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I'm doing :o) Yes, she can have either one, tylenol or advil...

Have fun at work!!! :o) See ya tomorrow!!!

{{{ Working Hugs }}}

Helen

 

Helen, how are you feeling this evening? Is Saedi's ears feeling better tonite?

April has taken Cipro HCL Otic drops for outer ear infections, another name is swimmer's ear. Ear infections are quite painful. Did the Dr. say she could have Advil or Tylenol for pain?

I am glad you liked the article. April says thanks. Amber is about the same, and I notice that little cough on board, I told her she needs to check her peak flow meter after while to make sure she is not starting to flare.

I have to work tonite. What a pain in the butt.LOL

Catch you guys later, Marsha

I may never see tomorrow;        there's no written guarantee, And things that happened yesterday            belong to history!!!      

         {{{Sent With Many Hugs}}}

                 Helen

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  • 4 months later...

Jeanette,

So glad to hear you are feeling better! Great news on your labs--keep up the good work. Thanks for keeping us updated. Stay in touch.

Hugs and Best Wishes

AIH (01/01)

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Jeanette,

So glad to hear you are doing better. That is great your bloodwork is OK. It

is good thing you went to the doctor and were able to get antibiotics for

the pnuemonia - it is very draining on a person. My prayers are with you and

your family. Thanks for keeping us posted :-)

LC AIH (0701)

[ ] Feeling better

Hi everyone this is just a few lines to let you no i am feeling much

better.I went to the doctor about the pain in my chest and he said it was

the pnemonia so ha gave me some more antibiotics and i feel human again also

my blood tests are OK for me. I also had to go to the hospital for

physiotherapy and speech therapy and they both said i neede more support

than i am getting so they are going to sort some things out for me. There is

also someone checking to make sure i get all the allowances that i can get i

could not have done all this myself. A big thanks also goes for all the help

and support that you have all given me. An angel was watching over me when i

found this sight.

Love and hugs Jeanette UK

_____

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I happy to hear that you are feeling better. Pnemonia is bad enough so you take it easy and don't over do it. Ann CT [ ] Feeling better Hi everyone this is just a few lines to let you no i am feeling much better.I went to the doctor about the pain in my chest and he said it was the pnemonia so ha gave me some more antibiotics and i feel human again also my blood tests are OK for me. I also had to go to the hospital for physiotherapy and speech therapy and they both said i neede more support than i am getting so they are going to sort some things out for me. There is also someone checking to make sure i get all the allowances that i can get i could not have done all this myself. A big thanks also goes for all the help and support that you have all given me. An angel was watching over me when i found this sight. Love and hugs Jeanette UK

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In a message dated 1/5/02 4:08:48 AM Pacific Standard Time, jeanette_cuk@... writes:

Hi everyone this is just a few lines to let you no i am feeling much better

HURRAY FOR YOU!!! :)

thinking of you ALWAYS!!

hugzzzz...flying your way!

bert. :)

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So glad to hear you are feeling better, Jeanette..do continue to take

care.

nne

>

> Hi everyone this is just a few lines to let you no i am feeling much

better.I went to the doctor about the pain in my chest and he said it

was the pnemonia so ha gave me some more antibiotics and i feel human

again also my blood tests are OK for me. I also had to go to the

hospital for physiotherapy and speech therapy and they both said i

neede more support than i am getting so they are going to sort some

things out for me. There is also someone checking to make sure i get

all the allowances that i can get i could not have done all this

myself. A big thanks also goes for all the help and support that you

have all given me. An angel was watching over me when i found this sight.

>

> Love and hugs Jeanette UK

>

>

>

> ---------------------------------

>

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  • 1 month later...

--- j <denisej@...> a écrit :

Hi everyone,

I was in a nasty flare that just wouldn't leave. It started last fall

and would get better, then worse. The end of December I saw my

arthritis doctor and we discussed micro doses of prednisone to try to

nip the swelling. He says since the body produces six to seven mgs of

prednisone that it would be alright to take 1 to 4 mgs a day for

symptomatic relief. I'm glad he let me have it. He also told me that

minocycline is now the first drug he prescribes-- what a change that

is! He says he is seeing good results when patients take two capsules

a day.

The flare wouldn't leave, what I've been doing for three years wasn't

working, so I figured I would try something different. Since I was

already miserable, I decided to up the minocycline. I did it rapidly

and paid the price for that in a lot more pain.

