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Re: weak palate

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hi

ds had a cleft palate and after it was repaired he has more foods and

dribble came out his nose than ever! - our speech language therapist and

also the plastic surgeon said that in ds's case it had to do with swallowing

function - now that the palate was closed it made a bit more pressure and

the food/saliva could be being forced up sometimes instead of down ... does

have troubles with swallowing? Josh is mainly gtube fed, but

explores food, and eats about a tablespoon at a sitting on a good day at the

moment - he was covered in sour cream last night, lovely stuff to play with

:0)

We don't have any solutions, except to wait and trust that those swallowing

processes will improve with time and practice ... we don't have any special

exercises that i can think of ... Josh already seems to be doing what ever

the therapist suggests,

If you find out anything in particular from anyone, i would be interested to

hear please!

Jo

ds Ben, ds Josh

----- Original Message -----

> we discovered that

> my son secretions from his nose are coming up from his mouth and alot

> comes out when he is sucking on his binky or chewing on his fingers.

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Jo,

Pat never had a g-tube or anything but with her submucus cleft when she fed

by her bottle most of it would come out her nose. Sometimes I would plug her

nose for only a moment so she could swallow. We thought she was so skinny

because she only got 1/2 a bottle basically. And she had to be fed every two

hours, even through the night. It would take 1 hour to get her to have 2 cc's.

That was when my husband and I sure loved each other! Ha! Oh, and she

swallowed better when part of her nose was plugged with mucus! I would clear

her nose

after she ate!

She grew out of it and learned how to swallow. It was gradual, but

she learned. She still doesn't eat some things because they are harder for her

to swallow, but at 19 she sure isn't malnutritioned. and hasn't been since she

was about 1 1/2.

By the way, when I was 19 I had to have my tonsils out. I was dating

this young man and went over his house about three days later. Still

recovering I was sitting at the dinner table in front of his entire family and

drank

some iced tea. I swallowed it only to have all of it come out my nose.

Apparently throughout my live my tonsils were so big that now they were gone I

had

to learn how to swallow differently!

Good luck

Bonnie

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