Guest guest Posted December 12, 1999 Report Share Posted December 12, 1999 Hi ! Talau had nearly 5 years with us before we had . Then he was dx and suddenly everything changed for her. For quite a while I tried doing his therapy while she was in Kindergarden (they start school late in Germany - with 6 years) or in bed. This was to not give her the feeling that we were spending 1,5 hours EXTRA with him, you know. Then we had to change this procedure: It was getting to late in the evening before we were finished with him (sometimes 10.30pm). So, as she was interested in what we were doing with him, she started taking nebs every now and then (with this NaCl-stuff - what do you call it?). Since then things are working out much better. is a little angry about this new procedure, as he is sure that having CF and being ALLOWED to have nebs is something SPECIAL. Nevertheless, I am always glad when I can spend a day just with Talau and without him. We had a wonderful day - nearly doing nothing... It was just great! Wish you a nice Sunday Love to all of you out there Caroline - today again with two children Talau 9, nocf 4 wcf Axel 32 at work Quote Link to comment Share on other sites More sharing options...
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