Re: AP mentioned in Health Central article

[Guest guest]

He makes it sound like it is a quack treatment

>Some people are advocating the use of antibiotics, which in my opinion

are not appropriate for most forms of >arthritis, although minocycline

may benefit mild rheumatoid arthritis and Reiter's syndrome. I do think

the public >needs to be made aware of these and the many other potential

areas of fraud or abuse.

[Guest guest]

Hi , Liz and all,

SC wrote:

>

> From: SC <sasc@...>

>

> He makes it sound like it is a quack treatment

He does indeed!

> >Some people are advocating the use of antibiotics, which in my opinion

> are not appropriate for most forms of >arthritis, although minocycline

> may benefit mild rheumatoid arthritis and Reiter's syndrome. I do think

> the public >needs to be made aware of these and the many other potential

> areas of fraud or abuse.

I really don't understand this attitude since most of the studies (MIRA,

the Netherlands) done have been on people with severe, long standing

disease where they have failed " traditional " treatments. I even read

somewhere that someone was suggesting that minocycline may be MOST

appropriate for those severe cases. I guess this is all part of the

whole politics of denial--For years these doctors have been saying that

minocycline didn't work and the practitioners who prescribed it were

frauds and quacks. Then studies prove these naysayers wrong, so they

change their story--Now it's " Well it works, but only in mild cases

blah blah blah " .

Whatever.

All I know is that I have been repeatedly told I have a very severe case

of RA, I have taken no DMARDs, I have undergone no special exercise

program, I have only taken antibiotics and I am 90% better after 15

months, and my pattern of progress has been almost exactly as described

on this web sites and other members with these type of dramatic

improvements.

Must I be an aberration then? I think my response to that would include

some colorful metaphors involving male cattle and their biological waste

products.

Just my 2 cents....

j.

------------------------------------

ph A. Graff

Director of Digital Prepress

Graphic Communications, Inc.

(301) 599-2020

" The truth will set you free, but

first it will make you miserable "

[Guest guest]

Hi Joe,

It gets so frustrating. In my newspaper today was a lenthy article talking

about new hope for arthritis " victims " . Off course they touted the new $10

000/year drugs and mentioned the " gold standard " Methotrexate as well as

the NSAID's, but never mentioned anti-biotics

grrrrrrrrrrr...(and that is growling, not grinning)

Like you, I am doing very well on AP only

Ute

RA3/98 AP 5/98

>

>I really don't understand this attitude since most of the studies (MIRA,

>the Netherlands) done have been on people with severe, long standing

>disease where they have failed " traditional " treatments.

[Guest guest]

I believe the real resistance to the use of antibiotics to treat rheumatic

diseases is the fact that if antibiotics are truly effective, the whole

underpinning of mainstream treatment for the past 3 or 4 decades is

undermined.

Many careers are built upon the current understanding, and there will be a

lot of egg on a lot of faces if it is ultimately proved that there is an

ongoing, treatable infection at the root of these diseases.

Thank God for researchers like Trentham and O'Dell who are willing to take a

fresh look at the situation.

Jean

----------

>From: Joe Graff <joegraff@...>

>SC <sasc@...>

>Subject: Re: rheumatic AP mentioned in Health Central article

>Date: Wed, Jan 12, 2000, 3:52 PM

>

> From: Joe Graff <joegraff@...>

>

> Hi , Liz and all,

>

> SC wrote:

>>

>> From: SC <sasc@...>

>>

>> He makes it sound like it is a quack treatment

>

> He does indeed!

>

>> >Some people are advocating the use of antibiotics, which in my opinion

>> are not appropriate for most forms of >arthritis, although minocycline

>> may benefit mild rheumatoid arthritis and Reiter's syndrome. I do think

>> the public >needs to be made aware of these and the many other potential

>> areas of fraud or abuse.

>

> I really don't understand this attitude since most of the studies (MIRA,

> the Netherlands) done have been on people with severe, long standing

> disease where they have failed " traditional " treatments. I even read

> somewhere that someone was suggesting that minocycline may be MOST

> appropriate for those severe cases. I guess this is all part of the

> whole politics of denial--For years these doctors have been saying that

> minocycline didn't work and the practitioners who prescribed it were

> frauds and quacks. Then studies prove these naysayers wrong, so they

> change their story--Now it's " Well it works, but only in mild cases

> blah blah blah " .

>

> Whatever.

>

> All I know is that I have been repeatedly told I have a very severe case

> of RA, I have taken no DMARDs, I have undergone no special exercise

> program, I have only taken antibiotics and I am 90% better after 15

> months, and my pattern of progress has been almost exactly as described

> on this web sites and other members with these type of dramatic

> improvements.

>

> Must I be an aberration then? I think my response to that would include

> some colorful metaphors involving male cattle and their biological waste

> products.

>

>

> Just my 2 cents....

>

>

>

> j.

>

> ------------------------------------

> ph A. Graff

> Director of Digital Prepress

> Graphic Communications, Inc.

