Guest guest Posted November 3, 2000 Report Share Posted November 3, 2000 ask the doc , but maybe a soft cervical neck collar? I use to wear one backwards so i could swallow with my chin down. I also use a half circular neck pillow filled with micro mini beads. Costs about 20.-30., but very durable and washable. I am going to start back at o.t and p.t. nancy:) Mike Ditty wrote: > > To the group or anyone getting the e-mail; > > I need some ideas on how to help my Dad with his terrible neck pain. > We haven't been able to find much relief. Medicine dosn't seem to > help. Setting up, standing, laying down it's there most of the day > until the mid afternoon. He is going on his 5th year with SDS. > It the neck pain was controlled, he would be able to handle most all of > the other problems. > If anybody knows of any tricks that they have used please pass them my > way. > > Wanting to help Dad have better quality of life, > Mike > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2000 Report Share Posted November 3, 2000 You can make these yourself or have someone make them for you by folding a terry hand towel in half and stitching around the three open sides. Leave a small opening so that you can fill it. I put rice in the ones that I have made. The hold heat for a while after being heated for 5 minutes in microwave. Finnally sew up the small opening you left for putting in rice/beans. Marilyn in TN ---------- > >To: <shydrageregroups> >Subject: Re: Neck Pain >Date: Thu, Nov 2, 2000, 11:20 PM > >Mike, > This is a method that helped my Dad with this. There are these >handmade bean bags that you place in the microwave, and drape the heated bag >like a collar around your neck and shoulders. > Some of these bags have different herbs and fragrances in them.....Dad >ended up using them for his hands too. > My sister and I found these in a mall in one of the booths set up >outside of the stores in the malls..... > I hope that you find them.....they are reasonably priced and provide >some relief. > Regards, >jane > > Neck Pain > > >> To the group or anyone getting the e-mail; >> >> I need some ideas on how to help my Dad with his terrible neck pain. >> We haven't been able to find much relief. Medicine dosn't seem to >> help. Setting up, standing, laying down it's there most of the day >> until the mid afternoon. He is going on his 5th year with SDS. >> It the neck pain was controlled, he would be able to handle most all of >> the other problems. >> If anybody knows of any tricks that they have used please pass them my >> way. >> >> Wanting to help Dad have better quality of life, >> Mike >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2000 Report Share Posted November 3, 2000 Wow! What a wonderful idea! Thank you so much. Suzanne Grimmesey-Kirk, MFT Quality Care Management Voice: 884-1647 FAX: 884-1633 >>> morriscm@... 11/03/00 09:11AM >>> You can make these yourself or have someone make them for you by folding a terry hand towel in half and stitching around the three open sides. Leave a small opening so that you can fill it. I put rice in the ones that I have made. The hold heat for a while after being heated for 5 minutes in microwave. Finnally sew up the small opening you left for putting in rice/beans. Marilyn in TN ---------- > >To: <shydrageregroups> >Subject: Re: Neck Pain >Date: Thu, Nov 2, 2000, 11:20 PM > >Mike, > This is a method that helped my Dad with this. There are these >handmade bean bags that you place in the microwave, and drape the heated bag >like a collar around your neck and shoulders. > Some of these bags have different herbs and fragrances in them.....Dad >ended up using them for his hands too. > My sister and I found these in a mall in one of the booths set up >outside of the stores in the malls..... > I hope that you find them.....they are reasonably priced and provide >some relief. > Regards, >jane > > Neck Pain > > >> To the group or anyone getting the e-mail; >> >> I need some ideas on how to help my Dad with his terrible neck pain. >> We haven't been able to find much relief. Medicine dosn't seem to >> help. Setting up, standing, laying down it's there most of the day >> until the mid afternoon. He is going on his 5th year with SDS. >> It the neck pain was controlled, he would be able to handle most all of >> the other problems. >> If anybody knows of any tricks that they have used please pass them my >> way. >> >> Wanting to help Dad have better quality of life, >> Mike >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2000 Report Share Posted November 3, 2000 Mike, This may sound silly but I rub Warren's neck with Aspercream. He says it really relieves the pain at least for a while. We