:~*~

> MON Night

> TIME:Eastern 9 Pm, Central 8 Pm, Mt 7 PM Pacific 6 PM

> WHERE: /chat/

>

> To write the list owner: The_List_Owner@...

>

> TO unsubscribe.

> Go to: http://www.onelist.com/ to this list and unsub from it.

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  • 3 months later...
Guest guest

Hi ,

I have encountered the same problem, when I first introduced myself

over a month ago I think only one or two people responded, and one of

which has since left the list (I miss mary pat our fibro nurse!)

Please don't let it bother you, I think it takes a while for folks to

get used to seeing your name, and sometimes they just don't have a

response to specific questions. I have made it a habit to keep

checking the list (I don't get emails anymore) and I have learned a

lot of information, and it helps me feel better that there are other

people who are going through similar things. I did get a couple of

personal emails that were REALLY GREAT this weekend in response to

one of my posts last week.

I know I am guilty of not responding because I don't feel

comfortable, I'm new to the list, and new to this illness so I don't

know much yet. I also work every day so I have limited time to

respond sometimes. Here I am at work, " illegally " using the internet

to write to you NOW! LOL!!

We all need just some kind words of encouragement now and then, and I

think sometimes this list is the only place we can find it. I

understand. I will try to do better to read more often and respond to

you and the others. I'm not just here for me, I'm here for you and

everyone else too!

BTW...was it you who posted this quote:

" A friend is someone who knows the song in your heart and can sing it

back to you when you have forgotten the words. " ???

If so, where did it come from. It touched me so much that I emailed

it to my best friend of 27 years. I wanted to ask last week, but I

didn't want to do a " off topic " post!

Take Care,

Joy (aka Fawn)

> Hi Everyone,

>

> I am wondering if my posts are going through? I am waiting for

someone to respond to them...and so far nothing...Am I feeling out of

place here? ...Yes I am. I tried to respond to some people on

this list but that didn't work either. How come? I feel that I am in

the same boat as all of you are. I am in chronic pain and have some

additional problems also. Just wondering if I am going to fit in

here...I sure hope so, I could use the extra support...Thanks

:o)

>

>

>

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Guest guest

Sorry , I have recieved so much help here that I wouldn't want

anyone to go away. Chronic back pain is horrible. I wonder if your

neurosurgeon will be responsible if those bulging discs rupture

during the time you have to wait for surgery? Do they know about the

MRI results? Do you have any options to go elsewhere or does this

doc have any partners? You could at least thraten to take your

business elsewhere. At least they gave you pain meds. I hope they

help you. Try screaming at them a little louder and ask for the

office manager. Sometimes you have to make a butt of yourself to get

any service. Welcome and please stay, Pat

> Hi Darcy,

>

> Thanks for the post! I needed that. lol I just got off the with

them and had them put me on a list for any cancellations. I am hoping

to get into the dr. sooner. I know that things will work out for the

best. They usually do or I'd like to think they do...wink wink I am

sorry you are having such a hard time lately. I think we all are

going through our own " crisis's " . I just can't believe this list has

so many members but only a few post...lol Thats a bummer...We all

need support I know...Thanks again darcy....

>

> PS glad to hear the kitties are ok....

>

>

>

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Hi Pat,

Thanks for your post! I just wanted to wake people up...lol Just

kidding...hehehe I am on a waiting list right now. This neuro is the best and

unfortunately Im not the only one who thinks so. He did my first 2 surgeries and

now I am hoping I dont need a third but in any event I would want him to do it.

I have to wait for the meds. I had to send them the scripts to tampa fl. for w/c

prescription plan...it stinks..thanks again Pat, I appreciate it..Hugs maria

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Hi ,

Welcome to the group there are alot of wonderful people here. I am just now

getting to where I m answering any mail as it has been h*ll here lately. I

didn't see your first message but did want to welcome you.

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,

my name is Carl'a s and i am 28 years old. i am married 7 years and

have a two year old son. i was diagnosed two years ago with fms/cfs croinic

anxiety and depression. i figure the depression and anxiety came into play

from the years of pain and frustration of hearing that there was nothing

ever wrong w/ me and my tests coming out clearly.but i knew that i wasn't

crazy and i was in pain . i found a new doctor and was diagnosed after 9

months of extensive testing. i was so glad to finally have a name for all

the hurt i was feeling. and a place to start my research into finding all

the info i could about this illness that has taking control of my body.i

have found this group very informative and i have learned so much from it.

there is a web site that i would love to share w/ you and encourage you to

check out.i am enclosing the link with this letter so you can find it

easier. it is a website for cronic pain ,fms and cfs. there is tons of info

on there about everything you would want to know about your illness. i have

found it very informative and i have met a lot of friends there too. it has

a chat that is open all day and night long and someone is always there to

answer your questions and if they don't know they know of someone who does.

