Guest guest Posted September 16, 2000 Report Share Posted September 16, 2000 May I ask what a blur-front amazon is? Is it a lizard? I have a dog and a kitten and they are my life. Pets are so theurapeutic. Onery1 wrote: > > Hi all > > My name is Marla. I live in Central Illinois. After a TAH/BSO w/lysis of > adhesions 4/99 I have been in excruciating (one doctor called it exquisite > but I prefer to use that word when describing a cashmere sweater) pain > since. I have seen 2 GI's, Neurologist, Anesthesiologist, a new OB/GYN and > went through 6 PCP's before being sent to a Rheumatologist 8/29/00 who > diagnosed at least part of the problem to be FMS. She told me to start an > exercise program walking at least two blocks every day (her comment was > since you are already in pain what's a little more gonna hurt), go back on > Celexa (because anyone in chronic pain has depression donchaknow), and stop > smoking (I smoke about ten cigs a day but that didn't make any diff to her. > She has _never_ seen anyone with FMS get better and still smoke. Guess I'll > be a first, eh?) and that was it. She told me nothing about it nor what > symptoms led her to dx FMS. Needless to say, I won't be seeing her again. > The Anesthesiologist has me on Methadone, titrating down Neurontin (I will > be off completely in two weeks) and Elavil. In addition to that I take > Calcium (well Tums), Iron, Garlic and Dong Quoi supplements. > > I'm an empty nester and have found that I quite enjoy living alone and find > myself to be good company. I shouldn't really say that. I have two dogs, two > cats and a blue-front amazon. At least one of them can talk back. I read > voraciously and used to be very involved in my community. Now all my time is > spent researching my illnesses and basically doing legwork for the doctors. > I used to think it was their job but the past year and half has opened my > eyes. > > As you can tell, I have a wry sense of humor (One(w)ry1 or Ornery One > whatever suits your fancy) and everything I say should be taken with one or > two grains of salt. I look forward to getting to know you all and happy to > let you get to know me. > > Blessings, > Marla > > ~*~CHAT TIME:~*~ > MON & THURS > Day Eastern 4 PM, Central 3 PM, Mt 2 PM Pacific 1 PM > Night Eastern 9 Pm, Central 8 Pm, Mt 7 PM Pacific 6 PM > WHERE: /chat/ > > VIP > If there is a problem on this list notify. > Co-Moderator > The_List_Owner@... > > Add or view links about fibro/CFS. > http://www.onelist.com/links/ > > TO unsubscribe. > Go to: http://www.onelist.com/ to this list and unsub from it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2000 Report Share Posted September 16, 2000 Hi Marla I also live in Central IL email me at diamondgirl_16@... > >Reply-To: egroups >To: < egroups> >Subject: Introduction >Date: Fri, 15 Sep 2000 20:26:53 -0500 > >Hi all > >My name is Marla. I live in Central Illinois. After a TAH/BSO w/lysis of >adhesions 4/99 I have been in excruciating (one doctor called it exquisite >but I prefer to use that word when describing a cashmere sweater) pain >since. I have seen 2 GI's, Neurologist, Anesthesiologist, a new OB/GYN and >went through 6 PCP's before being sent to a Rheumatologist 8/29/00 who >diagnosed at least part of the problem to be FMS. She told me to start an >exercise program walking at least two blocks every day (her comment was >since you are already in pain what's a little more gonna hurt), go back on >Celexa (because anyone in chronic pain has depression donchaknow), and stop >smoking (I smoke about ten cigs a day but that didn't make any diff to her. >She has _never_ seen anyone with FMS get better and still smoke. Guess I'll >be a first, eh?) and that was it. She told me nothing about it nor what >symptoms led her to dx FMS. Needless to say, I won't be seeing her again. >The Anesthesiologist has me on Methadone, titrating down Neurontin (I will >be off completely in two weeks) and Elavil. In addition to that I take >Calcium (well Tums), Iron, Garlic and Dong Quoi supplements. > >I'm an empty nester and have found that I quite enjoy living alone and find >myself to be good company. I shouldn't really say that. I have two dogs, >two >cats and a blue-front amazon. At least one of them can talk back. I read >voraciously and used to be very involved in my community. Now all my time >is >spent researching my illnesses and basically doing legwork for the doctors. >I used to think it was their job but the past year and half has opened my >eyes. > >As you can tell, I have a wry sense of humor (One(w)ry1 or Ornery One >whatever suits your fancy) and everything I say should be taken with one or >two grains of salt. I look forward to getting to know you all and happy to >let you get to know me. > >Blessings, >Marla > > _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Share information about yourself, create your own public profile at http://profiles.msn.