Re: Digest Number 542

[Guest guest]

HI All,

First let me explain that I have posted to this site a couple times before

and never gotten a responce. I guess I should first say I get everyones

posts in my e-mail. I have joined the group but I guess I have never really

explained my story. SO I will give it a shot.

I do not suffer from this terrible disease but someone that I care about

Immencilly does. She means the world to me and I know she knows that.

I try so hard to let her know that this disease will not beat us. I want

her to know that she can count on me to be there for her throughout the

deration of this thing. She mentioned something tonight that really bothered

me. She is afraid that there will be a time when she can't do things that

she should be doing. I try to tell her then I will do them for her. I don't

think that is what she wants to hear. I really don't know what I can say

anymore to let her know I will be beside her for eternity if she would just

trust me. I don't know know if she is afraid that I won't understand if she

is sick.

I do know that she doesn't like anyone around when she is Nausious.. Yet

that is all I want to do.

I don't want to take up too much of everyones time I just would like a

little advice from some of you as to what exactly I can do to make her as

comfortable as possible. I love this woman more than my life itself and I

wish only her comfort and my love. Sorry if I bothered any of you with this

e-mail in your box.. Just a bit of advise would help tremendously.. Thank you

I wish you all health and no pain.

Leon

[Guest guest]

In a message dated 11/6/00 8:58:09 PM Central Standard Time,

chevytk85@... writes:

<< I just would like a

little advice from some of you as to what exactly I can do to make her as

comfortable as possible. >>

Leon,

It is always hard to sit by and watch someone you care about suffer. How

long has your friend had pancreatitis? I don't know that I have much advice

for you but I just didn't want you to feel you were being ignored by the

group.

[Guest guest]

In a message dated 11/6/00 9:58:09 PM Eastern Standard Time,

chevytk85@... writes:

<<

HI All,

First let me explain that I have posted to this site a couple times

before

and never gotten a responce. I guess I should first say I get everyones

posts in my e-mail. I have joined the group but I guess I have never really

explained my story. SO I will give it a shot.

I do not suffer from this terrible disease but someone that I care about

Immencilly does. She means the world to me and I know she knows that.

I try so hard to let her know that this disease will not beat us. I want

her to know that she can count on me to be there for her throughout the

deration of this thing. She mentioned something tonight that really

bothered

me. She is afraid that there will be a time when she can't do things that

she should be doing. I try to tell her then I will do them for her. I

don't

think that is what she wants to hear. I really don't know what I can say

anymore to let her know I will be beside her for eternity if she would just

trust me. I don't know know if she is afraid that I won't understand if she

is sick.

I do know that she doesn't like anyone around when she is Nausious..

Yet

that is all I want to do.

I don't want to take up too much of everyones time I just would like a

little advice from some of you as to what exactly I can do to make her as

comfortable as possible. I love this woman more than my life itself and I

wish only her comfort and my love. Sorry if I bothered any of you with this

e-mail in your box.. Just a bit of advise would help tremendously.. Thank

you

I wish you all health and no pain.

Leon

>>

Dear Leon, your post touched me so much. I understand how she feels but

there comes a time when she will just have to let it go and trust you. It is

so scary accepting that one will not be able to take care of oneself someday.

It is so hard for her to really know that you will be there for her. Maybe

someone in her past let her down in some way. I know that that happened to

me. My father and mother split when I was very young and I never saw him

again. I guess he didn't love me enough to come to see me. That has

affected my whole life.

My husband has to do everything for me except bath me and dress me. He does

all the outside work and the inside work. I have to depend on him for my

tpn, medicines, trips to the doctors, anything that takes legs to do or

strength. I am in a wheel chair when I leave my house. When we go out he

has to take the wheel chair out of the van and then push me where every I

need to go. There is no way in the world I could tell you all that he does

for me. Him doing so much for me has and still is hard for me to accept. I

sometimes feel such a burden to him. He assures me that I am not but I can't

fully accept the thought that I am not a burden. My life, being so

handicapped has made his life a handicapped life also.

Just keep telling your loved one that you love her and would do anything for

her. Assure her often that you want to help her, that you wouldn't have it

any other way. Oh, I sure do know how she feels. If I can help her in any

way please tell her to just e-mail me. Leon you sound like such a wonderful

man. She is blessed to have you. Your friend, Shirley

[Guest guest]

>>>How are you feeling these days? In a lot of pain? I pray you'll >>>have a

good day today. You are all in my prayers daily.

Thanks Terri,

I have been having increase in pain lately. And though I am hungry, I have

pain after I eat. It's a horrible predicament. I think this appt with Dr

Cotton seems like it is well timed. I don't have the number for MUSC, but I

think Henry posted it before he had his surgery. You might want to go to the

home page and look back at the posts. Or you can call the 800 number and

they will give you the patient number. The 800 number is . Thank

you for your prayers.

