Guest guest Posted June 10, 1999 Report Share Posted June 10, 1999 Yes but 2 tylenol will kick it and the head ache is just the body going into ketosis. congratulations you are probably burning 1/2 to 1 lb of fat a day. Do you have your ketostix? the urinalysis stix to check the color of what I call the fat burning chart? VaLady4Luv@... wrote: > > From: VaLady4Luv@... > > Hi, > > I'm a newbie to the list and to the Atkins's Diet. I'm on Day 3. I still > muddling through the waters here! This will be short because I have one of > the worst headaches I've had in a long time. Is this a side effect of the > diet? > > K. > > ------------------------------------------------------------------------ > ONElist members are using Shared Files in great ways! > http://www.onelist.com > Are you? If not, see our homepage for details. > ------------------------------------------------------------------------ > We Can Work Together For A Better You Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 1999 Report Share Posted June 10, 1999 Sue, Yesterday I was on day three of my diet and finally bought the strips. It said a trace. Is that good or not? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 1999 Report Share Posted June 10, 1999 K yes it is a side affect I get it when i go out of ketosis and back that might be what is happening you are going into ketosis which is what your trying to do and the headaches do go away. sue --- VaLady4Luv@... wrote: > From: VaLady4Luv@... > > Hi, > > I'm a newbie to the list and to the Atkins's Diet. > I'm on Day 3. I still > muddling through the waters here! This will be short > because I have one of > the worst headaches I've had in a long time. Is > this a side effect of the > diet? > > K. > > ------------------------------------------------------------------------ > ONElist members are using Shared Files in great > ways! > http://www.onelist.com > Are you? If not, see our homepage for details. > ------------------------------------------------------------------------ > We Can Work Together For A Better You > _________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 1999 Report Share Posted June 10, 1999 Yes it is nancy and as you go here the strips will get dasrker it means your body is now burning the fat it has stored. --- NTOEPFER wrote: > > > Sue, > Yesterday I was on day three of my diet and > finally bought the > strips. It said a trace. Is that good or not? > > > ------------------------------------------------------------------------ > Campaign 2000 is here! > http://www.onelist.com > Discuss your thoughts; get informed at ONElist. See > our homepage. > ------------------------------------------------------------------------ > We Can Work Together For A Better You > _________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 1999 Report Share Posted June 10, 1999 The headaches are actually an effect from withdrawal from sugar and caffeine, your body is burning off its supply of Glycogen. One of the things Dr. Atkins stresses is breaking the addiction from caffeine and sugar, and yes... the first few days you will have an awful headache, but when they are over, your addiction will be gone Chris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 1999 Report Share Posted August 15, 1999 In a message dated 8/14/99 9:12:43 AM Central Daylight Time, nitag@... writes: ***I can't help but wonder how many people really end up making this a true way of life. It seems that I've heard an awful lot of people say they used this diet and lost weight, and then went off it and gained back weight. I hope this isn't going to be just one of the yoyo dieting steps in my life. I honestly think I can maintain this type of eating but I wonder if anybody other than Dr. ATkins has done it for that length of time.*** Nita, I actually think it's easier to go off of Atkins and maintain your weight, than it is to do so from any other diet. Because you're not restricting calories on Atkins, you're not slowing down your metabolism. Plus, for me at least, since I'm not starving myself on Atkins, when I do go off of it, I don't start binging and eating everything in sight! LOL. So when I go off Atkins, I tend to just eat normally, except I add carbohydrates. I went off for about 3 months after losing 40 pounds. I didn't gain *any* weight back until about my 11th week off of it, because I had a really stressful time and I *did* binge eat. If it weren't for that episode, I wouldn't have gained anything back. Anyway, in all of my rambling, I'm trying to say that I think this diet has the smallest rebound effect. For me at least. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 7, 2003 Report Share Posted October 7, 2003 Thanks for the welcome. We live near St. Louis, in Cedar Hill. I would love to go to one of the conferences. I hope we get a chance to. Thanks, Sue mom to 11 charge Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2003 Report Share Posted October 8, 2003 We're in Springfield, MO and know very few families in the area. Martha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2003 Report Share Posted October 8, 2003 Sue, I have a name of a SUPER-HIGHLY-RECOMMENDED ear plastic surgeon. He's supposed to be the best!!! He's based in California. Unfortunately I don't have the info on me right now. I'm currently in North Carolina with my family - my mother is in critical care and about to undergo 5-bypass heart surgery. I'm not sure when I'll be home in DC, probably next week sometime. Please keep my email address and stay in touch with me so that I can get this name and number for you. Rosie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2003 Report Share Posted October 9, 2003 Sue, You wrote that your son, , 11, wanted to meet others like himself. If you are a member of the Charge Syndrome Foundation and contact n, she can provide you with a list of other CHARGErs in your state. -Mike Schwartz in Ventura, CA, father of 5-year-old twin boys Danny (CHaRGE) and Nick. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2003 Report Share Posted December 12, 2003 Hi, My name is Rochel. My little girl was born just 3 days ago and has been diagnosed with CHARGE syndrome. So far she has been diagnosed with choanal atresia, heart abnormalities and bilateral coloboma. The renal scan was fine, but I assume that can't diagnose reflux so we don't know about that yet. Her hearing hasn't been checked yet. From the outside she seems to look completely normal (beautiful really, but maybe I'm biased) except maybe her genital area looks a little different to me, but they haven't gotten around to checking that out yet. Obviously I'm exhausted and my mind is whirling but otherwise I'm trying to put this in perspective. I know that usually things like this hit like a freight train but then things calm down and it becomes a part of your life as opposed to ruling your life like it seems it will at first. Her heart surgery will probably be on Monday. The nose surgery will probably be a week or so after that and then hopefully we will be able to bring her home. I guess I'll be spending a lot of time on this list. Obviously for the next couple of weeks or so I will not have the time or energy to post much if at all, but I will be lurking around. Nice to " meet " you all. Rochel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2003 Report Share Posted December 12, 2003 Welcome to you and we will be thinking of you doing these trying early times. Good for you for finding us so quickly. Learning about what I could do instead of worrying about what wasn't is certainly how I coped when Dylan was born and still do. Not that I didn't have my cries over each new diagnosis, but then it was okay now what do we do. I hope the surgeries go well and she can come home soon. Kim Mom to Dylan 7 CHaRGE, Kayla 12, Tyler 15, Layla a 6 week old puppy, and wife to Roy. > Hi, > > My name is Rochel. My little girl was born just 3 days ago > and has been diagnosed with CHARGE syndrome. > > So far she has been diagnosed with choanal atresia, heart > abnormalities and bilateral coloboma. The renal scan was fine, but > I assume that can't diagnose reflux so we don't know about that > yet. Her hearing hasn't been checked yet. From the outside she > seems to look completely normal (beautiful really, but maybe I'm > biased) except maybe her genital area looks a little different to > me, but they haven't gotten around to checking that out yet. > > Obviously I'm exhausted and my mind is whirling but otherwise I'm > trying to put this in perspective. I know that usually things like > this hit like a freight train but then things calm down and it > becomes a part of your life as opposed to ruling your life like it > seems it will at first. > > Her heart surgery will probably be on Monday. The nose surgery will > probably be a week or so after that and then hopefully we will be > able to bring her home. > > I guess I'll be spending a lot of time on this list. > > Obviously for the next couple of weeks or so I will not have the > time or energy to post much if at all, but I will be lurking around. > > Nice to " meet " you all. > > Rochel > > > > Membership of this email support groups does not constitute membership in the > CHARGE Syndrome Foundation. > For information about the CHARGE Syndrome > Foundation or to become a member (and get the newsletter) > please contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > 7th International > CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005. > Information will be available at our website > www.chargesyndrome.org or by calling 1-. In Canada, you may > contact CHARGE Syndrome Canada at 1- (families), visit > www.chargesyndrome.ca, or email info@.... Thank you! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2007 Report Share Posted August 15, 2007 Hi Donna, You have a nice name. Did you know that it is Italian and means " Lady " ? Anyway, welcome to the group, there are a lot of helpful people here. I do not have a diagnosis of MS as yet. The CT scan I had a couple weeks ago came back normal. Since I've been a member of this group, however, I have been given a diagnosis of Grave's Disease, which is an autoimmune hyperactive thyroid disease. It can explain some of my symptoms, but not all. We're still trying to get things figured out. How is your cognitive functioning? I can suggest a web site that I think is pretty good for researching symptoms. Here's the link: http://wrongdiagnosis.com/ I hope you can find it useful. MS is not easy to diagnose. There are many conditions that have similar symptoms, even the same symptoms. That's what makes it so hard to get a diagnosis. Even if you have a normal CT scan or MRI, doesn't mean you don't have MS. I used to have a doctor who said that. Also the people at the MS Society told me pretty much the same thing. I want to wish you the best. Learn as much as you can. Donna in WA <HTML> <A HREF= " http://pets.care2.com/i?p=628786495 " >Join Care2.com's Race for Pets!</A> </HTML> ________________________________________________________________________________\ ____ Park yourself in front of a world of choices in alternative vehicles. Visit the Yahoo! Auto Green Center. http://autos.yahoo.com/green_center/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2007 Report Share Posted August 15, 2007 Hi Donna:I'm glad to see your introduction. I know it's scary but MS symptoms can normally be treated, so that's a good thing. I think the eye doc would have seen ON. MSers can have all kinds of eye problems such as blurry vision and changing vision. Some eye docs don't believe that but I've heard it straight from one of the premier MS researchers. For the spasms you could start doing some gentle stretching now. Research now shows that exercise is actually one of the best things for MS. In the past MSers were told not to exercise much because they might overheat themselves. We can exercise but we need to be careful not to overheat our bodies. Are you affected by the heat? I don't know if it's hot where you are, or not.I think I would wait to see if you can get in to see the neuro who has been recommended to you. Perhaps the NP at the rheumatologist's office could help speed the referral along for you? There are many MSers who have Fibromyalgia along with MS. Depression is #2 symptom for MS and 50% of all MSers have depression according to Dr. Vollmer, a leading MS neurologist and researcher. He says it's biological and doesn't usually respond to psycho-therapy. Some MSers have irritability which is part of the depression and that is related to MS lesions. Pins and needles is related to anxiety? I don't know about that (others here can answer to that) but I know pins and needles is part of my daily life with MS. Other symptoms I live with are numbness, spasms, spasticity, cognitive dysfunction and memory loss, fuzzy vision that comes and goes, Trigeminal Neuralgia, bladder problems, constipation and severe nocturnal leg pain. Speaking of the nocturnal leg pain my doctors first thought I had peripheral neuropathy but after having a nerve conduction done on my legs they found out my legs are "normal". My question was "Then why do they hurt so bad???" My neurologist said the pain is from MS. It could be from brain lesions but he feels it is more likely due to a hidden lesion on my spine. I have found a lot of relief from Cymbalta for my leg pain. You will find a lot of people will suggest other things (West Nile, etc) but I think you should go to the neurologist and let the expert decide. The neurologist will probably order more blood work to rule out all sorts of things. Hang in there. Ask anything you want. We're all here for you! hugs))SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. Introduction Hi, My name is Donna, I am 47 y/o. Last week my ruematologist referred me to a Neurolgist that specializes in MS. I am very anxious and tearful. Waiting to get an appointment is so slow. I just want to find out and get on with things. Right now I am just in Limbo. I called a Center in Atlanta that specializes in MS and they could see me Aug.31. The Neuro here is out of town until Thursday. She is very busy and appointments are difficult to get. Her office staff tells me she has the referrals with her and that she will priortise them, I quess according to the patients symptoms. I have been told that it can take months to see her. I don't know whether to wait until she can see me or go to Atlanta, which is about 8 hours away. I don't know what to do. I have not been officially diagnosed. My symptoms seem to be getting worse. For years Doctors blamed my symptoms on Fibromyalgia, Depression with anxiety. They said the pins and needle feeling in my hands and feet was caused by anxiety. My eyes are beginning to really bother me. I see and Opthamalogist yearly but he has never done any thing but write me a prescription for glasses. Wouldn't he have caught optic neuritis when he examined my eyes in May? I have read the files. I keep telling my self that it could be any number of things wrong with me. I keep telling myself to relax and just wait and see. I have a long list of symptoms. The numbness in my feet has worsened. I fell on vacation because my left foot was so numb . I didn't feel the step when I put my foot down. All my weight went on my right foot and I heard a