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[Guest guest]

Happy New Year everybody!

Guess you have wondered what happened to me...well...lets see how to begin.

First...my transtrach thing became very infected. Had to have it removed until infection improved. Could not talk because of the hole in my throat. Also didnt feel so well. Anyway, last Wed., the surgeon reinserted the neck catheter and said all is well. But that night I didnt feel well, very weak, not much coughing as usual. Just not right. Following day it was worse...only my legs were getting numb and I was just really weak. Next day was Friday, my husband stayed home from work because I was "acting strange". Doc. told him to keep monitoring my blood pressure and it was giong down down down. Got down to 60/42...my vision was really bad and legs and arms didnt work but I refusted 911. Sat.....even worse. I started having some wierd contractions in my chest, like seizueres, my eyesight was gone and I could not move my arms or legs. Felt like a train on my chest. I decided I was dying and my husband thought so too. It was really really bad. I wasnt scared, just thought it was my time at last. Tim went in to turn the concentrator up and the red light was on...no oxygen at all. He immediately got a liquid portable and put it on 15 and started it in my neck. In about 15 min., I could see again. After an hour, I was talking, coughing and moving again. So, I was without oxygen and that is what was happening. I had felt the oxygen surging a couple of times earlier in the week and I told my husband that it was whistling but it never changed to the red light. So, he called Apria and they came our with a new concentrator. Do I trust it? NO. But anyway, what was going on all those days , I found out, was that the concentrator was blowing air but not concentrating the air. As far as I knew, it was fine because the green light was on and I felt air. Now...if I had had an oxymeter, we coujld have checked my oxygen leval and known but my pulmo. said I didnt need one cause I would panic if I had one. Well, now, we are getting on online. I rally think I was dying from lack of oxygen. My doctor always told me that when your oxygen level gets low, that your body will save it and give what you have to your organs and your hands and legs and feet will not get any and thus goes dead feeling. Exactly what had happened. I was having semi-seizures due to lack of oxygen and my blood pressure was too low. So...now I am doing as well as can be expected. I check the concentrator often and when I feel sog then we get the portable liquid oxygen, just in case. I am ordering an oximeter today online . Not going to wait for the doctors approval. When my husband called my doctor, when I was so bad, she just said to make sure I was drinking fluids. No real concern because as we all know, I was and am expected to die soon anyway. Guess she thought that was happening.

Ssure sorry to read about Madeline Holmes. I sent a card today. I wonder about Vicky. And Janine.

I care about all of you.

You know, there must be a reason why I get so close to dying and never do.

L

IIPF 02 PH 06

Trans trach...07