Guest guest Posted January 13, 2000 Report Share Posted January 13, 2000 [This message is not in displayable format] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2000 Report Share Posted January 18, 2000 - see I told you this group was great! is giving you some very good advice here. Re: rheumatic New Member, Also From: Trickey <jrtrick@...> Dear , Hi, I'm Trickey. I've been on the AP since May '99. My symptoms started in Jan. '99 and it took 3 months to get a diagnosis of rheumatoid arthritis. I started on the abx the next month. I had a herx reaction for a week that was very bad(could barely get out of bed, couldn't walk more than a few feet at a time) after the initial round of clindamycin IV's. After that it's been a slow process, but I am getting some better. I believe I will continue to improve but it takes time. As for being tired, well that will improve too but you will probably have times when you wonder. I got kinda discouraged after about 3 months and asked my rheum if we should be doing something else too and he told me that you have to look at it in blocks of time, not day to day. Ask yourself in 3 months, are you better overall than you were before you started treatments? I had to answer yes even though there are some really bad days thrown in there. I have found my really bad days decreasing though and I'm guessing you will too. Hang in there and keep us up to date. Write when you get depressed or if you're having a really good day, just to share it. I love reading how everyone else is doing and it helps me measure my own progress. This is the greatest group of people. Remember that unless someone has experienced being in constant pain for a long time they can't really understand how you feel. My family is wonderful and sympathetic but really only the people here know how it feels and just knowing your not alone I hope is a comfort to you. Believe me I understand that you're sick and tired of being sick and tired! As I'm sure you've noticed you get both inspiration and imformation on this list and if you need an extra dose of the former subscribe to the APChat list too. I'll be praying for your speedy recovery and a day filled with energy! .... T. Bob Fain wrote: From: Bob Fain <BobFain@...> Dear Group, I am a new member, scleraderma, AP one month, and have found your site to be a life saver. Ordinary people like me making our way. I say this because I am in Billings, Montana and there is no support group here much less an understanding community. I do have good friends who are wonderful and a supportive family with the exception of a teenage son who tells me I'm not much good for anything these days as all I want to do is sleep. That hurts. However, it is true that all I want to do is sleep. How long did this phenomenon last for you? Any advice? --------------------------- Quote Link to comment Share on other sites More sharing options...
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