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Re: vision report 1

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Hi Chantelle,

This report should help support your claim that your vision does interfere

with your ability to do many things. I can help you decipher more later if

you do not sit down and discuss it with Ann.

For now just know that OU means both eyes, OS means left eye, and OD means

right eye; so the report actually did mention your left eye a lot. So with

the coloboma your right eye is the better eye, but acuity wise your right

eye is worse.

Kim

> Hi guys. Got one of my vision reports. Im going to go to the low

> vision assessment centre if they ever call me back! lol I sent my

> thing to them, I phoned them back to get a response but hey, maby it

> will take a little longer. I put it in the mail before easter, but

> maby I will get a response this week.

>

> Anyways, anyone who understands optomological exams, enjoy this

> read… (Just a note, not much is on the left eye, when that's the

> worse eye. Oh well.

>

> Ok, here it goes…

>

> Both eyes less then 20 degrees diameter in both eyes.

> Other abnormality (Quadranopsia, superotemporal (cant read the next

> word v edef?)

> distance: Right eye 20/40+ near 20/30 Left eye 20/400. Right eye

> conjenital colomboma.

>

> Rotine check up; blurred vision @ distance & near OU. History of

> diabetes and heart condition. non- strabismus and orthobhoria at

> distance and near. 12mmHg OD 12mmHg OS

> correctopia OU (Lower sislocation of pupils) all media appears to be

> otherwise clear and unremarkable OU. Dilated Fundus Exam disclosed

> very large inferior nasal retinal colomboma OU. with obstruction of

> OS Macula. very pale and whitish appearance. Humphrey.s

> Autoperimetry discloses very large dense and defined superior

> temporal visual field defect OU corresponding to the retinal damage

> (enclosures) results confirmed good reliability. OS has very poor

> Vas both central and peripheral due to macular coverage of retinal

> damage wheras OD macula has been spared allowing reasonable and

> functionally workable central vision. Extreamly poor temporal visual

> fields prove debilitating.

>

>

>

>

> Membership of this email support groups does not constitute membership in the

> CHARGE Syndrome Foundation.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter)

> please contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

> 7th International

> CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

> Information will be available at our website

> www.chargesyndrome.org or by calling 1-. In Canada, you may

> contact CHARGE Syndrome Canada at 1- (families), visit

> www.chargesyndrome.ca, or email info@.... Thank you!

>

>

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Guest guest

Thanks for the interpretation. I am surprized though that the

accuity is better in my left eye as I dont really use that eye and

rely mostly on my right eye to see everything. But im glad it says

enough that I do have visual imarement that hampers things. (well

ok, I would be even happier if my vision was 20/20 in both eyes with

no colomboma, but you know what I mean! LOL)

Chantelle

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Guest guest

HI Chantelle,

All it really means is that with your limited field of vision in your left

eye you can make things out okay. The problem is the coloboma covers so

much of that eye that as you say you do not rely on it much. If someone is

inexperienced and looks at the report they could look at the report and say

you can see fine, because the acuity in that eye is okay. That is not what

the report says, so make sure they read it closely or have someone spell it

out in laypersons terms, so the folks determining your eligibility for

disability can understand it.

I do think it is interesting that the field loss is so great in the left eye

and the acuity in the right eye is so poor. I don't see how they can say

you do not qualify for low vision services, but I do not work in that field.

Of course you would like to see well, but since you don't it would be

helpful if others understood how the vision loss effects you in different

situations.

Good luck,

Kim

> Thanks for the interpretation. I am surprized though that the

> accuity is better in my left eye as I dont really use that eye and

> rely mostly on my right eye to see everything. But im glad it says

> enough that I do have visual imarement that hampers things. (well

> ok, I would be even happier if my vision was 20/20 in both eyes with

> no colomboma, but you know what I mean! LOL)

>

> Chantelle

>

>

>

>

> Membership of this email support groups does not constitute membership in the

> CHARGE Syndrome Foundation.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter)

> please contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

> 7th International

> CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

> Information will be available at our website

> www.chargesyndrome.org or by calling 1-. In Canada, you may

> contact CHARGE Syndrome Canada at 1- (families), visit

> www.chargesyndrome.ca, or email info@.... Thank you!

>

>

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Guest guest

HI Chantelle: quite quickly, I recall you felt the examination was

not accurate of your visual fields, in terms of what was happening

with the visual field testing during the exam? Was it possible that

perhaps you missed some of the verbal explanations due to hearing

impairment? Was it just the visual acuity and not the visual fields

the individual at CNIB was given? This report seems fairly accurate

in terms of what you have explained to be your visual functioning, and

in terms of what I observed being with you.This report should make you

available for services with CNIB. I CANNOT believe you never recieved

vision services in all your schooling. What the report does not cover

is many other vision considerations: lighting, sun/snow glare, visual

distraction on the left (when the candle was placed on the table on

that side), eye reflexes, and your reports on inability to

discriminate faces at a distance. Did you also have a cataract(s)

early on??? You compensate so well with vision and hearing, it is

VERY VERY misleading to the lay person that you COULD be disabled.

You are amazing, especially in terms of your functioning level

considering this report. I am always in awe of how all our kids learn

to use their vision and yet it also explains so many of the other

issues they need help with.

Ann Gloyn

specialist Teacher

Canada

> Hi guys. Got one of my vision reports. Im going to go to the low

> vision assessment centre if they ever call me back! lol I sent my

> thing to them, I phoned them back to get a response but hey, maby it

> will take a little longer. I put it in the mail before easter, but

> maby I will get a response this week.

>

> Anyways, anyone who understands optomological exams, enjoy this

> read… (Just a note, not much is on the left eye, when that's the

> worse eye. Oh well.

>

> Ok, here it goes…

>

> Both eyes less then 20 degrees diameter in both eyes.

> Other abnormality (Quadranopsia, superotemporal (cant read the next

> word v edef?)

> distance: Right eye 20/40+ near 20/30 Left eye 20/400. Right eye

> conjenital colomboma.

>

> Rotine check up; blurred vision @ distance & near OU. History of

> diabetes and heart condition. non- strabismus and orthobhoria at

> distance and near. 12mmHg OD 12mmHg OS

> correctopia OU (Lower sislocation of pupils) all media appears to be

> otherwise clear and unremarkable OU. Dilated Fundus Exam disclosed

> very large inferior nasal retinal colomboma OU. with obstruction of

> OS Macula. very pale and whitish appearance. Humphrey.s

> Autoperimetry discloses very large dense and defined superior

> temporal visual field defect OU corresponding to the retinal damage

> (enclosures) results confirmed good reliability. OS has very poor

> Vas both central and peripheral due to macular coverage of retinal

> damage wheras OD macula has been spared allowing reasonable and

> functionally workable central vision. Extreamly poor temporal visual

> fields prove debilitating.

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