Guest guest Posted January 7, 2000 Report Share Posted January 7, 2000 Group, please, please correct me if I'm wrong about this, but it's my understanding that the anemia that has been caused by chronic disease such as rheumatoid disease is not helped by taking iron supplements. ??????? I'm sure that's what my doctor told me. Judy (deejay) rheumatic Anemia/Low Iron > I have had anemia since my arthritis first was diagnosed in June 1999. Since then my iron has dropped very low to 7. My Doc put me on iron supplements. I understand it can adhere to the minocin so on the days I take the minocin I am carefull to take the iron at least two hours before. I am on numerous vitamins, fish oil and pancreatic enzyme. I am concerned that some of the vitamins or Nsaid (indomethacin) maybe also blocking the Minocin from working. Does anyone know of any other vitamins that may cause problems? I also have have had some blood test and would like to know if this is normal RF went from 320 down to 80 then up to 160. Is this the 2 steps back 1 forward that Dr. Brown spoke of. I am really my own doctor. The doctor I presently have is passive. Does anyone know of a Doctor in Connecticut who is familiar with the Minocin protocol? > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2000 Report Share Posted January 7, 2000 I believe your right..... > Group, please, please correct me if I'm wrong about this, but it's my > understanding that the anemia that has been caused by chronic disease such > as rheumatoid disease is not helped by taking iron supplements. ??????? > I'm sure that's what my doctor told me. Judy (deejay) > rheumatic Anemia/Low Iron > > > > I have had anemia since my arthritis first was diagnosed in June 1999. > Since then my iron has dropped very low to 7. My Doc put me on iron > supplements. I understand it can adhere to the minocin so on the days I > take the minocin I am carefull to take the iron at least two hours before. > I am on numerous vitamins, fish oil and pancreatic enzyme. I am concerned > that some of the vitamins or Nsaid (indomethacin) maybe also blocking the > Minocin from working. Does anyone know of any other vitamins that may cause > problems? I also have have had some blood test and would like to know if > this is normal RF went from 320 down to 80 then up to 160. Is this the 2 > steps back 1 forward that Dr. Brown spoke of. I am really my own doctor. > The doctor I presently have is passive. Does anyone know of a Doctor in > Connecticut who is familiar with the Minocin protocol? > > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2000 Report Share Posted January 7, 2000 judy wiebe wrote: > > Group, please, please correct me if I'm wrong about this, but it's my > understanding that the anemia that has been caused by chronic disease such > as rheumatoid disease is not helped by taking iron supplements. ??????? > I'm sure that's what my doctor told me. Judy (deejay) I've heard that too, but what about the low levels of iron? I have the same problem. Early on in my disease I had severe anemia, now I am not considered anemic, but the count is kinda close to anemic and my iron levels are low (14 I believe). When I recently went to a nephrologist he saw the low iron levels and kind of freaked out and immediately prescribed Chromagen Forte (an iron supplement that was not well tolerated by my lower GI tract). The strange thing is that both my rheumatologist saw the same labs and never even mentioned the low iron. This seems to me that it might be circumstantial evidence that perhaps iron supplementation might not help as we are suggesting, but I really don't know.... j. ------------------------------------ ph A. Graff Director of Digital Prepress Graphic Communications, Inc. (301) 599-2020 " The truth will set you free, but first it will make you miserable " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2000 Report Share Posted January 7, 2000 My tests came back with slight anemia, and my doctor thinks it is the Anemia of Chronic Disease, and has not prescribed iron, but this thread made me think of something. When I was bearing and nursing my children, and getting regular anemia checks, before we knew it was RA causing my problems, I had tests come back quite anemic. I was told to supplement with iron, and when I did, the tests later came back normal. So perhaps there was ordinary iron-deficiency anemia going on too. I'm going to talk to my doctor about trying iron supplementation anyway, since my fatigue level is slightly worse the last couple of months. B-vitamins also help with red blood cell formation, and are usually low in arthritis patients, IIRC. Sorry I don't have the answer to you original question, but hopefully some of our members will. I know