Re: fibromyalgia, fatigue, thyroid treatment

[Guest guest]

Hi . How much timed release are you on? The top doc I saw has seen

fibromyalgia dissapate with enough Armour. I just wasn't one of them. I did try

s Syndrome treatment for a couple months once. He uses SRT3 (sustained

release) but not a steady dose. It didn't do anything for me (no rise in temp)

but I no longer believe in his theory anyways. Thanks, Carol B

---------------------------------

Yahoo! Photos

Got holiday prints? See all the ways to get quality prints in your hands ASAP.

[Guest guest]

J:

I recently sent for an information packet from the Fibro/Fatigue Centers.

There's one coming here to Boston in a few months. I was wondering what

dose of timed release T3 you are on. I want to tell you what happened to

me.

Although I had the chronic fatigue, before I really understood the

adrenal/thyroid connection, I went to a practitioner convinced I was

hypothyroid despite my " normal TSH " . She had me fill out a symptom

questionnaire and take my temperatures for one week. I returned and she

said I had 's thyroid Syndrome. I was finally relieved to have

evidence that I did in fact have a thyroid problem. She also tested my

pregnenolone, which was immeasurable, and told me to go home and start

taking the Timed Release T3 and pregnenolone. I took 7.5 mcgs. every twelve

hours for 4 days. The next thing I knew I was totally incapacitated.

Although I had the Chronic Fatigue problem before this, I was functional and

able to get through doing most things I had to do. After this, I was

debilitated and practically bedridden. It was later that I found out about

how bad my adrenals were and that by taking the T3 I crashed them even

worse. It took me months literally to get back on my feet. Although I am a

lot better and continuing chelation every week, I have yet to come back from

this. I have been doing things now to improve adrenal function so that I

might be able to take thyroid hormone again, but I'm so scared to do it

because my adrenal situation is pretty pitiful. Cortisol just doesn't rise

up, especially when faced with stressors/confrontations, noises, any

physical demands. I have plenty of cortef and hydrocortisone, but I don't

tolerate them very well and prefer not to use them. I've been taking

licorice root for a week now and most recently just ordered Isocort which

I'm hoping will work better for me. What's the lowest dose of timed release

T3 that you can get? Do you know?

Thanks,

fibromyalgia, fatigue, thyroid treatment

>

> I found these links in a different group.

>

> http://www.fibroandfatigue.com/fibromyalgia-center-location.htm

>

> If you look at this document:

>

>

http://www.fibroandfatigue.com/documents/clinical/Are%20all%20CFS%20FM%20pat

ients%20low%20thyroid.pdf

>

> the conclusion that they make in the second last paragraph that

> " compounded time release T3 is usually the best treatment " is exactly

> what I learned the hard way (a year of synthroid, a year of armour

> like, some months of cytomel, and then FINALLY the time release T3)

>

> J

>

>

> http://www.fibroandfatigue.com/newsletter.pdf thyroid info on page 5

>

>

>

>

>

>

>

[Guest guest]

Carol,

I'm taking 19 mcg SRT3 (in 2, 9.5 mcg doses) and 25 mcg synthroid.

I stopped measuring my temperature a long time ago. I don't get

chilled all the time like I used to, so that's good enough for me. It

used to be that I couldn't get warmed up when I went swimming or when

I went out in the cold, or even sometimes in the house. That doesn't

happen any more. Also, I notice a big, big improvement in my

emotions. I noticed that even when I first started the synthroid, and

then every time I changed my emotions stabilized once the dose

stabilized. The brain fog was a big problem during the transitions

and then stabilized when the dose stabilized. I'm SOLD on this stuff.

Originally I got the cortef and synthroid at the same time. I can see

that it wouldn't have worked very good if I had only one or the other

at that time. It has been a balancing act fooling around with doseage.

Talk to you soon

J

>

> Hi . How much timed release are you on? The top doc I saw has

seen fibromyalgia dissapate with enough Armour. I just wasn't one of

them. I did try s Syndrome treatment for a couple months once.

He uses SRT3 (sustained release) but not a steady dose. It didn't do

anything for me (no rise in temp) but I no longer believe in his

theory anyways. Thanks, Carol B

>

[Guest guest]

,

I'm taking 9.5 mcg SRT3 every 12 h. It is compounded. The pharmacy

can make it up in any dose the doctor will write a script for.

I can understand that taking T3 without cortef would be very hard on

the adrenals (for people with weak adrenals). Taking the fast release

T3 (cytomel) was very hard on my adrenals even though I had cortef and

I took cortef with every dose.

How often have you tried cortef and what happens when you take it?

I'm not sure what you mean when you say that you don't tolerate it well.

Do you get frequent infections and have trouble shaking them? That's

one indication of adrenal fatigue. Another one is low blood pressure

and dizziness on first standing. Do you have low BP?

Did you have a hair test and did it show the adrenal signs (Ca and Mg

going one way and Na and K going the other way)?

Best

J

>

> J:

>

> I recently sent for an information packet from the Fibro/Fatigue

Centers.

