CdLS connection anyone?

[Guest guest]

Okay, everyone, I've got an unusual coincidence that just came up. I

have a non CHARGE daughter () who has a daughter with Cornelia

deLange Syndrome (CdLS). CdLS is another syndrome that is rare and is

diagnosed visually by the child's appearance and accompaning anomalies.

recently got a phone call and met with a friend of hers that years

ago had a CHARGE baby that died shortly after birth. This friend has a

daughter that just had a baby girl that has CdLS. Is that a weird

coincidence or what? (My daughter has a brother with CHARGE and a

daughter with CdLS. This other girl had a brother with CHARGE and now

has a daughter with CdLS.) Kinda weird huh? Now what I'm asking is, do

any of you out there have a family connection to CdLS? It's just one of

those, 'this is too weird' type things. There's probably no connection,

but and I are both presenting this question to our seprate list

serves. Meg, have you ever heard of this before? Thanks for any in put

you might have.

Smiles from,

Baker - Mom to Jeff (19 yrs. CHARGEr), Steve (20 yrs. and serving a

Mission in Brazil), and others married with children of their own.

Idaho, USA

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[Guest guest]

,

that is fascinating. I keep a file of " interesting families " - yours is going

in, along iwth Chris' (one child with CHARGE, one with Down

syndrome). I have not heard of any conncection between CHARGE and CdLS, but

I'll keep my eyes open.

Meg

> Okay, everyone, I've got an unusual coincidence that just came up. I

> have a non CHARGE daughter () who has a daughter with Cornelia

> deLange Syndrome (CdLS). CdLS is another syndrome that is rare and is

> diagnosed visually by the child's appearance and accompaning anomalies.

> recently got a phone call and met with a friend of hers that years

> ago had a CHARGE baby that died shortly after birth. This friend has a

> daughter that just had a baby girl that has CdLS. Is that a weird

> coincidence or what? (My daughter has a brother with CHARGE and a

> daughter with CdLS. This other girl had a brother with CHARGE and now

> has a daughter with CdLS.) Kinda weird huh? Now what I'm asking is, do

> any of you out there have a family connection to CdLS? It's just one of

> those, 'this is too weird' type things. There's probably no connection,

> but and I are both presenting this question to our seprate list

> serves. Meg, have you ever heard of this before? Thanks for any in put

> you might have.

> Smiles from,

> Baker - Mom to Jeff (19 yrs. CHARGEr), Steve (20 yrs. and serving a

> Mission in Brazil), and others married with children of their own.

> Idaho, USA

>

>

> ________________________________________________________________

> The best thing to hit the internet in years - Juno SpeedBand!

> Surf the web up to FIVE TIMES FASTER!

> Only $14.95/ month - visit www.juno.com to sign up today!