Guest guest Posted April 20, 2000 Report Share Posted April 20, 2000 No, they just appear to be a discoloration. There is a medical term for it, I never can remember what it is. Mine appears to have limited itself, and I don't have it on my shins which may be a more serious sign. Elaine RE: Graves > Eh? This is the first time I've heard of *that* symptom. What does it > mean?? Do they hurt? > > Kari > > >I don't have diabetes and my endo is also always looking at my feet, ankles > and shins for the red pin markings that can be characteristic of Graves. I > have some on the top of my feet. > > ------------------------------------------------------------------------ > Your high school sweetheart-where is he now? With 4.4 million alumni > already registered at Classmates.com, there's a good chance you'll > find her here. Visit your online high school class reunion at: > http://click./1/3139/3/_/585824/_/956247118/ > ------------------------------------------------------------------------ > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2000 Report Share Posted May 6, 2000 >Dyslexia - horrible I've found myself stuttering a bit, from time to time. And there was that spell where I would forget compound words. That seems to be coming back, a little, like the tremors. >Are we saying that even when we are on ATD we still have these lovely symptoms. Yup! Not as horribly, though! It takes a while to work those excess hormones out of your system, I guess. Kari Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2000 Report Share Posted May 6, 2000 From time to time I find myself stuck on how to spell a word, usually simple, have to stop and think a minute, I know how to spell it but just need a minute to get my bearings. I've been on ATD's for over 5 yrs. I am really worried about this national test I will be taking on June 8th, just hoping I won't have graves fog that day. Made it through the last 6 wks. of class, pre-test this coming Tues. The good thing is when I pass this test my husband and I will be partners. It's the same as the EMT, but you don't have to learn all the bones and muscles. This has been a real learning experience for both of us. We were already certified in CPR and first aid. So, say a prayer for me Tues. that I do good on the pre-test, this will be the biggest accomplishment I've done since getting GD. Except for homeschooling my children, been afraid to do to much too afraid I'll get that graves fog. Debbie ---------- > >To: " 'graves_supportegroups ' " <graves_supportegroups> >Subject: RE: Graves >Date: Sat, May 6, 2000, 2:34 PM > > >Dyslexia - horrible > > I've found myself stuttering a bit, from time to time. And there was that > spell where I would forget compound words. That seems to be coming back, a > little, like the tremors. > >>Are we saying that even when we are on ATD we still have these lovely > symptoms. > > Yup! Not as horribly, though! It takes a while to work those excess > hormones out of your system, I guess. > > Kari > > ------------------------------------------------------------------------ > You have a voice mail message waiting for you at iHello.com: > http://click./1/3555/5/_/585824/_/957648798/ > ------------------------------------------------------------------------ > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not > intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2000 Report Share Posted May 6, 2000 From time to time I find myself stuck on how to spell a word, usually simple, have to stop and think a minute, I know how to spell it but just need a minute to get my bearings. I've been on ATD's for over 5 yrs. I am really worried about this national test I will be taking on June 8th, just hoping I won't have graves fog that day. Made it through the last 6 wks. of class, pre-test this coming Tues. The good thing is when I pass this test my husband and I will be partners. It's the same as the EMT, but you don't have to learn all the bones and muscles. This has been a real learning experience for both of us. We were already certified in CPR and first aid. So, say a prayer for me Tues. that I do good on the pre-test, this will be the biggest accomplishment I've done since getting GD. Except for homeschooling my children, been afraid to do to much too afraid I'll get that graves fog. Debbie ---------- > >To: " 'graves_supportegroups ' " <graves_supportegroups> >Subject: RE: Graves >Date: Sat, May 6, 2000, 2:34 PM > > >Dyslexia - horrible > > I've found myself stuttering a bit, from time to time. And there was that > spell where I would forget compound words. That seems to be coming back, a > little, like the tremors. > >>Are we saying that even when we are on ATD we still have these lovely > symptoms. > > Yup! Not as horribly, though! It takes a while to work those excess > hormones out of your system, I guess. > > Kari > > ------------------------------------------------------------------------ > You have a voice mail message waiting for you at iHello.com: > http://click./1/3555/5/_/585824/_/957648798/ > ------------------------------------------------------------------------ > > ------------------------------------- > The Graves' list is intended for informational purposes only and is not > intended to replace expert medical care. > Please consult your doctor before changing or trying new treatments. > ---------------------------------------- > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2000 Report Share Posted May 31, 2000 > Hi my beauties, I was just wondering if allopathic medicine got a better > idea then Dr. Stoll on what causes or triggers Graves or do they have > any explanation at all? Dear beauty rebel Hum.... what about " it is all in your head " theory? Yeaks!. They coincide with Dr Stoll's Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2000 Report Share Posted May 31, 2000 > Hi my beauties, I was just wondering if allopathic medicine got a better > idea then Dr. Stoll on what causes or triggers Graves or do they have > any explanation at all? Dear beauty rebel Hum.... what about " it is all in your head " theory? Yeaks!. They coincide with Dr Stoll's Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2000 Report Share Posted June 1, 2000 Autoimmune Technologies is currently doing work on this, which I found interesting: " Research done at Tulane University Medical Center suggests that Graves' disease may be associated with a retroviral particle called Human Intracisternal A-Type Particle, or HIAP. Antibodies to this particle have been found in a very high percentage of patients with Graves' disease. These antibodies have also been found in a very high percentage of patients with three other autoimmune disorders: systemic lupus erythematosus, Sjögren's syndrome, and juvenile rheumatoid arthritis. Researchers believe that these four disorders may result from the presence of HIAP together with genetic factors and some internal or external stimulus which all combine to dictate the specific symptomatology. " Dianne Wiley > > Hearn wrote: > > > Hi my beauties, I was just wondering if allopathic medicine got a better > > idea then Dr. Stoll on what causes or triggers Graves or do they have > > any explanation at all? > > > > ------------------------------------------------------------------ ------ > > Who else wants to pay half and get free shipping? > > http://click./1/4746/5/_/585824/_/959822232/ > > ------------------------------------------------------------------ ------ > > > > ------------------------------------- > > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > > Please consult your doctor before changing or trying new treatments. > > ---------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2000 Report Share Posted June 1, 2000 Autoimmune Technologies is currently doing work on this, which I found interesting: " Research done at Tulane University Medical Center suggests that Graves' disease may be associated with a retroviral particle called Human Intracisternal A-Type Particle, or HIAP. Antibodies to this particle have been found in a very high percentage of patients with Graves' disease. These antibodies have also been found in a very high percentage of patients with three other autoimmune disorders: systemic lupus erythematosus, Sjögren's syndrome, and juvenile rheumatoid arthritis. Researchers believe that these four disorders may result from the presence of HIAP together with genetic factors and some internal or external stimulus which all combine to dictate the specific symptomatology. " Dianne Wiley > > Hearn wrote: > > > Hi my beauties, I was just wondering if allopathic medicine got a better > > idea then Dr. Stoll on what causes or triggers Graves or do they have > > any explanation at all? > > > > ------------------------------------------------------------------ ------ > > Who else wants to pay half and get free shipping? > > http://click./1/4746/5/_/585824/_/959822232/ > > ------------------------------------------------------------------ ------ > > > > ------------------------------------- > > The Graves' list is intended for informational purposes only and is not intended to replace expert medical care. > > Please consult your doctor before changing or trying new treatments. > > ---------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2000 Report Share Posted June 27, 2000 In a message dated 6/27/00 6:46:56 PM Eastern Daylight Time, ksagen@... writes: << Poor Jewls! Migraines are the worst. What do you do for them? I take a long, hot shower and put a cold cloth on my eyes and go to bed. I hear that Migraine Excedrin stuff works, too. >> Hey Kari, What do I do for them? Nothing but sit and be miserable. I took some of that Excedrin, and it didn't do diddly squat for me. I did take a couple of hot showers, and then followed them by cool compresses, that kinda helped, but it was stilll nasty. I can still feel it today. It was so bad, it even hurt my head to have my eyes closed Hopefully it won't get that bad for a while...if ever!!! Jewls Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2000 Report Share Posted June 27, 2000 In a message dated 6/27/00 8:58:19 PM Eastern Daylight Time, handhranch@... writes: << Maybe it's the weather! I feel for anyone who suffers with them. >> Good point Debbie..maybe so. It was very hot and humid here on Sunday, over exerted myself in the yard. Trying to get it looking decent before we go on vacation. I think that and the added stress at work added to it all. Jewls Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2000 Report Share Posted August 10, 2000 Thanks for the info , and yes I want to know the pro's and the con's of T3...most I have talked to on it have said it is really hard to get regulated, takes time but the one thing all of said is that their minds are back to working so much better. My memory use to be excellant but not since GD and it is probably the most frustrating for me to deal with...I truly need my memory back!!! What did you mean synthroid is easier for most drs. to deal with? I switched from synthrhoid to levethroid in June, went from .088 of synthroid to .10 of levethroid...both the dr. and the pharmascist said the only 'safe' way to switch brands is when the dosage is being increased ... I have been on the levethroid for 5 weeks now but I have to say I am feeling more and more hypo...when my dose was changed earlier in the year I had a dramatic reaction in lots of little ways, my cycles being one of them...so I don't know what is going on. I do go for bloodwork next week though so should know in about 8/9 days what is going on. My new endo is great, she mails me my lab results immediately or will fax them to me. Do you think it was a mistake to switch brands? Just out of curiosity. I only did it because I got on my 'high horse' attitude over the synthroid law-suit <grin> Take care, Jody ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2000 Report Share Posted August 10, 2000 I just wrote articles on lab tests for the ithyroid site and themestream if anyone wants to read them, but basically total thyroid hormone levels refer to the complex of thyroid hormone and protein. Proteins like thyroxine binding globulin (TBG), albumin, and transthyretin hook up with thyroid hormone and circulate it through the blood until there's a need for it. (Linked to protein, however, it's inactive). When thyroid hormone is cleaved from protein, it's the free active portion. We've only been able to measure free hormone levels in the last decade. In the old days we could only measure the complex, so traditionally total levels were performed. Consequently, some docs who have relied on total levels for years are accustomed to them. Also, some remote rural labs haven't updated and only offer the old test. To change procedures could involve buying new equipment, etc. However, alterations in the person's total protein levels affect total thyroid hormone levels, especially T4. People on estrogens and other medications and people with liver problems will have protein changes which elevate the total hormone measurement....falsely, since they're not actually measuring thyroid hormone function or what's available. For that reason, the free hormone concentration is more accurate. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2000 Report Share Posted August 11, 2000 Jody, Yes, ask to be at least put back on Synthroid and make sure you're taking selenium which is needed to convert T4 to T3. Some holistic docs also recommend taking essential fatty acids like flax seed oil with your replacement hormone. Considering that thyroid hormone is fat soluble, this makes sense. Also, omega-3 fatty acids in particular are deficient in hyperT patients, and they're not made in the body. Plus, they're essential for proper brain function. I was up quite late digesting all this info and comparing it to some medline articles I have. It's pretty clear that autism is an autoimmune disease as the U of Michigan guy, and the Japanese and British researchers have demonstrated. And it's clear that autism is caused by vaccines in genetically susceptible children. Not only autism, but juvenile arthritis, Guillain-Barre syndrome and others. And I hadn't been known about the mercury content of vaccines. The autism link is clearly there too. I do recall my children being really sick and holding their heads, being feverish etc. after their vaccines. I wonder if this triggered my doctor's chronic headaches. The fact that the CDC is reporting a rise in autism from 1 in 150 compared to 1 in 4000 children is mind-boggling. And the rising incidence of ADD and ADHD is thought to also be related. I signed up for the FETA newsletter and I'm going to write that Asperger syndrome lady, and I'll check out that other site now. Clearly, I need to be doing more research because this is just the dramatic info I needed for my opening and it's something I need to make people more aware of. Thanks for steering me in this direction. E Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2000 Report Share Posted August 11, 2000 Jody, I just take Armour now. Of course one of my toxicology pals just told me that Armour has been linked to mad cow disease and it can cause other autoimmune conditions. Since it's a foreign protein, I guess this makes sense, and I'll be needing to research this. For now, since I like how it works, that's all I'm taking. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2000 Report Share Posted August 11, 2000 Jody, I just take Armour now. Of course one of my toxicology pals just told me that Armour has been linked to mad cow disease and it can cause other autoimmune conditions. Since it's a foreign protein, I guess this makes sense, and I'll be needing to research this. For now, since I like how it works, that's all I'm taking. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2000 Report Share Posted August 11, 2000 Elaine, Your welcome, if by sharing this information with others it saves one child from ending up with one or more auto-immune diseases then it will be worth it. We are getting a group together now and information to go before the NY State legislature in the late spring (it is so slow moving setting this up) to try to get them to see the light and either 1)give another alternative for electing not to have our children/grandchildren immunized (personnal elective) or 2) remove the state mandates on immunizations until all of the results are in. Here is a site that lists the current state mandates for each state http://www.access1.net/via/STATES/toc-states.htm and this next site is an immunization drug company site that lists everything regarding immunizations...In reading JUST the one on DPT's I was flabergasted. http://www.sb.com/products/usva.html Your new book is something I will be very interestedin, as well as Barbara Loe Fisher may want to beable to sell it from the 909shot site...contact her Elaine, I know she would be willing to assist you in getting to the sites that will help you most. And I believe she has much more on Dr. Wakefield. Oh...can we take Ginko Buloba to help our memories? I do have a call into my endo to switch me back to synthroid...am glad I'm not there for an " I told you so " look I have printed out your post and will get what you suggest, especially in the memory boosting items. Thanks tons. Jody ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2000 Report Share Posted August 11, 2000 Elaine, Your welcome, if by sharing this information with others it saves one child from ending up with one or more auto-immune diseases then it will be worth it. We are getting a group together now and information to go before the NY State legislature in the late spring (it is so slow moving setting this up) to try to get them to see the light and either 1)give another alternative for electing not to have our children/grandchildren immunized (personnal elective) or 2) remove the state mandates on immunizations until all of the results are in. Here is a site that lists the current state mandates for each state http://www.access1.net/via/STATES/toc-states.htm and this next site is an immunization drug company site that lists everything regarding immunizations...In reading JUST the one on DPT's I was flabergasted. http://www.sb.com/products/usva.html Your new book is something I will be very interestedin, as well as Barbara Loe Fisher may want to beable to sell it from the 909shot site...contact her Elaine, I know she would be willing to assist you in getting to the sites that will help you most. And I believe she has much more on Dr. Wakefield. Oh...can we take Ginko Buloba to help our memories? I do have a call into my endo to switch me back to synthroid...am glad I'm not there for an " I told you so " look I have printed out your post and will get what you suggest, especially in the memory boosting items. Thanks tons. Jody ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2000 Report Share Posted August 11, 2000 Elaine, Forgot to ask you, I have a tape of one radio show in which the Director of the Erie County Health Dept. states on it, with family histories of autoimmune diseases immunizations should NOT be started before age 2/3. When I start making copies of this tape (will be a couple of weeks at least) if you would like a copy send me privately your snail mail addie and I will send one out to you. Am also working on getting a copy of a 4 hour radio show talking about this, Dr. Rimlin is on that, Congressman Burton and several others from around the country. Will let you know if I am successful getting it. Jody ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2000 Report Share Posted August 11, 2000 Elaine, Forgot to ask you, I have a tape of one radio show in which the Director of the Erie County Health Dept. states on it, with family histories of autoimmune diseases immunizations should NOT be started before age 2/3. When I start making copies of this tape (will be a couple of weeks at least) if you would like a copy send me privately your snail mail addie and I will send one out to you. Am also working on getting a copy of a 4 hour radio show talking about this, Dr. Rimlin is on that, Congressman Burton and several others from around the country. Will let you know if I am successful getting it. Jody ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2000 