> There's one coming here to Boston in a few months. I was wondering what

> dose of timed release T3 you are on. I want to tell you what

happened to

> me.

>

> Although I had the chronic fatigue, before I really understood the

> adrenal/thyroid connection, I went to a practitioner convinced I was

> hypothyroid despite my " normal TSH " . She had me fill out a symptom

> questionnaire and take my temperatures for one week. I returned and she

> said I had 's thyroid Syndrome. I was finally relieved to have

> evidence that I did in fact have a thyroid problem. She also tested my

> pregnenolone, which was immeasurable, and told me to go home and start

> taking the Timed Release T3 and pregnenolone. I took 7.5 mcgs.

every twelve

> hours for 4 days. The next thing I knew I was totally incapacitated.

> Although I had the Chronic Fatigue problem before this, I was

functional and

> able to get through doing most things I had to do. After this, I was

> debilitated and practically bedridden. It was later that I found

out about

> how bad my adrenals were and that by taking the T3 I crashed them even

> worse. It took me months literally to get back on my feet.

Although I am a

> lot better and continuing chelation every week, I have yet to come

back from

> this. I have been doing things now to improve adrenal function so

that I

> might be able to take thyroid hormone again, but I'm so scared to do it

> because my adrenal situation is pretty pitiful. Cortisol just

doesn't rise

> up, especially when faced with stressors/confrontations, noises, any

> physical demands. I have plenty of cortef and hydrocortisone, but I

don't

> tolerate them very well and prefer not to use them. I've been taking

> licorice root for a week now and most recently just ordered Isocort

which

> I'm hoping will work better for me. What's the lowest dose of timed

release

> T3 that you can get? Do you know?

>

> Thanks,

>

[Guest guest]

,

My calcium and magnesium on all the hair analysis I've had done over the

past 5 years are elevated, the calcium is highly elevated and the magnesium

is slightly elevated. and my potassium and sodium were low. Also, I show

both the elevated calcium and extremely low lithium for mercury.

I run low body temps and have many symptoms of hypo, but not yellow or

orange palms. I have the puffiness in face, periodic swelling of my upper

eyelids, especially upon waking, my hair is not the same and my skin is much

drier than it ever was. I have developed insulin resistance and cannot eat

any high glycemic foods as eating even one potato will cost me 3 lbs. the

next morning. I also have sleep apnea and snore a lot. I know that these

are all hypo symptoms and I have elevated peroxidase antibodies indicative

of Hashimoto's disease.

As far as my immune system goes, I don't know if I have what's called

over-reactive or under-reactive, but I never get any colds or viruses, etc.

It's abnormal to not get a cold in 5 years. Last winter I was in a house

full of people who had bugs and flu, and I didn't get it. However, I have a

big problem with candida. I am taking nystatin right now.

When I take cortef, I feel really crappy and I can't really explain how.

It's like I feel sickly when I take it. My Isocort came yesterday and I

started that this morning. I'm hoping this will agree with me and work. I

have bad adrenal crashes where I cannot tolerate stress. I collapse for

long periods after being faced with physical/mental/emotional demands. My

body just quits on me and I take a long time to recover. I spend lots of

time lying down due to the chronic fatigue.

Thanks for sharing

Re: fibromyalgia, fatigue, thyroid

treatment

>

>

> ,

>

> I'm taking 9.5 mcg SRT3 every 12 h. It is compounded. The pharmacy

> can make it up in any dose the doctor will write a script for.

>

> I can understand that taking T3 without cortef would be very hard on

> the adrenals (for people with weak adrenals). Taking the fast release

> T3 (cytomel) was very hard on my adrenals even though I had cortef and

> I took cortef with every dose.

>

> How often have you tried cortef and what happens when you take it?

> I'm not sure what you mean when you say that you don't tolerate it well.

>

> Do you get frequent infections and have trouble shaking them? That's

> one indication of adrenal fatigue. Another one is low blood pressure

> and dizziness on first standing. Do you have low BP?

>

> Did you have a hair test and did it show the adrenal signs (Ca and Mg

> going one way and Na and K going the other way)?

>

> Best

> J

>

>

>

>

> >

> > J:

> >

> > I recently sent for an information packet from the Fibro/Fatigue

> Centers.

> > There's one coming here to Boston in a few months. I was wondering what

> > dose of timed release T3 you are on. I want to tell you what

> happened to

> > me.

> >

> > Although I had the chronic fatigue, before I really understood the

> > adrenal/thyroid connection, I went to a practitioner convinced I was

> > hypothyroid despite my " normal TSH " . She had me fill out a symptom

> > questionnaire and take my temperatures for one week. I returned and she

> > said I had 's thyroid Syndrome. I was finally relieved to have

> > evidence that I did in fact have a thyroid problem. She also tested my

> > pregnenolone, which was immeasurable, and told me to go home and start

> > taking the Timed Release T3 and pregnenolone. I took 7.5 mcgs.

> every twelve

> > hours for 4 days. The next thing I knew I was totally incapacitated.

