Guest guest Posted January 12, 2000 Report Share Posted January 12, 2000 I didn't know we started at the same time. I thought you were in remission? Dr. Franco offered a few things to me, and I will be talking with him in a few weeks when my other tests come in. I am putting together a list of questions for that phone consult which I will mail to him beforehand so I can try to be really effective. He said that usually he finds that people with symptoms that are harder to pin down have a, in general, more assured positive response to the AP than those people with very obvious diagnosis and symptoms--I took this to mean that the disease isn't so entrenched in the system i.e. genetic markers, history in the family, etc. He also scolded me, in a nice way, some for simply starting the therapy based on the web site recommendations, or trying to increase my dose (I could only make it up to 100mg/day without severe fatigue and depression) without seeing him first. He said that every case is individual and that it needs to be considered that way. You did call it right! And you got me thinking too about that original diagnosis of PA, which never felt right to me to begin with. He said my RA was from, he thought, the various infections I had (Who knows which one because I had bacterial and parasitic). He said there could be some hidden infection now but most likely it was just a trigger. I asked about other antibiotics and he downplayed them, but he did want to see my reactive arthritis test back first before he made that decision. (That was an expensive test! $350.00!). If you can think of some good questions I should ask, let me know, I'll try and add to my list. ---------- > Date: Mon, 10 Jan 2000 22:35:22 -0600 From: " Elbows " <elbows@...> Subject: Re: Dr. Franco visit Hi, , You and started the AP at about the same time, I think, and I remember wondering if you didn't have reactive arthritis, which is my diagnosis. You may recall that we even had yeast infections of the skin at about the same time. So, I am really glad to see what Dr. Franco has had to say. Did he say anything specifically about the effectiveness of minocycline for ReA? Why did he say no more than 5 days a week? Did he say how and when he would consider adding another antibiotic? Thanks for anything you can share. Jean ---------- >From: " Patten " <leslie@...> >Rheumatic <Rheumaticonelist> >Subject: rheumatic Dr. Franco visit >Date: Mon, Jan 10, 2000, 10:13 PM > > From: " Patten " <leslie@...> > > Hi group, > Just came back from a first visit with Dr. Franco. He changed my diagnosis > to Reactive Arthritis and did lots of tests and x-rays (my tests always look > good, and these basically did too.) He did not want me to take minocin > every day, but instead told me to go back to monday, wednesday, and friday > at 200mg. He specifically said 200 mg. no more than 5 days and no less than > 3 days. He felt that it would take at least a year before there was > symptomatic improvement, and that I could be on the minocin for up to 5 > years. > > I felt it was well worth seeing him, since my local doctor and I have been > trying to figure out which antibiotic to add next and what dose of minocin I > should be on. If nothing else, his experience and expertise helped me to > relax. He's a very nice, caring man. He also suggested a product called > Collagenics from Metagenics. > > P. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2000 Report Share Posted December 11, 2000 Just in case anyone want's to know more about karatoconus here is the website. http://www.nei.nih.gov Claude Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2000 Report Share Posted December 11, 2000 I found another website about Kerotoconus. http://www.theclsa.com/pratt.htm Claude Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2003 Report Share Posted October 24, 2003 Pam s remark was scarey..If I would of heard this and just got diagnosed before I found this group..I would of FREAKED !! Because as it was I was scared,I knew nothing about HepC.. I knew she had it and Naomi Judd,but hey didnt look ill,so I didnt think much about it until,I tested positive and my hubby..Who knows why Pam did that? You would think she would be well informed about HepC for her health sake..I would guess publicity..Shes no dummy..But I wonder with these celebs alot of times,do they really have it,or is it a publicity thing? PERIOD...I have seen her on shows and she never talked about HepC..I last saw her about a month ago on the Sharon Osbourn show..She looked well.They didnt speak of the Hep C...I wish she would bring the attention it needs to it!! Ive learned alot threw LeighAnn and this group and books,plus enternet...I would love to hear what the Liver Association says..about Pams Comment..Yes she might have only ten fifteen years if she is drinking alot adding fuel to the fire!! This will problely be in the Enquirer or Star Magazine..Looks lke Tommy and her are getting back together... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2004 Report Share Posted February 18, 2004 RE: Socks - A VA gave me a pull-on sock device years ago. I use it daily. It really helps. It is not expensive. It is a device where you put the sock on about three inches an it sticks to the material. It has two straps that you pull once you have the device in place. I am sure that it is available. Ask your doctor, therapist or any other med office or center. Jim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2004 Report Share Posted February 18, 2004 Gosh, all this chat about tools to help reminds me! I have a " grabber " in nearly every room in the house. I also use the long shoe horn that was given to me after my original surgery. For one reason or another, I am among the throngs who have problems shaving the legs! Carole M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2005 Report Share Posted July 15, 2005 Donna, I agree KV's earlier workouts are just to much for me to handle coordination wise, though I love her real stuff. I have gotten better handling a step and maybe some day I'll pop them in the VCR (I have to buy a new one first) and get it right off the bat. The Firm videos use to intimidate me, I sat on them for a year or two and boy am I glad I pulled them back out! Can't decide, today may be a rest day. I think I have been over training because I get my period twice a month. UGH!!!!!!! a -- _______________________________________________ NEW! Lycos Dating Search. The only place to search multiple dating sites at once. http://datingsearch.lycos.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2006 Report Share Posted January 24, 2006 In a message dated 1/24/2006 3:17:50 PM US Mountain Standard Time, neck pain writes: Message: 9 Date: Tue, 24 Jan 2006 09:05:18 -0500 From: " Gehle" <robgehle@...>Subject: Re: Digest Number 597The doctor that gave me the epidural, that didnt work either time, was also the doctor that did my discotemy/lamenectomy and the only reason i can think of for him not to mention this to you would be because your young for surgery. dont know if thats true, i was 30 and he told me that. those epidurals did nothing for me. good luck i know it hurts.rob Hi Rob, Thanks for answering. I'm "not" young! Almost 59 yrs. old. I have a sick husband with dementia & I "have" to be able to take care of him. I can't in this shape and he can't take care of me because of his illness. I think I am going to ask the Doc about surgery. If I stay like this I will become bedridden & I'm just not going to let that happen. Thanks again, Shari Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2006 Report Share Posted January 28, 2006 good luck, sorry-my memory really sucks these days. I hope they can help you so you can continue to function and support your husband. I know its not the same, but my wife had surgery very shortly after i did and it was a mess so i can understand the need for someone to be healthy enough to run th household. sorry again for not remembering your situation- no excuse rob >> > > >Hi Rob, >Thanks for answering. I'm " not " young! Almost 59 yrs. old. I have a >sick >husband with dementia & I " have " to be able to take care of him. I can't >in >this shape and he can't take care of me because of his illness. I think I >am going to ask the Doc about surgery. If I stay like this I will become >bedridden & I'm just not going to let that happen. >Thanks again, >Shari _________________________________________________________________ Don’t just search. Find. Check out the new MSN Search! http://search.msn.click-url.com/go/onm00200636ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2006 Report Share Posted January 28, 2006 good luck, sorry-my memory really sucks these days. I hope they can help you so you can continue to function and support your husband. I know its not the same, but my wife had surgery very shortly after i did and it was a mess so i can understand the need for someone to be healthy enough to run th household. sorry again for not remembering your situation- no excuse rob >> > > >Hi Rob, >Thanks for answering. I'm " not " young! Almost 59 yrs. old. I have a >sick >husband with dementia & I " have " to be able to take care of him. I can't >in >this shape and he can't take care of me because of his illness. I think I >am going to ask the Doc about surgery. If I stay like this I will become >bedridden & I'm just not going to let that happen. >Thanks again, >Shari _________________________________________________________________ Don’t just search. Find. Check out the new MSN Search! http://search.msn.click-url.com/go/onm00200636ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
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