Guest guest Posted October 15, 2000 Report Share Posted October 15, 2000 Hi Jody, I know what your mean. There are too many people involved who stand to directly profit from the outcomes of the studies. Same with the journal articles. The new Life Extension (link on my website) has an article about the articles listed in Medline. They rarely list stuff beneficial to the alt med market even though there may be many journal articles proving the worth of certain herbs, etc. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2001 Report Share Posted March 12, 2001 , I think it is they have so little knowledge of the thyroid, just happens that *some* of them are jerks on top of it. The frustration we all feel because of the attitudes I think is the worst. Why can't they just SAY they don't know much about it, agree to work WITH us instead of coming off as the 'know all be all' to our treatment that doesn't work. Wouldn't it be nice to beable to get them all together with several hundred GD patients, gag them so they can't talk and HAVE to listen, prod them if they fall asleep...maybe then we could at least reach some of them. Either that or find a way for them to live with this disease for awhile. Both are impossible I know, but I can dream, can't I? 0- I can't complain with the endo I have now though, she does listen, she admits they don't know it all, and she is willing to work as a team. I got lucky, but it took years and 3 drs. later. Take care, Jody _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2001 Report Share Posted March 12, 2001 , I think it is they have so little knowledge of the thyroid, just happens that *some* of them are jerks on top of it. The frustration we all feel because of the attitudes I think is the worst. Why can't they just SAY they don't know much about it, agree to work WITH us instead of coming off as the 'know all be all' to our treatment that doesn't work. Wouldn't it be nice to beable to get them all together with several hundred GD patients, gag them so they can't talk and HAVE to listen, prod them if they fall asleep...maybe then we could at least reach some of them. Either that or find a way for them to live with this disease for awhile. Both are impossible I know, but I can dream, can't I? 0- I can't complain with the endo I have now though, she does listen, she admits they don't know it all, and she is willing to work as a team. I got lucky, but it took years and 3 drs. later. Take care, Jody _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2001 Report Share Posted March 13, 2001 gag em would be a good idea. remember mine saying " there are alot of people locked up in mental institutions with nothing wrong but an untreated thyroid " , because i was reluctant to do RAI. also saying i couldnt stay on PTU because it would damage my liver and kill my white blood cells and i could end up with luekemis!!!!!!1 geez!!!!! unfortunatly he is the only endo for two hours north or four hours south! he also made it clear how " experienced " he was. like there are only 6 reported cases of blah blah blah and i have treated 2 of them. we have to use our own inner voice because their outer one doesnt work! donna --- Jody Spitale wrote: > , > I think it is they have so little knowledge of the > thyroid, just happens > that *some* of them are jerks on top of it. The > frustration we all feel > because of the attitudes I think is the worst. Why > can't they just SAY they > don't know much about it, agree to work WITH us > instead of coming off as the > 'know all be all' to our treatment that doesn't > work. > > Wouldn't it be nice to beable to get them all > together with several hundred > GD patients, gag them so they can't talk and HAVE to > listen, prod them if > they fall asleep...maybe then we could at least > reach some of them. Either > that or find a way for them to live with this > disease for awhile. Both are > impossible I know, but I can dream, can't I? 0- > > I can't complain with the endo I have now though, > she does listen, she > admits they don't know it all, and she is willing to > work as a team. I got > lucky, but it took years and 3 drs. later. > Take care, > Jody > > > > _________________________________________________________________ > Get your FREE download of MSN Explorer at > http://explorer.msn.com > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2001 Report Share Posted March 13, 2001 gag em would be a good idea. remember mine saying " there are alot of people locked up in mental institutions with nothing wrong but an untreated thyroid " , because i was reluctant to do RAI. also saying i couldnt stay on PTU because it would damage my liver and kill my white blood cells and i could end up with luekemis!!!!!!1 geez!!!!! unfortunatly he is the only endo for two hours north or four hours south! he also made it clear how " experienced " he was. like there are only 6 reported cases of blah blah blah and i have treated 2 of them. we have to use our own inner voice because their outer one doesnt work! donna --- Jody Spitale wrote: > , > I think it is they