The pain was different too, a lot like the fibromyalgia pain I used to

get. I felt the muscles pull in an awful burning. That lasted a couple

weeks. I lived from the bed, to the recliner, and back.

I slept a lot, sleep was the best escape and there were nights when I

didn't sleep at all because it hurt too much. Those nights I'd use

heat or ice for the pain. I reasoned that the pain increased because I

was killing off the critters. I had fits of sweating, some nights I'd

get up and change my night clothes and the bedding. I think that was

because I was throwing off toxins. I also took a strong homeopathic

remedy at the same time and my practicioner said that was likely what

was going on.

The pulling muscle pain left a couple weeks ago. I've been getting

better gadually, some improvement every day.

The day before yesterday, I was up and about for twenty or thirty

minutes when I remembered I have RA. I didn't have pain-- just the fat

finger stiffness I've become accustomed to. What a change.

I have cut my pain meds by a third in the last three days. I don't

need as much as before. I'm dropping off them as fast as is safe. I

haven't needed prednisone either for three days.

Of course I can't predict what will happen next. The cycles come and

go with this stuff but I hope in my heart that I've turned a corner.

My feet don't even hurt.

I feel good.

in Oregon

=================

That's what you get with 10 weeks of Minocin, 100 mg, every 12 hours,

5-7 days per week, as per the manufacturer's instructions and the

O'Dell studies.

Good for you . Make sure that you have UNINTERRUPTED antibiotics

to avoid falling back, as I have done 3 times now.

Pierre

__________________________________________________________

Obtenez votre adresse @.ca gratuite et en français !

courriel..ca

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, that is so good to hear. I am also in Oregon and I have also had a

tough winter. I'm hoping a bit of sunshine will help too. glad you are

feeling better. kathy

rheumatic Feeling better

> Hi everyone,

>

> I was in a nasty flare that just wouldn't leave. It started last fall

and

> would get better then worse. The end of December I saw my arthritis

doctor

> and we discussed micro doses of prednisone to try to nip the swelling. He

> says since the body produces six to seven mgs of prednisone that it would

be

> alright to to take 1 to 4 mgs a day for symptomatic relief. I'm glad he

let

> me have it. He also told me that minocycline is now the first drug he

> prescribes--what a change that is! He says he is seeing good results when

> patients take two capsules a day.

>

> The flare wouldn't leave, what I've been doing for three years wasn't

> working so I figured I would try something different. Since I was already

> miserable I decided to up the minocycline. I did it rapidly and paid the

> price for that in a lot more pain.

>

> The pain was different too, a lot like the fibromyalgia pain I used to

get.

> I felt the muscles pull in an awful burning. That lasted a couple weeks.

I

> lived from the bed, to the recliner, and back.

>

> I slept a lot, sleep was the best escape and there were nights when I

didn't

> sleep at all because it hurt too much. Those nights I'd use heat or ice

for

> the pain. I reasoned that the pain increased because I was killing off

the

> critters. I had fits of sweating, some nights I'd get up and change my

> night clothes and the bedding. I think that was because I was throwing off

> toxins. I also took a strong homeopathic remedy at the same time and my

> practicioner said that was likely what was going on.

>

> The pulling muscle pain left a couple weeks ago. I've been getting better

> gadually, some improvement every day.

>

> The day before yesterday I was up and about for twenty or thirty minutes

> when I remembered I have RA. I didn't have pain--just the fat finger

> stiffness I've become accustomed to. What a change.

>

> I have cut my pain meds by a third in the last three days. I don't need

as

> much as before. I'm dropping off them as fast as is safe. I haven't

needed

> prednisone either for three days.

>

> Of course I can't predict what will happen next. The cycles come and go

> with this stuff but I hope in my heart that I've turned a corner. My feet

> don't even hurt.

>

> I feel good.

>

> in Oregon

>

>

>

> To unsubscribe, email: rheumatic-unsubscribeegroups

>

>

>

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Hi Pierre,

>That's what you get with 10 weeks of Minocin, 100 mg, every 12 hours,

>5-7 days per week, as per the manufacturer's instructions and the

>O'Dell studies.