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2000 Report Share Posted September 16, 2000 welcome marla, I am Pam from Oklahoma > >Reply-To: egroups >To: < egroups> >Subject: Introduction >Date: Fri, 15 Sep 2000 20:26:53 -0500 > >Hi all > >My name is Marla. I live in Central Illinois. After a TAH/BSO w/lysis of >adhesions 4/99 I have been in excruciating (one doctor called it exquisite >but I prefer to use that word when describing a cashmere sweater) pain >since. I have seen 2 GI's, Neurologist, Anesthesiologist, a new OB/GYN and >went through 6 PCP's before being sent to a Rheumatologist 8/29/00 who >diagnosed at least part of the problem to be FMS. She told me to start an >exercise program walking at least two blocks every day (her comment was >since you are already in pain what's a little more gonna hurt), go back on >Celexa (because anyone in chronic pain has depression donchaknow), and stop >smoking (I smoke about ten cigs a day but that didn't make any diff to her. >She has _never_ seen anyone with FMS get better and still smoke. Guess I'll >be a first, eh?) and that was it. She told me nothing about it nor what >symptoms led her to dx FMS. Needless to say, I won't be seeing her again. >The Anesthesiologist has me on Methadone, titrating down Neurontin (I will >be off completely in two weeks) and Elavil. In addition to that I take >Calcium (well Tums), Iron, Garlic and Dong Quoi supplements. > >I'm an empty nester and have found that I quite enjoy living alone and find >myself to be good company. I shouldn't really say that. I have two dogs, >two >cats and a blue-front amazon. At least one of them can talk back. I read >voraciously and used to be very involved in my community. Now all my time >is >spent researching my illnesses and basically doing legwork for the doctors. >I used to think it was their job but the past year and half has opened my >eyes. > >As you can tell, I have a wry sense of humor (One(w)ry1 or Ornery One >whatever suits your fancy) and everything I say should be taken with one or >two grains of salt. I look forward to getting to know you all and happy to >let you get to know me. > >Blessings, >Marla > > _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Share information about yourself, create your own public profile at http://profiles.msn.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2000 Report Share Posted September 16, 2000 > Hi all > > My name is Marla. She told me to start an > exercise program walking at least two blocks every day (her comment was > since you are already in pain what's a little more gonna hurt), and stop > smoking (I smoke about ten cigs a day but that didn't make any diff to her. > She has _never_ seen anyone with FMS get better and still smoke. Guess I'll > be a first, eh?) and that was it. > > Blessings, > Marla Marla, You'll have to be the second, I am feeling great now. And I smoke a pack a day! Sometimes more if I get on the computer alot. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2000 Report Share Posted September 16, 2000 Welcome Marla! I'm in Illinois also, but up North near the Wisconsin border. I just got back from a 4 day mini-vacation to TN, and oh am I paying for all that time driving and then site-seeing! At this point in time, I can put up with the pain if I think back on all the fun I had of finally meeting my computer " gang " for the first time. M. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2000 Report Share Posted September 17, 2000 Whups did I write blur front lol? Sorry, meant Blue. He's a parrot and quite loveable. He came from a home where he was abused and it's taken me six years to tame him down. But he now lives quite happily in a cage big enough for me to fit inside (I'm 5' 2 " and have a bit of breadth to me). He terrorizes the dogs (Australian blue-heeler - Malibu and Shit-Zoo - Ozzie) and the two cats (alley cats leopard Charcoal and panther Katya) and so he rules the roost. I let him out from time to time and he flies wherever he wants. I just have to have covers on his favorite furniture because he likes to rip the rolled edging. He thinks they were made with him in mind. Yes, they are very therapeutic. They mourn when I cry and they play when I laugh. If I have to sleep all day, they gladly come and curl around me soothing me with purring. Malibu even tries to purr and it comes out something like a mild snore but its quite comforting. They never get mad at me and they always have time for me. I guess they're about the best friends a person can have. Now, , aren't you glad you asked? LOL Marla May I ask what a blur-front amazon is? Is it a lizard?I have a dog and a kitten and they are my life. Pets are so