Guest guest Posted October 16, 2000 Report Share Posted October 16, 2000 I knew before my dr. a very good friends of mine met a new friend who has firbo. they put there heads together and figured out that is what I have. I just waited for the dr. to catch up with me. Pam OK >From: ddasherbond@... >Reply-To: egroups >To: egroups >Subject: My intro >Date: Sun, 15 Oct 2000 19:15:42 EDT > >Hi ! I read your intro. and I could not help but wonder how many fibos >diagnose themselves? I'd love to know a figure of how others knew BEFORE >their Doctor. I wasn't one that is for sure, never heard of it, and quite >frankly, that would have suited me fine all through life:-) I am new here >also. But I am chatty and naturally flightily so I wonder if anyone will >even >know when I am in fibrofog LOL >Sunshine....di _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Share information about yourself, create your own public profile at http://profiles.msn.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2000 Report Share Posted October 16, 2000 I've not been diagnosed yet.. but i'm worried that i may have fibro. My friend has it and my aunt has it.. they both think i do. I've been diagnosed with bipolar disorder type II, URC.. gad/pad, dyslexia, chronic sleep disorder insomnia and a menagerie of other things. The problem with me is that NOTHING shows up in lab work.. when i had mono.. it didn't show up.. the things that should show up w/my bipolar don't.. i've had mri's bone scans arthrograms and nerve conduction tests on my wrist.. all have come back saying i'm " fine " ... Now i'm really dizzy and light headed.. my blood pressure drops really low for no apparent reason. This happened this time last year so now we're trying to figure out why.. anyway i'm new here.. hello.. i'll probably lurk for awhile -sarae Sarae Montgomery sarmnstr@... sarae@... Aim / Icq Sarae135 / 531038 --- We're all mad here. My intro >Hi ! I read your intro. and I could not help but wonder how many fibos >diagnose themselves? I'd love to know a figure of how others knew BEFORE >their Doctor. I wasn't one that is for sure, never heard of it, and quite >frankly, that would have suited me fine all through life:-) I am new here >also. But I am chatty and naturally flightily so I wonder if anyone will even >know when I am in fibrofog LOL >Sunshine....di > > > >~*~CHAT TIME:~*~ >MON & THURS >Day Eastern 4 PM, Central 3 PM, Mt 2 PM Pacific 1 PM >Night Eastern 9 Pm, Central 8 Pm, Mt 7 PM Pacific 6 PM >WHERE: /chat/ > > >VIP >If there is a problem on this list notify. >Co-Moderator >The_List_Owner@... > > >Add or view links about fibro/CFS. >http://www.onelist.com/links/ > >TO unsubscribe. >Go to: http://www.onelist.com/ to this list and unsub from it. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2000 Report Share Posted October 16, 2000 " I've been diagnosed with bipolar disorder type II, URC.. gad/pad, dyslexia, chronic sleep disorder insomnia and a menagerie of other things. The problem with me is that NOTHING shows up in lab work.. when i had mono.. it didn't show up.. the things that should show up w/my bipolar don't.. " I know alot of people, including myself who were misdx'd with bi-polar because people don't believe in adult ADD. There are a lot of similarities between the two but they are different and they respond to different meds. ** , Stinky's caretaker** At first dreams seem impossible, then improbable, then invetible. CR Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2000 Report Share Posted October 16, 2000 > " I've been diagnosed with bipolar disorder type II, URC.. gad/pad, >dyslexia, chronic sleep disorder insomnia and a menagerie of other >things. The problem with me is that NOTHING shows up in lab work.. when >i had mono.. it didn't show up.. the things that should show up w/my >bipolar don't.. " > >I know alot of people, including myself who were misdx'd with bi-polar >because people don't believe in adult ADD. There are a lot of >similarities between the two but they are different and they respond to >different meds. bipolar is my first actualy not-misdiagnosis.. It took 5 years of fighting for them to figure out that i wasn't " just depressed " and it wasn't " just a phase " .. so they'd stop just putting me on AD's.. Now i'm on 100mg zoloft, 750mg depakote, 30mg buspar, 10mg claritin.. umm.. a buttload of antibiotics and some herbs/vitamins as needed. whee. drug cocktail. -sarae Sarae Montgomery sarmnstr@... sarae@... Aim / Icq Sarae135 / 531038 --- We're all mad here. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2000 Report Share Posted October 16, 2000 PAM - I COPED THE PAGES OF THE BOOK THAT PERTAIN TO ME AND MAILED THEM TO MY DOCTOR TODAY. HOPEFULLY HE WILL SIT DOWN AND READ IT AS I APPLIED FOR MY HANDICAPPED TEMPORARY PLACARD. I ALSO ASKED TO BE REFERRED TO A SPECIALIST AND ASKED HIM TO GET MY CHIROPRACTOR SET UP. I KNOW HE WILL WANT ANOTHER BLOOD TEST DONE AS I GET THEM EVERY 4 WEEKS FOR THYROID. I AM TAKING A SECOND JOB FOR HERSHEY & TOMORROW I GET A URINE TEST. CAN'T WAIT TIL THEY SEE MY LIST OF DRUGS! LOL SUNSHINE.....DI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2000 Report Share Posted October 16, 2000 SARAE - DID YOU SUGGEST IT TO YOUR DOCTOR? I BET MY DOCTOR WOULD HAVE BLOWN IT OFF. SUNSHINE....DI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 16, 2000 Report Share Posted October 16, 2000 I WAS DIAGNOSED WITH HYPERACTIVITY AT AGE 30 AND PUT ON RITTLIN. NOW I KNOW WHY I GOT ALL THOSE BEATINGS IN SCHOOL:'( SUNSHINE...DI Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2000 Report Share Posted October 19, 2000 Welcome Sarae: Lab tests don't show up anything in Fibromyalgia. It is diagnosed in other ways. You should probably see a Rheumatologist who is familiar with Fibromyalgia or Chronic Fatigue Syndrome for an assessment. Perhaps your friend or Aunt could refer you to someone. I have constant low blood pressure. I'm not sure why your's would drop like that. Good luck on finding answers to your questions and feel free to ask what you are wondering about. Peggy ¸øI've not been diagnosed yet.. but i'm worried that i may have fibro. My friend has it and my aunt has it.. they both think i do. I've been diagnosed with bipolar disorder type II, URC.. gad/pad, dyslexia, chronic sleep disorder insomnia and a menagerie of other things. The problem with me is that NOTHING shows up in lab work.. when i had mono.. it didn't show up.. the things that should show up w/my bipolar don't.. i've had mri's bone scans arthrograms and nerve conduction tests on my wrist.. all have come back saying i'm " fine " ... Now i'm really dizzy and light headed.. my blood pressure drops really low for no apparent reason. This happened this time last year so now we're trying to figure out why.. anyway i'm new here.. hello.. i'll probably lurk for awhile -sarae Sarae Montgomery sarmnstr@... sarae@... Aim / Icq Sarae135 / 531038 - Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2000 Report Share Posted October 20, 2000 >Lab tests don't show up anything in Fibromyalgia. It is diagnosed in other >ways. I know this.. I've got a lot of information printed out to give to my dr.. er, i had a lot. My teacher took half of it though because her daughter was diagnosed with post traumatic fms and she's going to give it to the attorney. I'll just reprint it, no biggie. >You should probably see a Rheumatologist who is familiar with >Fibromyalgia or Chronic Fatigue Syndrome for an assessment. Perhaps your >friend or Aunt could refer you to someone. I can't.. If you watched PBS last night, there was a special on humana hmo.. and how horrible they are, the way they deny patients the care that they need..etc... lucky me, that's what my family is on. The only GP (general practitioner) i can go to is an hour away.. i go to louisville kentucky to go to the hospital.. god knows what i'd have to do if i ever had something serious and i needed immediate care. >I have constant low blood >pressure. I'm not sure why your's would drop like that. Good luck on >finding answers to your questions and feel free to ask what you are >wondering about. I don't know why either.. I felt fine yesterday.. a little sluggish today.. made it through three class periods before i got too shaky and was afraid if i waited any longer i wouldn't be capable of driving home.. then i went home, ate some food and slept for 6 more hours. I've been sleeping a LOT lately and it doesn't fit in with my schedule.. add to that the fact that i'm in dire need of a job because i have a car payment and car insurance... but that's not gonna be possible until i get this under control. oh yeah.. and my car is acting up.. someone up there has it out for me, i swear. I'm shaking more than my grandmother right now.. and i feel like going back to bed (despite the fact that i slept from 9-7 last night and noon-6 today).. I just don't really know what to do and i have no idea how i'm supposed to cope with this and still live a normal life. My school doesn't care much... my VP told me today " i don't want you here if you're like this " .. but then goes on to tell me " but if you miss 20 days, you know you're at risk of losing your credits " but if they tried tot ake my credits, i'd take it to court, because all my scores are still in the top 10%... oh well.. i think i'm gonna go take a hot bath. I miss hot showers, i haven't had one for almost 2 weeks now.. but i'm afraid to stand up under the heat (i can't stand to take anything other than scalding hot showers/baths) i'm glad i found this group.. -sarae Sarae Montgomery sarmnstr@... sarae@... Aim / Icq Sarae135 / 531038 --- We're all mad here. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2000 Report Share Posted October 20, 2000 Sarae: I'm watching the Humana show tonight. I guess they have it at different times on different channels. I'm sorry that is the insurance you have. They don't seem really interested in helping people have the best care. More interested in the bottom line. Your symptoms sound like it could be Chronic Fatigue Syndrome too. I used to get like that shaking and needing to go to bed. Now I don't have too many days that bad. What is a VP? Peggy " I'm shaking more than my grandmother right now.. and i feel like going back to bed (despite the fact that i slept from 9-7 last night and noon-6 today).. I just don't really know what to do and i have no idea how i'm supposed to cope with this and still live a normal life. My school doesn't care much... my VP told me today " i don't want you here if you're like this " .. but then goes on to tell me " but if you miss 20 days, you know you're at risk of losing your credits " but if they tried tot ake my credits, i'd take it to court, because all my scores are still in the top 10%... oh well.. i think i'm gonna go take a hot bath. I miss hot showers, i haven't had one for almost 2 weeks now.. but i'm afraid to stand up under the heat (i can't stand to take anything other than scalding hot showers/baths) i'm glad i found this group.. -sarae Sarae Montgomery sarmnstr@... sarae@... Aim / Icq Sarae135 / 531038 " --- We're all mad here. ~*~CHAT TIME:~*~ MON & THURS Day Eastern 4 PM, Central 3 PM, Mt 2 PM Pacific 1 PM Night Eastern 9 Pm, Central 8 Pm, Mt 7 PM Pacific 6 PM WHERE: /chat/ VIP If there is a problem on this list notify. Co-Moderator The_List_Owner@... Add or view links about fibro/CFS. http://www.onelist.com/links/ TO unsubscribe. Go to: http://www.onelist.com/ to this list and unsub from it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2001 Report Share Posted May 13, 2001 , Glad to have you join us. You will get both support and information. If you have any questions, please ask. If you have a bad day, feel free to talk to us about it. We depend on each other for help and here you will get plenty of that. Take care, Irene > I joined this list to get support and information. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2001 Report Share Posted May 13, 2001 , Welcome to the group!! :-) I'm glad you found us. Age: 34 Dx'd: early 1990s Location: southeastern Vermont Children: 1 four-legged furry one named Missy Siblings: 3 sisters, 1 brother (I am the youngest) Currently renting from mom, working for mom, and typing at home. I am divorced and been with SO since 1997. > >Reply-To: >To: >Subject: My intro >Date: Sat, 12 May 2001 19:03:18 -0400 > >Hi everyone~! My name is , married for 10 years to . Mom to >Alyssa, 10, e, 8, and Dylan, 4. I am a Girl Scout Leader, I >volunteer for everything, and I LOVE to read and scrapbook. I have been >treated for migraines for 2 years now, and was just recently diagnosed >with Fibromyalgia and TMJ. >Needless to say, I am depressed as heck. I thought I was hurting because >of being sick, you know, like it was a matter of just finding out what >was wrong, then taking some medicine and and getting better. Being told >that there is NO cure....well....lets just say I spent the whole week >afterwards crying. >I joined this list to get support and information. > >________________________________________________________________ >GET INTERNET ACCESS FROM JUNO! >Juno offers FREE or PREMIUM Internet access for less! >Join Juno today! For your FREE software, visit: >http://dl.www.juno.com/get/tagj. _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2001 Report Share Posted May 13, 2001 --- ScrapNQueen wrote: > Hi everyone~! My name is , married for 10 > years to . Mom to > Alyssa, 10, e, 8, and Dylan, 4. I am a Girl > Scout Leader, I > volunteer for everything, and I LOVE to read and > scrapbook. I have been > treated for migraines for 2 years now, and was just > recently diagnosed > with Fibromyalgia and TMJ. > Needless to say, I am depressed as heck. I thought I > was hurting because > of being sick, you know, like it was a matter of > just finding out what > was wrong, then taking some medicine and and getting > better. Being told > that there is NO cure....well....lets just say I > spent the whole week > afterwards crying. > I joined this list to get support and information. > > _______________________________________________ ........................ Hi ! Welcome! I know how awful it feels to be told you'll always have this and there's no cure...as of yet!! I'm sure they'll discover what to do for this, and I believe that the worst thing we can do is give in. When they told me, about 4 years ago, I was relieved to know that there was a name for it and that I wasn't a hypochondria, because for years I went to doctor after doctor, only to be treated as if I was just a whiner and someone who needed attention! It wasn't true, but I bought into it, and I felt terrible about myself, which only makes it worse. Treat yourself to something special and don't push yourself. I know that we are go-getters, and we tend to overdo. We don't really know how to relax, and it's so important to learn how. For me, relaxation exercies are very helpful. I went to the library and brought home meditative tapes and copied them and spend time everyday focusing on relaxing and picturing myself the way I want to be. It really helps...I don't know how, but it does. I was told that our muscles are always tight..even in our sleep, and they don't get the opportunity to heal themselves. Also, a GOOD massager really helps to relax the muscles and clear out the toxins...and drink a lot of water. There are several websites regarding fibromyalgia. Knowledge is power. Because knowing what's going on with your body helps you to accept and take action to do things that are beneficial for you, and it helps to have those close to you be able to read about this illness, so that they can be supportive. We don't 'look' ill, so people have a hard time understanding. I use to have migraines that lasted for days, and this went on for year. I quite drinking caffiene 'completely', and it helped. I've also given up sweeteners...diet pop was a daily must, until I learned that it's made of plastic!!! I gave it up about 3 months ago, and my pain has lessened. 'Laughter really is the best medicine. I watch comedies and read anything uplifting I can lay my hands on. I work hard at giving up my negative thoughts and beliefs, and I've found that when I'm not beating myself up, I have many more 'good' days. It's okay to grieve what you feel you have lost, but you are also gaining something, whether you realize it or not. I know that's hard to believe right now...but just being on this site will bring you into contact with wonderful people you would otherwise have never known, and friends are the most precious gift there is. Chin up, honey! If you've been busy always taking care of everyone else, this is an opportunity for you to learn how to be good to yourself, and how to accept help from others. Some of us have a problem with that, but receiving is another way of giving. Take care! Sue From Iowa 51 years of age mother of 2 grown children wife avid karaoke singer Lover of life in spite of it all!!! computer illiterate, but working on it!________________ > GET IN TERNET ACCESS FROM JUNO! > Juno offers FREE or PREMIUM Internet access for > less! > Join Juno today! For your FREE software, visit: > http://dl.www.juno.com/get/tagj. > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2001 Report Share Posted May 13, 2001 Hi Welcome to the group. I think we all get discouraged that we have to live with this DD. I'm on the verge of having to quit my job due to fatigue, and it is hard and discouraging. I find it hard to give up where my husband and I at to go back to a place where we were when we first got married. Darcy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2003 Report Share Posted October 17, 2003 Hi everyone! I had my laproscopic RNY 10/14/03 in Richmond with Dr. Baggs, and Dr. Fisher assisting. I feel great considering what they did to my inner'ds! LOL I may be a bit bias, but I feel when Richmond gets out of the newborn stage, they are going to be great. My husband was there, Aug 26th, as their first lap at Richmond. It was a blessing in many ways that he was the first to go before me. It got me ready, and I attribute my feeling good to doing the Stage 4 foods for a month before surgery, and excercising like crazy person. I will be going to my first post-op " class " on the 23rd. The class is at 3:00p.m. on a Thursday. That seems like and odd time for people who have a job, but oh well! I don't know if that is the same as the support group meetings or if what I am reading from everyone's postings are something different. We go to a support group in the Santa area, and have been since April of this year. It welcomes all RNY patients. There seems to be a balance of Kaiser and Sutter, then a few Blue Shield and Stanford, and a couple who paid for it on there own. It is interesting to hear how every RNY group is different, even within Kaiser. I can't express enough, how important it is to find yourself a group to go to. It has been a wonderful resource for us. I hope to hear from you all who have recipes, in a month or so I will be able to get creative. Not much creativity with Stage II food! LOL Blessings, Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2003 Report Share Posted October 21, 2003 Sharon, Could you tell me where your support group meets in Santa ? I live in Rohnert Park and would love to find a support group nearby. Is it open to pre-ops? I'm going down to San Diego on Monday for my consultations, and would guess I'll be having surgery in January or February. Thanks for your help. Lori Quote Link to comment Share on other sites More sharing options...
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