Guest guest Posted October 12, 2000 Report Share Posted October 12, 2000 My dad's eye's seem to close all the time. We know that he is not sleeping by the movements he makes. My mother just goes to him, pulls the eyelids open and goes on. She probable does this all day especially in the morning. _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Share information about yourself, create your own public profile at http://profiles.msn.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2000 Report Share Posted October 12, 2000 , Your Mom can tape your Dad's eyelids open. It really helps. later, cindy Re: Closed Eyes > My dad's eye's seem to close all the time. We know that he is not sleeping > by the movements he makes. My mother just goes to him, pulls the eyelids > open and goes on. She probable does this all day especially in the morning. > > > _________________________________________________________________________ > Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. > > Share information about yourself, create your own public profile at > http://profiles.msn.com. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2000 Report Share Posted October 13, 2000 what kind of tape do u use and how long ,ect do u leave it on? I am afraid someone may just put any tape on and walk away:) Not here but somewhere out in internet land. nancy:) wrote: > > , > > Your Mom can tape your Dad's eyelids open. It really helps. > > later, > cindy > > Re: Closed Eyes > > > My dad's eye's seem to close all the time. We know that he is not sleeping > > by the movements he makes. My mother just goes to him, pulls the eyelids > > open and goes on. She probable does this all day especially in the > morning. > > > > > > _________________________________________________________________________ > > Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. > > > > Share information about yourself, create your own public profile at > > http://profiles.msn.com. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2000 Report Share Posted October 13, 2000 , I would talk to my neurologist about the problem before using tape. The adhesive on tapes can be damaging to the eye itself. Even if it does not get directly into the eye, it could accidently get in the eye when you wash off the residue. Most chemicals found in adhesives (even the urethane based adhesives) are not good for eyes and the eyelid is just too close to the eye itself. It may be that a muscle relaxer of some sort may help. Many MSA patients already have some eye problems from the disorder. I would use the tape only as a last resort. Take care, Bill and Charlotte ----------------------------------------------------------- nancy wrote: > what kind of tape do u use and how long ,ect do u leave it on? I am > afraid someone may just put any tape on and walk away:) Not here but > somewhere out in internet land. > > nancy:) > > wrote: > > > > , > > > > Your Mom can tape your Dad's eyelids open. It really helps. > > > > later, > > cindy > > > > Re: Closed Eyes > > > > > My dad's eye's seem to close all the time. We know that he is not sleeping > > > by the movements he makes. My mother just goes to him, pulls the eyelids > > > open and goes on. She probable does this all day especially in the > > morning. > > > > > > > > > _________________________________________________________________________ > > > Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. > > > > > > Share information about yourself, create your own public profile at > > > http://profiles.msn.com. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2000 Report Share Posted October 13, 2000 Jim: Ken is having a lot of trouble holding his eyes open also, but he is in the very late stages of Parkinson's as well as Shy-Drager Syndrome and it is to be expected now. We have really run out of aggressive treatment options, and after discussing it with the Neurologist, we are having a Hospice Nurse come tomorrow to discuss where we go from here. However, for Peg, it is important to remember that Melleril can cause Parkinson's symptoms and therefore the closed eyes. Is there a reason that they prescribed Melleril instead of another drug with fewer PD side effects for her? I am delighted to hear that the UTI strips are working for you. A good stethoscope and the ability to use it could help you figure out if she has a respiratory involvement, also, if she has an infection, she might have a fever, remembering that around 96 is normal for MSA. Other than that I know of no more home tests. Good luck to you both, Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2000 Report Share Posted October 13, 2000 About close eyes: There is a doctor at UCLA who has pioneered the use of Botox injections for the closed eyes that go with Parkinson's. They should work for SDS also. Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2000 Report Share Posted October 13, 2000 Be careful about taping eyes open. Your eyes need lubrication and moisture, which they get from blinking. If your eyes get overly dry, it could cause corneal ulcerations, which can, in extreme cases, result in blindness. I know that some people have gotten relief from botox injections, but in any case, it's best to discuss the problem with your doctor. Carol & Rob > , > > Your Mom can tape your Dad's eyelids open. It really helps. > > later, > cindy > > > Re: Closed Eyes > > > > My dad's eye's seem to close all the time. We know that he is not sleeping > > by the movements he makes. My mother just goes to him, pulls the eyelids > > open and goes on. She probable does this all day especially in the > morning. > > > > > > ______________________________________________________________________ ___ > > Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. > > > > Share information about yourself, create your own public profile at > > http://profiles.msn.com. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2000 Report Share Posted October 13, 2000 My dad's visit with his new PCP was a joke. This " kid " didn't know much at all, but thought he knew everything. Dr Jankovic has agreed to consult and the DR didn't call him and probably doesn't plan to. He at least is sending him to a new neurologist, since my dad cannot go to Houston anymore and see the old one. I believe that this new neurologist does Botox and mom is very interested. Thanks for the ideas, _________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com. Share information about yourself, create your own public profile at http://profiles.msn.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2000 Report Share Posted October 13, 2000 Peg, My mother Joyce has trouble opening her eyes in the morning, too. They seem stuck shut. Eventually, they open. Debbie Debbie White dwhite@... > Closed Eyes > > > Several on the list have mentioned problems with keeping their eyes open. > Since Peg has been taking Thioridazine (Mellaril) she has great difficulty > in opening her eyes in the morning. It isn't so much being tired as it is > difficulty in holding her eyes open. This can go on for several hours. > Does anyone have similar experiences? > > Peg and Jim from Guam > > > > ******************************** > *** Peg & Jim > *** # 29 Cruz Heights > *** Ipan-Talofofo, Guam 96930-4736 > *** USA > *** > *** Note: Guam is 15 hours ahead of > *** Eastern Standard Time (EST). > *** 14 ahead of EDT. > ******************************** > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2000 Report Share Posted October 14, 2000 Hi Jim: I have a problem keeping my eyes open first thing in the morning but only for about 10-15 minutes. I've never been sure if it's being sleepy, or because my eyes are so sensitive to light - or something else? I was diagnosed with Adie's pupil in the mid 1980's and have all kinds of problems - for instance if I read too long, my eyes will 'lock' in the close-up position so distance vision is blurry even with my glasses. They don't always adjust to light and dark and in the last few years, my left eye has become more far-sighted whereas I've worn glasses for near-sighted vision since I was 17. All in the game of SDS, I guess. (Ont.Can.) wrote: > Several on the list have mentioned problems with keeping their eyes open. > Since Peg has been taking Thioridazine (Mellaril) she has great difficulty > in opening her eyes in the morning. It isn't so much being tired as it is > difficulty in holding her eyes open. This can go on for several hours. > Does anyone have similar experiences? > > Peg and Jim from Guam > > ******************************** > *** Peg & Jim > *** # 29 Cruz Heights > *** Ipan-Talofofo, Guam 96930-4736 > *** USA > *** > *** Note: Guam is 15 hours ahead of > *** Eastern Standard Time (EST). > *** 14 ahead of EDT. > ******************************** > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2000 Report Share Posted October 14, 2000 , Charlotte has had problems with sunlight for many years before the dx of even PD. She also had a problem of a serious change in the sight of one eye in a short time around the time of her blood infection in 1998. It was corrected with glasses. She has always worn sunglasses as far back as I can remember (insisted on them). She also likes her room darkened. Take care, Bill and Charlotte. --------------------------------------------------------------------------------\ ---- Riding wrote: > Hi Jim: I have a problem keeping my eyes open first thing in the morning but > only for about 10-15 minutes. I've never been sure if it's being sleepy, or > because my eyes are so sensitive to light - or something else? > > I was diagnosed with Adie's pupil in the mid 1980's and have all kinds of > problems - for instance if I read too long, my eyes will 'lock' in the > close-up position so distance vision is blurry even with my glasses. They > don't always adjust to light and dark and in the last few years, my left eye > has become more far-sighted whereas I've worn glasses for near-sighted vision > since I was 17. All in the game of SDS, I guess. > (Ont.Can.) > > wrote: > > > Several on the list have mentioned problems with keeping their eyes open. > > Since Peg has been taking Thioridazine (Mellaril) she has great difficulty > > in opening her eyes in the morning. It isn't so much being tired as it is > > difficulty in holding her eyes open. This can go on for several hours. > > Does anyone have similar experiences? > > > > Peg and Jim from Guam > > > > ******************************** > > *** Peg & Jim > > *** # 29 Cruz Heights > > *** Ipan-Talofofo, Guam 96930-4736 > > *** USA > > *** > > *** Note: Guam is 15 hours ahead of > > *** Eastern Standard Time (EST). > > *** 14 ahead of EDT. > > ******************************** > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.