i am on the chat almost every night while my son is sleeping and my husband

is working. i have found out that it is easier to cope when you can share

the burdens with others. i hope that you will check it out. there is a photo

gallery on there and my picture and bio is on there w/ others like me who

wanted to share a little about themselves . it is a very nice site and i

suggest that everyone check it out. with fms we are never alone and we need

each others support to get through the rough times. let me know what

you think!! Nice to meet you and feel free to share w/ me or ask

questions . that is what we all are here for!! Carl'a

Re: Re: Hi

> Hi Carla, Thank you for that. It just has been a crappy week so

far...and I felt like no one was listening...lol I am a gabby person you

might regret talking to me...hahahah Thanks again

>

>

> maria,

> i recieved your post today and i am here if you need to share. just

wanted

> to let you know that you are not alone and we are here for you and

> understand.

>

>

>

>

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Hi , Thanks for the kind words. I am feeeling pretty good today. Just

tired...Does anyone ever get energy anymore????? I am always so damn tired..its

awful. I am used to be a Neat Nick and I aint that no more...LOL I mean my home

is still clean,. but I am not a fanatic like I used to be. I have a hard time

with that...sorry to hear you are having a h*ll week, I think we all are..Hugs

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,

This post came through. We really do care and want you to post. I am sorry if

I haven't answered-trying to catch up on the posts from this and 2 other

support groups. When I started this morning I had over 500 posts to read. I

have been at work all week and haven't had time to read until today.

I promise to be better about responding to posts as soon as I get caught up.

Patti

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,

Hang in there! You will get a great response out of most people on here,

everyone here is great! And the support and advice you get will really be of

great importance and value to you. You won't feel as though you are alone or

that the problems you have aren't real there. Sometimes with this illness you

feel as though you are crazy or something but believe me you aren't!!!!! We

are all here to tell you that what you are feeling is real! So hang in there

and ask us whatever you need to and you will get your answers, it may take

some time but just be patient. I have had Fibro probably for about 20 years

that I know of but wasn't diagnosed until 1995. I also have migraines, IBS,

ostio arthritis, and quite a few other ailments......if you ever want to

e-mail me feel free to do so. I'm sure I can answer some of your

questions...... .....

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Hi ,

Thanks for all the help & concern. I do appreciate it. I haven't been online

much, feeling like crap again. Thanks again for the info. Take care maria

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  • 1 month later...
Guest guest

Thanks Darcy. I'm still in FL but thought I should at least TRY to stay

informed concerning the group discussions. Unfortunately, I had a strange

thing happen to me Friday and this if the 1st I've been on line since Wed.

I'm better now and will stay in touch when I can while I'm here. I hope to

return home on Wed eve. So I should be on line by Thurs.

Take care,

Jazzy

Hi

Hi Jazzy,

Just wanted to wish you a good trip to your daughters if you haven't already

left. Take care and see you back in the groups soon.

Darcy

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  • 2 years later...
Guest guest

HI THERE DENISE,

YES ITS BEEN A WHILE,,,AND I'M SURE THAT YOUR MESSAGE WENT

THROUGH,,,BUT ITS JUST LIKE ME, WHEN YOU HAVE BEEN OFF FOR A WHILE,

THERE ARE SO MANY NEW PPL ON HERE, NOONE KNOWS WHO YOU ARE. I STILL

HAVE YOU ON MY MESSENGER,,,DROP ME A LINER AND LET ME KNOW HOW YOU

HAVE BEEN DOING. NICE TO HEAR FROM YOU AGAIN.

LOVE FROM IL

LYNNE

> Just wanted to say hello to everyone.. and let you know that I am

> still among the living... I sent a previous message, but I am

not

> sure it got to you all...

>

> I am just trying this one to see if it made it to you ...

>

> from Iowa..

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  • 8 months later...
Guest guest

---Welcome and congratulations on your upcoming surgery. Please ask

any and all questions. Im here if you need support or just to vent.

Your Friend

In gastric-bypass-support-kaiser-

patients , " conie1954 " <2conilee@c...> wrote:

> I've been reading all your postings for about a month. It has been

> very helpful to hear about others experiences as it relates to my

> journey. My surgery dat is May 12th and I am very excited. I

still

> have to lose 10 more lbs but that is not a problem. I spend alot

of

> time thinking about about how my life is going to change.

> Unfortunatly I spend more time thinking about the things I will

have

> to live with out instead of thinking about all the new and

wonderful

> thing I will be able to do once again. Like cross my legs!!!! Go

> swimming with my kids. I think I am doing this because of all the

> meetings and appointments I am going to. So much to remember and

> learn.