> (301) 599-2020

> " The truth will set you free, but

> first it will make you miserable "

>

> ---------------------------

[Guest guest]

Joe Graff wrote:

>

> From: Joe Graff <joegraff@...>

>

> Whatever.

>

> All I know is that I have been repeatedly told I have a very severe case

> of RA, I have taken no DMARDs, I have undergone no special exercise

> program, I have only taken antibiotics and I am 90% better after 15

> months, and my pattern of progress has been almost exactly as described

> on this web sites and other members with these type of dramatic

> improvements.

> ------------------------------------

> ph A. Graff

----------

Hello ph,

I noticed dramatic improvements on abx for Lyme Disease. Of course

now my doctors are telling me I never had Lyme to begin with. They

also said that bacterial infections don't respond to abx the way my

symptoms responded. But from what I am reading here that is a

bold-faced lie. And also from what I know from nursing school.

So is it true that most people have dramatic improvements in their symptoms?

I know God was in this one for sure ...

--

Kiana Rossi

bornfree@...

Undiagnosed

Next Dr's Appointment 1/18/00

Will receive results then.

[Guest guest]

Being this this case, what is everyone here doing to tell the people who do

the research what their personal experiences are? And what do they plan to

do about it? Everyone seems to wonder why the antibiotic protocols are

never espoused as the latest and greatest cure - well, perhaps everyone

should take pen in hand? I doubt that the top researchers and scientists

are heading off each day to read the stories at www.rheumatic.org, but if

they started getting flooded with letters they might just wake up.

Especially from people with successful stories and there do seem to be a few

of those here. Don't discount the little person and his pen !

Just my .02

Mark

Re: rheumatic AP mentioned in Health Central article

> From: Ute Reeves <nowyoga@...>

>

> Hi Joe,

> It gets so frustrating. In my newspaper today was a lenthy article talking

> about new hope for arthritis " victims " . Off course they touted the new $10

> 000/year drugs and mentioned the " gold standard " Methotrexate as well as

> the NSAID's, but never mentioned anti-biotics

> grrrrrrrrrrr...(and that is growling, not grinning)

> Like you, I am doing very well on AP only

> Ute

> RA3/98 AP 5/98

> >

> >I really don't understand this attitude since most of the studies (MIRA,

> >the Netherlands) done have been on people with severe, long standing

> >disease where they have failed " traditional " treatments.

>

> ---------------------------

[Guest guest]

>I believe the real resistance to the use of antibiotics to treat rheumatic

>diseases is the fact that if antibiotics are truly effective, the whole

>underpinning of mainstream treatment for the past 3 or 4 decades is

>undermined.

Not to speak of the money the drug companies etc. would lose!!!

L

[Guest guest]

Lisbeth,

You would be surprised in my rural area how many gps are using AP. It is

almost like a word of mouth thing. My gp is now treating about 10 of us and

is pleased with the results. His mentor, an RD from a well known

hospital/research facility, also uses it. There are more using it than you

think. With the newer expensive drugs coming out and not many being able

to afford them, perhaps AP will become an option for some that wouldn't try

it otherwise. It could work in reverse tho and the drug companies try to

crush the AP trend.

Bev

>

> >I believe the real resistance to the use of antibiotics to treat

rheumatic

> >diseases is the fact that if antibiotics are truly effective, the whole

> >underpinning of mainstream treatment for the past 3 or 4 decades is

> >undermined.

>

>

> Not to speak of the money the drug companies etc. would lose!!!

>

> L

[Guest guest]

Bev,

I think this just underscores my interpretation of the situation--the GP's

don't have so ego invested as the rheumatologists, and are willing to try

something which works. The rheumatologists still feel the need to toe the

line. I think this is changing, too, though.

Jean

----------

>From: " Briarwood " <briarwood@...>

> " rheumatic " <rheumaticonelist>, " Elbows " <elbows@...>,

" Lisbeth " <lisbeth@...>

>Subject: Re: rheumatic AP mentioned in Health Central article

>Date: Thu, Jan 13, 2000, 5:17 AM

>

> Lisbeth,

> You would be surprised in my rural area how many gps are using AP. It is

> almost like a word of mouth thing. My gp is now treating about 10 of us and

> is pleased with the results. His mentor, an RD from a well known

> hospital/research facility, also uses it. There are more using it than you

> think. With the newer expensive drugs coming out and not many being able

> to afford them, perhaps AP will become an option for some that wouldn't try

> it otherwise. It could work in reverse tho and the drug companies try to

> crush the AP trend.

>

> Bev

>

>

>>

>> >I believe the real resistance to the use of antibiotics to treat

> rheumatic

>> >diseases is the fact that if antibiotics are truly effective, the whole

>> >underpinning of mainstream treatment for the past 3 or 4 decades is

>> >undermined.

>>

>>

>> Not to speak of the money the drug companies etc. would lose!!!

>>

>> L

>

>

[Guest guest]

well, perhaps everyone

> should take pen in hand? I doubt that the top researchers and scientists

> are heading off each day to read the stories at www.rheumatic.org, but if

> they started getting flooded with letters they might just wake up.

Exactly what I was hoping when I posted that link! #; ) Liz G