Guest guest Posted April 29, 2000 Report Share Posted April 29, 2000 For those of you who don't know Hank and - has systemic scleroderma and experienced total kidney failure, now doing well on the antibiotics. (daughter 32, systemic scleroderma/rheumatoid arthritis/fibromyalgia). ****** Forwarded Message Follows ******* > Hi Ethel & > > I apologize for being out of contact for so long. No real excuses, just > lack of push. > has continued to do well, BUN and Creatinine remaining at 55+ or - > and 2.2-2.5 respectively. Her energy level is still diminished and hands > are still > sensitive and a little stiff, but all in all doing well. Her attitude is > great and just > shrugs off the day to day difficulties. > > I'm assuming that both of you good people are still active in the AP > world of hope, > hence the following info. I was contacted by Harmon and Vickie > Beene > whose mother apparently been diagnosed with systemic diffuse SD, and > it's > progressing rapidly. I've already responded to them about > www.roadback.org and > Chris's 1997 list of updated FAQs about SD, but I'm out of date on > everything > currently happening. I was reluctant to refer them to you until I knew > you were > still actively involved. I believe their mother lives in little Rock, > Arkansas and is > being treated by a Dr. Cheatum in Dallas. They have requested the name > of an AP doctor in Little Rock, but not knowing of one there, I was > going to refer them to > Dr. in Plano. I presume she is still there. Can you advise me on > this? > > Also, if you have not been in contact with these folks, I'm giving you > their email > addresses, should you wish to just drop a short post to them. They are > very > distressed now maybe a friendly " voice " from the computer would give > them > some comfort. > > Harmom KvHrmn@... > Vickie Beene ebeene@... > > Please catch me up on any latest happenings in the AP world. You and all > the other members of the support group are still so very much on my > mind, almost on a daily > basis. Best regards, > > Hank Quote Link to comment Share on other sites More sharing options...
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