Re: for Chantelle especiallly

[Guest guest]

-Lovely,I hope we're ALL coffee beans! Thank you.

Barbara-mom,9('till tomorrow),Rosie14

[Guest guest]

-Lovely,I hope we're ALL coffee beans! Thank you.

Barbara-mom,9('till tomorrow),Rosie14

[Guest guest]

Hmmm thanks

Today I did a lot of stuff and a ton of walking. My feet hurt a

little but it was ok.

Chantelle

[Guest guest]

Hmmm thanks

Today I did a lot of stuff and a ton of walking. My feet hurt a

little but it was ok.

Chantelle

[Guest guest]

How did everything go? I'm glad you found the energy to get through your

" to-do " list. I hope you get some positive results!

Michele W

Re: for Chantelle especiallly

Hmmm thanks

Today I did a lot of stuff and a ton of walking. My feet hurt a

little but it was ok.

Chantelle

Membership of this email support groups does not constitute membership in the

CHARGE Syndrome Foundation.

For information about the CHARGE Syndrome

Foundation or to become a member (and get the newsletter)

please contact marion@... or visit

the CHARGE Syndrome Foundation web page

at http://www.chargesyndrome.org

7th International

CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

Information will be available at our website

www.chargesyndrome.org or by calling 1-. In Canada, you may

contact CHARGE Syndrome Canada at 1- (families), visit

www.chargesyndrome.ca, or email info@.... Thank you!

------------------------------------------------------------------------------

[Guest guest]

Thanks, I hope I get some positive results from the resumes. It

would suck if I only get call backs from Limeridge mall. Thats a bit

far for me. I also hope McD's at least gives me a somewhat good

plug. Oh well, they might, but I bet my manager will go postal

again, lol. Might actualy be funny. (in a sad sort of way really)

Tomorrow I will do all the phoning stuff I couldnt do today. My feet

hurt so much I dont want to walk anyplace right now.

Oh Krista guess what, I rode the buss from Macmaster hospital and

took the number 10, (the one that goes down main st. from west to

east. Well, the buss driver didnt tell me when he would get to down

town (I asked him to tell me) and anyways guess where I ended up...

Queenston road, near Parkdale Stupid buss driver told me to get off

that it was my fault for missing my stop. Walked very quickly back

down town. Was a bit of a long walk but I did it. I did get down

town and went straight to the hamilton transit office to complain. I

got a few free bus tickets

I actualy think Central Hamilton looks worse then the east end. Then

again I didnt stand long enough to look down Kennilworth or Ottawa.

I did see some rather odd sights, lol, um wont share with the list

though! LOL

Chantelle

[Guest guest]

Thanks, I hope I get some positive results from the resumes. It

would suck if I only get call backs from Limeridge mall. Thats a bit

far for me. I also hope McD's at least gives me a somewhat good

plug. Oh well, they might, but I bet my manager will go postal

again, lol. Might actualy be funny. (in a sad sort of way really)

Tomorrow I will do all the phoning stuff I couldnt do today. My feet

hurt so much I dont want to walk anyplace right now.

Oh Krista guess what, I rode the buss from Macmaster hospital and

took the number 10, (the one that goes down main st. from west to

east. Well, the buss driver didnt tell me when he would get to down

town (I asked him to tell me) and anyways guess where I ended up...

Queenston road, near Parkdale Stupid buss driver told me to get off

that it was my fault for missing my stop. Walked very quickly back

down town. Was a bit of a long walk but I did it. I did get down

town and went straight to the hamilton transit office to complain. I

got a few free bus tickets

I actualy think Central Hamilton looks worse then the east end. Then

again I didnt stand long enough to look down Kennilworth or Ottawa.

I did see some rather odd sights, lol, um wont share with the list

though! LOL

Chantelle

[Guest guest]

Can i be one third egg and two thirds coffee beans? lol

> This is good for all of us, but I thought of Chantelle especially

since when I came across it today. Chantelle -- you are a coffee

bean!!

>

> Michele W

>

> Carrot, Egg, Coffee

>

> (You will never look at a cup of coffee the same way again.)

