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Hi All!!

I have registered on this site long back but have

not had the courage to post anything so far .I have

been dignosed with IPF since 1995 and have been on o2

24/7 since 2005.

I find so much in common with all or some of u as i

read all ur mails, i decided to take the jump today, I

have however corresponded with Bruce Moreland .

I am Geeta from bombay, India, I am 58yrs old we

are a family of my husband and two children, a son and

a daughter.

I was aschool teaher , teaching math, science and

at times English to 9th and 10th graders, teaching has

been a great passion for me but all that was cut short

after my disease struck, now iamhouse bound rarely

venture out, however reading remains mainstay i read

for several hrs aday, surf the net and watch TV , i

also cook and do light house work.

I was diagnosed with ILD and later from X--rays,

bronchioscopy and LFT tests, my pulmo put down the

diagnosis to IPF and started me on with 60 mg predn

isone and methotextrate they have been titrating

prednisone all thes yrs with some sucess and i have

survived now for 12 yrs or more though i do have a

host of problems as side effects of steroids and have

thru very tough times.

I now have hypertension ( under control with

drugs),i have developed cataract in both eyes , got

surgery done on one of them, i have a moon face and a

lot of fluid retension,and wt increase,i have severe

osteo porosis,suffer from mood swings

i had to get a major surgery done for a stomach

volvlus, severe coughing had caused hernia my stomach

had entered the chest cavity tearing the diaphragm

and also convulute d creating a block i cudnt eat or

drink for mths till an endoscopy confirmed this i had

come down to 38kg and surgery was considered risky due

tomy lung condn it was a tuf call for the doctors and

for us

i came thru well

i wish to share my experinces and introduce u all to

yoga and its benefits for us

i will do so in my next post

its feels great to b with u all

Geeta

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