It's great that this approach has worked for and many other people. But

this is not a 'one size fits all' therapy and so many others can only tolerate

much smaller doses - hence Dr. Brown's approach of intermittent dosing long-term

and adjusting the dose for each patient. There are thousands of people who have

recovered on only 100mg minocycline or doxycycline on Monday Wednesdays and

Fridays - and many that we hear from who can only tolerate 50mg once a week

to start with but are then able to build up gradually to higher doses. Each

person is different.

The incidence of gut problems is much higher with larger doses of antibiotics

and therefore it's harder to keep the gut organisms in balance, essential for

recovery.

Remember that Dr. Brown said that the dose a person tolerates the best is also

the best therapeutic dose for them. It often takes time to find the best

antibiotic

and the best dose for each individual. The therapy also takes patience and

'stickability'

and most often the slow and continuous low dose of antibiotic produces the best

result in the long run.

If the high dose is working for someone, as in 's case, then that's great,

but it doesn't mean that the therapy isn't going to be successful for people

on lower doses.

Chris.

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and Kathy - where in Oregon? I'm from Oregon too. Salem. And, it has

been a miserable winter. But, we need the moisture, I keep consoling myself

with this thought.

rheumatic Feeling better

>

>

> > Hi everyone,

> >

> > I was in a nasty flare that just wouldn't leave. It started last fall

> and

> > would get better then worse. The end of December I saw my arthritis

> doctor

> > and we discussed micro doses of prednisone to try to nip the swelling.

He

> > says since the body produces six to seven mgs of prednisone that it

would

> be

> > alright to to take 1 to 4 mgs a day for symptomatic relief. I'm glad he

> let

> > me have it. He also told me that minocycline is now the first drug he

> > prescribes--what a change that is! He says he is seeing good results

when

> > patients take two capsules a day.

> >

> > The flare wouldn't leave, what I've been doing for three years wasn't

> > working so I figured I would try something different. Since I was

already

> > miserable I decided to up the minocycline. I did it rapidly and paid

the

> > price for that in a lot more pain.

> >

> > The pain was different too, a lot like the fibromyalgia pain I used to

> get.

> > I felt the muscles pull in an awful burning. That lasted a couple

weeks.

> I

> > lived from the bed, to the recliner, and back.

> >

> > I slept a lot, sleep was the best escape and there were nights when I

> didn't

> > sleep at all because it hurt too much. Those nights I'd use heat or ice

> for

> > the pain. I reasoned that the pain increased because I was killing off

> the

> > critters. I had fits of sweating, some nights I'd get up and change my

> > night clothes and the bedding. I think that was because I was throwing

off

> > toxins. I also took a strong homeopathic remedy at the same time and my

> > practicioner said that was likely what was going on.

> >

> > The pulling muscle pain left a couple weeks ago. I've been getting

better

> > gadually, some improvement every day.

> >

> > The day before yesterday I was up and about for twenty or thirty minutes

> > when I remembered I have RA. I didn't have pain--just the fat finger

> > stiffness I've become accustomed to. What a change.

> >

> > I have cut my pain meds by a third in the last three days. I don't need

> as

> > much as before. I'm dropping off them as fast as is safe. I haven't

> needed

> > prednisone either for three days.

> >

> > Of course I can't predict what will happen next. The cycles come and go

> > with this stuff but I hope in my heart that I've turned a corner. My

feet

> > don't even hurt.

> >

> > I feel good.

> >

> > in Oregon

> >

> >

> >

> > To unsubscribe, email: rheumatic-unsubscribeegroups

> >

> >

> >

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  • 8 months later...
  • 5 months later...
Guest guest

that's great ! What dosage did you start on?

Hugs,

Crystal

I switched to Lex from Celexa about a week ago. Most of the week I

felt muddle-headed and dizzy, headache too. Today I started feeling

more upbeat and wanting to get things done. Maybe that's the first

sign the pills are working, wanting to put things in order. Things

just seem to make more sense now.

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Guest guest

I think you may be right. I remember feeling that way, too, not long after

starting Lex (after Celexa). It doesn't last, at least for me, though it

does seem to come and go! Use it when it's there, I've found!

Maybe that's the first

> sign the pills are working, wanting to put things in order. Things

> just seem to make more sense now.

>

>

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Guest guest

Hi ,

can you tell me, are you able to find the motivation when it's really needed?