>

> A young woman went to her mother and told her about her life and

how things were so hard for her. She did not know

> how she was going to make it and wanted to give up. She was tired

of fighting and struggling. It seemed as one problem was solved a new

one

> arose. Her mother took her to the kitchen. She filled three pots

with water. In the first, she placed carrots, in the second she

placed eggs

> and the last she placed ground coffee beans. She let them sit and

boil without saying a word. In about twenty minutes she turned off

the burners. She fished the carrots out and place them in a bowl. She

pulled the eggs out and placed them in a bowl. Then she ladled the

coffee out and placed it in

> a bowl. Turning to her daughter, she asked, " Tell me what do you

see? " " Carrots, eggs, and coffee, " she replied. She brought her

closer and asked her to feel the carrots. She did and noted that they

got soft. She then asked her to take an egg and break it. After

pulling off the shell, she observed the hard-boiled egg. Finally,

she asked her to sip the coffee. The daughter smiled, as she tasted

its rich aroma. The daughter then asked. " What's the point, mother? "

> Her mother explained that each of these objects had faced the same

adversity-boiling water-but each reacted differently. The carrot went

in strong, hard and unrelenting. However after being subjected to

the boiling water, it softened and became weak. The egg had been

fragile. Its thin outer shell had protected its liquid interior. But,

after sitting through the boiling water, its inside became

hardened. The ground coffee beans were unique, however. After they

were in the boiling water they had changed the water. " Which are

you? " she asked her daughter. " When adversity knocks on your door,

how do you respond? Are you a carrot, an egg, or a coffee bean? "

>

> Think of this: Which am I? Am I the carrot that seems strong, but

with pain and adversity, do I wilt and become soft and lose my

strength? Am I the egg that starts with a malleable heart, but

changes with the heat? Did I have a fluid spirit, but after a death,

a breakup, a financial hardship or some other trial, have I become

hardened and stiff? Does my shell look the same, but on the inside

am I bitter and tough with a stiff spirit and a hardened heart? Or am

I like the coffee bean? The bean actually changes the hot water,

the very circumstance that brings the pain. When the water gets hot,

it releases the fragrance and flavor. If you are like the bean, when

things are at their worst, you get better and change the situation

around you. When the hours are the darkest and trials

> are their greatest do you elevate to another level? How do you

handle Adversity? ARE YOU A CARROT, AN EGG, OR A COFFEE BEAN?

>

>

>

[Guest guest]

Can i be one third egg and two thirds coffee beans? lol

> This is good for all of us, but I thought of Chantelle especially

since when I came across it today. Chantelle -- you are a coffee

bean!!

>

> Michele W

>

> Carrot, Egg, Coffee

>

> (You will never look at a cup of coffee the same way again.)

>

> A young woman went to her mother and told her about her life and

how things were so hard for her. She did not know

> how she was going to make it and wanted to give up. She was tired

of fighting and struggling. It seemed as one problem was solved a new

one

> arose. Her mother took her to the kitchen. She filled three pots

with water. In the first, she placed carrots, in the second she

placed eggs

> and the last she placed ground coffee beans. She let them sit and

boil without saying a word. In about twenty minutes she turned off

the burners. She fished the carrots out and place them in a bowl. She

pulled the eggs out and placed them in a bowl. Then she ladled the

coffee out and placed it in

> a bowl. Turning to her daughter, she asked, " Tell me what do you

see? " " Carrots, eggs, and coffee, " she replied. She brought her

closer and asked her to feel the carrots. She did and noted that they

got soft. She then asked her to take an egg and break it. After

pulling off the shell, she observed the hard-boiled egg. Finally,

she asked her to sip the coffee. The daughter smiled, as she tasted

its rich aroma. The daughter then asked. " What's the point, mother? "

> Her mother explained that each of these objects had faced the same

adversity-boiling water-but each reacted differently. The carrot went

in strong, hard and unrelenting. However after being subjected to

the boiling water, it softened and became weak. The egg had been

fragile. Its thin outer shell had protected its liquid interior. But,

after sitting through the boiling water, its inside became

hardened. The ground coffee beans were unique, however. After they

were in the boiling water they had changed the water. " Which are

you? " she asked her daughter. " When adversity knocks on your door,

how do you respond? Are you a carrot, an egg, or a coffee bean? "