there are some mentions of this on the rheumatic website, but the fog is thick around here today -g- and I can't recall exactly--so, if you don't get the answers you are looking for, I would recommend a thorough re-reading of all the info available there. Liz G Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2000 Report Share Posted January 7, 2000 Hello Joe and Liz and everyone else, I also suffer severe anemia since the last couple of years. In the beginning while I was hospitalized, they didn't quite know what I had but didn't seem too disturbed by the anemia. When it comes to women they suppose that we had just had our periods and not do anything about it. With men, they shrug it off sometimes because of improper eating habits. Until you hit a level where you need a transfusion, this seems to be their wake-up call here, which is ridiculous. Then when I met up with my family doc and my AP doc, this was of concern to both of them. I was given injections weekly, then the tests stated even that wasn't enough so we went daily. At this point, I am within normal range but must continue the injections. I was not to happy about not helping the problem when it first started.I think the sooner the better. My two cents... > Re: rheumatic Anemia/Low Iron > > > judy wiebe wrote: > > > > Group, please, please correct me if I'm wrong about this, but it's my > > understanding that the anemia that has been caused by chronic > disease such > > as rheumatoid disease is not helped by taking iron supplements. > ??????? > > I'm sure that's what my doctor told me. Judy (deejay) > > I've heard that too, but what about the low levels of iron? I have the > same problem. Early on in my disease I had severe anemia, now I am not > considered anemic, but the count is kinda close to anemic and my iron > levels are low (14 I believe). When I recently went to a nephrologist he > saw the low iron levels and kind of freaked out and immediately > prescribed Chromagen Forte (an iron supplement that was not well > tolerated by my lower GI tract). > > The strange thing is that both my rheumatologist saw the same labs and > never even mentioned the low iron. This seems to me that it might be > circumstantial evidence that perhaps iron supplementation might not help > as we are suggesting, but I really don't know.... > > > j. > > ------------------------------------ > ph A. Graff > Director of Digital Prepress > Graphic Communications, Inc. > (301) 599-2020 > " The truth will set you free, but > first it will make you miserable " > > --------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2000 Report Share Posted January 8, 2000 > I am concerned that some of the vitamins or Nsaid (indomethacin) maybe > also blocking the Minocin from working. Does anyone know of any other > vitamins that may cause problems? The easiest rule to follow is to take everything, not just iron, at least two hours away from the minocycline. Chris. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2000 Report Share Posted January 8, 2000 Hi Liz, Janene has very low iron as well. She is aware that it's probably caused by the disease and so hadn't used any iron supplementation. Now she's seeing an ACAM doctor who actually has a clue about medicine in general. This doctor is aware of the connection between iron deficiency and rheumatic disease, but re-tested Janene's iron level and now has put her on a supplement which includes iron. Chris. On Fri, 7 Jan 2000, Liz G. wrote: > My tests came back with slight anemia, and my doctor thinks it is the > Anemia of Chronic Disease, and has not prescribed iron, but this thread > made me think of something. When I was bearing and nursing my children, and > getting regular anemia checks, before we knew it was RA causing my > problems, I had tests come back quite anemic. I was told to supplement with > iron, and when I did, the tests later came back normal. So perhaps there > was ordinary iron-deficiency anemia going on too. I'm going to talk to my > doctor about trying iron supplementation anyway, since my fatigue level is > slightly worse the last couple of months. B-vitamins also help with red > blood cell formation, and are usually low in arthritis patients, IIRC. > Sorry I don't have the answer to you original question, but hopefully > some of our members will. I know there are some mentions of this on the > rheumatic website, but the fog is thick around here today -g- and I can't > recall exactly--so, if you don't get the answers you are looking for, I > would recommend a thorough re-reading of all the info available there. Liz > G > > > --------------------------- Quote Link to comment Share on other sites More sharing options...
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