Guest guest Posted April 30, 2000 Report Share Posted April 30, 2000 > >Reply-To: graves_supportegroups >To: <graves_supportegroups> >Subject: Re: e >Date: Sun, 30 Apr 2000 19:29:02 -0700 > >, > >How do you lower your hormone levels if you can't take ATD'S? I am >allergic >to both ot them. The final straw was when I started having fever and a >lowered white blood cell count. > >e Dear e, They normally do it with IK (potasium iodide) or saturated IK solution called Lugol. It’s ALSO given PRIOR surgery (usually with ATDs and/or betablockers). Two reasons for doing this: 1)It inhibits homone synthesis and 2) HARDENS the gland and makes it easier to handle for surgery. Also avoids excesive bleeding. As you know, the thyroid in highly vascularized. Most of its volume is blood (by the way, this is one of the reasons the calculation of RAI dose is so WRONG. Because only very few doctors use eco-doppler.) But... This IK can only be given for some days, lets say from 7 to l5 days, because an escape phenomena is produced (Wolf-Chaikoff effect). e, Having allergies to ATD is RARE. Only 3-5% people develope it. Allergic rashes to ANY kind of ATD’s are more rare yet Fever is developped by 0,3% of folks under ATDs But leucopenia, trombocytopenia and agranulocytosis are EXTREMELY RARE. When you have fever, sore throat, or some infection, a blood count AND a differencial count has to be done. And treatment stopped IF leucocyte count is highly decreased (less than 1500 granulocytes). In such case some antibiotic should be added. Have you been told you had low blood count? Have you been given any treatment? Besides atenolol, are you having other meds? There are other options, if you give it time and rest to yourself. B was just to go through surgery when she decided to give alternative therapies a try. She's doping pretty well now. She can tell you. Nutritional field can be explored too. Some days ago, Elaine has talked to you about http://ithyroid.com site. You may explore that in some days. But right now, please REST and BE QUITE. All happens for the best, in spite of when we are going through hell we cannot realize. May God help you with your decission and your maladie at this moment. My heart goes to you. ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2000 Report Share Posted April 30, 2000 > >Reply-To: graves_supportegroups >To: <graves_supportegroups> >Subject: Re: e >Date: Sun, 30 Apr 2000 19:29:02 -0700 > >, > >How do you lower your hormone levels if you can't take ATD'S? I am >allergic >to both ot them. The final straw was when I started having fever and a >lowered white blood cell count. > >e Dear e, They normally do it with IK (potasium iodide) or saturated IK solution called Lugol. It’s ALSO given PRIOR surgery (usually with ATDs and/or betablockers). Two reasons for doing this: 1)It inhibits homone synthesis and 2) HARDENS the gland and makes it easier to handle for surgery. Also avoids excesive bleeding. As you know, the thyroid in highly vascularized. Most of its volume is blood (by the way, this is one of the reasons the calculation of RAI dose is so WRONG. Because only very few doctors use eco-doppler.) But... This IK can only be given for some days, lets say from 7 to l5 days, because an escape phenomena is produced (Wolf-Chaikoff effect). e, Having allergies to ATD is RARE. Only 3-5% people develope it. Allergic rashes to ANY kind of ATD’s are more rare yet Fever is developped by 0,3% of folks under ATDs But leucopenia, trombocytopenia and agranulocytosis are EXTREMELY RARE. When you have fever, sore throat, or some infection, a blood count AND a differencial count has to be done. And treatment stopped IF leucocyte count is highly decreased (less than 1500 granulocytes). In such case some antibiotic should be added. Have you been told you had low blood count? Have you been given any treatment? Besides atenolol, are you having other meds? There are other options, if you give it time and rest to yourself. B was just to go through surgery when she decided to give alternative therapies a try. She's doping pretty well now. She can tell you. Nutritional field can be explored too. Some days ago, Elaine has talked to you about http://ithyroid.com site. You may explore that in some days. But right now, please REST and BE QUITE. All happens for the best, in spite of when we are going through hell we cannot realize. May God help you with your decission and your maladie at this moment. My heart goes to you. ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2000 Report Share Posted April 30, 2000 > >Reply-To: graves_supportegroups >To: <graves_supportegroups> >Subject: Re: e >Date: Sun, 30 Apr 2000 19:46:51 -0700 > >, > >The doctor did tell me a couple of weeks ago, that there was something I >had to take before the surgery. He said that if I took it , then I would >not be able to change my mind and have RAI instead. I wonder what he is >talking about. He is talking (probably) about the IK, or the LUGOL solution I mentioned in my previous post. It interferes with ATD's and RAI absorption. > >So I guess the RAI did not work. And you wound up having surgery anyway? >THat's weird. I thought they just gave you the RAI again, up to 3 times RAI triggered my ophthalmopathy. I had to undertake decompression surgery, two walls, both eyes. I decided I did not want any longer that DEPTH CHARGE inside my throat. >(although I don't know why you would do that again). I heard that >sometimes >they mess up in surgery and do something to your vocal chords. > If the surgeon knows his work, that doesn't happen. Nevertheless you have to be warned about it. >The doctor had told me that since my levels were going down that I should >be >feeling better and that I could not be experiencing anxiety and depression >when my levels were going down. My t-3 started out as 867 and two weeks >ago >it was around 400. I think the normal is under 150. That's true. But they have to come closer to normal levels for you to notice improvement in your symptoms. I have never heard of >them testing my TSH or T-4 that everyone is always talking about. I quit >taking ATD's about 9 days ago. I don't know what my levels could have done >in a week. They probably have done done. I suggest you to ask them for a copy. It is your right to have it. You have paid for it. > >My doctor initially told me that I should take at least a week off from >work. He always starts writing out an excuse . He never mentioned bed >rest. He did tell me no exercise at all, including walking. You must >have >been worse than me. > No, I haven't. When you're better I'll speak about me and I'll you where I was. >I really don't know what the doctor will do in the morning. How long were >you in the hospital for the surgery? > >e > Operation was done one Friday by 11:30 am. On next Monday, early in the morning (by 9 am) I was at home. One week later I went to the Hospital to take stitchess off. My best wishes. ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2000 Report Share Posted April 30, 2000 > >Reply-To: graves_supportegroups >To: <graves_supportegroups> >Subject: Re: e >Date: Sun, 30 Apr 2000 19:46:51 -0700 > >, > >The doctor did tell me a couple of weeks ago, that there was something I >had to take before the surgery. He said that if I took it , then I would >not be able to change my mind and have RAI instead. I wonder what he is >talking about. He is talking (probably) about the IK, or the LUGOL solution I mentioned in my previous post. It interferes with ATD's and RAI absorption. > >So I guess the RAI did not work. And you wound up having surgery anyway? >THat's weird. I thought they just gave you the RAI again, up to 3 times RAI triggered my ophthalmopathy. I had to undertake decompression surgery, two walls, both eyes. I decided I did not want any longer that DEPTH CHARGE inside my throat. >(although I don't know why you would do that again). I heard that >sometimes >they mess up in surgery and do something to your vocal chords. > If the surgeon knows his work, that doesn't happen. Nevertheless you have to be warned about it. >The doctor had told me that since my levels were going down that I should >be >feeling better and that I could not be experiencing anxiety and depression >when my levels were going down. My t-3 started out as 867 and two weeks >ago >it was around 400. I think the normal is under 150. That's true. But they have to come closer to normal levels for you to notice improvement in your symptoms. I have never heard of >them testing my TSH or T-4 that everyone is always talking about. I quit >taking ATD's about 9 days ago. I don't know what my levels could have done >in a week. They probably have done done. I suggest you to ask them for a copy. It is your right to have it. You have paid for it. > >My doctor initially told me that I should take at least a week off from >work. He always starts writing out an excuse . He never mentioned bed >rest. He did tell me no exercise at all, including walking. You must >have >been worse than me. > No, I haven't. When you're better I'll speak about me and I'll you where I was. >I really don't know what the doctor will do in the morning. How long were >you in the hospital for the surgery? > >e > Operation was done one Friday by 11:30 am. On next Monday, early in the morning (by 9 am) I was at home. One week later I went to the Hospital to take stitchess off. My best wishes. ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2000 Report Share Posted May 1, 2000 > >Reply-To: graves_supportegroups >To: graves_supportegroups >Subject: Re: e >Date: Sun, 30 Apr 2000 22:01:51 EDT <<<I also think they take thyroid disease, Graves Disease a lot more seriously than it is done here in the States. Why...I have no idea, unless it is that this country can't stand for any other nation, drs. of other nations research of other nations to be more advanced than this country is.