>

> Think of this: Which am I? Am I the carrot that seems strong, but

with pain and adversity, do I wilt and become soft and lose my

strength? Am I the egg that starts with a malleable heart, but

changes with the heat? Did I have a fluid spirit, but after a death,

a breakup, a financial hardship or some other trial, have I become

hardened and stiff? Does my shell look the same, but on the inside

am I bitter and tough with a stiff spirit and a hardened heart? Or am

I like the coffee bean? The bean actually changes the hot water,

the very circumstance that brings the pain. When the water gets hot,

it releases the fragrance and flavor. If you are like the bean, when

things are at their worst, you get better and change the situation

around you. When the hours are the darkest and trials

> are their greatest do you elevate to another level? How do you

handle Adversity? ARE YOU A CARROT, AN EGG, OR A COFFEE BEAN?

>

>

>

[Guest guest]

I think im 1/3 carrot, 1/3 egg and 1/3 coffee bean LOL!

Hugs

Chantelle

[Guest guest]

Chantelle:

getting only bits and pieces here as it is kids hockey playoffs and

report card season. How did your appointment with CNIB go?

Regarding your situation below, it may be an idea to travel with a

cane....NOT because you may need it for mobility but it WILL identify

you for situations like that below, and bus driver would NEVER have

forgotten to tell you to get off the bus. MANY low vision kids with

good mobility use cane just for ID marker for others to LOOK OUT for

you. You would be amazed at how it changes peoples reaction to you.

BTW...that WAS a LONG WALK!!! ALSO, your new glasses should be

covered under ADP, please find out about getting an appointment at

the Low Vision Clinic in Waterloo, also for your computer assessment

as your always talking about needing a new computer. You live out

there in the country, it may be nice for you to live near McMaster

University or Mohawk College where lots is accessible by bus route.

is coming next few weeks for K.'s surgery, so I'll pick you up

to visit at Sick Kids.

Ann Gloyn, Specialist Teacher

Canada

>>>>Well, the buss driver didnt tell me when he would get to down

town (I asked him to tell me) and anyways guess where I ended up...

Queenston road, near Parkdale Stupid buss driver told me to get off

that it was my fault for missing my stop. Walked very quickly back

down town.

> Thanks, I hope I get some positive results from the resumes. It

> would suck if I only get call backs from Limeridge mall. Thats a

bit

> far for me. I also hope McD's at least gives me a somewhat good

> plug. Oh well, they might, but I bet my manager will go postal

> again, lol. Might actualy be funny. (in a sad sort of way really)

>

> Tomorrow I will do all the phoning stuff I couldnt do today. My

feet

> hurt so much I dont want to walk anyplace right now.

>

> Oh Krista guess what, I rode the buss from Macmaster hospital and

> took the number 10, (the one that goes down main st. from west to

> east. Well, the buss driver didnt tell me when he would get to down

> town (I asked him to tell me) and anyways guess where I ended up...

> Queenston road, near Parkdale Stupid buss driver told me to get off

> that it was my fault for missing my stop. Walked very quickly back

> down town. Was a bit of a long walk but I did it. I did get down

> town and went straight to the hamilton transit office to complain.

I

> got a few free bus tickets

>

> I actualy think Central Hamilton looks worse then the east end.

Then

> again I didnt stand long enough to look down Kennilworth or Ottawa.

> I did see some rather odd sights, lol, um wont share with the list

> though! LOL

>

> Chantelle

[Guest guest]

Ann, please tell me when KK's surgery is, I really want to visit

and KK.

THe cnib interview went well but my optamologist is being a shit and

not sending the right info to the cnib. I think I need to send them

the actual test results but they did a crap job of assessing my

visual field and it costs a few fingers. I will try my audiologist

again, I missplaced the phone number so I may just call the lab in

St. Joe's hospital.

I like the idea of the cane. I will ask Jane when I speak to her

again. I find it hard on busses to tell where i am especialy cause

the buss moves quickly, my reaction time is not always fast enough.

Also because im not recognized as dissabled I am told to sit farther

back to alow the elderly or dissabled to sit. I tell them I am

dissabled and glare at them the whole ride.