Diane

Truly,truly I say to you,unless one is born again,he cannot see the kingdom

of God(3:3)

_______________________________________________________

Say Bye to Slow Internet!

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[Guest guest]

>>>How are you feeling these days? In a lot of pain? I pray you'll >>>have a

good day today. You are all in my prayers daily.

Thanks Terri,

I have been having increase in pain lately. And though I am hungry, I have

pain after I eat. It's a horrible predicament. I think this appt with Dr

Cotton seems like it is well timed. I don't have the number for MUSC, but I

think Henry posted it before he had his surgery. You might want to go to the

home page and look back at the posts. Or you can call the 800 number and

they will give you the patient number. The 800 number is . Thank

you for your prayers.

Diane

Truly,truly I say to you,unless one is born again,he cannot see the kingdom

of God(3:3)

_______________________________________________________

Say Bye to Slow Internet!

http://www.home.com/xinbox/signup.html

[Guest guest]

.. She is afraid that there will be a time when she can't do things

that

she should be doing. I try to tell her then I will do them for

her. I don't

think that is what she wants to hear. I really don't know what

I can say

anymore to let her know I will be beside her for eternity if she would

just

trust me. I don't know know if she is afraid that I won't understand

if she

is sick.

Hi Leon,

First let me say lucky this woman is to have such a wonderful man in her

life. There are days when i do not know how I would make it through

without my husband.

We are all afraid of the same things......not being able to take care of

ourselves. For me, it was extremely hard to give up the independent

lifestyle I once had. While I am not an invalid, I can no longer

hold a job and doing everyday house work is a chore. It is frustrating!

The best thing I can tell you is to keep being supportive, tell her over

and over again, reassure her, most of all just be there and love her.

Actions speak louder than words.

I also suggest being a part of her healthcare. Attend her Dr.s appoinments,

read up and become aware of the disease. Coming to this group is

helpful as well, encourage her to come and ask us questions. My husband

reads all the posts and we talk about them.

I am sorry I didn't welcome you the first time around as I have been ill!

But welcome to our group and know we are here for you and yours.

Take care of you,

Becky and Chris

[Guest guest]

In a message dated 11/06/2000 9:58:32 PM Eastern Standard Time,

chevytk85@... writes:

<< HI All,

First let me explain that I have posted to this site a couple times

before

and never gotten a responce. I guess I should first say I get everyones

posts in my e-mail. I have joined the group but I guess I have never really

explained my story. SO I will give it a shot.

I do not suffer from this terrible disease but someone that I care about

Immencilly does. She means the world to me and I know she knows that.

I try so hard to let her know that this disease will not beat us. I want

her to know that she can count on me to be there for her throughout the

deration of this thing. She mentioned something tonight that really

bothered

me. She is afraid that there will be a time when she can't do things that

she should be doing. I try to tell her then I will do them for her. I

don't

think that is what she wants to hear. I really don't know what I can say

anymore to let her know I will be beside her for eternity if she would just

trust me. I don't know know if she is afraid that I won't understand if she

is sick.

I do know that she doesn't like anyone around when she is Nausious..

Yet

that is all I want to do.

I don't want to take up too much of everyones time I just would like a

little advice from some of you as to what exactly I can do to make her as

comfortable as possible. I love this woman more than my life itself and I

wish only her comfort and my love. Sorry if I bothered any of you with this

e-mail in your box.. Just a bit of advise would help tremendously.. Thank

you

I wish you all health and no pain.

Leon

>>

Hi Leon,

I am sorry that you never got a response from your previous posts, but

honestly I don't remember seeing any from you. I am sure that this is very

rough on you watching her go through all of this. I took care of an ill

brother for years and years and what bothered me the most was that I couldn't

just make it all go away for him. Just know that she appreciates all that

you do for her I am sure of it I believe that there are some other

caregivers here that can maybe help you more. Or at least, we can offer you

moral support!!! How long has she had this disease and how old is she? If

you don't mind me asking

Hang in there, and again I apologize for not seeing your other posts!

Hugs,

[Guest guest]

In a message dated 11/6/00 9:58:02 PM Eastern Standard Time,

chevytk85@... writes:

> First let me explain that I have posted to this site a couple times before

> and never gotten a response.

Hi Leon,

Welcome, Leon, and I'm sorry you didn't get a response from you previous

posts but I don't remember seeing it. Sometimes we all miss some posts and

usually it depends on what kind of day we are having. She's a lucky lady to

have you in her life...wanting so desperately to help her. It sounds like

you are doing everything to give her the love and support she needs with this

disease. How long has she had it and does she know what caused her

Pancreatitis? I don't know what I would do without the support and love from

my husband. Both of you will be in my thoughts and prayers.

Hugs & Prayers

Carole