> Well I just wanted to say hello finally!!!! Conie

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  • 2 weeks later...
Guest guest

I also feel that I should introduce myself as I am new to the

group. My name is , I'm 52, and waiting for my WLS to be

approved. On the 28th of April I will be attending the pre-op class

at Kaiser in Richmond. I am very excited about the surgery and am

looking forward to the positive changes in my life.

I am amazed that so may people are spending only 20 hours in the

hospital. This must mean that the surgeries are going well. Can

anyone tell me how long it was after WLS that you felt like getting

out and about????

Thanks,

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Hi ,

Welcome! I had open and expected to feel down and out for awhile.

But, I was fine! My surgery was in San Diego and I actually went site-

seeing the day after I was discharged from the hospital. Now, not

everyone feels as good as I did. But, it can happen!

Dawn

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Guest guest

Hi Dawn,

That

is great news!!!! How long ago did

you have your surgery and how long were you in the hospital? I will try to follow your example.

Thanks,

-----Original

Message-----

From: Dawn

Sent: Friday, April 23, 2004 8:15

PM

To:

gastric-bypass-support-kaiser-patients

Subject:

Re: HI

Hi ,

Welcome! I had open and expected to feel down and out for awhile.

But, I was fine! My surgery was in San Diego and I actually went site-

seeing the day after I was discharged from the hospital. Now, not

everyone feels as good as I did. But, it can happen!

Dawn

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Guest guest

,

Welcome to the group. I am not pre-op yet, but I wanted to go camping a few days after surgery and Steve at Richmond told me not to chance it. Wait 2 weeks before doing much other than walking, walking, walking. I suppose we can shop and walk though. :)

Carol wrote:

I also feel that I should introduce myself as I am new to the group. My name is , I'm 52, and waiting for my WLS to be approved. On the 28th of April I will be attending the pre-op class at Kaiser in Richmond. I am very excited about the surgery and am looking forward to the positive changes in my life. I am amazed that so may people are spending only 20 hours in the hospital. This must mean that the surgeries are going well. Can anyone tell me how long it was after WLS that you felt like getting out and about???? Thanks,

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Guest guest

Surgery was in Feb 2004. I was in hospital for from Friday to Monday.

> Hi Dawn,

> That is great news!!!! How long ago did you have your

surgery

> and how long were you in the hospital? I will try to follow your

example.

> Thanks,

>

>

> Re: HI

>

> Hi ,

> Welcome! I had open and expected to feel down and out for awhile.

> But, I was fine! My surgery was in San Diego and I actually went

site-

> seeing the day after I was discharged from the hospital. Now, not

> everyone feels as good as I did. But, it can happen!

>

> Dawn

>

>

>

>

>

>

>

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Guest guest

Hi ,

Welcome! I'm glad that you've found our not-so-little group - it has

been a big help to me and I hope that it proves to be the same for you.

I'm also a Richmond patient. Dr. Baggs did my surgery last December. I

was very nervous about being in the hospital, but the folks at Richmond

were really great. I wasn't in the hospital long - I got out of surgery

about 6:00pm on a Monday and was released the next morning.

As far as getting out and about . . . well, I wasn't the most eager of

folks. I felt O.K. but I was very easily tired out - also, I was still

relying pretty heavily on my crutches back then. It was probably about

5 days before I braved the outside world.

I look forward to getting to know you.

All the best,

Kay

open RNY 12/1/03

wrote:

> I also feel that I should introduce myself as I am new to the

> group. My name is , I'm 52, and waiting for my WLS to be

> approved. On the 28th of April I will be attending the pre-op class

> at Kaiser in Richmond. I am very excited about the surgery and am

> looking forward to the positive changes in my life.

> I am amazed that so may people are spending only 20 hours in the

> hospital. This must mean that the surgeries are going well. Can

> anyone tell me how long it was after WLS that you felt like getting

> out and about????

> Thanks,

>

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Guest guest

ette,

Thank you so much for your response. I sure hope I am able to get along as

well as you are. I went to the support

group meeting in Sacramento today.

It was very good and well worth the time it took to go. I am getting excited and anxious to get

on with it.

Again thank you for sharing and I hope you continue

to do so well.

-----Original

Message-----

From: pgbaker21

Sent: Saturday, April 24, 2004

9:17 PM

To:

gastric-bypass-support-kaiser-patients

Subject:

Re: HI

Hi !