Talk to you later!

Chantelle

[Guest guest]

Oh one more thing, what is the phone number to the low vision

assesment in waterloo. I dont even know how I would get to waterloo.

Getting to hamilton is tricky enough. Brantford actualy once I get

to hamilton there is a wonderful bus durring the week in Mowhawk

campus that transports ppl to brantford campus. I asked if I could

use that survice and a student told me I could.

Chantelle

[Guest guest]

One last thing... my legs STILL hurt and the bottom of my foot is

still a little raw from a tiny blister.

Chantelle

[Guest guest]

Chantelle,

We fly into Toronto on March 15th, Kennedy has appointments and pre-cath

stuff on the 16th, a cardiac catheterization on the 18th, pre-op day on the

22nd and open heart surgery on the 23rd. We will be there a minimum of 2

weeks post-op. We have a room at the Delta Chelsea in Toronto (right on

Gerrard Street).

Re: for Chantelle especiallly

Ann, please tell me when KK's surgery is, I really want to visit

and KK.

THe cnib interview went well but my optamologist is being a shit and

not sending the right info to the cnib. I think I need to send them

the actual test results but they did a crap job of assessing my

visual field and it costs a few fingers. I will try my audiologist

again, I missplaced the phone number so I may just call the lab in

St. Joe's hospital.

I like the idea of the cane. I will ask Jane when I speak to her

again. I find it hard on busses to tell where i am especialy cause

the buss moves quickly, my reaction time is not always fast enough.

Also because im not recognized as dissabled I am told to sit farther

back to alow the elderly or dissabled to sit. I tell them I am

dissabled and glare at them the whole ride.

Talk to you later!

Chantelle

Membership of this email support groups does not constitute membership in

the CHARGE Syndrome Foundation.

For information about the CHARGE Syndrome

Foundation or to become a member (and get the newsletter)

please contact marion@... or visit

the CHARGE Syndrome Foundation web page

at http://www.chargesyndrome.org

7th International

CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

Information will be available at our website

www.chargesyndrome.org or by calling 1-. In Canada, you may

contact CHARGE Syndrome Canada at 1- (families), visit

www.chargesyndrome.ca, or email info@.... Thank you!

----------------------------------------------------------------------------

--

[Guest guest]

, I don't envy you--our problems seem uninprtant compared to this

surgery....but I hope all goes well, you'll be in our prayers.

Re: for Chantelle especiallly

>

>

> Ann, please tell me when KK's surgery is, I really want to visit

> and KK.

>

> THe cnib interview went well but my optamologist is being a shit and

> not sending the right info to the cnib. I think I need to send them

> the actual test results but they did a crap job of assessing my

> visual field and it costs a few fingers. I will try my audiologist

> again, I missplaced the phone number so I may just call the lab in

> St. Joe's hospital.

>

> I like the idea of the cane. I will ask Jane when I speak to her

> again. I find it hard on busses to tell where i am especialy cause

> the buss moves quickly, my reaction time is not always fast enough.

> Also because im not recognized as dissabled I am told to sit farther

> back to alow the elderly or dissabled to sit. I tell them I am

> dissabled and glare at them the whole ride.

>

> Talk to you later!

>

> Chantelle

>

>

>

>

>

> Membership of this email support groups does not constitute membership

in

> the CHARGE Syndrome Foundation.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter)

> please contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

> 7th International

> CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

> Information will be available at our website

> www.chargesyndrome.org or by calling 1-. In Canada, you may

> contact CHARGE Syndrome Canada at 1- (families), visit

> www.chargesyndrome.ca, or email info@.... Thank you!

>

>

>

>

> --------------------------------------------------------------------------

--

> --

>

[Guest guest]

Kennedy will be in my prayers. had open heart at age 6 to repair an ASD. I

can relate. We were in RB & C Cleveland for a week. , remember to take care

of youself too.

Blessings and Hugs,

Lynn

Ohio

Re: for Chantelle especiallly

Ann, please tell me when KK's surgery is, I really want to visit

and KK.

