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Re: Need some support

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Wow, Janice, you just wrote what I so often lament to my husband. I often

feel like I'm really not important. I'm having to delegate a lot of tasks

that other people do easily and I'm having to lean on my husband way too

much for my comfort.

I know *exactly* what you mean when one day you know you're doing all you

can and the next you wonder and doubt yourself. And, I also really

recognize the feeling of self doubt about maybe it is in my head? Or maybe

I don't really have this, I'm just a hypochondriac. Also because people

just don't see it and I get so tired of explaining why I don't feel up for

certain things. OTOH, I also overcommit myself, and then end up regretting

it later. Like I love holding parties for the kids and plan them and then

without failing I end up exhausted and achy, either during or after the

party. Sigh!

I just want to think the pain away and on days that I feel better, I can

just imagine that I'm " cured " . Only to wake up achy the next day. I hate

this disease too, you're definitely not alone!!!

Petra (mailto:Petra@...)

Maaammmiiieee!!! to Katja (14 Mar '90), Kai (29 Apr '92) and Saskia (11 Dec

'95)

Visit us at http://www.kjsl.com/~petra Check out our Sinterklaas page

(http://www.kjsl.com/~petra/sint.htm)

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> Re: Need some support

>

>

> Hi Petra,

>

> My I am glad that someone else feels all that too. I too do

> not do to well

> with the pain and my kids, when I'm in pain I can handle so

> very little also.

> It is nice to hear that I am not alone and not so horrible

> that I am the

> only one who is like that. It is not nice that we are like

> that (taking our

> pain out on others), but it is very comforting to hear

> someone else has the

> same life. Thank you for sharing.

>

> You wrote: For me, the hard part is realizing that I can't do

> it all and that

> it's not necessary to do it all.......It's hard to realize

> that, I'm just so

> programmed to " be a good housewife " .

>

> That I think says it all, I feel that way so many times. I

> feel that I am a

> disappointment to everyone sometimes. I feel that way this

> week, it is the

> time of the month and that does a job on my pain, but also I

> noticed I get

> really down on myself. I wonder at times if maybe some

> people are right that

> it is in our heads, I doubt myself and think boy am I wimpy,

> I can't even do

> one or more than one task today, even something simple as the

> dishes. What

> kind of person am I? What if I am faking? What if I am

> making myself be

> this way? I hate this disease - what are we when even some

> doctors don't

> believe it's real?

>

> I hate when I get like that (feeling all the above), and this

> week it seems

> to be that way. I feel so horrible about it - not being able

> to be myself

> like I was before - energetic, being able to do a job and

> housework for many

> hours, and in general THINK! I know deep down that I try my

> hardest and I am

> beating and living with this (FM), but at times when I am

> down I wonder if I

> really am. Does that make sense?

>

> Does anyone else have this struggle with their abilities or

> lack of them?

> Like one day you know you are doing your best and then the

> next you feel like

> what the heck am I doing - nothing? Or is that weird?

>

> Sorry to end on a downer, but I guess I needed to get it out

> but it is so

> hard to look at what I do and not wonder why I cannot be

> " normal " even with

> FM, why can't I work, so many other people with FM work or

> other diseases,

> why can't I? Am I not strong enough?

>

> Oh I will hush now, sorry to all those that I just bummed

> out, that was not

> my intent and I hope I haven't, I guess I needed a listener.

>

> Sending much thanks for being there to listen to me complain!

> I hope we all have a better day!

> Janice

>

> " I wish we could change our dials to AM instead of FM!!! "

>

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