Guest guest Posted January 28, 2006 Report Share Posted January 28, 2006 .. > > The problem is I need something " brain fog proof! " Try making up a weak salt (NaCl) solution. If that tastes good it means that you need more sodium. Try making up a weak salt substitute solution (KCl). If that tastes good it means that you need more potassium. It's the sodium that I need the most. I found something in an old med text that says that people with 's need 5 - 20 g salt per day (that's a lot, people on florinef might not need that much). I find that I can cut the brain fog by drinking electrolytes every day. Salt and salt substitute are one way. Alka Seltzer gold is another way. I have been making up my own mix with baking soda, salt substitute, and citric acid. I have to drink it every day. I also found something called 'pocari sweat', a canned electrolyte drink from Japan (in oriental shops). (That is to take when I am out, for when I get brain fog while driving J >I > keep forgetting to set alarms, forgetting to keep them > with me, etc! > > ANY HELP OR IDEAS WOULD BE GREATLY APPRECIATED. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2006 Report Share Posted January 28, 2006 , You are already doing a lot to remind yourself. Maybe you need to get more in the habit of thinking about it frequently through the day - what time is it, when do I need to take my next dose, where will I be and what will I be doing when it's time for that dose (to the best of your ability to predict). Maybe put a little note or sticker on your phone to remind yourself to think about dose time before you make or answer a call. You could keep a large pill box in a pocket - large, so you are aware of it and feel the bulk frequently, so it will remind you to think about when your dose is due. Another idea would be to set one timer to beep every hour, so if you do miss a dose, you'd be reminded an hour later and that might remind you. And the extra beeps would just remind you to think about it and say to yourself " let's see, this is the first hour since my last dose, I need to take again in two hours " . I guess I've gotten used to thinking of it so often between doses that, even if I forget a dose, I think of it within an hour or so and can still take it. -- > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2006 Report Share Posted January 28, 2006 --- wrote: > , > > You are already doing a lot to remind yourself. The problem is it isn'tn working, because I forget to set the reminders or take them with me I am so upset about this! > Maybe > you need to get more in the habit of thinking about > it > frequently through the day - what time is it, when > do > I need to take my next dose, where will I be and > what > will I be doing when it's time for that dose (to the > > best of your ability to predict). Okay. That is a good suggestion too; the hard part is that then I really wouldn't be able to get anything else done (if I just had to watch the clock for the pill). I am pretty much able to think of one thing at a time!!!! > > Maybe put a little note or sticker on your phone to > remind yourself to think about dose time before you > make or answer a call. > > You could keep a large pill box in a pocket - large, > > so you are aware of it and feel the bulk frequently, > so > it will remind you to think about when your dose is > due. I just feel SO stupid -- your ideas sound really good (like logical and stuff) it is just SO hard for me to remember, especially if I get doing something else. It would basically mean I would have to CONSTANTLY think " DMSA, DMSA, DMSA " over and over in my head. This is so discouraging - it doesn't seem like everyone else has so much trouble jsut reembering to take the pill!!! > > Another idea would be to set one timer to beep every > > hour, so if you do miss a dose, you'd be reminded an > > hour later and that might remind you. And the extra > > beeps would just remind you to think about it and > say to yourself " let's see, this is the first hour > since my last dose, I need to take again in two > hours " . I do have my watch alarm set to this, the problem I'm having is it is NOT loud and aparently I dont hear it when I have my coat on over it. Also, sometimes I dont even NOTICE it because it just softly goes " beep beep " . I wish there was something that went " crash, bang, crash>....etc " over and over very loudly. I can't figure out what to do because any alarm clocks I know of just have 1 or at most 2 alarms. Plus only the " plug in " kind keep going till you turn them off. Not that it would really be that much easier to carry around an alarm clock, I'd probably jsut forget it too!!! I am thinking about maybe getting 6 alarm clocks and setting 2 each to these times (that I would always be asleep) midnight 3am 6am Don't know if that is overkill or not but at least that way I won't have to keep re-doing in the middle of the night... But I can't think of what to do during the day. Any ideas on what to do with that invisible clock http://www.invisibleclock.com/ (I have an older version but similar) I had been cliping it to my waistband; but took it off (like to sleep or something). Anywhere to just attach it to me so I stop forgetting it? I was thinking of cliping it to my sock, but not sure that it would stay. I am getting really discouraged at this. I really want to do the DMSA chelation, but doesn't seem like it is really possible to do safely if I can't come up with something to remind me to take the doses, and don't remember them otherwise. > > I guess I've gotten used to thinking of it so often > > between doses that, even if I forget a dose, I think > > of it within an hour or so and can still take it. ??????????? Don't understand this. I thought you only had 10 minute leeway either way on a 3 hour schedule. I