Guest guest Posted November 29, 1999 Report Share Posted November 29, 1999 In a message dated 11/28/99 10:16:05 PM Eastern Standard Time, Ron88Jen@... writes: > For those who are on cystic-l, what do ya think about STarr's story? She > would be happier on this list...... Jen, I have been following Starr's posts also. Hard to imagine what she is going through, let alone poor Amber. I have posted her several times just to say I'm here and thinking of her. We should ask her to join this list. Sally Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 1999 Report Share Posted November 29, 1999 Hi (tripletmom), welcome to this fantastic list. I also have three children, but thank goodness all different ages. I couldn't imagine three diaper changes, three baths, three feedings, etc. How do you do it?!?! Look forward to hearing more from you. Sally Mom of na, & 6w/cf & ds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 1999 Report Share Posted November 29, 1999 Hi (tripletmom), welcome to this fantastic list. I also have three children, but thank goodness all different ages. I couldn't imagine three diaper changes, three baths, three feedings, etc. How do you do it?!?! Look forward to hearing more from you. Sally Mom of na, & 6w/cf & ds Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 1999 Report Share Posted November 29, 1999 In a message dated 11/29/99 11:27:59 AM Eastern Standard Time, hkauffman@... writes: > SALLY-- didn't you say 'Sinuses bad, bad, sinuses good, > good?' or something like that? Yep, that was me. is on full dose of Septra and her sinuses are clear and she's doing fine. Except for that left side upper tummy pain she keeps getting. Just bad enough where you say " Should I call " but not bad enough or lasts long enough to go ahead and call. I'm sure you have all been there. Hey, BTW, enjoy the good days/health!!!! Sally Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 1999 Report Share Posted November 29, 1999 In a message dated 11/29/99 11:27:59 AM Eastern Standard Time, hkauffman@... writes: > SALLY-- didn't you say 'Sinuses bad, bad, sinuses good, > good?' or something like that? Yep, that was me. is on full dose of Septra and her sinuses are clear and she's doing fine. Except for that left side upper tummy pain she keeps getting. Just bad enough where you say " Should I call " but not bad enough or lasts long enough to go ahead and call. I'm sure you have all been there. Hey, BTW, enjoy the good days/health!!!! Sally Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 1999 Report Share Posted November 29, 1999 ! I think we talked about a year ago, and maybe even met briefly at the CF walk in Knoxville? (of course, unless there is another mom of triplets with being the one with CF....) Anyway, we live in Knoxville, and if memory serves me correctly, we use the same doc and hospital..... Ironic thing is that just this past weekend I went to your families website and tried to email you but it came back with no response.... Also, I think I recall having an episode of choking/apnea while asleep, or something like that? There was a post sometime ago on cystic-l about it, and there is a wonderful NP at UT who follows my kiddos for apnea who was wondering about correlations in CF with Apnea, etc.... Anyway, welcome to this list, I think you will find it wonderfully helpful and supportive. As we are so close, let me know if you ever need anything, or if is at ETCH we could bring you food or something.... Take care and welcome, Jennie from Knoxville Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 1999 Report Share Posted November 29, 1999 Hi , As soon as I saw your e-mail address I let out a little gasp, " tripletmom " pretty much says it all-- you instantly won my admiration. It sounds like you've had a lot of challenges with , and I'm glad to hear she's coming along so well with her new water therapy, and you're managing to avoid the hospital more. I look forward to getting to know you :-) I've got two daughters, Kailin (asthma) and Meagan (asthma and CF), and they're great little monsters. Kaililn's in first grade, and M. goes to preschool two half-days a week. We live in Madison, WI, and go to the U.W.-Madison CF/Pulmonary clinic. M.'s doing great at the moment (touch wood!)-- her sinus surgery last month made a HUGE all-around improvement in her health. (SALLY-- didn't you say 'Sinuses bad, bad, sinuses good, good?' or something like that? I think M's going to be like that too.) Anyway, we've got a great list here, , and I hope you like it. , mom of Meagan 4 (cf, asthma) and Kailin 7 (asthma) P.S.-- Meagan's STILL pretending to drink her empty apple juice to avoid chest PT. Oh well, it gives me a chance to sneak a few extra minutes of computer time.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 1999 Report Share Posted November 29, 1999 Welcome My daughter Maureen 9yrs old was also diagnosed last Nov. 11th Welcome Like you I joined Cystic-L and found this thanks to Jeanie I find as a mother of a child with CF this list is much more user friendly I have no problem asking anyone advise because after all we are all in the same boat. Cystic was just too hard to keep up with on the mail. Welcome again Meg Mom of 2 9yowcf & 4 1/2 yowocf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 1999 Report Share Posted November 29, 1999 Welcome My daughter Maureen 9yrs old was also diagnosed last Nov. 11th Welcome Like you I joined Cystic-L and found this thanks to Jeanie I find as a mother of a child with CF this list is much more user friendly I have no problem asking anyone advise because after all we are all in the same boat. Cystic was just too hard to keep up with on the mail. Welcome again Meg Mom of 2 9yowcf & 4 1/2 yowocf Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2003 Report Share Posted December 18, 2003 Welcome to all the new members. It seems as though there is a bunch of new members joining all at once. Can I just ask how did all of you get this Group? This is a wonderful group here with both parents and specialists sharing. Any question you ask will be answered, and then some! You will also find much joy and understanding here. You are not alone is the biggest gift of all. Welcome, Bonnie, Mom to Kris 21, Patty 19 CHARGE and doing wonderfully, and wife to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2003 Report Share Posted December 18, 2003 Bonnie, My husband found this sight while searching for any information on the web about CHARGE syndrome. DeAnn, mom to Austin 8, 6, and Whitney 4 months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 18, 2003 Report Share Posted December 18, 2003 i signed up for the wrong page. I do not know how to get my email off, can you help me and remove it from here. Thank Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 19, 2003 Report Share Posted December 19, 2003 Hei Bonnie, Tim, father of asked me to search for it. So just searched yahoo groups for CHARGE and here it is, and I joined--that's all. This IS really a nice group, I did get advices, suggestions etc etc Hari, Mihir's mom > Welcome to all the new members. It seems as though there is a bunch of new > members joining all at once. Can I just ask how did all of you get this Group? > This is a wonderful group here with both parents and specialists sharing. > Any question you ask will be answered, and then some! You will also find much > joy and understanding here. You are not alone is the biggest gift of all. > > Welcome, > Bonnie, Mom to Kris 21, Patty 19 CHARGE and doing wonderfully, and wife to > > > > Quote Link to comment Share on other sites More sharing options...
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