THe cnib interview went well but my optamologist is being a shit and

not sending the right info to the cnib. I think I need to send them

the actual test results but they did a crap job of assessing my

visual field and it costs a few fingers. I will try my audiologist

again, I missplaced the phone number so I may just call the lab in

St. Joe's hospital.

I like the idea of the cane. I will ask Jane when I speak to her

again. I find it hard on busses to tell where i am especialy cause

the buss moves quickly, my reaction time is not always fast enough.

Also because im not recognized as dissabled I am told to sit farther

back to alow the elderly or dissabled to sit. I tell them I am

dissabled and glare at them the whole ride.

Talk to you later!

Chantelle

Membership of this email support groups does not constitute membership in

the CHARGE Syndrome Foundation.

For information about the CHARGE Syndrome

Foundation or to become a member (and get the newsletter)

please contact marion@... or visit

the CHARGE Syndrome Foundation web page

at http://www.chargesyndrome.org

7th International

CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

Information will be available at our website

www.chargesyndrome.org or by calling 1-. In Canada, you may

contact CHARGE Syndrome Canada at 1- (families), visit

www.chargesyndrome.ca, or email info@.... Thank you!

----------------------------------------------------------------------------

--

[Guest guest]

Thanks Lynn, these next two surgeries will be #14 & #15 but they don't get

easier at all...especially when we didn't really expect this heart stuff to

pop up again. Always remember, expect the unexpected with these guys.

Easier said than done...

Weir

Mom to Kennedy 6 yr old with CHARGE, 14, 12 and wife to Graeme.

New Brunswick, Canada

Weir homepage: http://personal.nbnet.nb.ca/gweir

CHARGE SYNDROME CANADA: http://www.chargesyndrome.ca

Re: Re: for Chantelle especiallly

Kennedy will be in my prayers. had open heart at age 6 to repair an

ASD. I can relate. We were in RB & C Cleveland for a week. , remember to

take care of youself too.

Blessings and Hugs,

Lynn

Ohio

Re: for Chantelle especiallly

Ann, please tell me when KK's surgery is, I really want to visit

and KK.

THe cnib interview went well but my optamologist is being a shit and

not sending the right info to the cnib. I think I need to send them

the actual test results but they did a crap job of assessing my

visual field and it costs a few fingers. I will try my audiologist

again, I missplaced the phone number so I may just call the lab in

St. Joe's hospital.

I like the idea of the cane. I will ask Jane when I speak to her

again. I find it hard on busses to tell where i am especialy cause

the buss moves quickly, my reaction time is not always fast enough.

Also because im not recognized as dissabled I am told to sit farther

back to alow the elderly or dissabled to sit. I tell them I am

dissabled and glare at them the whole ride.

Talk to you later!

Chantelle

Membership of this email support groups does not constitute membership

in

the CHARGE Syndrome Foundation.

For information about the CHARGE Syndrome

Foundation or to become a member (and get the newsletter)

please contact marion@... or visit

the CHARGE Syndrome Foundation web page

at http://www.chargesyndrome.org

7th International

CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

Information will be available at our website

www.chargesyndrome.org or by calling 1-. In Canada, you

may

contact CHARGE Syndrome Canada at 1- (families), visit

www.chargesyndrome.ca, or email info@.... Thank you!

------------------------------------------------------------------------

----

--

[Guest guest]

,

Nothing is unimportant with these kids. I just regret not having the time I

used to for participating on this list. I do still read everything and am

thinking of everyone, I just don't have the time for all the individual

responses that I used to give.

Weir

Mom to Kennedy 6 yr old with CHARGE, 14, 12 and wife to Graeme.

New Brunswick, Canada

Weir homepage: http://personal.nbnet.nb.ca/gweir

CHARGE SYNDROME CANADA: http://www.chargesyndrome.ca

Re: Re: for Chantelle especiallly

, I don't envy you--our problems seem uninprtant compared to this

surgery....but I hope all goes well, you'll be in our prayers.

Re: for Chantelle especiallly

>

>

> Ann, please tell me when KK's surgery is, I really want to visit

> and KK.

>

> THe cnib interview went well but my optamologist is being a shit and

> not sending the right info to the cnib. I think I need to send them

> the actual test results but they did a crap job of assessing my

> visual field and it costs a few fingers. I will try my audiologist

> again, I missplaced the phone number so I may just call the lab in

> St. Joe's hospital.