>>> Dear Jody, I think it is because of money. Please don’t take this as a criticism, because that’s very far from my intention, and every country has own problems. We have problems here as well. It is my opinion that in the USA the insurance companies are too much in control. And when healthcare is considered as a business and making money from it is their priority, others bear with the consequences. Both Doctors and patients are prejudiced, and for sure, it’s specially dramatic for patients who are suffering and have to pass through this. That’s why many doctors are currently joining Unions. And I think, if memory helps me, that I have read about some patient defense organization or party. If I find out more data on this I’ll let you know. [i believe it was at Dr Stoll’s site, a holistic practitioner signing as Count or Counts. He has a Holistic super site, and the party is announced there] In addition I miss –here too, of course- a Graves’ TRULY REPRESENTATIVE patient organization to end up with gross caliber stupidies like: “swallowing a RAI pill will do the trick”, “RAI is completely safe”, “hypothyroidism is very easy to manage”, “a pill a day a done” and so on and on. You all now... You wrote: <<<(I do have to say I don't know what the steroids with thyroid blockers do, and hope will explain them for me, just because I am curious)>>> According to deGroot text: <<<Pharmacologic doses of steroids (2 mg dexamethasone every 6 h) acutely depress serum T3 levels in normal subjects and in Graves' disease patients by reducing T4 to T3 conversion. <<<This effect of steroids is beneficial in thyroid storm and supports the routine use of corticosteroids. Propranolol may not reverse the metabolic insults of thyrotoxicosis but does dramatically suppress tachycardia, restlessness, and other symptoms.13,14 >>> Best regards ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2000 Report Share Posted May 1, 2000 Hi , Thank you for answering my question regarding the steriods. I didn't know they could work like that. I am amazed almost every day with what I learn with this group, and what I am learning about this disease itself. I would never take what you said as critism at all. I happen to agree with you 1000%, it is all about money in this country, and who has the most lobbyist, the most pull, the most power...I also think it has to do in part with an attitude (but I am not sure where it starts) That *WE* as a country have to be FIRST in all things, and if we aren't, then I don't think others ideas, research, results are truly looked at, which is a shame. I get so frustrated at times with not knowing about all of this before I let my first endocrinologist rush me into RAI. But for me, I can't look back, I must look to getting to a point where I feel much better, where I can function again in a much more productive way and to educate others about this disease, starting at a local level. It amazes me that this disease is *suppose* to be rare at 1/4 of 1% world wide. I think those statistics are a fallacy. Especially when you see 6/8/10 or more NEWLY DIAGNOSED each week. My husband made a remark that it sounds like Graves is going to be *THE* disease of the new millenium. If that is the case, then eduation and warning people about RAI is a MUST, but how do we do that? Thank you for replying and answering my questions. I always look forward to your posts. Take care, Jody ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2000 Report Share Posted May 1, 2000 Hi , Thank you for answering my question regarding the steriods. I didn't know they could work like that. I am amazed almost every day with what I learn with this group, and what I am learning about this disease itself. I would never take what you said as critism at all. I happen to agree with you 1000%, it is all about money in this country, and who has the most lobbyist, the most pull, the most power...I also think it has to do in part with an attitude (but I am not sure where it starts) That *WE* as a country have to be FIRST in all things, and if we aren't, then I don't think others ideas, research, results are truly looked at, which is a shame. I get so frustrated at times with not knowing about all of this before I let my first endocrinologist rush me into RAI. But for me, I can't look back, I must look to getting to a point where I feel much better, where I can function again in a much more productive way and to educate others about this disease, starting at a local level. It amazes me that this disease is *suppose* to be rare at 1/4 of 1% world wide. I think those statistics are a fallacy. Especially when you see 6/8/10 or more NEWLY DIAGNOSED each week. My husband made a remark that it sounds like Graves is going to be *THE* disease of the new millenium. If that is the case, then eduation and warning people about RAI is a MUST, but how do we do that? Thank you for replying and answering my questions. I always look forward to your posts. Take care, Jody ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2000 Report Share Posted May 2, 2000 Jody said: >>It amazes me that this disease is *suppose* to be rare at 1/4 of 1% world wide. I think those statistics are a fallacy. Especially when you see 6/8/10 or more NEWLY DIAGNOSED each week. And what are the odds that two people in one small (7 units) apt. building have it? My neighbor across the hall had it, as well. She went into remission on her own, but has the TED still. Kari Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2000 Report Share Posted May 2, 2000 Has anyone heard from or about e since Sunday? Jody ________________________________________________________________________ Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.