> > Although I had the Chronic Fatigue problem before this, I was

> functional and

> > able to get through doing most things I had to do. After this, I was

> > debilitated and practically bedridden. It was later that I found

> out about

> > how bad my adrenals were and that by taking the T3 I crashed them even

> > worse. It took me months literally to get back on my feet.

> Although I am a

> > lot better and continuing chelation every week, I have yet to come

> back from

> > this. I have been doing things now to improve adrenal function so

> that I

> > might be able to take thyroid hormone again, but I'm so scared to do it

> > because my adrenal situation is pretty pitiful. Cortisol just

> doesn't rise

> > up, especially when faced with stressors/confrontations, noises, any

> > physical demands. I have plenty of cortef and hydrocortisone, but I

> don't

> > tolerate them very well and prefer not to use them. I've been taking

> > licorice root for a week now and most recently just ordered Isocort

> which

> > I'm hoping will work better for me. What's the lowest dose of timed

> release

> > T3 that you can get? Do you know?

> >

> > Thanks,

> >

>

>

>

>

>

>

>

>

[Guest guest]

Hi,

I'm on digest so didn't pipe in right away. I'm on 60mcg of

time-released T3. If I go higher I get fatigued, but lower and my

symptoms come back. I know that's high, but it's what works for me.

I tried some Cortef lately and noticed that I started to put on

weight, so I've stopped that hoping my weight will come down again.

Is cortef and weight gain related?

I had a number of amalgams and broke a molar during pregnancy. I

think I might have swallowed some amalgam, but I wasn't aware at the

time. After delivery, son had colic and is now ADHD, while I was

diagnosed as fibromyalgic. T3 helped me not go on disability, but it

hasn't helped me get my life back.

I was so hoping chelating would be the trick. I know that since I

started oral DMSA, I've finally been able to sleep through the night

w/o pills. (4th round) That hasn't happened in 9 years!!!! I need to

get my liver tested, but fully intend to continue the chelation, and

get back as much as I can! I suppose I'll know when I have to start

taking less of the T3.

Ghina

[Guest guest]

Hi . I can relate to your post. I too have hypo symptoms however

treatment hasn't helped. Recently I had my FIRST cold in years which turned

into a sinus infection. I'm doing Salt/C for chronic lymes and co infections

and I'm thinking that maybe my immune system is waking up. Wishing you the

best. Carol B

---------------------------------

Yahoo! DSL Something to write home about. Just $16.99/mo. or less

[Guest guest]

Carol B-

How exactly do you take the salt/C?

Re: Re: fibromyalgia, fatigue, thyroid

treatment

> Hi . I can relate to your post. I too have hypo symptoms however

treatment hasn't helped. Recently I had my FIRST cold in years which

turned into a sinus infection. I'm doing Salt/C for chronic lymes and co

infections and I'm thinking that maybe my immune system is waking up.

Wishing you the best. Carol B

>

>

>

> ---------------------------------

> Yahoo! DSL Something to write home about. Just $16.99/mo. or less

>

>

[Guest guest]

Hi . This is something that Jess (aka, Val) who also belongs to this

group ran accross and when she shared it I researched it and it just made sence

to me. I've always wondered if I didn't have a reoccuring infection that was

undiagnosed. There's some info in the files section but for a real education go

to lymephotos.com. If you think you might be interested you can join

lymestrategies.com for more info. Carol B

---------------------------------

Yahoo! Photos – Showcase holiday pictures in hardcover

Photo Books. You design it and we’ll bind it!

[Guest guest]

,

I do hope that the isocort works for you. Let us know if it is helping.

J

>

> ,

>

> My calcium and magnesium on all the hair analysis I've had done over the

> past 5 years are elevated, the calcium is highly elevated and the

magnesium

> is slightly elevated. and my potassium and sodium were low. Also,

I show

> both the elevated calcium and extremely low lithium for mercury.

>

> I run low body temps and have many symptoms of hypo, but not yellow or

> orange palms. I have the puffiness in face, periodic swelling of my

upper

> eyelids, especially upon waking, my hair is not the same and my skin

is much

> drier than it ever was. I have developed insulin resistance and

cannot eat

> any high glycemic foods as eating even one potato will cost me 3

lbs. the

> next morning. I also have sleep apnea and snore a lot. I know that

these

> are all hypo symptoms and I have elevated peroxidase antibodies

indicative

> of Hashimoto's disease.

>

> As far as my immune system goes, I don't know if I have what's called

> over-reactive or under-reactive, but I never get any colds or

viruses, etc.

> It's abnormal to not get a cold in 5 years. Last winter I was in a

house

> full of people who had bugs and flu, and I didn't get it. However,

I have a

> big problem with candida. I am taking nystatin right now.

>

> When I take cortef, I feel really crappy and I can't really explain how.

> It's like I feel sickly when I take it. My Isocort came yesterday and I

> started that this morning. I'm hoping this will agree with me and

work. I

> have bad adrenal crashes where I cannot tolerate stress. I collapse for

> long periods after being faced with physical/mental/emotional

demands. My

> body just quits on me and I take a long time to recover. I spend

lots of

> time lying down due to the chronic fatigue.

>

> Thanks for sharing

>