snap. My lower back feels like spasms going up and down my back and sometimes I can hardly stand the pain. At first the spasms came after standing in the kitchen when I tried to cook. Now they are more frequent. At times the bottom of my feet hurt so bad that I can hardly stand it. I have scars from 3rd degree burns on my hand and arms from burning my self on the stove and oven. I lay in bed at times and watch the muscles in my legs twitch. What really scares me is my eyes. As I write this, my left eye is twitching. I have strange light shows at times and just weird things that happen. My side vision will get blurry. At times I feel like there is a straight line of pain that runs from the center of my lower back down the center of my left leg. I get so tired. There are days that I feel like I am walking in quick sand. My legs and arms get so heavy. I use to have the memory of an elephant. My memory comes and goes with good days and bad days. These are the main symptoms. Last week, I tried a different Reumatologist hoping that I could get some answers. I thought it was fribromyalgia and restless leg syndrome. The new doctor ran his tests but on the very first visit, he said he thought I should see a neurologist. He ruled out Lupus. He said He believed that I have perepheral neurapathy. He also said that he felt something else was going on neurologically. He tried me on lyrica for pain. Couldn't take it. My hands swelled up and my bp went up. Went back and saw his nurse practioner for 3rd visit. She gave me a prescription for requip for restless leg syndrome. That kept me up all night. When I called her back, she said not to take it anymore. While in her office, she talked to me about the Dr's notes and that he wanted me to be referred to a neurologist. I started crying and I asked her what was he thinking. She said that they believe I have MS but that only an neurologist could diagnose that. They referred me to the only Neurologist that specializes in MS in my area. I am still waiting to hear from their office. The Ruemotologist did not refer me to an Opthamalogist. Are there ones that specialize in MS? My aunt called me when she heard. Her advice was to go get tested for Lead poisoning and west nile virust because according to her, the have the same symptoms. She thinks I should do that instead of going through the expensive MRI and the spinal tap. Could it be Lead poisoning or west nile? I am so exhausted and depressed that I can't think straight. Donna Shape Yahoo! in your own image. Join our Network Research Panel today! 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Guest guest Posted August 15, 2007 Report Share Posted August 15, 2007 Yes, we have three lovely Donnas on the group now! You gave some good information, Donna. It's not unusual for someone with MS to also have another autoimmune disease. You said you had a CT scan but have you had a MRI? You must have by now and I'm just not remembering.hugs))Sharon This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. Re: Introduction Hi Donna, You have a nice name. Did you know that it is Italian and means "Lady"? Anyway, welcome to the group, there are a lot of helpful people here. I do not have a diagnosis of MS as yet. The CT scan I had a couple weeks ago came back normal. Since I've been a member of this group, however, I have been given a diagnosis of Grave's Disease, which is an autoimmune hyperactive thyroid disease. It can explain some of my symptoms, but not all. We're still trying to get things figured out. How is your cognitive functioning? I can suggest a web site that I think is pretty good for researching symptoms. Here's the link: http://wrongdiagnos is.com/ I hope you can find it useful. MS is not easy to diagnose. There are many conditions that have similar symptoms, even the same symptoms. That's what makes it so hard to get a diagnosis. Even if you have a normal CT scan or MRI, doesn't mean you don't have MS. I used to have a doctor who said that. Also the people at the MS Society told me pretty much the same thing. I want to wish you the best. Learn as much as you can. Donna in WA <HTML> <A HREF="http://pets. care2.com/ i?p=628786495">Join Care2.com's Race for Pets!</A> </HTML> ____________ _________ _________ _________ _________ _________ _ Park yourself in front of a world of choices in alternative vehicles. Visit the Yahoo! Auto Green Center. http://autos. yahoo.com/ green_center/ Park yourself in front of a world of choices in alternative vehicles.Visit the Yahoo! Auto Green Center. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2007 Report Share Posted August 15, 2007 Hi Donna my name is Bill and I have had my MS now since Aug 99 and my MS all hit me in a months time. I had the feeling of pins and needles up and down my legs my first year. I was very thankful that it went away. I started taking my MS meds about that time so maybe that helped me a lot. The pins and needle feeling may just be part of getting MS. I always felt my legs were swelling and often I would ask my wife if my leg looked or even felt swollen and she couldn't see any difference. I have trouble with both my bladder and also bad memory now. I find myself in trouble sometimes forgetting to tell Judy some important info. My son 's birthday is tomorrow and we have a party for him Saturday and I was asked to email invitations to the family. Judy asked me last night if I had heard from anyone yet. I totally forgot to send out the invites. Heat is my biggest enemy and I limit my self staying out on a warm day. My feet will feel like they are in concrete after I get too warm. 2 summers ago I had double vision and I know the heat was the cause. I was on 2 different steroid treatments to help out. My double vision lasted maybe 9 months. I am so happy it cleared up. I have no balance now because of my MS and I use a walker to get around. I use a hand control on my truck since my legs are weak. You really need both an MRI and spinal tap so they can figure out what is going on. Their are several medical troubles that mimic MS. I was always hoping I had limes disease because it is treatable. Donna here is some more info you can read about my MS. MY MS Heat is my biggest trouble to this MS and you may be having more trouble on the very warm days. I get mild spasm and have found Advil has always helped me to get rid of them. I think I could do a commercial for Advil as much as I use it on my MS. I get a lot of relief from taking it. I am glad you found us and I hope you make some new friends. Bill Introduction Hi,My name is Donna, I am 47 y/o. Last week my ruematologist referred me to a Neurolgist that specializes in MS.I am very anxious and tearful. Waiting to get an appointment is so slow. I just want to find out and get on with things. Right now I am just in Limbo.I called a Center in Atlanta that specializes in MS and they could see me Aug.31. The Neuro here is out of town until Thursday. She is very busy and appointments are difficult to get. Her office staff tells me she has the referrals with her and that she will priortise them, I quess according to the patients symptoms. I have been told that it can take months to see her. I don't know whether to wait until she can see me or go to Atlanta, which is about 8 hours away. I don't know what to do. I have not been officially diagnosed. My symptoms seem to be getting worse. For years Doctors blamed my symptoms on Fibromyalgia, Depression with anxiety. They said the pins and needle feeling in my hands and feet was caused by anxiety. My eyes are beginning to really bother me. I see and Opthamalogist yearly but he has never done any thing but write me a prescription for glasses. Wouldn't he have caught optic neuritis when he examined my eyes in May?I have read the files. I keep telling my self that it could be any number of things wrong with me. I keep telling myself to relax and just wait and see. I have a long list of symptoms.The numbness in my feet has worsened. I fell on vacation because my left foot was so numb . I didn't feel the step when I put my foot down. All my weight went on my right foot and I heard a snap. My lower back feels like spasms going up and down my back and sometimes I can hardly stand the pain. At first the spasms came after standing in the kitchen when I tried to cook. Now they are more frequent. At times the bottom of my feet hurt so bad that I can hardly stand it. I have scars from 3rd degree burns on my hand and arms from burning my self on the stove and oven. I lay in bed at times and watch the muscles in my legs twitch. What really scares me is my eyes. As I write this, my left eye is twitching. I have strange light shows at times and just weird things that happen. My side vision will get blurry. At times I feel like there is a straight line of pain that runs from the center of my lower back down the center of my left leg. I get so tired. There are days that I feel like I am walking in quick sand. My legs and arms get so heavy. I use to have the memory of an elephant. My memory comes and goes with good days and bad days. These are the main symptoms. Last week, I tried a different Reumatologist hoping that I could get some answers. I thought it was fribromyalgia and restless leg syndrome.The new doctor ran his tests but on the very first visit, he said he thought I should see a neurologist. He ruled out Lupus. He said He believed that I have perepheral neurapathy. He also said that he felt something else was going on neurologically. He tried me on lyrica for pain. Couldn't take it. My hands swelled up and my bp went up. Went back and saw his nurse practioner for 3rd visit. She gave me a prescription for requip for restless leg syndrome. That kept me up all night. When I called her back, she said not to take it anymore.While in her office, she talked to me about the Dr's notes and that he wanted me to be referred to a neurologist. I started crying and I asked her what was he thinking. She said that they believe I have MS but that only an neurologist could diagnose that. They referred me to the only Neurologist that specializes in MS in my area. I am still waiting to hear from their office. The Ruemotologist did not refer me to an Opthamalogist. Are there ones that specialize in MS?My aunt called me when she heard. Her advice was to go get tested for Lead poisoning and west nile virust because according to her, the have the same symptoms. She thinks I should do that instead of going through the expensive MRI and the spinal tap. Could it be Lead poisoning or west nile? I am so exhausted and depressed that I can't think straight.Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2007 Report Share Posted August 15, 2007 Hi Donna, Welcome to MSersLife! ) I'm Challis, daughter of Sharon / Wobbletowalk, our stubborn, strong and wobbly leader. ) I don't have a dx myself, though like you I am seeking one. My first symptom began about 11 years ago. The symptoms became worse about 8 years ago. And it was only a few years ago when I decided I needed to take a good look at this stuff and see if I could find answers. That's when I came to this list. Wonderful people here! ) I understand your fears and concerns. It's hard not to have answers and to wonder about possibilities, and having one dx then having another suggested in it's place doesn't make it any easier. I hope who ever you do see will be able to help you find certain answers quickly. The first Neuro I saw was of no help. The second did seem to listen, did speak of MS, and told me to call when I had a significant increase in symptoms. I haven't called him back yet and I'm not sure when I'll feel anything fits "significant increase". I almost talked myself into calling him yesterday though. I want off this ride. I'll head to the snow cone stand with you if you'd like? LOL The fatigue is something I'm having a very hard time with lately. The fatigue, btw, was my first symptom. It does indeed feel as if you're walking through quicksand. It is crushing and all-consuming. A nap would be wonderful, but we know it isn't the answer. It takes so much from us and it is so hard to convey to others. Vision... my right eye goes wonky. It's a strange sort of blurring. I've had it checked by two eye docs and no problems were found. Both did a good bit of testing. I also get pain in and behind that eye. This blurriness might last days or be a problem for weeks, or be gone for months. Numbness... my first bit of numbing came eight years ago. It didn't last long at first, and now it's there constantly. There are areas of my body I haven't truly felt for years. lol Two of those seem most susceptible to the intense nerve itch, too. I am so sorry you fell, Donna. It takes a lot from you, doesn't it? The emotional and mental toll is the hardest, I think. {{{{{{{{Hugs}}}}}}}} Is it your eye itself twitching or the area around it? Mine is the area around it and at first I thought that's what you wrote and now I'm not sure. The twitching muscles... it's like watching something living under your skin, isn't it? And it feels like that something wants out. lol I haven't had the spasms like you and many others do. I have felt them and I wish none of you had to go through that. Memory... yes! My memory was sharp, I could remember anything and every detail. Not anymore. And now there are many times I don't know if I know something and it's just buried somewhere. When you see the MS doc, lab work is one thing that will be ordered. They will test you for the other problems (like your Aunt mentioned), and you can ask specifically to be sure those tests are run. Hang in there, Donna. We're all here for you and we all understand what you're dealing it. It is depressing to go through this. Such things make life hard and having no answers makes it harder yet. We are just too young to have so many limits placed on us. Depression is understandable and comes with the territory. I'm sorry it does, though. HUGS, Challis Donna wrote: Hi,My name is Donna, I am 47 y/o. Last week my ruematologist referred me to a Neurolgist that specializes in MS.I am very anxious and tearful. Waiting to get an appointment is so slow. I just want to find out and get on with things. Right now I am just in Limbo.I called a Center in Atlanta that specializes in MS and they could see me Aug.31. The Neuro here is out of town until Thursday. She is very busy and appointments are difficult to get. Her office staff tells me she has the referrals with her and that she will priortise them, I quess according to the patients symptoms. I have been told that it can take months to see her. I don't know whether to wait until she can see me or go to Atlanta, which is about 8 hours away. I don't know what to do. I have not been officially diagnosed. My symptoms seem to be getting worse. For years Doctors blamed my symptoms on Fibromyalgia, Depression with anxiety. They said the pins and needle feeling in my hands and feet was caused by anxiety. My eyes are beginning to really bother me. I see and Opthamalogist yearly but he has never done any thing but write me a prescription for glasses. Wouldn't he have caught optic neuritis when he examined my eyes in May?I have read the files. I keep telling my self that it could be any number of things wrong with me. I keep telling myself to relax and just wait and see. I have a long list of