use heat also. Re: Neck Pain > Mike, > > Often the pain in the neck is caused by muscle spasm in MSA. Muscle relaxers or > anti-spasm meds often help more than pain meds for this pain. Charlotte takes > Baclofen for it. Range of motion exercises for the neck also help some people, > talk to a physical therapist about them. And as someone else suggested, heat > can help also, usually moist heat is slightly better. > > DO BEWARE - if you have orthostatic hypotension (OH), long hot showers are not > good for people with OH. > > Take care, Bill and Charlotte > > Mike Ditty wrote: > > > To the group or anyone getting the e-mail; > > > > I need some ideas on how to help my Dad with his terrible neck pain. > > We haven't been able to find much relief. Medicine dosn't seem to > > help. Setting up, standing, laying down it's there most of the day > > until the mid afternoon. He is going on his 5th year with SDS. > > It the neck pain was controlled, he would be able to handle most all of > > the other problems. > > If anybody knows of any tricks that they have used please pass them my > > way. > > > > Wanting to help Dad have better quality of life, > > Mike > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2000 Report Share Posted November 4, 2000 I cannot imagine that anyone's neck/shoulder area LOOKS worse than my mom's (Joyce). She is totally bent over into her chest. Yet, she has no pain (thankfully). This is so curious to me. Debbie Debbie White dwhite@... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2000 Report Share Posted November 4, 2000 This also sounds familiar. The head is so heavy and the neck just cannot hold it up because the control of it is about gone. Ralph was that way too. But there were days when he hurt terribly. Most of the time he did not. It was so difficult for him to see or to eat because he could not hold up his head. The muscles were strong he just could not do it. I got a neck brace for him from his therapist. It worked for a while but his head was so heavy it would make his face hurt where the brace touched him. He finally gave it up. I hate this illness!!!!! Everyday you have a new challenge and a new heartache. Love from Barb in Texas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2000 Report Share Posted November 4, 2000 Barb -- My mother Joyce also has such a hard time of it because of the neck. She cannot see except what is below her. In fact, she has an appointment set up for Nov 7 (if she gets out of the hospital in time) with someone to see whether she is a candidate for vertibropasty (where they cement areas where there are fractures). IN my mom's case, there is some reason to believe that some of the neck problem is NOT MSA related. But who really knows. Even if she had perfect posture at this point, things would still be terrible. I hate this disease, too. I have never seen anyone more disable than my mom is now. Debbie Debbie White dwhite@... > Re: Neck Pain > > > This also sounds familiar. The head is so heavy and the neck just cannot > hold it up because the control of it is about gone. Ralph was that way > too. But there were days when he hurt terribly. Most of the time he did > not. It was so difficult for him to see or to eat because he could not > hold up his head. The muscles were strong he just could not do it. I got > a neck brace for him from his therapist. It worked for a while but his > head was so heavy it would make his face hurt where the brace touched > him. He finally gave it up. > > I hate this illness!!!!! Everyday you have a new challenge and a new > heartache. > > Love from Barb in Texas > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2000 Report Share Posted November 27, 2000 , Often pain in the back of the neck associated with MSA is caused by muscles in the back of the neck cramping. Anti-spasm and muscle relaxers such as Baclofen and Amantadine seem to help many people and others use something called Neuronten (sp) which I think is a pain med. From my wife and adopted daughter's experience with neuro-surgery, I would use it only as a last resort. Has your husband seen a neurologist? Especially one with experience in movement disorders. Take care, Bill and Charlotte ----------------------------------------------------------------------------------- Maly wrote: My husband suffers from MSA, and experiences severe neck pain. He has seen a neurosurgeon who is looking at surgery to remove protruding discs. The literature on MSA on the Web lists neck pain as a symptom. How is this related, and what is cervical dystonia? Thank-you. Quote Link to comment Share on other sites More sharing options...
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