Re: Total Crash

[Guest guest]

Hi e,

Yes it is totally possible to be suicidal when you go hypo. I was there

myself 10 months ago so it is extremely important that you hang on, it does

get better.

I am going to second what Kari said...please get a new dr. Isn't this the

same one who wouldn't listen to you when you were having so many problems

before RAI? Sometimes you have to go through a few before you find one who

will listen and work for YOU...after all you pay him. I have fired my first

2 endos and now have one I can call anytime. She goes more on how I feel

than what the lab values are.

Good luck and please try to find a new endo...even if it means driving a bit

for one. I go 75 miles to mine and it sure is worth it.

*HUGZ* to you,

Jody

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[Guest guest]

You poor thing!!!! Why are doctors such completely arrogant, know-it-alls??

I recommend you find a new doctor who will listen to how you're

feeling...not what the numbers say.

Hang on, and don't give up hope!!! Can you get out of bed long enough to

find another doc? Perhaps go to an ER, and have them find you a new one?

We're all here for you. Please remember to vent to us, when you need to.

Kari

Total Crash

Well, I guess it finally happened, I apparently went hypothyroid at least

three weeks ago. I had RAI on May 10th of this year. My doctor only wanted

to see me every 6 - 8 weeks after my RAI. I got my " normal " test results

the first week of July so when I started calling him telling him that I

couldn't get out of bed he told me that it was impossible that I was already

hypo. Of course, I had to remind him that the " normal " test results were

really from 3 weeks before (cause someone in their lab went on vacation for

several weeks and noone else could perform thyroid tests there!). After,

3 or 4 calls telling my doctor that something wasn't right, he finally told

me I could come in ( although he didn't want to see me yet!). Well, guess

what my TSH is around 70. I am not sure what that means except to say that

the nurse told me I was severely hypothyroid. I have spent the last 3

weeks in bed, depressed and suicidal. And let me add , freezing to death.

Now I am told that it would take at least a month for the synthroid to make

me feel any better.

My doctor put me on .05 Synthyroid a day. Of course, he does not want to

see me for another 3 months! Is it just me or is something wrong with

this picture?

Is it normal to be suicidal and bed ridden with hypothyroidism? Just

wondering.

e

-------------------------------------

The Graves' list is intended for informational purposes only and is not

intended to replace expert medical care.

Please consult your doctor before changing or trying new treatments.

----------------------------------------

[Guest guest]

Hi e-

I've spent many years hypothyroid and sometimes it would be worse than other

times. Although I was never suicidal about it, I spent a lot of time sad and

frustrated that I didn't have the energy to do anything. I also spent a lot of

time in bed.

I think you might start feeling a little better in the next week (T4 1/2 life ~6

days). Usually, when I'd either increase or decrease my synthroid I'd start to

get either a little more tired or less tired depending on the dose change in a

week. This would become more pronounced within the month. So anyways, although

you won't be able to tell how you're really doing for a month, you might start

seeing improvement in the next week. I know we're all different but I'm hoping

you respond like I did.

Now, I know we keep pestering you about finding a different doctor. But I

really think you should.

Take care,

barbaree@... wrote:

> Well, I guess it finally happened, I apparently went hypothyroid at least

three weeks ago. I had RAI on May 10th of this year. My doctor only wanted to

see me every 6 - 8 weeks after my RAI. I got my " normal " test results the first

week of July so when I started calling him telling him that I couldn't get out

of bed he told me that it was impossible that I was already hypo. Of course, I

had to remind him that the " normal " test results were really from 3 weeks before

(cause someone in their lab went on vacation for several weeks and noone else

could perform thyroid tests there!). After, 3 or 4 calls telling my doctor

that something wasn't right, he finally told me I could come in ( although he

didn't want to see me yet!). Well, guess what my TSH is around 70. I am not

sure what that means except to say that the nurse told me I was severely

hypothyroid. I have spent the last 3 weeks in bed, depressed and suicidal. And

let me add , freezing to death. Now I am told

> that it would take at least a month for the synthroid to make me feel any

better.

>

> My doctor put me on .05 Synthyroid a day. Of course, he does not want to see

me for another 3 months! Is it just me or is something wrong with this

picture?

> Is it normal to be suicidal and bed ridden with hypothyroidism? Just

wondering.

>

> e

>

>

>

> -------------------------------------

> The Graves' list is intended for informational purposes only and is not

intended to replace expert medical care.

> Please consult your doctor before changing or trying new treatments.