Report Share Posted August 11, 2000 Elaine, I find it hard to believe that it is linked with mad-cow disease or CJD as it is is called. My father-in-law died from CJD in 1986 along with another local resident with the same background (age, ethnic and military history) as he had. They suspect that both men picked it up during WWII when they were stationed in Africa, and that it came from *probably* eating monkey brains (a delicacy then). Cleveland Clinic as more information on CJD though I am not sure who to contact there anymore. We were told that the only way to get CJD was to eat diseased organ meat from an animal that had it or to literally take the diseased brain out and play with it. This was in response to how at risk my husband and kids are for this. Even though the risk is very very very small, none of them can donate blood anymore though. I wonder if this mad-cow disease is even the same thing as CJD, which when the scare came out over in England they said it is one in the same. According to Cleveland Clinic, this disease literally turns the brain into a sponge like substance. After watching my father-in-law die with this, I believe that. Jody ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2000 Report Share Posted August 11, 2000 Elaine, I find it hard to believe that it is linked with mad-cow disease or CJD as it is is called. My father-in-law died from CJD in 1986 along with another local resident with the same background (age, ethnic and military history) as he had. They suspect that both men picked it up during WWII when they were stationed in Africa, and that it came from *probably* eating monkey brains (a delicacy then). Cleveland Clinic as more information on CJD though I am not sure who to contact there anymore. We were told that the only way to get CJD was to eat diseased organ meat from an animal that had it or to literally take the diseased brain out and play with it. This was in response to how at risk my husband and kids are for this. Even though the risk is very very very small, none of them can donate blood anymore though. I wonder if this mad-cow disease is even the same thing as CJD, which when the scare came out over in England they said it is one in the same. According to Cleveland Clinic, this disease literally turns the brain into a sponge like substance. After watching my father-in-law die with this, I believe that. Jody ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2000 Report Share Posted August 11, 2000 Jody,' I guess they're thinking that the same virus which affects cows could affect pigs and thyroid gland animal extract could be contaminated. actually, any of the glandular extracts could be i suppose. I didn't pay much attention at the time my friend mentioned this, but I suppose I should at least do some checking. I believe he mentioned encephalitis too, and he works for the county coroner so, hmmm. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2000 Report Share Posted August 11, 2000 Now this is a really scarey thought, especially to those of us who's own thyroids are no longer mfging!!! >Jody,' >I guess they're thinking that the same virus which affects cows could >affect >pigs and thyroid gland animal extract could be contaminated. actually, any >of >the glandular extracts could be i suppose. I didn't pay much attention at >the >time my friend mentioned this, but I suppose I should at least do some >checking. I believe he mentioned encephalitis too, and he works for the >county coroner so, hmmm. ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2000 Report Share Posted August 11, 2000 Now this is a really scarey thought, especially to those of us who's own thyroids are no longer mfging!!! >Jody,' >I guess they're thinking that the same virus which affects cows could >affect >pigs and thyroid gland animal extract could be contaminated. actually, any >of >the glandular extracts could be i suppose. I didn't pay much attention at >the >time my friend mentioned this, but I suppose I should at least do some >checking. I believe he mentioned encephalitis too, and he works for the >county coroner so, hmmm. ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2000 Report Share Posted September 12, 2000 >>I wonder about Gillespie's small meals more frequently philosophy. I wish my brain could get around the science, which is daunting, although I understand about insulin receptors being overloaded and then everything being stored as fat. What does she mean by " meals " ? I've always eaten little bits of stuff, all day long, instead of big meals three times a day. I'm currently over my desired weight, but I'm quite sure that's the Graves talking. I'm generally pretty slim (not skinny...slim...), and I attribute that to my eating habits, which aren't forced. It's how I eat. Little bits, all day. (and no junk food!). Keeps my blood sugar levels from plumetting, by doing that, too. Kari (trying to stay off the cheese....that's what gets ya...imo) Quote Link to comment Share on other sites More sharing options...
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