Guest guest Posted December 9, 1999 Report Share Posted December 9, 1999 I, for one, enjoy hearing these testimonials. What a wonderful early Christmas present this year. Donna Ottawa, Canada Scleroderma, Jan.95, AP Oct.97 (My Story)http:// www3.sympatico.ca/mousepotatoes >I wanted to thank everybody who contributes to this list, because I believe >it is the constant encouragement that we received that keep us going with >the minocin. I will keep you updated re: Al's progress. We wish all of >you the very best of health during this special season. > >Al and Lynda >Sault Ste. Marie, >Ontario, Canada > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 1999 Report Share Posted December 9, 1999 WHHEEEEEEEEEEEEEEEEEH !!! We just love these success stories, thank you so much for sharing it with us Lynda.<warm delighted hug> Won't his doctor be surprised, hopefully another one converted (if he wasn't already). We look forward to seeing Al's story on our web site in due course (hint, hint:-)) hugs, lisbeth >From: Lynda Bowyer <lynda.bowyer@...> >Hello, everyone, >I joined this list early in September and have found the posts to be very >useful. Some background, my husband was diagnosed with atypical RA in >September of 1999, and after some energetic discussion, convinced his >internist to prescribe the minocin. I just wanted to get back to the group >on his progress. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2000 Report Share Posted April 25, 2000 Hello, everyone, I joined this list early in September and have found the posts to be very useful. Some background, my husband was diagnosed with atypical RA in September of 1999, and after some energetic discussion, convinced his internist to prescribe the minocin. I just wanted to get back to the group on his progress. For about 6 weeks, Al took 100mg 2X every second day, along with 10 capsules of fish oil, and various other vitamins. During this time, he suffered from extreme fatigue and lethargy, along with 4 - 5 hours of stiffness every morning in all large joints. The bursas in his elbows swelled to the size of golfballs and the backs of his knees didn't look normal, either. He managed to work most days, but it didn't look like he was going to be able to continue for long. He is 6 foot tall and went from 205lbs to 167lbs in 3 months. At this point, Al dropped wheat, dairy and beef from his diet. He increased his dosage of minocin (after reading the Arthritis Foundation guidelines for DMARDS) to 100mg 2X daily and after about 3 weeks at this level, noticed a profound change in his condition. He has very little stiffness in his hips, knees and shoulders, but he has developed occasional foot problems and stiffness in his hands (manageable). The swollen bursas have disappeared. As he says, on a scale of 1 - 10, he went from a 1 to a 6 or 7. From my perspective, the change has been dramatic. We haven't done all the tests, he is just happy to be feeling better. When he sees his internist on December 15, he will be asking for those. I wanted to thank everybody who contributes to this list, because I believe it is the constant encouragement that we received that keep us going with the minocin. I will keep you updated re: Al's progress. We wish all of you the very best of health during this special season. Al and Lynda Sault Ste. Marie, Ontario, Canada Update as of April 24, 2000 As promised, here is the update. Al has continued to improve, and now works out (weighlifting/biking) three times per week. He has gained back about 15lbs, and he hasn't complained about his feet for about a month and a half. He is back to eating anything he wants, which on the weekend included hamburgers, potato chips and an Easter ham. Food doesn't seem to be the issue it once was. He wanted to try Celebrex/Vioxx, but his internist has convinced him that that aspirin is still the drug of choice (?). He gets the occasional stomach upset, but has recently attributed that to dehydration because it happens mostly after his workouts. In general, the Minocin seems to have worked well for him. Regards, Al and Lynda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2000 Report Share Posted April 25, 2000 Hi, Lynda and Al! I am so glad to hear Al is doing so well. I hope Al's doctor is a convert! It's wonderful that Al was able to start minocycline early, and avoid prolonged suffering. Thqnks for the update, and keep in touch. Jean Quote Link to comment Share on other sites More sharing options...
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