remembered 40 minutes late so by your schedule could have still done it. So what is the " cutoff time " ...... > > -- > > > > > > > > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2006 Report Share Posted January 28, 2006 --- lindajaytee wrote: > > . > > > > The problem is I need something " brain fog proof! " > > > > > Try making up a weak salt (NaCl) solution. If that > tastes good it > means that you need more sodium. Salt right out of the shaker tastes WONDERFUL to me Try making up a > weak salt substitute > solution (KCl). If that tastes good it means that > you need more > potassium. Hmmmm will have to get some; I dont have any. > > It's the sodium that I need the most. I found > something in an old med > text that says that people with 's need 5 - > 20 g salt per day > (that's a lot, people on florinef might not need > that much). Oh wow, I wonder how much that is like in teaspoons. > > I find that I can cut the brain fog by drinking > electrolytes every > day. Salt and salt substitute are one way. Alka > Seltzer gold is > another way. Oh, okay. I had gotten some when you mentioned it before. How many did you do per day? I have been making up my own mix with > baking soda, salt > substitute, and citric acid. Where do you get citric acid? Thanks for the electrolyte ideas. That might help too. I had been getting REALLY bad leg cramps (and not just usual muscle spasms but really hurts!!!) Could that mean too that I need more of the electrolytes??? Any other " reason " for this.... Any other ideas for being able to remember to take the DMSA? I have to drink it > every day. I also > found something called 'pocari sweat', a canned > electrolyte drink from > Japan (in oriental shops). (That is to take when I > am out, for when I > get brain fog while driving > > > J > > > > > > >I > > keep forgetting to set alarms, forgetting to keep > them > > with me, etc! > > > > ANY HELP OR IDEAS WOULD BE GREATLY APPRECIATED. > > > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2006 Report Share Posted January 28, 2006 I'm sorry I wasn't very helpful about how to remember to take your dose. The only other thing I can think of is - aren't there phone services that provide " wake-up calls " ? I don't know anything about this, but if you can find a service like this who would call you during the day at dose times, that might help. If you always have your phone with you, this would be an additional reminder. Just a thought. Also, yes, I think you can take a dose up to an hour late. That is the rule that I think Andy has stated. You don't want to do this too often, so you still want to aim for the proper time. -- > > > > > > > > > __________________________________________________ > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2006 Report Share Posted January 29, 2006 , sorry you've been having trouble remembering your dose. Hopefully, as it becomes more routine, it will be easier. I've been using my cell phone as an alarm. I don't talk on it very often, the alarm is easy to set, and it's fairly easy to remember to carry my phone with me. I try to get in the habit of turning the alarm off, taking my pill, then resetting the alarm to the next time. I also have a basket sitting on the kitchen counter with the pill boxes in it, and the water bottles for the kids & I. That's a visual reminder that is helpful. I also found a small kitchen timer on Amazon.com for about 15 bucks. It can be set for hours, comes with a magnet and also a string to hang on your neck. It's loud! The doses I have the hardest time with are the ones I take at work. I work in a loud, busy restaurant and sometimes I can barely hear the alarm on my watch. Also, my watch alarm will only sound for so many seconds and then it is done. I have to enlist the help of coworkers and write myself reminder notes so I don't forget a dose. It's not possible to set my cell phone to vibrate alarm only; that would be good if I could. Good luck, and keep trying things out. in Illinois Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2006 Report Share Posted January 29, 2006 , Its not your fault, you had some really good ideas on thinking it through. I jsut wish it wasn't so hard for me. Interesting thought on the " wake up calls " I had never heard of that, I will have to check into it. Good idea! I am going to try to use your idea about " thinking it through " too. Maybe with ALL these ideas something will work! --- wrote: > I'm sorry I wasn't very helpful about how to > remember to take > your dose. The only other thing I can think of is - > aren't > there phone services that provide " wake-up calls " ? > I don't > know anything about this, but if you can find a > service like > this who would call you during the day at dose > times, that > might help. If you always have your phone with you, > this > would be an additional reminder. Just a thought. > > Also, yes, I think you can take a dose up to an hour > late. > That is the rule that I think Andy has stated. You > don't > want to do this too often, so you still want to aim > for > the proper time. > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2006 Report Share Posted January 29, 2006 >Interesting thought on the " wake up calls " I had never >heard of that, I will have to check into it. Good >idea! Here's an idea that shows you how much of a geek I am: Most computers have a utility that allows you to schedule " tasks " (on UNIX machines, it's called " cron " ). Most computers also allow you to send faxes. Combine the two and you have an automated scheduled phone dialer (you can send yourself a one page " junk fax " ). Just a thought. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2006 Report Share Posted January 29, 2006 > Any ideas on what to do with that invisible clock > http://www.invisibleclock.com/ > (I have an older version but similar) > I had been cliping it to my waistband; but took it off > (like to sleep or something). Anywhere to just attach > it to me so I stop forgetting it? I was thinking of > cliping it to my sock, but not sure that it would > stay. I take my invisible clock out of the clear plastic holder and keep it in my pocket. I leave it in beep mode during the day. At night I strap it to my arm and put it in vibrate mode. At night I also wear a vibrating watch, which unfortunately only has two alarm settings. I take a dose at 11pm, go to bed, have the watch and the invisible clock set for 2am and 5am, and then just the invisible clock for 8am. My invisible clock handles 9 alarms per 24 hours (maybe 1 more, I've forgotten.) With this method I just leave the alarms set at the same times and never change them. In other words, this works well enough that I don't get my doses late, so re-setting the timer is not necessary. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2006 Report Share Posted January 29, 2006 ...... > >I found > > something in an old med > > text that says that people with 's need 5 - > > 20 g salt per day > > (that's a lot, people on florinef might not need > > that much). > > Oh wow, I wonder how much that is like in teaspoons. 1 tsp is about 10 g (I think) > > Alka > > Seltzer gold. > > Oh, okay. I had gotten some when you mentioned it > before. How many did you do per day? > I took 2 pkg (4 tablets) a day for about a month, then tried other electrolyte solutions. > >Where do you get citric acid? health food store > I had been getting REALLY bad leg cramps (and not just > usual muscle spasms but really hurts!!!) Could that > mean too that I need more of the electrolytes??? Any > other " reason " for this.... Maybe more calcium and/or magnesium? http://www.merck.com/mmhe/sec12/ch155/ch155a.html > >Any other ideas for being able to remember to take the > >DMSA? > > My memory is worse than yours, believe me! The thing is that since I have been taking electrolytes I actually remember the odd thing! I have a pill minder box that I lay out all the ALA for a 3 day round and I have each compartment marked with the time. I have another container for the DMPS. I just have to look at the boxes, and the time and I know if I missed a dose ,and when the next dose is. If the next dose is less than 2 h away, I set a count down timer (I have them everywhere). I keep going if I have only missed the dose by an hour, and I have only done that a couple of times. I get someone to wake me for the 1 am dose. I have 2 alarms, one for the 4 am dose and one for the 7 am dose. So far so good. By the end of 3 days I have reached my limit. Hope that there is something in this that helps. J > > > The problem is I need something " brain fog proof! " > > > > > > > > > > Try making up a weak salt (NaCl) solution. If that > > tastes good it > > means that you need more sodium. > > > Salt right out of the shaker tastes WONDERFUL to me > > > > Try making up a > > weak salt substitute > > solution (KCl). If that tastes good it means that > > you need more > > potassium. > > > Hmmmm will have to get some; I dont have any. > > > > > It's the sodium that I need the most. I found > > something in an old med > > text that says that people with 's need 5 - > > 20 g salt per day > > (that's a lot, people on florinef might not need > > that much). > > Oh wow, I wonder how much that is like in teaspoons. > > > > > > I find that I can cut the brain fog by drinking > > electrolytes every > > day. Salt and salt substitute are one way. Alka > > Seltzer gold is > > another way. > > Oh, okay. I had gotten some when you mentioned it > before. How many did you do per day? > > > > I have been making up my own mix with > > baking soda, salt > > substitute, and citric acid. > > Where do you get citric acid? > > > > > Thanks for the electrolyte ideas. That might help too. > > I had been getting REALLY bad leg cramps (and not just > usual muscle spasms but really hurts!!!) Could that > mean too that I need more of the electrolytes??? Any > other " reason " for this.... > > > > Any other ideas for being able to remember to take the > DMSA? > > > > > > I have to drink it > > every day. I also > > found something called 'pocari sweat', a canned > > electrolyte drink from > > Japan (in oriental shops). (That is to take when I > > am out, for when I > > get brain fog while driving > > > > > > J > > > > > > > > > > > > >I > > > keep forgetting to set alarms, forgetting to keep > > them > > > with me, etc! > > > > > > ANY HELP OR IDEAS WOULD BE GREATLY APPRECIATED. > > > > > > > > > > > > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2006 Report Share Posted January 29, 2006 > 1 tsp is about 10 g (I think) According to info I found via search (several sources), 1 tsp is 2.4 grams. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2006 Report Share Posted January 30, 2006 My problem is a little different, but maybe something in it will spark an idea that will help somebody. I used to often sleep through the alarm I had set at nightat night, and so I hooked up a brignt light right by my beside to the same timer that I had the radio set to, and bingo. The blast of light along with the loud radio wakes me up every time whereas, jsut the radio alarm would not do it. ~Inga > , > > Its not your fault, you had some really good ideas on > thinking it through. I jsut wish it wasn't so hard for > me. > > Interesting thought on the " wake up calls " I had never > heard of that, I will have to check into it. Good > idea! > > I am going to try to use your idea about " thinking it > through " too. Maybe with ALL these ideas something > will work! Quote Link to comment Share on other sites More sharing options...
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