> ----------------------------------------

[Guest guest]

With a TSH of 70, it's going to take a dose higher than .05 to get you

feeling right. Usually docs make increments slowly, but not that slow. In

people with heart problems, they might make adjustments in 4-6 weeks, but in

otherwise healthy people they move the dose up quicker, like 1-2 weeks...

especially when they know you'll be needing a substantial dose of thyroid

hormone replacement. Your doctor shouldn't have allowed you to become so

hypothyroid (which has its own cardiac risks). I think you should seriously

consider finding a more competent doctor or I fear you're in for a rough

winter. Good luck, elaine

[Guest guest]

Elaine,

What cardiac risks are there with hypothryoid? Before I was diagnosed and

was extremely hyper I went into congestive heart failure with no permanent

damage (thank you God)...I didn't know there were still risks when hypo.

Thanks for the info.

Jody

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[Guest guest]

Hi Jody,

Yes thyroid hormone is so important for cardiac health that both hypoT and

hyperT cause problems. Recent articles indicate that even subclinical

hypothyroidism poses a risk.

According to ' Textbook of Clinical Endocrinology, cardiac

manifestations of hypoT include palpitations, sinus bradycardia exercise

intolerance and increased diastolic blood pressure due to vascular

constriction; in severe hypothyroidism, the heart may become enlarged.

In addition, hypoT is associated with high cholesterol levels which compounds

the problem.

Of interest, one of the weirdest symptoms of hypoT is thickened tongue which

is real obvious when hypoT progresses to autoimmune thyroid failure or

myxedema coma, the end stages of hypoT.

It always amazes me that some docs warn against thyroid storm when it's rare

and the mortality with it is about 11%. In myxedema coma, the mortality rate

is reported to be as high as 60%. Keep well, Elaine

[Guest guest]

Thank you Elaine!!!

It is amazing that out of 4 drs. none have ever said a thing about heart

disease/complication with hypo thyroid to me. It should have been one of

the first things discussed as heart disease runs rampant on my dads side of

the family and that when hyperT I had congestive heart failure...that

combined with the fact that I was left hypo for a year...not to the degree

others have seen, TSH was 17.65.

Elaine, what is sinus bradycardia? I had never had sinus problems until we

moved back from a year in Ca. They started almost immediately upon return

to WNY and plague me almost constantly. I do believe that is the same year

I got GD, and if stress is the factor in MY case that would have been it...3

major moves in 12 months, a pregnancy plagued with complications that

resulted in the death of our youngest daughter shortly after birth, I almost

died also. It was within 3 months we moved back to WNY and the sinus

problems started right after that. I was diagnosed with GD in '96, ten

years later.

I have also had high blood pressure since I was 28, am 47 now, and since

about 9 months before diagnosis have had problems with trying to keep up

with my exercise...I use to walk 3-5 miles every day, in the winter worked

out with ...now it is all I can do to make it halfway around the

block walking our dog, and forget my Tae Bo or tapes I have

gained a huge amount of weight (72# started about 4 months after RAI, my

body is not able to tolerate this weight but as of now, nothing seems to

work.

Finally found an endo this June who will work with me on symptoms and have

had my TRH upped from .075 in Jan, to .088 in Feb to .1 end of June...this

time though I am not feeling any effects of the increase. I almost feel more

hypo. I get blood work done next week so we shall see what that says and go

from there.

Thanks again for all of the info you share here, I have learned much from

you

Jody

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[Guest guest]

Hi Jody,

I'd forgot to add a comma between sinus bradycardia and exercise intolerance,

but anyway, in this case, sinus refers to the cavity where blood moves

through the heart, and it refers to a slower movement of blood through this

cavity. This makes the heart not work up to its tasks, causing sluggishness.

This makes you run out of steam and causes exercise intolerance.

Sinus conditions and allergies are common in thryoid disorders, although I've

heard sinus infections associated more often with hypoT. For the 10 years

after RAI where I was kept subclinically hypoT, I had constant sinus

infections. Since going on Armour and not relying on a TSH alone, my

allergies have improved, and I no longer have sinus headaches. Of course,

adding Singulair, the new allergy med helped.

And discovering my gluten sensitivity really helped. Since eliminating

gluten, I've lost 15 pounds, and I no longer have food cravings. I hike all

over the mountains 5 miles a day although with the 3 dogs, we stop alot to

sniff around, lunge after squirrels, etc. I'm still concerned with the fact

that so few people with autoimmune thyroid disease get tested for gluten

sensitivity. My only symptoms of it had been bloating and sugar cravings. And

I'd needed to lose 15 lbs. Within 2 months, those symptoms are gone. My last

test for thyroglobulin autoantibodies had been super high so I'll be curious

to see how much they decrease next time I'm tested. Keep well, elaine