theurapeutic.Onery1 wrote:>> Hi all>> My name is Marla. I live in Central Illinois. After a TAH/BSO w/lysis of> adhesions 4/99 I have been in excruciating (one doctor called it exquisite> but I prefer to use that word when describing a cashmere sweater) pain> since. I have seen 2 GI's, Neurologist, Anesthesiologist, a new OB/GYN and> went through 6 PCP's before being sent to a Rheumatologist 8/29/00 who> diagnosed at least part of the problem to be FMS. She told me to start an> exercise program walking at least two blocks every day (her comment was> since you are already in pain what's a little more gonna hurt), go back on> Celexa (because anyone in chronic pain has depression donchaknow), and stop> smoking (I smoke about ten cigs a day but that didn't make any diff to her.> She has _never_ seen anyone with FMS get better and still smoke. Guess I'll> be a first, eh?) and that was it. She told me nothing about it nor what> symptoms led her to dx FMS. Needless to say, I won't be seeing her again.> The Anesthesiologist has me on Methadone, titrating down Neurontin (I will> be off completely in two weeks) and Elavil. In addition to that I take> Calcium (well Tums), Iron, Garlic and Dong Quoi supplements.>> I'm an empty nester and have found that I quite enjoy living alone and find> myself to be good company. I shouldn't really say that. I have two dogs, two> cats and a blue-front amazon. At least one of them can talk back. I read> voraciously and used to be very involved in my community. Now all my time is> spent researching my illnesses and basically doing legwork for the doctors.> I used to think it was their job but the past year and half has opened my> eyes.>> As you can tell, I have a wry sense of humor (One(w)ry1 or Ornery One> whatever suits your fancy) and everything I say should be taken with one or> two grains of salt. I look forward to getting to know you all and happy to> let you get to know me.>> Blessings,> Marla>> ~*~CHAT TIME:~*~> MON & THURS> Day Eastern 4 PM, Central 3 PM, Mt 2 PM Pacific 1 PM> Night Eastern 9 Pm, Central 8 Pm, Mt 7 PM Pacific 6 PM> WHERE: /chat/ >> VIP> If there is a problem on this list notify.> Co-Moderator > Add or view links about fibro/CFS.> http://www.onelist.com/links/ >> TO unsubscribe.> Go to: http://www.onelist.com/ to this list and unsub from it.~*~CHAT TIME:~*~MON & THURS Day Eastern 4 PM, Central 3 PM, Mt 2 PM Pacific 1 PM Night Eastern 9 Pm, Central 8 Pm, Mt 7 PM Pacific 6 PM WHERE: /chat/ VIPIf there is a problem on this list notify.Co-Moderator The_List_Owner@...Add or view links about fibro/CFS.http://www.onelist.com/links/ TO unsubscribe.Go to: http://www.onelist.com/ to this list and unsub from it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2000 Report Share Posted September 17, 2000 Howdy Pam - I have visited your lovely state. Well Oklahoma City anyway. My ex-husband's job was based there. Golly that was 15 years ago -- might take a minute to remember the name of the company. They manufactured road equipment and he went to the job site to set it up. Anyway, I remember the Cowboy Hall of Fame quite fondly! Marla welcome marla, I am Pam from Oklahoma>>Reply-To: egroups>To: < egroups>>Subject: Introduction>Date: Fri, 15 Sep 2000 20:26:53 -0500>>Hi all>>My name is Marla. I live in Central Illinois. After a TAH/BSO w/lysis of>adhesions 4/99 I have been in excruciating (one doctor called it exquisite>but I prefer to use that word when describing a cashmere sweater) pain>since. I have seen 2 GI's, Neurologist, Anesthesiologist, a new OB/GYN and>went through 6 PCP's before being sent to a Rheumatologist 8/29/00 who>diagnosed at least part of the problem to be FMS. She told me to start an>exercise program walking at least two blocks every day (her comment was>since you are already in pain what's a little more gonna hurt), go back on>Celexa (because anyone in chronic pain has depression donchaknow), and stop>smoking (I smoke about ten cigs a day but that didn't make any diff to her.>She has _never_ seen anyone with FMS get better and still smoke. Guess I'll>be a first, eh?) and that was it. She told me nothing about it nor what>symptoms led her to dx FMS. Needless to say, I won't be seeing her again.>The Anesthesiologist has me on Methadone, titrating down Neurontin (I will>be off completely in two weeks) and Elavil. In addition to that I take>Calcium (well Tums), Iron, Garlic and Dong Quoi supplements.>>I'm an empty nester and have found that I quite enjoy living alone and find>myself to be good company. I shouldn't really say that. I have two dogs, >two>cats and a blue-front amazon. At least one of them can talk back. I read>voraciously and used to be very involved in my community. Now all my time >is>spent researching my illnesses and basically doing legwork for the doctors.