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Marilyn in Tenn.

My husband Ken lost his sense of smell very early in the progression of the

disease. Before we really knew what was wrong. We teased him some about it

at the time, but finally came to realize he had actually lost his sense of

smell, and as far as I know it never came back.

Bernice wife and cg to Ken / dec. 06/23/00

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We were sorta of the same way. I can smell mold and mildew a mile away, but

he could never smell it. The same thing with a rose or gardenias. Thanks

for your reply I am sorry to hear of your loss. You may have mentioned it

in previous posts, but sometimes, I am unable to read all messages. I know

that we have a tough road ahead of us.

Marilyn

----------

>

>To: <shydrageregroups>

>Subject: MSA smell

>Date: Tue, Jan 2, 2001, 7:11 PM

>

>Marilyn in Tenn.

>My husband Ken lost his sense of smell very early in the progression of the

>disease. Before we really knew what was wrong. We teased him some about it

>at the time, but finally came to realize he had actually lost his sense of

>smell, and as far as I know it never came back.

>Bernice wife and cg to Ken / dec. 06/23/00

>

>

>

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Marilyn,

On the sense of smell. Did your husband work around degreasing machines in the

50's or early 60's? Auto shops used them a lot and so did many maintenance

shops. I also lost my sense of smell and I attribute it to working with with

those strong chemicals. I think the smell overpowers everything else and

desensitizes your smell to anything less powerful smelling.

Take care, Bill and Charlotte

---------------------------------------------------------------------

and Marilyn wrote:

> We were sorta of the same way. I can smell mold and mildew a mile away, but

> he could never smell it. The same thing with a rose or gardenias. Thanks

> for your reply I am sorry to hear of your loss. You may have mentioned it

> in previous posts, but sometimes, I am unable to read all messages. I know

> that we have a tough road ahead of us.

>

> Marilyn

> ----------

> >

> >To: <shydrageregroups>

> >Subject: MSA smell

> >Date: Tue, Jan 2, 2001, 7:11 PM

> >

>

> >Marilyn in Tenn.

> >My husband Ken lost his sense of smell very early in the progression of the

> >disease. Before we really knew what was wrong. We teased him some about it

> >at the time, but finally came to realize he had actually lost his sense of

> >smell, and as far as I know it never came back.

> >Bernice wife and cg to Ken / dec. 06/23/00

> >

> >

> >

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Dear bill:

You may have lost your sense of smell through your work, but loss of sense of smell is one of the common symptoms of Parkinson's disease and Shy-Drager Syndrome. Ken lost his sense of smell earlyon. We were warned that he would not sense smoke and to be aware of that.

Barbara

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Barb ,

Charlotte still has a better sniffer than me :o) She does not

have the OH real bad either, more OPCA problems. There are no absolutes

with MSA.

Take care, Bill and Charlotte

---------------------------------------------

kmcrae@... wrote:

Dear bill:

You may have lost your sense of smell through your work, but loss of

sense of smell is one of

the common symptoms of Parkinson's disease and

Shy-Drager Syndrome. Ken

lost his sense of smell earlyon. We were warned that

he would not sense smoke

and to be aware of that.

Barbara

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