have so little knowledge of the > thyroid, just happens > that *some* of them are jerks on top of it. The > frustration we all feel > because of the attitudes I think is the worst. Why > can't they just SAY they > don't know much about it, agree to work WITH us > instead of coming off as the > 'know all be all' to our treatment that doesn't > work. > > Wouldn't it be nice to beable to get them all > together with several hundred > GD patients, gag them so they can't talk and HAVE to > listen, prod them if > they fall asleep...maybe then we could at least > reach some of them. Either > that or find a way for them to live with this > disease for awhile. Both are > impossible I know, but I can dream, can't I? 0- > > I can't complain with the endo I have now though, > she does listen, she > admits they don't know it all, and she is willing to > work as a team. I got > lucky, but it took years and 3 drs. later. > Take care, > Jody > > > > _________________________________________________________________ > Get your FREE download of MSN Explorer at > http://explorer.msn.com > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2001 Report Share Posted March 13, 2001 Donna, Then endo that is 2 hours north of you might be worth a shot. I now drive 90 minutes to get to my new endo, as much as I hate the drive and the highway traffic it is so worth it to me. Something to think about. Are you in the states? Take care, Jody _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 13, 2001 Report Share Posted March 13, 2001 > > gag em would be a good idea. remember mine saying > " there are alot of people locked up in mental > institutions with nothing wrong but an untreated > thyroid " , because i was reluctant to do RAI. also > saying i couldnt stay on PTU because it would damage > my liver and kill my white blood cells and i could end > up with luekemis!!!!!!1 geez!!!!! unfortunatly he is > the only endo for two hours north or four hours south! > he also made it clear how " experienced " he was. like > there are only 6 reported cases of blah blah blah and > i have treated 2 of them. we have to use our own inner > voice because their outer one doesnt work! > > donna Arguments given by endos can be as " scientific " as these ones mentioned by Donna. I think it's worth analyzing them, and comment them at our atomicwomen's website. Would you mind emailing me and let me know the arguments that your docs made to convince you to drink the atomic cocktail?. It doesn't matter if you did not accept... My email addy: j_alicia39@... Thanks in advance for your cooperation. A. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2001 Report Share Posted March 15, 2001 thanks jody. yes i am in the states. the north is st louis and south is memphis. yuk to both. but i would go to st loius if it was feasable. i have 4 children a mom dad and 98 yr old gram that i take care of. there is no day off or time for 8 hours of doc/driving. if all else fails, i will enlist the help of my WONDERFUL ENT guy that did the two surgeries to remove bad lymph nodes. i trust him and feel securely that he would work with me on this too. you have to love a doc that takes time between surgeries to come find which masked face is mine( i work in OR)and grab it " let me make sure that new lump hasn't grown " or " no new lumps are there? " in an age where the typical doc in OR throws things, yells, and physically abuses the nurses, he is a breath of fresh air. yes did ya'll realize that this is the way the docs act when you are under? ssssshhhhhhh we are not supposed to discuss things like that, gee i might get fired. donna --- Jody Spitale wrote: > Donna, > Then endo that is 2 hours north of you might be > worth a shot. I now drive > 90 minutes to get to my new endo, as much as I hate > the drive and the > highway traffic it is so worth it to me. Something > to think about. Are you > in the states? > Take care, > Jody > _________________________________________________________________ > Get your FREE download of MSN Explorer at > http://explorer.msn.com > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2001 Report Share Posted March 15, 2001 thanks jody. yes i am in the states. the north is st louis and south is memphis. yuk to both. but i would go to st loius if it was feasable. i have 4 children a mom dad and 98 yr old gram that i take care of. there is no day off or time for 8 hours of doc/driving. if all else fails, i will enlist the help of my WONDERFUL ENT guy that did the two surgeries to remove bad lymph nodes. i trust him and feel securely that he would work with me on this too. you have to love a doc that takes time between surgeries to come find which masked face is mine( i work in OR)and grab it " let me make sure that new lump hasn't grown " or " no new lumps are there? " in an age where the typical doc in OR throws things, yells, and physically abuses the nurses, he is a breath of fresh air. yes did ya'll realize that this is the way the docs act when you are under? ssssshhhhhhh we are not supposed to discuss things like that, gee i might get