Guest guest Posted January 5, 2004 Report Share Posted January 5, 2004 May is 5 yrs old. She was diagnosed at birth. May has choanal atresia, ear abnormalies with a mild hearing loss, microcelepy(small head), small mandible(chin), malformation of her soft palate( it is short and does not move or vibrate with speech), malformation of her brain, one side in one lobe is thicker than the rest causing epilepsy, which is for themost part under control with meds, she has developmental delays in alot of areas but is progressing. She receives alot of therepy and is in a self contained kindergaten class. She has had many surgeries attempting to repair a chonal atresia with little success. her next surgery will be in Feb. They will attempt another c. a. repair, try again to fix her deviated septum and do a pheringal flap to try help her speech, she is hypernasal and very difficult to understand she also does a glottle stop which means she stops or makes sounds from her throat. We were very lucky in that Mays heart is fine. Her brother is going to be 7 next week he has down syndrome and aside from his other problems his heart is fine as well, he has an insignificant heart mumur. If any one has info on pheringal flap i would greatly appreciate your input. cris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2004 Report Share Posted January 5, 2004 hi Cris welcome! i know that children with cleft palates sometimes go this step and need the p-flap procedure ... i wonder if you had thought of accessing a cleft email list too with any questions? i don't presently belong to any cleft listserves ... too many other things to learn about at this stage ;0) ... but, have in the past belonged to both " widesmiles " and " cleft advocate " ... maybe you could join and search their archives also? just another avenue of potential info... hth Jo ds Ben, ds Josh CHaRGE uclbcp ----- Original Message ----- .. If any > one has info on pheringal flap i would greatly appreciate your > input Quote Link to comment Share on other sites More sharing options...
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