I am only 3 weeks post-op and I had my Open RNY with Dr. Fisher@Kaiser

Richmond. To answer your question about how long before you feel like

getting out and about, it really varies from person to person. You

will find that everyone has a different experience. For me, I was

fortunate that I didn't have much pain or nausea. I was up and

walking around the floor almost every two hours. I had my surgery on

3/30 and was released to go home around 5 PM the following day. My

roommate, on the other hand, had surgery the same day as me but had

problems with pain and nausea and she stayed in the hospital until

4/2. When they discharge you, they want you to get outside and walk

to help with the healing. I'd say for me, the first two days home,

all I could do was go outside for my walk and I was pretty wimped

after that. By the third day, I was ready to get out, so I went

shopping but I found that got tired sooner than I expected. From that

day on, I went out for my walks, but I also went window shopping or my

friends/family would take me for a ride because I get easily stir

crazy, but I would still get wimped. Today, at 3 weeks out, I still

get tired around 6 PM, but I'm pretty active and busy most of the day.

Anyways, good luck on your journey and I'm sure you'll find this

group an important source of information because all of us are part of

the Kaiser system, and you'll find, if you join any of the other Yahoo

groups, that there is a lot of difference between this group and the

other non-Kaiser/Pacific Bariatric WLS patients. That's why this

group is so important to me.

ette

Post-op-3/30/04-Dr. Fisher

351/273/150???

> I also feel that I should introduce myself as I am new to the

> group. My name is , I'm 52, and waiting for my WLS to be

> approved. On the 28th of April I will be attending the pre-op

class

> at Kaiser in Richmond. I am very excited about the surgery and am

> looking forward to the positive changes in my life.

> I am amazed that so may people are spending only 20 hours in the

> hospital. This must mean that the surgeries are going

well. Can

> anyone tell me how long it was after WLS that you felt like getting

> out and about????

> Thanks,

>

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Guest guest

,

Welcome to the group. Im sure you will find allot of wonderful

people here willing to help you out

Shell

>

> > I also feel that I should introduce myself as I am new to the

> > group. My name is , I'm 52, and waiting for my WLS to be

> > approved. On the 28th of April I will be attending the pre-op

class

> > at Kaiser in Richmond. I am very excited about the surgery and am

> > looking forward to the positive changes in my life.

> > I am amazed that so may people are spending only 20 hours in the

> > hospital. This must mean that the surgeries are going well. Can

> > anyone tell me how long it was after WLS that you felt like

getting

> > out and about????

> > Thanks,

> >

>

>

>

>

>

>

>

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Guest guest

Hi Shell,

I remember how surprised I was when the nurse said that they would want

to discharge me right after breakfast if I didn't have any problems with

keeping breakfast down. At first, I was kinda scared to be going home

so quick - but then I was glad. People actually seem to heal better at

home (providing, of course, that they don't have any complications). I

was very fortunate in that I've haven't had any complications. I know

that I slept better at home. My sister came down from Alaska to stay

with me while I was recuperating. She took very good care of me - made

sure that I walked, drank my water, and all that.

All the best,

Kay

open RNY 12/1/03

Shell wrote:

> Kay,

> I had no idea you were only in the hospital less then 24 hours! Were

> you ok with that? I was in 4 days! I would of stayed longer if I

> could. Why did you stay such a short time? I should also tell you I

> had lap and open and my surgey was 6 hours long! so maybe thats why

> i stayed longer

> Shell

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Guest guest

Hi ,

I had my surgery just 10 days after I met my 10% weight loss goal. It was

a real whirlwind of a time - especially because Thanksgiving was right in

the middle of that 10 days. I remember how shocked folks seemed to be about

how quickly I got into surgery - I think that I must have lucked into a cancellation

or somesuch.

I was talking to a Kaiser pre-op yesterday at the East Bay WLS Support Group

(Barbara?) and she told me that Kaiser has changed their routine. It used

to be that once you reached your pre-op goal weight the case manager would

immediately schedule your surgery and the necessary pre-op appointments.

In my case, she actually managed to get me into some of those appointments

the same day I hit my goal. As I understand it, now you have to have another

surgeon's consultation before the surgery date is scheduled. Is this how

it is working for you? Actually . . . is it "another" consultation or is

it the first consultation with the surgeon? That probably isn't worded very

clearly . . . what I'm trying to ask is - did you (or will you) have a consultation

with the surgeon before reaching your goal weight?

BTW Dr. Baggs is wonderful.

All the best,

Kay

open RNY 12/1/03

F. Chapple wrote:

Hi Kay,

Thanks for the response. I also will have Dr. Baggs for my WLS. After you lost your 10% and saw the doctor to have

the surgery scheduled did it take to actually get the WLS done?

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Guest guest

Well im glad your ok and you had someone to help take care of you. I

hated the hospital with all the noise. People were at up all night.

I guess for the first two weeks so was I LOl.

Shell

>

> > Kay,

> > I had no idea you were only in the hospital less then 24 hours!

Were

> > you ok with that? I was in 4 days! I would of stayed longer if I

> > could. Why did you stay such a short time? I should also tell

you I

> > had lap and open and my surgey was 6 hours long! so maybe thats

why

> > i stayed longer

> > Shell

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