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Re: SDS to Laurie

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Laurie,

Did you already say she's on a blood pressure medicine like Florinef or

Proamitine (sp?)? Even if she is, it sounds like she needs something more

to help keep her bp up. Have you tried keeping her legs elevated while

she's eating? I'd just be worried about lying her back so soon after eating

since many MSAers have swallowing problems and/or reflux.

Just my two cents,

Rose

----Original Message Follows----

Everytime she eats, she has to be layed back immediately or she passes out.

She has had awful blood pressure problems.

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Rose,

Yes she is on Flourinuf. There are days where she is in bed all day because her blood pressure is so low, (ex. 60 over 37) for the whole day. Even if she sits in her wheelchair too long, she passes out. She has a strap that goes across her chest to keep her up. Does anyone else have problems like this? If she has her legs elevated while she eats, she chokes. Thanks Rose.

Laurie

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Laurie,

Have you added salt to her diet? We make sure Charlotte gets more than 4000 mg

per day, or twice what a normal person needs. I think some patients use as much

as 6000 mg per day. You do have to watch her blood chemistry for low potassium

however. The florinef works best with more salt.

Take care, Bill and Charlotte

Laurieb9@... wrote:

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Rose and Laurie:

We have found that the best way to keep Ken from passing out after eating is to make him eat in his wheelchair and not let him try to stand for about a half hour after eating. He used to have a great drop after meals, but now, we just wheel him away, and let his system digest and the drop rarely occurs.

Barbara

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Rose and Laurie:

We have found that the best way to keep Ken from passing out after eating is to make him eat in his wheelchair and not let him try to stand for about a half hour after eating. He used to have a great drop after meals, but now, we just wheel him away, and let his system digest and the drop rarely occurs.

Barbara

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Laurie:

Many people on this list take both Florinef and Proamatine. Have you asked the doctor about using both together? Ken took Florinef and salt for several years, but it didn't do the job after a while, and he now takes both. Also, remember that Florinef needs much liquid and much salt to work at all.

Barbara

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Laurie:

Many people on this list take both Florinef and Proamatine. Have you asked the doctor about using both together? Ken took Florinef and salt for several years, but it didn't do the job after a while, and he now takes both. Also, remember that Florinef needs much liquid and much salt to work at all.

Barbara

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