Guest guest Posted January 10, 2000 Report Share Posted January 10, 2000 Hi Group: I've received e-mails from a new member who needs help. If anyone can give additional feedback and support, I know she'd appreciate it very much. Thanks so much. Babs Hi Babs Thanks for the information. I am on Vioxx and tylenol for arthritis right now. My previous doctors had me on prednisone a while back but i got no relief from it. Friday was my first diagnosis and before he starts me on any other meds he wants to wait until xrays of my chest, knees and feet come back. He also did some type of liver blood test. I go back in a week from tommorrow to find out what meds and what else is exactly wrong with me. I have had breathing difficulties for quite some time and it doesnt seem to be asthma or anything like that as they originally thought. I have been sick for over 2 years with fever, breathing difficulties, swelling, achiness all over. About 6 months ago i began to get the morning stiffness that lasted about a hour and then about two months ago i began to get the pain and aches in my joints really bad. Almost to the point of not being able to walk. I have difficulty typing at this moment. It really affects my knees, hips, elbows and fingers and occasionally my feet. Honestly it seems to be spreading everywhere. I have been going to doctors for the past two years and they all seemed to want to blame it on a viral or bacterial infection that was hard to clear up and i knew it had to be more. I just wasnt getting better. I finally had watched a Good Morning America show about Lupus and i asked my doctor if he thought i had it-he looked at me like i was crazy but went ahead and tested me. I thought i had Lupus because my face also breaks out in a red rash really bad. The tests came back-the ANA test for Lupus was negative but the RF test came back as positive for the rheumatoid factor. It wasnt until then that my doctor actually tried to help me...It took this long...I hear of so many even having it to take longer and that is a shame. I really have questions about if you or anyone you know who has RA if they ever have lung or breathing problems and if you or anyone has had any problems filing for long term disability with their work or for Social Security Disability. I am on short term right now and will have to do both. I tried working three different times during my illness and i just got so worn out and could not keep going. Also, I was afraid of losing my job if i kept coming to work sick or missing days of work so i knew i was better to be on short term disability where i can still have my benefits but get the rest my body needs. Also, have you heard of anybody having their face turn red with a flare up? Any help would be appreciated. Thanks again for the links etc...and for responding. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 11, 2000 Report Share Posted January 11, 2000 [This message contained attachments] Quote Link to comment Share on other sites More sharing options...
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