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Just a moment to vent... My mother in law died this morning of leukemia. It was

a short span from diagnosis and we are thankful for that. The virus we all got

after the conference went away but her illness did not. In the space of 54

weeks my kids have lost three grandparents and their forth is terminal (slowly).

Many good things that went on this year are outweighed by a heavy sadness and I

will be relieved to see 2003 end. So remember to hug your babies and take care

of yourselves... " Happy " New Year

Barbara-mom,(CHARGE)9, Rosie14

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so sorry to hear of your loss, and your other losses--makes our problems

seem like nothing....hugs to you all!!

maria and the guys

RE: " happy " New Year

> Just a moment to vent... My mother in law died this morning of leukemia.

It was a short span from diagnosis and we are thankful for that. The virus

we all got after the conference went away but her illness did not. In the

space of 54 weeks my kids have lost three grandparents and their forth is

terminal (slowly). Many good things that went on this year are outweighed

by a heavy sadness and I will be relieved to see 2003 end. So remember to

hug your babies and take care of yourselves... " Happy " New Year

> Barbara-mom,(CHARGE)9, Rosie14

>

> Membership of this email support groups does not constitute membership in

the CHARGE Syndrome Foundation.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter)

> please contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

> 7th International

> CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

Information will be available at our website

> www.chargesyndrome.org or by calling 1-. In Canada, you may

contact CHARGE Syndrome Canada at 1- (families), visit

www.chargesyndrome.ca, or email info@.... Thank you!

>

>

>

>

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RE: " happy " New Year

Just a moment to vent... My mother in law died this morning of leukemia. It

was a short span from diagnosis and we are thankful for that. The virus we all

got after the conference went away but her illness did not. In the space of 54

weeks my kids have lost three grandparents and their forth is terminal (slowly).

Many good things that went on this year are outweighed by a heavy sadness and I

will be relieved to see 2003 end. So remember to hug your babies and take care

of yourselves... " Happy " New Year

Barbara-mom,(CHARGE)9, Rosie14

Membership of this email support groups does not constitute membership in the

CHARGE Syndrome Foundation.

For information about the CHARGE Syndrome

Foundation or to become a member (and get the newsletter)

please contact marion@... or visit

the CHARGE Syndrome Foundation web page

at http://www.chargesyndrome.org

7th International

CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

Information will be available at our website

www.chargesyndrome.org or by calling 1-. In Canada, you may

contact CHARGE Syndrome Canada at 1- (families), visit

www.chargesyndrome.ca, or email info@.... Thank you!

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Prayers coming your way. May 2004 be better.

Blessings and Hugs,

Lynn

RE: " happy " New Year

Just a moment to vent... My mother in law died this morning of leukemia. It

was a short span from diagnosis and we are thankful for that. The virus we all

got after the conference went away but her illness did not. In the space of 54

weeks my kids have lost three grandparents and their forth is terminal (slowly).

Many good things that went on this year are outweighed by a heavy sadness and I

will be relieved to see 2003 end. So remember to hug your babies and take care

of yourselves... " Happy " New Year

Barbara-mom,(CHARGE)9, Rosie14

Membership of this email support groups does not constitute membership in the

CHARGE Syndrome Foundation.

For information about the CHARGE Syndrome

Foundation or to become a member (and get the newsletter)

please contact marion@... or visit

the CHARGE Syndrome Foundation web page

at http://www.chargesyndrome.org

7th International

CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

Information will be available at our website

www.chargesyndrome.org or by calling 1-. In Canada, you may

contact CHARGE Syndrome Canada at 1- (families), visit

www.chargesyndrome.ca, or email info@.... Thank you!

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Dear Charge Family,

I don't mean to brag, but want to share a cHARGEr's success.

(19) got her University of Akron first semester freshman

grades on line. They don't mail them any more. She earned 1 - A,

4 - B's and 1 - C. We are very very proud of her. She works very

very very hard to do well. She is a " never give up " kid like so many

here. Add to that she stayed healthy all semester. That too is an

accomplishment.

That's the longest stretch of good health she has ever had. I praise

God for that. As mom's do I worried more about her health than I did

her grades.

She will be taking pre- college algebra (remedial) this

semester. She will have her work cut out for her. She will also have

English, Ballet, Pointe and Modern Dance and a book class about

Dance as an Art form. Once again she will have to work very hard.

HAPPY NEW YEAR TO ALL !!!

Blessings and Hugs,

Lynn

Ohio

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Barbara, sorry to hear about your MIL. Here's hoping 2004 will be a happier

year for your family.

Hugs,

Weir

Mom to Kennedy 5 1/2 yr old with CHARGE, 14, 12 and wife to

Graeme.

New Brunswick, Canada

Weir homepage: http://personal.nbnet.nb.ca/gweir

CHARGE SYNDROME CANADA: http://www.chargesyndrome.ca

RE: " happy " New Year

Just a moment to vent... My mother in law died this morning of leukemia.

It was a short span from diagnosis and we are thankful for that. The virus

we all got after the conference went away but her illness did not. In the

space of 54 weeks my kids have lost three grandparents and their forth is

terminal (slowly). Many good things that went on this year are outweighed

by a heavy sadness and I will be relieved to see 2003 end. So remember to

hug your babies and take care of yourselves... " Happy " New Year

Barbara-mom,(CHARGE)9, Rosie14

Membership of this email support groups does not constitute membership in

the CHARGE Syndrome Foundation.

For information about the CHARGE Syndrome

Foundation or to become a member (and get the newsletter)

please contact marion@... or visit

the CHARGE Syndrome Foundation web page

at http://www.chargesyndrome.org

7th International

CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

Information will be available at our website

www.chargesyndrome.org or by calling 1-. In Canada, you may

contact CHARGE Syndrome Canada at 1- (families), visit

www.chargesyndrome.ca, or email info@.... Thank you!

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