TIA,

Crystal

I think you may be right. I remember feeling that way, too, not long after

starting Lex (after Celexa). It doesn't last, at least for me, though it

does seem to come and go! Use it when it's there, I've found!

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Guest guest

Oh yes, usually. If I have a deadline, I'll summon up what's necessary to

meet it. I may crash the next day (sleep), but I can do what's necessary.

> Hi ,

>

> can you tell me, are you able to find the motivation when it's really

needed?

>

> TIA,

> Crystal

>

>

>

> I think you may be right. I remember feeling that way, too, not long after

> starting Lex (after Celexa). It doesn't last, at least for me, though it

> does seem to come and go! Use it when it's there, I've found!

>

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Guest guest

thanks for the answer :)

Oh yes, usually. If I have a deadline, I'll summon up what's necessary to

meet it. I may crash the next day (sleep), but I can do what's necessary.

> Hi ,

>

> can you tell me, are you able to find the motivation when it's really

needed?

>

> TIA,

> Crystal

>

>

>

> I think you may be right. I remember feeling that way, too, not long after

> starting Lex (after Celexa). It doesn't last, at least for me, though it

> does seem to come and go! Use it when it's there, I've found!

>

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Guest guest

I went from 30 mg of Celexa to 10 mg of Lexapro.

So far, still feeling good.

>

> that's great ! What dosage did you start on?

>

> Hugs,

> Crystal

>

>

> I switched to Lex from Celexa about a week ago. Most of the week

I

> felt muddle-headed and dizzy, headache too. Today I started

feeling

> more upbeat and wanting to get things done. Maybe that's the

first

> sign the pills are working, wanting to put things in order.

Things

> just seem to make more sense now.

>

>

>

>

>

>

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  • 1 year later...
Guest guest

--- croft00lara <croft_home@...> wrote:

> I am still

> hesitant about

> doing the enema.

Enemas are REALLY easy, and they make you feel MUCH

better. Try it once, and you'll be a pro. There's

nothing to it, after you get over the idea of it.

Really. You just have to get organized.

Enemas help a lot. Honest. Sometimes they make all the

difference.

Saludos,

Jeanne

__________________________________________________

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Guest guest

The first time I gave myself an enema I made it into way too big of ordeal and

it took me a month after buying the kit to actualy try it.............I was

surprised and relieved that it went very smoothly. I actually have a waterproof

pad and after the first time in my very small bathroom I tried doing it on my

bed. The waterproof bad worked great and it is more comfortable on the bed..

Jeanne

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Guest guest

Lara Wrote:

> Dear Bee and all,> I am feeling better today than yesterday after

the Itchies. My lower > legs still itch/sting, but nowhere nearly as

bad as yesterday. I > continued with the dry skin brushing,

salt & lemon water, and plain > water.

==>Excellent Lara. You are doing everything you can. That's well

done!

>

> I have not had an appetite until just now. So, only ate once

> yesterday, forcing myself to. A green salad, good lettuce and kale,

> avocado, celery... didn't finish it.

==>You do need to eat plenty of protein too, or your body will make

amino acids from your muscles and your liver, and also good fats.

>

> I do believe I killed a few of the candida, as I have been

> experiencing some mild die-off symptoms - slight 'hang-over'

feeling, > headache, muscle aches. I welcome them now, knowing what

they > represent. Nothing unbearable.

==>It's good you know the signs.

>

> After the night of extreme itching, I noticed a change in my bowels.

> I am not severely constipated, but elimination is not quick 'n easy

> like before. My stools are dark and sticky/gluey, and smelly.

==>Did you eat any starches, grains, chocolate, high carbs? They can

make you a bit constipated.

> So I know *something* happened, and that my body is trying to clean

> itself. I'd like to help it along, but I am still hesitant about

> doing the enema. (Mostly concerned about Set Up - trying to figure

> *where* to do it - my bathroom is tiny; *where* to hang the bag so

it > doesn't fall in my face during; and worried there will be an

> uncontrollable " flood " .) phew!

==>If you have a tub line it with a waterproof pad. The syringe is

so much easier to use instead of the enema bag, and is cheaper to buy

too.

The best,

jBee

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Guest guest

croft00lara,

So glad to hear that you are feeling better. :)

It is more cleansing to lie down for enemas but in a pinch they can be given

while sitting on the toilet. Have your supplies assembled ready beside you.