>I used to think it was their job but the past year and half has opened my>eyes.>>As you can tell, I have a wry sense of humor (One(w)ry1 or Ornery One>whatever suits your fancy) and everything I say should be taken with one or>two grains of salt. I look forward to getting to know you all and happy to>let you get to know me.>>Blessings,>Marla>>_________________________________________________________________________Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com.Share information about yourself, create your own public profile at http://profiles.msn.com.~*~CHAT TIME:~*~MON & THURS Day Eastern 4 PM, Central 3 PM, Mt 2 PM Pacific 1 PM Night Eastern 9 Pm, Central 8 Pm, Mt 7 PM Pacific 6 PM WHERE: /chat/ VIPIf there is a problem on this list notify.Co-Moderator The_List_Owner@...Add or view links about fibro/CFS.http://www.onelist.com/links/ TO unsubscribe.Go to: http://www.onelist.com/ to this list and unsub from it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2000 Report Share Posted September 17, 2000 " Onery1 " <onery1@s...> wrote:> Hi all> > My name is Marla. She told me to start an> exercise program walking at least two blocks every day (her comment was> since you are already in pain what's a little more gonna hurt), and stop> smoking (I smoke about ten cigs a day but that didn't make any diff to her.> She has _never_ seen anyone with FMS get better and still smoke. Guess I'll> be a first, eh?) and that was it. > > Blessings,> MarlaMarla, You'll have to be the second, I am feeling great now. And I smoke a pack a day! Sometimes more if I get on the computer alot. that's the best news I've had all day. How long did it take you to 'feeling great' and what therapy did you use? Marla~*~CHAT TIME:~*~MON & THURS Day Eastern 4 PM, Central 3 PM, Mt 2 PM Pacific 1 PM Night Eastern 9 Pm, Central 8 Pm, Mt 7 PM Pacific 6 PM WHERE: /chat/ VIPIf there is a problem on this list notify.Co-Moderator The_List_Owner@...Add or view links about fibro/CFS.http://www.onelist.com/links/ TO unsubscribe.Go to: http://www.onelist.com/ to this list and unsub from it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2000 Report Share Posted September 17, 2000 > that's the best news I've had all day. How long did it take you to 'feeling great' and what therapy did you use? > > Marla Don't let this depress you but it took me 6 years to get back to almost normal again. The only therapy I did was exercise. After I exercised I would soak in a very hot tub. I took naproxen for the pain. And drank knox gelleton once a day. But have changed to Protein Whey now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2000 Report Share Posted October 10, 2000 Welcome Bruce, I am sure you will find this list helpful. Co-moderator, Bruce Gerencser wrote: > Hello. > > I am a new list subscriber. I have fibromyalgia. My fibromyalgia can be > traced back about ten years to a bout of mononucleosis than landed me in the > hospital near death, My immune system shut down. The past ten years my > health has declined. I was officially diagnosed with fibromyalgia about 4 > years ago. I have gone from a work 18 hour a day minister, sports playing > fanatic, to a over weight man who is in alot of pain and would be on > disability if I could get it. I am not eligible for disability because I > opted out of Social Security when I was 21. Ah, the decisions we make when > we are young and healthy. I take Ultram for pain and I am on doxepin for > sleep. I also take aspirin. > No complaints. I have learned in whatever state I am to be content. God ahs > been faithful to me in the midst of my affliction. > > I am a minister. Trained as a Baptist, I have been preaching for 25 years. > (started at age 19) I am married to a wonderful woman named Polly. (22 > years) We have six children, 4 boys ages 21,19,16 and 7 and two girls ages > 11 and 7. Our eleven year old girl has Down Syndrome. All of our children > are at home. My two oldest sons and my wife work at Sauder's Woodworking in > Archbold, Ohio. > > We live in rural NW Ohio. I pastor Our Father's House in West Unity. > www.our-fathers-house.org > We have been here 6 years. Most of our ministry years were spent in SE Ohio. > (Newark, Zanesville area) You can check out our web site to find additional > info about our Church and family. > > I look forward to participating on this list. Thank you for allowing me to > be a part of this. > > Bruce Gerencser > > > ~*~CHAT TIME:~*~ > MON & THURS > Day Eastern 4 PM, Central 3 PM, Mt 2 PM Pacific 1 PM > Night Eastern 9 Pm, Central 8 Pm, Mt 7 PM Pacific 6 PM > WHERE: /chat/ > > VIP > If there is a problem on this list notify. > Co-Moderator > The_List_Owner@... > > Add or view links about fibro/CFS. > http://www.onelist.com/links/ > > TO unsubscribe. > Go to: http://www.onelist.com/ to this list and