Thanks to all/responses

[Guest guest]

Hey everyone,

You have been so gracious and have made me feel so welcomed. I appreciate

it so much. There is only two other people in our town that has cf. One

is an eleven year old and I have not met them. The other is a twenty year

old that I ironically baby sat for as a child and have kept up with his

progress all his life. Anyway, it is just helpful to have understanding

people because my friends don't even know what cf is.

Now for responses:

TORSTEN: Overwhelmed.....ugh! Anyway, I am just going on with daily life

(because I have to and I am responsible for three children) and my husband

is so distraught every minute. He says we will never have the girls tested

and of course the doctors said we will. I guess we can deal with this down

the road but I think the " not knowing " is killing me. All and all, I guess

I feel very fortunate, things could be much worse. We could be faced with

an absolute hopeless situation but this is not and I am very positive!

Also, so glad you got to enjoy a dinner out with your sweet family.

HEATHER: Yes, does have asthma and I guess I have now put it on the

" back burner " so to speak because the " diagnosis " that has been running our

lives now for a little over two weeks. He was born prematurely and

diagnosed with asthma very early; whether or not it is a hereditary thing

or RAD from prematurity we may never be certain of. I am going to check on

the inhaled steroids. It could be added to his nebulizer stuff, yes???

Good luck with Meagan, STAY HEALTHY! (my new motto), wish it could be so

easy, right?

BRENDA: You are right. It is not left up to us to ask about the testing of

our other two but my husband is having a very hard time and just cannot

handle it at all. I, on the other hand, am having a terrible time dealing

with a " possibility " and not knowing. I am giving him some room now

because at some point I am sure that a doctor will be confronting us and

saying 'this has to be done now'.

About the steroids: I am going to check on the inhaled stuff. That would

really be great if it would be helpful.

Also, as far as the rash: The doc said it was hives secondary to whatever

illness he had start on Sunday. He does still have it and still running

fever off and on.

Warm wishes to your family.

MICHELLE: Thanks so much for writing back. You are so busy with this list

and all and you still are so good to respond. Thank you. Yea, I am worried

about him being on them too, especially since he has been on them so much.

I am going to check on the inhaled kind like some of the group has

mentioned. Hope you day is STRESS FREE!

Have a great day with your sweet Levi!

DOTTIE: Yea, the testing question is consuming me. My husband is so upset

over it. I feel like just getting it over with and knowing they are ok

will help tremendously. I don't do well with unknowns. I like to be in

the know, so to speak, although I am far from it, ha ha. My husband says

we will not have them tested but I am sure at some point the doc will have

a talk with us. We go back in two weeks and they will be surprised that we

didn't do it when it was scheduled.

Also, I had a question for you. You said you have three boys, old than

is. Has it been hard having your only daughter, in our case our only

son, with the diagnosis? To me, it is just terrible being any precious

child in our family but to a Daddy, they may look at it differently. I

think that is what really has my husband so distraught. He is the last to

carry on his name and now his only son is probably infertile because of cf.

I think that is really weighing on him.

Good luck with your family and especially is.

EVERYONE: THANKS AND SORRY TO BE SO LONG. HAVE A WONDERFUL WEDNESDAY!!!

, Mommy to Abby Grace 9, SueEllen 4 and 2 wcf