>

> I like the idea of the cane. I will ask Jane when I speak to her

> again. I find it hard on busses to tell where i am especialy cause

> the buss moves quickly, my reaction time is not always fast enough.

> Also because im not recognized as dissabled I am told to sit farther

> back to alow the elderly or dissabled to sit. I tell them I am

> dissabled and glare at them the whole ride.

>

> Talk to you later!

>

> Chantelle

>

>

>

>

>

> Membership of this email support groups does not constitute membership

in

> the CHARGE Syndrome Foundation.

> For information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter)

> please contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

> 7th International

> CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

> Information will be available at our website

> www.chargesyndrome.org or by calling 1-. In Canada, you

may

> contact CHARGE Syndrome Canada at 1- (families), visit

> www.chargesyndrome.ca, or email info@.... Thank you!

>

>

>

>

> --------------------------------------------------------------------------

--

> --

>

[Guest guest]

I agree , the surgeries didn't get easier but made it through each

one. She was/is such a trooper. Looking back I now understand the " ignorance

is bliss " concept. With each of 's 27 surgeries/procedures I knew more and

worried more. We have been surgery free almost 5 years and it is wonderful.

has only had one sinus infection at college so far. She is tired much of

the time and has dropped two dance classes. It won't hurt because she is

changing to nursing next year. It isn't going to be easy but she is bound and

determined to become an RN. I have no doubt taht eventually she will succeed.

Blessings and Hugs to all CHARGE kids and their families what every they may

be facing or enjoying.

Lynn

Ohio

Re: for Chantelle especiallly

Ann, please tell me when KK's surgery is, I really want to visit

and KK.

THe cnib interview went well but my optamologist is being a shit and

not sending the right info to the cnib. I think I need to send them

the actual test results but they did a crap job of assessing my

visual field and it costs a few fingers. I will try my audiologist

again, I missplaced the phone number so I may just call the lab in

St. Joe's hospital.

I like the idea of the cane. I will ask Jane when I speak to her

again. I find it hard on busses to tell where i am especialy cause

the buss moves quickly, my reaction time is not always fast enough.

Also because im not recognized as dissabled I am told to sit farther

back to alow the elderly or dissabled to sit. I tell them I am

dissabled and glare at them the whole ride.

Talk to you later!

Chantelle

Membership of this email support groups does not constitute membership

in

the CHARGE Syndrome Foundation.

For information about the CHARGE Syndrome

Foundation or to become a member (and get the newsletter)

please contact marion@... or visit

the CHARGE Syndrome Foundation web page

at http://www.chargesyndrome.org

7th International

CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

Information will be available at our website

www.chargesyndrome.org or by calling 1-. In Canada, you

may

contact CHARGE Syndrome Canada at 1- (families), visit

www.chargesyndrome.ca, or email info@.... Thank you!

------------------------------------------------------------------------

----

--

[Guest guest]

understandable--you are a busy woman--we miss you though--hugs going your

way

Re: for Chantelle especiallly

> >

> >

> > Ann, please tell me when KK's surgery is, I really want to visit

> > and KK.

> >

> > THe cnib interview went well but my optamologist is being a shit and

> > not sending the right info to the cnib. I think I need to send them

> > the actual test results but they did a crap job of assessing my

> > visual field and it costs a few fingers. I will try my audiologist

> > again, I missplaced the phone number so I may just call the lab in

> > St. Joe's hospital.

> >

> > I like the idea of the cane. I will ask Jane when I speak to her

> > again. I find it hard on busses to tell where i am especialy cause

> > the buss moves quickly, my reaction time is not always fast enough.

> > Also because im not recognized as dissabled I am told to sit farther

> > back to alow the elderly or dissabled to sit. I tell them I am

> > dissabled and glare at them the whole ride.

> >

> > Talk to you later!

> >

> > Chantelle

> >

> >

> >

> >

> >

> > Membership of this email support groups does not constitute

membership

> in

> > the CHARGE Syndrome Foundation.