unsub from it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2000 Report Share Posted October 10, 2000 Welcome Bruce: So nice to have you with us! I know what you mean about thing things we'd do differently. I'm on social security disability, but I have no other income and work at home to make extra money. Mostly I'm grateful because if I didn't have work to do I think I'd be much more depressed. One really needs to have a purpose in life. Are you still a minister of a church? Does your congregation know? Peggy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 10, 2000 Report Share Posted October 10, 2000 Dear Bruce: I just read the rest of your e-mail and you answered my questions! I forgot to scroll down on the first read. Oops! Peggy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2000 Report Share Posted October 11, 2000 welcome Bruce > >Reply-To: egroups >To: < egroups> >Subject: Introduction >Date: Tue, 10 Oct 2000 17:11:18 -0400 > >Hello. > >I am a new list subscriber. I have fibromyalgia. My fibromyalgia can be >traced back about ten years to a bout of mononucleosis than landed me in >the >hospital near death, My immune system shut down. The past ten years my >health has declined. I was officially diagnosed with fibromyalgia about 4 >years ago. I have gone from a work 18 hour a day minister, sports playing >fanatic, to a over weight man who is in alot of pain and would be on >disability if I could get it. I am not eligible for disability because I >opted out of Social Security when I was 21. Ah, the decisions we make when >we are young and healthy. I take Ultram for pain and I am on doxepin for >sleep. I also take aspirin. >No complaints. I have learned in whatever state I am to be content. God ahs >been faithful to me in the midst of my affliction. > >I am a minister. Trained as a Baptist, I have been preaching for 25 years. >(started at age 19) I am married to a wonderful woman named Polly. (22 >years) We have six children, 4 boys ages 21,19,16 and 7 and two girls ages >11 and 7. Our eleven year old girl has Down Syndrome. All of our children >are at home. My two oldest sons and my wife work at Sauder's Woodworking in >Archbold, Ohio. > >We live in rural NW Ohio. I pastor Our Father's House in West Unity. >www.our-fathers-house.org >We have been here 6 years. Most of our ministry years were spent in SE >Ohio. >(Newark, Zanesville area) You can check out our web site to find additional >info about our Church and family. > >I look forward to participating on this list. Thank you for allowing me to >be a part of this. > >Bruce Gerencser > _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Share information about yourself, create your own public profile at http://profiles.msn.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2000 Report Share Posted October 11, 2000 Yes, still a minister. My Church knows and is very supportive. Our Church is small, 40 members. We are a " sick " Church. We have six diabetics, 1 epileptic, 2 cancer patients, 1 fiboemyalgia,1 chronic neck pain, 1 recent cancer survivor, 1 chronic back pain. <g> We often laugh and say that you have to have a " sickness " or " disorder " to be a member. <g> Actually, we find ourselves much more compassionate and tolerant. Suffering can really change ones perspective. Bruce RE: Introduction Welcome Bruce: So nice to have you with us! I know what you mean about thing things we'd do differently. I'm on social security disability, but I have no other income and work at home to make extra money. Mostly I'm grateful because if I didn't have work to do I think I'd be much more depressed. One really needs to have a purpose in life. Are you still a minister of a church? Does your congregation know? Peggy ~*~CHAT TIME:~*~ MON & THURS Day Eastern 4 PM, Central 3 PM, Mt 2 PM Pacific 1 PM Night Eastern 9 Pm, Central 8 Pm, Mt 7 PM Pacific 6 PM WHERE: /chat/ VIP If there is a problem on this list notify. Co-Moderator The_List_Owner@... Add or view links about fibro/CFS. http://www.onelist.com/links/ TO unsubscribe. Go to: http://www.onelist.com/ to this list and unsub from it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2000 Report Share Posted October 27, 2000 Welcome Celest! I'm always amazed when I hear people so young with Fibro. I didn't get sick until I was about 35. It sounds like you have a great attitude and I'm sure you'll have lots to share here. Glad you joined. I'm presently working part time at home because I just couldn't handle a full time job with regular hours. I also have help from Social Security Disability. What is the acid reducer that you mentioned. I'm curious.....Is Mg+ magnesium? Peggy Hello all, I thought that I would introduce myself. I go by Celest online. I am 25 years old and was diagnosed with FMS over 5 years ago. Although, I