Re: Pain Management Doctors

[Guest guest]

Hi ,

Sorry you are in so much pain and i don't know where you pain is specifically

but when i went to the pain specialist i don't know if you remember what

happened or not but because of my pain being systemic and so bad in so many

places any ways he said he couldn't help me especially when he found out what

kind of insurance I have and you know what that means.

I'll be glad to call you if you like just let me know when if thats ok its

easier to explain that way.

Love ya,

Jan

============================================================

Date: 2003/09/17 Wed PM 11:17:39 EDT

To: " NS Group " <Neurosarcoidosis >

Subject: Pain Management Doctors

Hey guys, I've had to go this week to my local GP and discuss pain

management with him. I was taking Lortab 7.5 mg 2 tablets at a time and I

usually didn't have to take it but in the late evening and at night...

However, its gotten to where its no more than taking tylenol for me... not

very effective... he started me on lortab 10 mg three times aday........ and

said that if that doesn't work or when it stops working we will need to seek

pain management physican....What do they do? How do they know what will

and will not work... I'm a little concerned about them.. are they pulling

out the big guns? LOL... I'd like to know..

Thanks,

============================================================

Thru God all things are possible...

Jan

[Guest guest]

Hi ,

Sorry you are in so much pain and i don't know where you pain is specifically

but when i went to the pain specialist i don't know if you remember what

happened or not but because of my pain being systemic and so bad in so many

places any ways he said he couldn't help me especially when he found out what

kind of insurance I have and you know what that means.

I'll be glad to call you if you like just let me know when if thats ok its

easier to explain that way.

Love ya,

Jan

============================================================

Date: 2003/09/17 Wed PM 11:17:39 EDT

To: " NS Group " <Neurosarcoidosis >

Subject: Pain Management Doctors

Hey guys, I've had to go this week to my local GP and discuss pain

management with him. I was taking Lortab 7.5 mg 2 tablets at a time and I

usually didn't have to take it but in the late evening and at night...

However, its gotten to where its no more than taking tylenol for me... not

very effective... he started me on lortab 10 mg three times aday........ and

said that if that doesn't work or when it stops working we will need to seek

pain management physican....What do they do? How do they know what will

and will not work... I'm a little concerned about them.. are they pulling

out the big guns? LOL... I'd like to know..

Thanks,

============================================================

Thru God all things are possible...

Jan

[Guest guest]

Jan, thanks but I'm not up to phone calls at the moment.. just don't feel like sitting up much less talking.... right now the Lortab 10 is helping keeping me at least dopey, but when I'm awake I'm in pain... in my torso mostly around my ribs and around in my back...I'm not sure if this is bone or lung related.. just not sure.. i've had some wheezing and shortness of breath... anyway, thanks for responding...

Hugz,

T

-- Pain Management Doctors

Hey guys, I've had to go this week to my local GP and discuss pain

management with him. I was taking Lortab 7.5 mg 2 tablets at a time and I

usually didn't have to take it but in the late evening and at night...

However, its gotten to where its no more than taking tylenol for me... not

very effective... he started me on lortab 10 mg three times aday........ and

said that if that doesn't work or when it stops working we will need to seek

pain management physican....What do they do? How do they know what will

and will not work... I'm a little concerned about them.. are they pulling

out the big guns? LOL... I'd like to know..

Thanks,

============================================================

Thru God all things are possible...

Jan

[Guest guest]

he started me on lortab 10 mg three times aday........ and said that if that doesn't work or when it stops working we will need to seek pain management physican....What do they do? How do they know what will and will not work... I'm a little concerned about them.. are they pulling out the big guns? LOL... I'd like to know..

,

Pain mgmt MD's are great! Back in 1990 when i went thru my intensive Pain MGMT program, we had a 3 1/2 week outpt progrm that included: Rheumatologist, Psychologist, Physical Therapy, Massage Therapy (with ice--yehaaaaaa); biofeedback, Physical Medicine MD, group therapy, individual therapy, family therapy, and guided relaxation (Friday was heaven!); so that we could learn to live and function with chronic pain.

As you know, I was addicted to Vicodin, Lortab, Soma, Relafen, Robaxin, Darvon, Percodan, Percoset, and others (hey, it was whatever the drug reps would leave--and they always gave me extra). I was taking 10- 10mg Vicodin, chased by 10mg Lortab, chased by 350mg Soma 4-6 x a day, and managing a multi million $$ med practice with 23 employees. And NO ONE knew I was stoned. NO ONE.

Pain mgmt is an incredibly personalized program. We all respond differently, regardless of our disease(s.) For this program, I walked in on a Monday morning. Pain bottles in hand, had to hand them over to staff, and they dispensed them as prescribed. It wasn't until Thurs that 1st week, that our initial evals from the entire team of MD's-- They met in one room all together at the same time-- and each coordinated exactly what each of us needed one by one. (there were 8 of us in the group.) And on Thurs, our meds were adjusted.

I lived in a motel from Sunday night to Frid pm, went home for Frid, Sat, and came back on Sunday for 3 wks. By the end of the program, I was on 800mg of Motrin, 10 mg of Flexeril, and Triavil. And my pain levels went from thru the roof to managable. If it hadn't been for this program-- I would have been dead.

I still use the meditation tapes, guided imagery, biofeedback, self-talk reality training, and yep-- in 11 more days, I will be 13 years pain pill free. (I'm not even on the patch--I ended up allergic to the adhesive.). It takes energy and self discipline to continue to work the program-- but I'm walking proof that it can work-- and I know that I may still have to take something for the pain, as this disease progresses. For today, give me silence at 2 am, and let me walk myself into a full body relaxation-- and usually, I can still get far enough in to let some of my pain and tension go. Even after 13 yrs, every single time I use these skills, it's like a brand new experience.

And the good news is-- that was the beginning of "Pain Mgmt Specialists. They're even more savy now.

Also, one of the tools that my therapist and I were working with, was to actually go inside the pain, not try to change it--just watch it. Not fighting, not panicing, not trying to make anything about the pain different-- but just to allow it to be a part of my experience-- staying away from the "fight or flight" response-- and that has been incredible. Levene has tapes for this approach. His book is "Who Dies . . ."

really a marvelous chapter on pain meditations. (i highly recommend you work with a professional at this level). Someone that can hold you in their arms, so that you feel as safe as you did as a child when you're were in a parents loving arms. It really is awesome, and sometimes frightening.

As our dear ie would say-- That's my story and I'm sticking to it! One day at a time.

Tracie is not a medical professional. I am a nice lady, with a love for gnomes. The info I share here is what I've learned on my journey, and should not be used to replace what your MD suggests you do. May your journey be gentle.