symptoms.The numbness in my feet has worsened. I fell on vacation because my left foot was so numb . I didn't feel the step when I put my foot down. All my weight went on my right foot and I heard a snap. My lower back feels like spasms going up and down my back and sometimes I can hardly stand the pain. At first the spasms came after standing in the kitchen when I tried to cook. Now they are more frequent. At times the bottom of my feet hurt so bad that I can hardly stand it. I have scars from 3rd degree burns on my hand and arms from burning my self on the stove and oven. I lay in bed at times and watch the muscles in my legs twitch. What really scares me is my eyes. As I write this, my left eye is twitching. I have strange light shows at times and just weird things that happen. My side vision will get blurry. At times I feel like there is a straight line of pain that runs from the center of my lower back down the center of my left leg. I get so tired. There are days that I feel like I am walking in quick sand. My legs and arms get so heavy. I use to have the memory of an elephant. My memory comes and goes with good days and bad days. These are the main symptoms. Last week, I tried a different Reumatologist hoping that I could get some answers. I thought it was fribromyalgia and restless leg syndrome.The new doctor ran his tests but on the very first visit, he said he thought I should see a neurologist. He ruled out Lupus. He said He believed that I have perepheral neurapathy. He also said that he felt something else was going on neurologically. He tried me on lyrica for pain. Couldn't take it. My hands swelled up and my bp went up. Went back and saw his nurse practioner for 3rd visit. She gave me a prescription for requip for restless leg syndrome. That kept me up all night. When I called her back, she said not to take it anymore.While in her office, she talked to me about the Dr's notes and that he wanted me to be referred to a neurologist. I started crying and I asked her what was he thinking. She said that they believe I have MS but that only an neurologist could diagnose that. They referred me to the only Neurologist that specializes in MS in my area. I am still waiting to hear from their office. The Ruemotologist did not refer me to an Opthamalogist. Are there ones that specialize in MS?My aunt called me when she heard. Her advice was to go get tested for Lead poisoning and west nile virust because according to her, the have the same symptoms. She thinks I should do that instead of going through the expensive MRI and the spinal tap. Could it be Lead poisoning or west nile? I am so exhausted and depressed that I can't think straight.Donna Be a better Heartthrob. Get better relationship answers from someone who knows.Yahoo! Answers - Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2007 Report Share Posted August 16, 2007 Oh Donna! Three Donnas and one with the middle name Kay? LOL that must been so funny. When I was a kid I only knew one other girl named Sharon and she and I were best friends for awhile. That's great news about the disability claim! When did you first apply? You'll probably get a back payment, huh? Congrats!hugs))Sharon This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. Re: Introduction Sharon, it was late in 2004 or early in 2005 that I had an MRI on my head. I had another MRI later because I had injured my shoulder from a fall. I have not had an MRI since. I may have forgot to write about my disability claim. I went before the Administrative Law Judge yesterday morning. The judge determined that I was indeed disabled. In a way, it's a good thing because I'm elgible for SSI as well as SSDI. So, I will have Medicaid and Medicare. A lot of doctors don't take Medicaid, but will take Medicare. Lately, though, I've been hearing that some doctors are also closing their doors to Medicare patients. Funny, when I was in elementary school, I don't remember the grade; there were three Donnas in class, including me. At the time, I had a different last name beginning with "K". In order to distinguish us apart, the teacher would call us by our first name and the first letter of our last name. But one of the other Donnas had the middle name of "Kay". Can you imagine the confusion? Donna in WA --- Sharon Marsden <wobbletowalk@ yahoo.com> wrote: > Yes, we have three lovely Donnas on the group now! > > You gave some good information, Donna. It's not > unusual for someone with MS to also have another > autoimmune disease. You said you had a CT scan but > have you had a MRI? You must have by now and I'm > just not remembering. > > hugs)) > Sharon > <HTML> <A HREF="http://pets. care2.com/ i?p=628786495">Join Care2.com's Race for Pets!</A> </HTML> ____________ _________ _________ _________ _________ _________ _ Shape Yahoo! in your own image. Join our Network Research Panel today! http://surveylink. yahoo.com/ gmrs/yahoo_ panel_invite. asp?a=7 Got a little couch potato? Check out fun summer activities for kids. Quote Link to comment Share on other sites More sharing options...
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