had most of the same pains since I was about 9 years old. Currently, I am not being treated for the fibro. I have been through the roller coaster treatments which included: more types of m Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2000 Report Share Posted October 27, 2000 > Welcome Celest! > > I'm always amazed when I hear people so young with Fibro. I didn't get sick > until I was about 35. It sounds like you have a great attitude and I'm sure > you'll have lots to share here. Glad you joined. I'm presently working > part time at home because I just couldn't handle a full time job with > regular hours. I also have help from Social Security Disability. What is > the acid reducer that you mentioned. I'm curious.....Is Mg+ magnesium? > > Peggy > > > You are correct Mg+ = Magnesium Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2000 Report Share Posted December 5, 2000 Hi Jo, Welcome to the group, you will enjoy this site, because you know everyone understands what's going on. You feel like your family gets tired of hearing about your aches and pains, and the change in lifestyle that this brings to you. My hubby tries to understand, and he is doing better, but he and my 2 sons are in denial still as to what is really happening. That I cannot go back and be the wife and mother I once was, much as I would like to. I was diagnosed in 98, and it has taken my family this long to even accept what's going on, they still tend to get ill with me, when I tell them no, I'm just not up to going with you today, but I have learned to live one day at a time and enjoy that day to the fullest, even though I may pay for it in the end, just to feel human again. They don't want to read any material on the subject and then they act like they are bored or have selective hearing when I try to tell them something I have read or even what the DR has said. I keep hoping in time, that they will get better, at least I haven't given up on them. That's why I enjoy this site, because I feel everyone understands that we have good days and bad days, and that we get depressed and need encouragement from each other ,so it helps to know you can vent when you feel like it. So again, welcome. " YOU'LL ACCOMPLISH MORE BY FOCUSING ON YOUR ABILITIES INSTEAD OF YOUR LIMITATIONS. " copied -ALABAMA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2000 Report Share Posted December 6, 2000 Hi Jo, Nice to have you in our " family. " I love this group. I know I have said this before but it is all true. They are wonderful here, very understanding and we all are going through the same stuff and it is nice to be able to share your pain, happiness or sorrows with someone who understands. I have made some really nice friends in the process. I know you will love being in our " group. " Hope you have a great day!! Sending Comfort and Peace Janice " I wish we could change our dials to AM instead of FM!!! " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2000 Report Share Posted December 7, 2000 Hi Sherri! Welcome to the group. I hope you enjoy yourself here. Just wonderful people are on this list. You'll find out. I'm sorry that you have the illness that brought you here, but the good thing is that we are here for eachother. Peggy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2001 Report Share Posted January 27, 2001 Tim, Welcome, though I am sorry you are here. I have an 11 and 7 year old and I know what 9 and 3 require -- it's a lot of work. Is Trumbull near New Haven (my sister is in Milford)? Do you see Merek (sp?) by any chance (I heard he was great). I am here because my mom Joyce (71, died 11/00) had MSA, after being diagnosed with PD in 2/97 and rediagnosed with MSA (the striatonigral degeneration form) in 9/98. Although her progression was fast, as you probably know already from this list, some have lived more than 20 years with the disease. I hope this is your prognosis. Welcome, Debbie -----Original Message-----From: Tim Foley Sent: Saturday, January 27, 2001 12:08 AMTo: shydrager Subject: Introduction I've been reading all of your posts since being diagnosed with MSA in November 2000 but have yet to post. I'm a married 37 year old "retired" pharmacist with two young children ages 9 and 3. Originally I was diagnosed with PD in February 2000 but progressed too rapidly. After complaining of incontinence and constantly increasing my PD meds my neurologist reevaluated me and diagnosed me as having MSA. This was confirmed by a Movement Disorder Specialist at Yale. I am fortunate that my wife is a nurse and has worked in long term care facilities in the past so she is quite knowledgeable about many difficulties of the disease. I also go to speech/swallowing therapy. Right now I only have 1 or 2 decent days a week where I can at least attend to my children's needs