> > For information about the CHARGE Syndrome

> > Foundation or to become a member (and get the newsletter)

> > please contact marion@... or visit

> > the CHARGE Syndrome Foundation web page

> > at http://www.chargesyndrome.org

> > 7th International

> > CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

> > Information will be available at our website

> > www.chargesyndrome.org or by calling 1-. In Canada, you

> may

> > contact CHARGE Syndrome Canada at 1- (families), visit

> > www.chargesyndrome.ca, or email info@.... Thank you!

> >

> >

> >

> >

>

>

>

> --------------------------------------------------------------------------

> --

> > --

> >

[Guest guest]

Our thoughts and prayers will be with you and Kennedy.

Christian Lobaugh

Husband to Ingrid, Father to (5) and (2 yr old charger)

Re: Re: for Chantelle especiallly

Kennedy will be in my prayers. had open heart at age 6 to repair an

ASD. I can relate. We were in RB & C Cleveland for a week. , remember to

take care of youself too.

Blessings and Hugs,

Lynn

Ohio

Re: for Chantelle especiallly

Ann, please tell me when KK's surgery is, I really want to visit

and KK.

THe cnib interview went well but my optamologist is being a shit and

not sending the right info to the cnib. I think I need to send them

the actual test results but they did a crap job of assessing my

visual field and it costs a few fingers. I will try my audiologist

again, I missplaced the phone number so I may just call the lab in

St. Joe's hospital.

I like the idea of the cane. I will ask Jane when I speak to her

again. I find it hard on busses to tell where i am especialy cause

the buss moves quickly, my reaction time is not always fast enough.

Also because im not recognized as dissabled I am told to sit farther

back to alow the elderly or dissabled to sit. I tell them I am

dissabled and glare at them the whole ride.

Talk to you later!

Chantelle

Membership of this email support groups does not constitute membership

in

the CHARGE Syndrome Foundation.

For information about the CHARGE Syndrome

Foundation or to become a member (and get the newsletter)

please contact marion@... or visit

the CHARGE Syndrome Foundation web page

at http://www.chargesyndrome.org <http://www.chargesyndrome.org>

7th International

CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

Information will be available at our website

www.chargesyndrome.org or by calling 1-. In Canada, you

may

contact CHARGE Syndrome Canada at 1- (families), visit

www.chargesyndrome.ca, or email info@.... Thank you!

------------------------------------------------------------------------

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[Guest guest]

Our thoughts and prayers will be with you and Kennedy.

Christian Lobaugh

Husband to Ingrid, Father to (5) and (2 yr old charger)

Re: Re: for Chantelle especiallly

Kennedy will be in my prayers. had open heart at age 6 to repair an

ASD. I can relate. We were in RB & C Cleveland for a week. , remember to

take care of youself too.

Blessings and Hugs,

Lynn

Ohio

Re: for Chantelle especiallly

Ann, please tell me when KK's surgery is, I really want to visit

and KK.

THe cnib interview went well but my optamologist is being a shit and

not sending the right info to the cnib. I think I need to send them

the actual test results but they did a crap job of assessing my

visual field and it costs a few fingers. I will try my audiologist

again, I missplaced the phone number so I may just call the lab in

St. Joe's hospital.

I like the idea of the cane. I will ask Jane when I speak to her

again. I find it hard on busses to tell where i am especialy cause

the buss moves quickly, my reaction time is not always fast enough.

Also because im not recognized as dissabled I am told to sit farther

back to alow the elderly or dissabled to sit. I tell them I am

dissabled and glare at them the whole ride.

Talk to you later!

Chantelle

Membership of this email support groups does not constitute membership

in

the CHARGE Syndrome Foundation.

For information about the CHARGE Syndrome

Foundation or to become a member (and get the newsletter)

please contact marion@... or visit

the CHARGE Syndrome Foundation web page

at http://www.chargesyndrome.org <http://www.chargesyndrome.org>

7th International

CHARGE Syndrome Conference, Miami Beach, Florida, July 22-24, 2005.

Information will be available at our website

www.chargesyndrome.org or by calling 1-. In Canada, you

may

contact CHARGE Syndrome Canada at 1- (families), visit

www.chargesyndrome.ca, or email info@.... Thank you!

------------------------------------------------------------------------

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