Crystal B

[Guest guest]

If your docs want to help tell them to schedule a full body Gallium

or PET scan. Both will locate Sarc hotspots in your body. DO NOT, DO

NOT, DO NOT let them perform a brain biopsy. It is contraindicated

for persons with Sarc. With the Gallium or PET scan you can find

other areas of the body to biopsy if necessary.

Shar

> Well here is what I know. There is the lesion on the MRI which

is " unusual " in appearance. It extends a bit past the surface of the

medulla and looks almost like a coating on the MRI. Lumbar punctures

reveal high protein and no cancer cells. and some other feature the

doctor said was highly suggestive of a demylinating disease. At the

outset of this mess I was told it was likely demylinating disease,

then maybe a AVM, now maybe a tumor and a couple of people have now

brought up sarcoid. My ANA was slightly elevated in October(which

they say means nothing but I read on emedicine can be positive in

sarcoid). Some of my joints hurt now so it could be worse I have no

idea.