Re: PF diagnosis and treatment

[Guest guest]

Until August I'd never heard of it....and hope you don't mind I

changed the title from teatment to treatment.....lol

I figured out of shape, maybe hay fever turned to asthma, worst case

would be COPD, didn't know there was more. Then doctor tells you all

this new stuff and thinks you're prepared and not going to want to

come back with a million questions. I sure didn't know what to ask

about something I knew nothing about. And, still, all I've really

gotten of value from the doctor is diagnosis and options of

treatment. Everything else is from internet and here and most of the

information of value right here, teaching me how to live with it, how

to make the most of my situation.

> > > > >

> > > > > Thanks ,

> > > > > That was really informative and for me it answered the

> > > > question of why prednisone works for some of us and not for

> > others.

> > > > I thought all forms of PF were inflammatory and didn't

realize

> > IPF

> > > > was not.

> > > > >

> > > > > Sarcoid/PF 3/2006 California

> > > > >

> > > > >

> > > > > PF and Raynauds Disease

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > Long post here folks bear with me.

> > > > >

> > > > >

> > > > >

> > > > > Raynauds Syndrome is a vasospasmic disorder which affects

> > between 5%

> > > > >

> > > > > to 10% of the US population. About 20% of women in their

child

> > > > bearing

> > > > >

> > > > > years are afflicted. The disorder is more common among

women

> > than

> > > > men.

> > > > >

> > > > >

> > > > >

> > > > > There are two forms of the disease:

> > > > >

> > > > >

> > > > >

> > > > > Primary Raynauds is the most common form of the disease and

> > usually

> > > > is

> > > > >

> > > > > of earlier onset. It is called Raynauds Disease (RD). It is

of

> > > > unknown

> > > > >

> > > > > etiology.

> > > > >

> > > > >

> > > > >

> > > > > Secondary Raynauds is called Raynauds Phenomenon (RP). It is

> > > > >

> > > > > considered to be the more serious of the two and its onset

is

> > later

> > > > in

> > > > >

> > > > > life (third decade and out). RP like many forms of PF is

> > considered

> > > > an

> > > > >

> > > > > inflammatory condition. Many forms of Pulmonary Fibrosis

(PF),

> > like

> > > > RP

> > > > >

> > > > > , are co-morbid or secondary diseases.

> > > > >

> > > > >

> > > > >

> > > > > Known causes of both RP and/or PF are:

> > > > >

> > > > >

> > > > >

> > > > > Collagen Vascular Disease, Connective Tissue Disease,

Rheumatic

> > > > >

> > > > > Disease, Atherosclerosis, Auto-Immune Disease, Repetitive

Stress

> > > > >

> > > > > Injuries, Trauma, Smoking, Medication and Chemotherapy

exposure,

> > > > >

> > > > > Chemical exposure and, some Endocrine and Hormonal

disorders.

> > > > >

> > > > >

> > > > >

> > > > > It is quite possible that many of us on this Board suffer

from

> > RP

> > > > and

> > > > >

> > > > > PF AND a PRIMARY co-morbid (co-existing) diagnosis.

> > > > >

> > > > >

> > > > >

> > > > > Last,in that UIP/IPF (usual interstitial pneumonitis /

> > idiopathic

> > > > >

> > > > > pulmonary fibrosis)is NOT considered to be an inflammatory

form

> > of

> > > > PF

> > > > >

> > > > > and, is of unknown etiology it follows that if you suffer

from

> > > > UIP/IPF

> > > > >

> > > > > and Raynauds it is more likely to be the less serious of

the

> > two RD

> > > > >

> > > > > and not RP.

> > > > >

> > > > >

> > > > >

> > > > > For me, my DX (5.06)is Usual Interstial Pneumonitis and

> > Langerhans

> > > > >

> > > > > Cell Histiocytosis. I have had Raynauds Disease all my

life. I

> > find

> > > > RD

> > > > >

> > > > > to be distracting and inconvenient but never anything more

than

> > > > that.

> > > > >

> > > > >

> > > > >

> > > > > UIP/LCH 5.06 CA

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > > <!--

> > > > >

> > > > > #ygrp-mkp{

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> > > > > -->

> > > > >

> > > > >

> > > > >

> > > > > <!--

> > > > >

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> > > > >

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helvetica,

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0 8px

> > 8px;}

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> > weight:bold; color:#333; text-

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> > > > > font-weight: bold;color: #ff7900;float: right;width:

2em;text-

> > > > align:right; padding-right: .5em;}

> > > > > #ygrp-vital ul li .cat{

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> > > > > #ygrp-sponsor #ov ul{

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> > > > > #ygrp-sponsor #ov li{

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> > > > > #ygrp-sponsor #ov li a{

> > > > > text-decoration: none;font- size:130% ;}

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> > > > > background-color: #eee;margin- bottom:20px; padding:0 8px;}

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> > > > > font-family: Arial;font- weight:bold; color:#628c2a; font-

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> > > > > #ygrp-sponsor .ad p{

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> > > > > -->

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > >

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