fired. donna --- Jody Spitale wrote: > Donna, > Then endo that is 2 hours north of you might be > worth a shot. I now drive > 90 minutes to get to my new endo, as much as I hate > the drive and the > highway traffic it is so worth it to me. Something > to think about. Are you > in the states? > Take care, > Jody > _________________________________________________________________ > Get your FREE download of MSN Explorer at > http://explorer.msn.com > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2001 Report Share Posted March 16, 2001 Hi , Is your endo quite old by chance? Maybe he quit keeping up with continuing education in about 1968. The autoimmune nature of GD has been documented since then. Isn't Dr. Rose great? I interviewed him for my book, and he was very gracious in sharing info. I'd like to have heard his lecture. I had heard something about testosterone as a treatment for AD but need more info. Used as a gel, it has a very protective effect on the heart too. And my compounding pharmacist recommended I have it added to my HRT formulation. As for the fetal cells, they've been definitely linked to scleroderma, but I hadn't heard of any other autoimmune disease involvement. Have you? Hope your animals are happy and well-fed, Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2001 Report Share Posted March 16, 2001 Hi , Is your endo quite old by chance? Maybe he quit keeping up with continuing education in about 1968. The autoimmune nature of GD has been documented since then. Isn't Dr. Rose great? I interviewed him for my book, and he was very gracious in sharing info. I'd like to have heard his lecture. I had heard something about testosterone as a treatment for AD but need more info. Used as a gel, it has a very protective effect on the heart too. And my compounding pharmacist recommended I have it added to my HRT formulation. As for the fetal cells, they've been definitely linked to scleroderma, but I hadn't heard of any other autoimmune disease involvement. Have you? Hope your animals are happy and well-fed, Elaine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2001 Report Share Posted March 20, 2001 Hi , " By the way insulin resistance is not necessarily the precondition of diabetes. " No it's not, but there's a big number of insulin resistent patients that go on to develop diabetes. I'm happy to not have 2 risk factors (insulin resistance and genetics) but as said, I don't have any history of autoimmune disease in my family either and I have an autoimmune disease. They do think that they might be able to keep people from developing diabetes by treating any associated problems before it develops. It remains to be seen whether this will work or not and I sure don't know how you'd design a study for it. To leave any condition untreated that they know that they can help is unethical. They're sure about the Graves' though for me. I still have proptosis (TED) at 27 mm and that is down from 30 something which is caused by antibodies (like the thyroid portion of the disease-or the pretibial myxodema). One thing though, is what if there is more than one cause for the disease? They acknowledge this for PCOS (where they have no idea at all what causes it). PCOS is often hereditary but not always. For example, what if there are 2 or 3 factors in conjunction that can cause Graves'? For example, genetics, stress, illness, immune system hyperstimulation and environment/diet might influence it. And if you have any combo of 2 or 3, you can contract Graves'. That's another explanation of why it may run in many of our families and in others it doesn't. Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2001 Report Share Posted March 20, 2001 Oh I meant to say that I have found that some of that tingling is the ADT's. However I have found that this winter my toes and my figers seemed to become very cold quicky. Has anyone else (non diabetic please) found this problem? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2001 Report Share Posted March 21, 2001 Hi - I found a theory about genomic imprinting on the net but it just talks about how traits aren't inherited equally from the father and the mother. They also discuss how " dreadful " some of the imprinting theories are (there are several) and that many disagree with it. This is a reputable source (Natural History) http://www.findarticles.com/cf_1/m1134/n1_v107/20517883/p1/article.jhtml?ter m=. It was pretty neat in that it was saying essentially that the genes from dad might override that of mom's and visa versa (there are 2 copies). Maybe the article you were talking about is referring to the way the hippocampus functions (which is controlled by genes) rather than the hippocampus itself. Anyhow, see what you think. Take care, Re: Re: Graves > , I will send you a better explanation. I msut go to work. Yes > imprinting is a very strange concept but it is the new genetics. > > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > > Quote Link to comment Share on other sites More sharing options...
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