Re: not for politics

[Guest guest]

In a message dated 11/11/00 12:50:05 PM Eastern Standard Time,

@... writes:

> This list is not for politics. It is for Fibromyalgia and CFS topics.

>

>

Well if i cant speak as i feel the need to on this list then what am i on it

for ........ Makes no sense to me

[Guest guest]

I would hazard a guess that you are on this list for support and information

on fibromyalgia-CFS.

Take care,

Irene

>

> Well, if I cant speak as I feel the need to on this list then what am I on

> it

> for ........ Makes no sense to me

>

>

>

>

[Guest guest]

I am sorry but I still disagree. A whole posting about politics is not, at

least to my mind, is not what this list is about. I joined this list and am

very happy to get support, hear about family matters but I don't want to hear

about politics. I hear about that every time I turn on the TV or open a

paper. Even the Sunday Times from London. Please, I am not trying to cause

trouble but I did not see anything in the posting about SSI and SSDL. I am

on Social Security and Medicare and, yes, I am worried about what is going to

happen in the future but I do not feel this list is the place to talk about

my worries.

I am on another list which started to get to political and the moderator just

stopped it. She said that is not what the list is about.

I am very sorry if I have upset.

Take care,

Irene

>

> While I think that we should not be endorsing one candidate over

> another, politics is very much a part of Fibro and CFS. It is our

> elected officials who make decisions about how much goes to research and

> which areas of research. It is our elected officials who have the power

> to do something about the enormous costs of medications. It is our

> elected officials and their staff that make it so hard for some people

> to get the pain relief they need cos they don't want to have people

> taking too many narcotics. It is our elected officials who make the

> rules about SSI and SSDI. And that affects all of us.

>

>

[Guest guest]

you are right in that they afffect what gets passed and not passed, but i

still don't think it's for personal reviews of the politicians themselves.

[Guest guest]

Irene, i have to agree with you on the politics, it's everywhere we turn

around, and personally right now i have my own health to take care of so that

i can enjoy life with my family--and that's what i thot this site was for,

was for those of us who are fighting our own health battles, not to say that

were against politics--just not on this site. thanks,

[Guest guest]

In a message dated 11/11/00 2:22:48 PM Eastern Standard Time, patidu@...

writes:

>

> I would hazard a guess that you are on this list for support and

> information

> on fibromyalgia-CFS.

>

>

Yes but .... not to feel i cant speak aboutsomething else that is on my mind

[Guest guest]

Di,

I was just wondering.....do you hate this disease???? (Chuckling).

Don't feel like you're alone, it doesn't rate high on my " oh joy " list

either.

Debbie G.

not for politics

> THANK YOU! That is all I hear from every single person I speak with.

Thanks

> for avoiding it in the only solace I have! I have had a horrible weekend

with

> FMS. At work at Hershey I fogged up. Things that come so natural for me I

had

> to concentrate to do. It is repetition so I should be able to do it,

> literally, the same thing 97 times! I could not remember the same exact

order

> from one to the other~ I can't even remember the damn keys and I have been

> typing for over 30 years. I was typing while most girls were playing with

> Barbies and now I don't remember which key is NEXT! I hate this disease,

got

> turned down for $40,000 worth of life insurance today, they said I was a

> risk! Dr says it is curable but tells the life insurance I am a risk! I

hate

> this disease! Ya know what? I can't even hold a decent conversation! I

have

> always been a leader, now I am a failure! I hate this disease. Don't

lecture

> me! I hate this disease.

> Storms...........Di

>

>

> List owner Bierman

>

> Add or view webpage links about Fibromyalgia/CFS.

> http://www.onelist.com/links/

>

>

> ~*~CHAT TIME:~*~

> MON Night

> TIME:Eastern 9 Pm, Central 8 Pm, Mt 7 PM Pacific 6 PM

> WHERE: /chat/

>

> To write the list owner: The_List_Owner@...

>

> TO unsubscribe.

> Go to: http://www.onelist.com/ to this list and unsub from it.

>

>

>

>

>

>

[Guest guest]

At 07:38 PM 11/11/00 -0500, you wrote:

>THANK YOU! That is all I hear from every single person I speak with. Thanks

>for avoiding it in the only solace I have! I have had a horrible weekend with

>FMS. At work at Hershey I fogged up. Things that come so natural for me I had

>to concentrate to do. It is repetition so I should be able to do it,

>literally, the same thing 97 times! I could not remember the same exact order

>from one to the other~ I can't even remember the damn keys and I have been

>typing for over 30 years. I was typing while most girls were playing with

>Barbies and now I don't remember which key is NEXT! I hate this disease, got

>turned down for $40,000 worth of life insurance today, they said I was a

>risk! Dr says it is curable but tells the life insurance I am a risk! I hate

>this disease! Ya know what? I can't even hold a decent conversation! I have

>always been a leader, now I am a failure! I hate this disease. Don't lecture

>me! I hate this disease.