Hold the bag slightly elevated above the hips. Put a towel over your legs to

keep warm and have a wash cloth, soap and warm water nearby, ready to clean

up afterward.

--nh

From: " croft00lara " <croft_home@...>

Subject: Feeling better

So I know *something* happened, and that my body is trying to clean

itself. I'd like to help it along, but I am still hesitant about

doing the enema. (Mostly concerned about Set Up - trying to figure

*where* to do it - my bathroom is tiny; *where* to hang the bag so it

doesn't fall in my face during; and worried there will be an

uncontrollable " flood " .) phew!

Lara

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Guest guest

Greetings all you getting healthy people!

It is spring!!!

Just a thought here, if you drink lemon juice fresh

squeezed and hot/warm water in the morning that will

do the trick for the constipation. Worked for me.

Organic!!!

yours in good health

nieema

--- croft00lara <croft_home@...> wrote:

>

> Dear Bee and all,

>

> I am feeling better today than yesterday after the

> Itchies. My lower

> legs still itch/sting, but nowhere nearly as bad as

> yesterday. I

> continued with the dry skin brushing, salt & lemon

> water, and plain

> water.

>

> I have not had an appetite until just now. So, only

> ate once

> yesterday, forcing myself to. A green salad, good

> lettuce and kale,

> avocado, celery... didn't finish it.

>

> I do believe I killed a few of the candida, as I

> have been

> experiencing some mild die-off symptoms - slight

> 'hang-over' feeling,

> headache, muscle aches. I welcome them now, knowing

> what they

> represent. Nothing unbearable.

>

> After the night of extreme itching, I noticed a

> change in my bowels.

> I am not severely constipated, but elimination is

> not quick 'n easy

> like before. My stools are dark and sticky/gluey,

> and smelly.

>

> So I know *something* happened, and that my body is

> trying to clean

> itself. I'd like to help it along, but I am still

> hesitant about

> doing the enema. (Mostly concerned about Set Up -

> trying to figure

> *where* to do it - my bathroom is tiny; *where* to

> hang the bag so it

> doesn't fall in my face during; and worried there

> will be an

> uncontrollable " flood " .) phew!

>

> Lara

>

>

>

>

>

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  • 2 months later...
Guest guest

I'm glad my post didn't totally put you off, !

I can't believe you've never regurged.... you are so lucky! Many of us have had the indignity of having an "stuckage" reverse direction uncontrollably in the presence of others. (I even had one in the middle of a Cracker Barrel restaurant with a friend from work -- fortunately she's an angel!) You'd never believe how uncomfortable it is to try to dislodge bits of lettuce and crouton from your nasal passages (my regurges tend to be so forceful that they come out my mouth AND my nose.... lovely, huh?).

I agree w/ your GI -- get a barium swallow regularly to make sure the esophagus isn't getting stretched out and just take a "wait and see" approach. If you get to the point that you're carrying a cup around b/c you can't even swallow your own saliva, you know it's time to get some treatment again. ;o)

Debbi in Michigan

Thanks to everyone who has responded! I feel a bit better about the situation. I just didn't know what to expect after dilation to be honest. Biancka I'm sorry to hear about your reoccurring symptoms. Maybe like Debbi said, we can't expect to be symptom free or swallow as any other healthy individual does. It makes sense because we have no peristalsis… it makes perfect sense actually. What has your GI/surgeon said about your symptoms? No I haven't had the myotomy, I decided that I would give dilations a chance to post pone surgery because I want that as a last resort. I told my GI doctor I only want 2 dilations max, then I would go to a surgeon. And since this is dilation #1, I have one more to try then that's it. I talked to my GI dr. here in MI and she said to make sure you keep a close eye on the E by doing Ba swallows and manometry because that is the best indicator as to how the E is doing…NOT by symptoms alone. She said life long treatment and testing is needed in order to prevent worsening of the esophagus body.Thank you Debbi for your input. It sounds like you've had much success with your treatments! Maybe that stuck feeling is okay as long as it's brief and doesn't cause regurgitation (regurging I have yet to experience thankfully-and hopefully won't!!!) You have a good way of putting things into perspective! And no, you didn't depress me… Just like everyone, there's good days and bad days!Biancka please keep us posted on your treatment! I hope everything works out! from Michigan

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