and walk upstairs to the bathroom. Just wanted you all to know how invaluable all of your information has been. Thank You. Tim Foley tpfrph@... Trumbull, CT http://www.plwp.org - People Living with Parkinson'shttp://cpwg.tripod.com - Connecticut Parkinson's Working Group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2001 Report Share Posted January 27, 2001 Tim, Welcome. You are one of the youngest patients we have had on the list. Hopefully, they will find a cure in your lifetime. Hope to get input from you on drug questions. Jim Stark in Louisianna has a chemical background, but as far as I know you are the first phamacist on the list also. Did they say which form of MSA you might have? Which PD meds are you taking? Comtan seems to help people who are taking Sinemet, although it also makes the side effects worse (dyskinesia). Take care, Bill and Charlotte ========================================== Tim Foley wrote: I've been reading all of your posts since being diagnosed with MSA in November 2000 but have yet to post. I'm a married 37 year old "retired" pharmacist with two young children ages 9 and 3. Originally I was diagnosed with PD in February 2000 but progressed too rapidly. After complaining of incontinence and constantly increasing my PD meds my neurologist reevaluated me and diagnosed me as having MSA. This was confirmed by a Movement Disorder Specialist at Yale. I am fortunate that my wife is a nurse and has worked in long term care facilities in the past so she is quite knowledgeable about many difficulties of the disease. I also go to speech/swallowing therapy. Right now I only have 1 or 2 decent days a week where I can at least attend to my children's needs and walk upstairs to the bathroom. Just wanted you all to know how invaluable all of your information has been. Thank You. Tim Foleytpfrph@...Trumbull, CT http://www.plwp.org - People Living with Parkinson's http://cpwg.tripod.com - Connecticut Parkinson's Working Group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2001 Report Share Posted March 10, 2001 I think that the balance problem is a part of fibromyalgia. I have it to. It comes and goes. Right now, it is here. I don't know of anything that can be done about it but to wait until it goes away for this time. I hit walls and run into people and stagger around like I am drunk. It is irritating but it is part of my life and when in England, I don't stand near the railroad tracks. Take care, Irene > . The first one is I have balance problems. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2004 Report Share Posted February 9, 2004 Hi All My name is Fran and I had my surgery at South City in December 2002 and now have given away 99 pounds. I am 60 and pretty much at the goal my PCP wants for me--I, on the other hand, would like to get where my body wants me to be. (Dirty little secret) I drink a protein shake for breakfast everyday and I wouldn't give it up for ANYONE. I like it and it keeps me full and lets me think I'm having a shake (in my head) daily. If you can't stand the smell, try a covered cup to get it past your nose. You can also use sugar free syrups to jazz it up and also use different flavors--there are many out there. Try samples (one serving) available from www.txwls.com and www.vitalady.com for reasonable prices. Happy to be here to listen (mostly) and post occasionally. Happy trails to us all. Frani ________________________________________________________________ The best thing to hit the Internet in years - Juno SpeedBand! Surf the Web up to FIVE TIMES FASTER! Only $14.95/ month - visit www.juno.com to sign up today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2006 Report Share Posted April 7, 2006 Hi, Since I've already replied to a post, I suppose I should formally introduce myself. I've hopped over here from several of the other Autism/mercury/toxic lists. I recognize many names here already. I'm Pam. My youngest son (dx Autism) and I have been chelating with TD-DMSA and oral ALA since 9/2005. We both follow Andy Cutler's advice over DAN! chelation recommendations (though I have a good DAN! doctor or two). We are both doing very well, but I'm ready for the end of this Autism nightmare. Since the addition of ALA, I honestly think my son will one day NOT just be functioning with Autism, but actually living without it. Me? Sometimes I feel like my window of opportunity has passed. I'm not disabled by any means, but not entirely thrilled with my life, my mental nor my physical health. I know I am mercury damaged, as are my two siblings and likely my mother. Thank God we were vaccinated in the 60s and not in the 80s-90s!!! We were sitting ducks. So, hello. Pam Quote Link to comment Share on other sites More sharing options...
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