>Storms...........Di

>No lectures from me...that's for sure!!! I have trouble finishing

>sentences....and people I worked with used to tell me to stop using such

> " big words " ...shoot, now I can't find ANY words...and it's the pits when

>you look at your son that you've theoretically known since he was born 15

>yrs ago and have NO CLUE what his name is!!! Sometimes if I start with

>the oldest and work my way down I can recall..but it takes time..and let's

>take on life insurance....I got RATED for having fibro....my 1/4 mil of

>insurance got decreased to 100k because even that was over double what I

>was going to pay for the 1/4 mil....and I have kids to look out

>for!!! P***ed me off big time...but I guess I should be grateful that I

>got insurance at all...have you gone to directquote.com to see if they

>will do your insurance for you?? Only a thought but someone told me they

>were pretty good....

I hate this too....I used to garden...a big veggie garden....now I am

being very ambitious and plannin a square foot garden for veggies for next

year....using WeedX to cut the weeding that I can't do...it will be the

first garden in three years....and may not happen....I used to have

horses....they're gone...I used to take care of a 2600 sq ft house...now I

live in a 1700 and some days can't manage that (like 5 out of 7!!)...yes,

this would definitely not be something I would choose for myself....but,

then again...at least I will live through it...with the help of this group

and my faith...Dee

>

>List owner Bierman

>

>Add or view webpage links about Fibromyalgia/CFS.

>http://www.onelist.com/links/

>

>

>~*~CHAT TIME:~*~

>MON Night

>TIME:Eastern 9 Pm, Central 8 Pm, Mt 7 PM Pacific 6 PM

>WHERE: /chat/

>

>To write the list owner: The_List_Owner@...

>

>TO unsubscribe.

>Go to: http://www.onelist.com/ to this list and unsub from it.

[Guest guest]

Dee,

I understand exactly what you're saying. I went out this last summer

and had my husband pull out the big bushes that were in our front yard and

planted some beautiful flowers there instead......thought it might look

nice, but now the weeds have taken over my garden and it looks like s---!

And do you think I can do anything about it???? H---- No! My hands and arms

have been cramping so much lately that I'm lucky if I am able to answer a

post.....I HATE THIS DISEASE!!!!!

Sorry.....needed to vent.

Debbie G.

Re: not for politics

> At 07:38 PM 11/11/00 -0500, you wrote:

> >THANK YOU! That is all I hear from every single person I speak with.

Thanks

> >for avoiding it in the only solace I have! I have had a horrible weekend

with

> >FMS. At work at Hershey I fogged up. Things that come so natural for me I

had

> >to concentrate to do. It is repetition so I should be able to do it,

> >literally, the same thing 97 times! I could not remember the same exact

order

> >from one to the other~ I can't even remember the damn keys and I have

been

> >typing for over 30 years. I was typing while most girls were playing with

> >Barbies and now I don't remember which key is NEXT! I hate this disease,

got

> >turned down for $40,000 worth of life insurance today, they said I was a

> >risk! Dr says it is curable but tells the life insurance I am a risk! I

hate

> >this disease! Ya know what? I can't even hold a decent conversation! I

have

> >always been a leader, now I am a failure! I hate this disease. Don't

lecture

> >me! I hate this disease.

> >Storms...........Di

> >No lectures from me...that's for sure!!! I have trouble finishing

> >sentences....and people I worked with used to tell me to stop using such

> > " big words " ...shoot, now I can't find ANY words...and it's the pits when

> >you look at your son that you've theoretically known since he was born 15

> >yrs ago and have NO CLUE what his name is!!! Sometimes if I start with

> >the oldest and work my way down I can recall..but it takes time..and

let's

> >take on life insurance....I got RATED for having fibro....my 1/4 mil of

> >insurance got decreased to 100k because even that was over double what I

> >was going to pay for the 1/4 mil....and I have kids to look out

> >for!!! P***ed me off big time...but I guess I should be grateful that I

> >got insurance at all...have you gone to directquote.com to see if they

> >will do your insurance for you?? Only a thought but someone told me they

> >were pretty good....

> I hate this too....I used to garden...a big veggie garden....now I am

> being very ambitious and plannin a square foot garden for veggies for next

> year....using WeedX to cut the weeding that I can't do...it will be the

> first garden in three years....and may not happen....I used to have

> horses....they're gone...I used to take care of a 2600 sq ft house...now I

> live in a 1700 and some days can't manage that (like 5 out of 7!!)...yes,

> this would definitely not be something I would choose for myself....but,

> then again...at least I will live through it...with the help of this group

> and my faith...Dee

>

> >

> >List owner Bierman

> >

> >Add or view webpage links about Fibromyalgia/CFS.

> >http://www.onelist.com/links/

> >

> >

> >~*~CHAT TIME:~*~

> >MON Night

> >TIME:Eastern 9 Pm, Central 8 Pm, Mt 7 PM Pacific 6 PM

> >WHERE: /chat/

> >

> >To write the list owner: The_List_Owner@...

> >

> >TO unsubscribe.

> >Go to: http://www.onelist.com/ to this list and unsub from it.

>

>

>

> List owner Bierman

>

> Add or view webpage links about Fibromyalgia/CFS.

> http://www.onelist.com/links/

>

>

> ~*~CHAT TIME:~*~

> MON Night

> TIME:Eastern 9 Pm, Central 8 Pm, Mt 7 PM Pacific 6 PM

> WHERE: /chat/

>

> To write the list owner: The_List_Owner@...

>

> TO unsubscribe.

> Go to: http://www.onelist.com/ to this list and unsub from it.

>

>

>

>

>

>