RE: Picture of Chaya uploaded

[Guest guest]

That is such wonderful news! Kim

> Hi,

>

> I uploaded a picture of today.

>

> She smiled today!!! I was so excited.

>

> She seemed to have turned a corner sometime between yesterday and

> today. I couldn't believe it when I went to see her today. I asked

> the nurse if this was my baby. She looked so comfortable and

> content (even though she hadn't been fed for 2 days because of an

> infection at her g-tube entry site). Her breathing was so much

> quieter and easier. I could hear her voice when she cried. Then to

> top it all off she smiled at me!

>

> I tried to get a picture of her smiling but she only did it that one

> time. I can't wait for the next one ;-)

>

> Rochel

>

>

>

>

> Membership of this email support groups does not constitute membership in the

> CHARGE Syndrome Foundation.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter)

> please contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

> 7th International

> CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

> Information will be available at our website

> www.chargesyndrome.org or by calling 1-. In Canada, you may

> contact CHARGE Syndrome Canada at 1- (families), visit

> www.chargesyndrome.ca, or email info@.... Thank you!

>

>

[Guest guest]

That is such wonderful news! Kim

> Hi,

>

> I uploaded a picture of today.

>

> She smiled today!!! I was so excited.

>

> She seemed to have turned a corner sometime between yesterday and

> today. I couldn't believe it when I went to see her today. I asked

> the nurse if this was my baby. She looked so comfortable and

> content (even though she hadn't been fed for 2 days because of an

> infection at her g-tube entry site). Her breathing was so much

> quieter and easier. I could hear her voice when she cried. Then to

> top it all off she smiled at me!

>

> I tried to get a picture of her smiling but she only did it that one

> time. I can't wait for the next one ;-)

>

> Rochel

>

>

>

>

> Membership of this email support groups does not constitute membership in the

> CHARGE Syndrome Foundation.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter)

> please contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

> 7th International

> CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

> Information will be available at our website

> www.chargesyndrome.org or by calling 1-. In Canada, you may

> contact CHARGE Syndrome Canada at 1- (families), visit

> www.chargesyndrome.ca, or email info@.... Thank you!

>

>

[Guest guest]

How wonderful!!! My heart is all warm with joy thinking about your precious

baby's smile!! Cherish this moment!

Michele W

Picture of uploaded

Hi,

I uploaded a picture of today.

She smiled today!!! I was so excited.

[Guest guest]

a smiling baby is the greatest!! glad she saved it for you!!

maria

Picture of uploaded

> Hi,

>

> I uploaded a picture of today.

>

> She smiled today!!! I was so excited.

>

> She seemed to have turned a corner sometime between yesterday and

> today. I couldn't believe it when I went to see her today. I asked

> the nurse if this was my baby. She looked so comfortable and

> content (even though she hadn't been fed for 2 days because of an

> infection at her g-tube entry site). Her breathing was so much

> quieter and easier. I could hear her voice when she cried. Then to

> top it all off she smiled at me!

>

> I tried to get a picture of her smiling but she only did it that one

> time. I can't wait for the next one ;-)

>

> Rochel

>

>

>

>

> Membership of this email support groups does not constitute membership in

the CHARGE Syndrome Foundation.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter)

> please contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

> 7th International

> CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

Information will be available at our website

> www.chargesyndrome.org or by calling 1-. In Canada, you may

contact CHARGE Syndrome Canada at 1- (families), visit

www.chargesyndrome.ca, or email info@.... Thank you!

>

>

[Guest guest]

a smiling baby is the greatest!! glad she saved it for you!!

maria

Picture of uploaded

> Hi,

>

> I uploaded a picture of today.

>

> She smiled today!!! I was so excited.

>

> She seemed to have turned a corner sometime between yesterday and

> today. I couldn't believe it when I went to see her today. I asked

> the nurse if this was my baby. She looked so comfortable and

> content (even though she hadn't been fed for 2 days because of an

> infection at her g-tube entry site). Her breathing was so much

> quieter and easier. I could hear her voice when she cried. Then to

> top it all off she smiled at me!

>

> I tried to get a picture of her smiling but she only did it that one

> time. I can't wait for the next one ;-)

>

> Rochel

>

>

>

>

> Membership of this email support groups does not constitute membership in

the CHARGE Syndrome Foundation.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter)

> please contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

> 7th International

> CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

Information will be available at our website

> www.chargesyndrome.org or by calling 1-. In Canada, you may

contact CHARGE Syndrome Canada at 1- (families), visit

www.chargesyndrome.ca, or email info@.... Thank you!

>

>

[Guest guest]

THat's great news Rochel, there's nothing like a smile in the midst of all

these kids go through...

Weir

Mom to Kennedy 6 yr old with CHARGE, 14, 12 and wife to Graeme.

New Brunswick, Canada

Weir homepage: http://personal.nbnet.nb.ca/gweir

CHARGE SYNDROME CANADA: http://www.chargesyndrome.ca

Picture of uploaded

Hi,

I uploaded a picture of today.

She smiled today!!! I was so excited.

She seemed to have turned a corner sometime between yesterday and

today. I couldn't believe it when I went to see her today. I asked

the nurse if this was my baby. She looked so comfortable and

content (even though she hadn't been fed for 2 days because of an

infection at her g-tube entry site). Her breathing was so much

quieter and easier. I could hear her voice when she cried. Then to

top it all off she smiled at me!

I tried to get a picture of her smiling but she only did it that one

time. I can't wait for the next one ;-)

Rochel

Membership of this email support groups does not constitute membership in

the CHARGE Syndrome Foundation.

For information about the CHARGE Syndrome

Foundation or to become a member (and get the newsletter)

please contact marion@... or visit

the CHARGE Syndrome Foundation web page

at http://www.chargesyndrome.org

7th International

CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

Information will be available at our website

www.chargesyndrome.org or by calling 1-. In Canada, you may

contact CHARGE Syndrome Canada at 1- (families), visit

www.chargesyndrome.ca, or email info@.... Thank you!

[Guest guest]

THat's great news Rochel, there's nothing like a smile in the midst of all

these kids go through...

Weir

Mom to Kennedy 6 yr old with CHARGE, 14, 12 and wife to Graeme.

New Brunswick, Canada

Weir homepage: http://personal.nbnet.nb.ca/gweir

CHARGE SYNDROME CANADA: http://www.chargesyndrome.ca

Picture of uploaded

Hi,

I uploaded a picture of today.

She smiled today!!! I was so excited.

She seemed to have turned a corner sometime between yesterday and

today. I couldn't believe it when I went to see her today. I asked

the nurse if this was my baby. She looked so comfortable and

content (even though she hadn't been fed for 2 days because of an

infection at her g-tube entry site). Her breathing was so much

quieter and easier. I could hear her voice when she cried. Then to

top it all off she smiled at me!

I tried to get a picture of her smiling but she only did it that one

time. I can't wait for the next one ;-)

Rochel

Membership of this email support groups does not constitute membership in

the CHARGE Syndrome Foundation.

For information about the CHARGE Syndrome

Foundation or to become a member (and get the newsletter)

please contact marion@... or visit

the CHARGE Syndrome Foundation web page

at http://www.chargesyndrome.org

7th International

CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

Information will be available at our website

www.chargesyndrome.org or by calling 1-. In Canada, you may

contact CHARGE Syndrome Canada at 1- (families), visit

www.chargesyndrome.ca, or email info@.... Thank you!

[Guest guest]

Rochel,

How do we get to see the picture of your angel?

pam