laundry list

[Guest guest]

,

Thank you so very much for the beautiful prayer. I will print,

save, and put it in my collection of favorite prayers. God bless you.

Leanne, changes in barometric pressure can also cause migraine.

I know first-hand more about this than I care to know. ugh.

I totally empathize about the loss of travel. But I have to believe

there are places yet to go with new lungs for us someday.

And a PFers tour sounds like an absolute blast!

I can't help wondering if Ambien is right for you, simply because of

the limited number of hours that you're able to sleep. Maybe it's just

hard to slow down your MOchine, girl. I'm glad you're not sleepy

during the day - that's miserable. That happens to me a lot, but I'm

fortunate enough to take naps regularly. Otherwise, I wouldn't be

able to stay as active as I am at this stage.

Jim,

Wishing you a smooth let-down off the Prednisone. It's so tough

for so many, and no big deal for others. Seems to me that one

med is probably one of the top three hottest topics on this forum,

the others being 02 delivery methods, and to transplant or not.

,

You manage not to break anything during the party, then burn a

rice pot!? Silly girl. Hey, but I'm impressed with anyone who's

bilingual!

,

Your doctor's credibility fell in my eyes. Anyone who knows about

IPF, or does even a minimum of internet research, knows that

clubbing is common among IPFers and others with lung disease.

Hey Gang,

Nobody responded to my computer question about why some

posts have started coming in unreadable, i.e. encrypted. What's

that about? I hate to think I'm missing ANYONE's post!!!!

Bruce,

I didn't respond to the first poll, because I don't drink carb. drinks.

Many years ago I preferred Dr. Pepper. Sorry. I'm not going to

respond to the Pred poll either. I'm on it, but it's impossible to say

if it has or hasn't helped. There's a pretty good argument either way.

Anyway, I just didn't want you to feel I was being rude or ignoring

you, since you're always such a gentleman.

Sher,

You're very generous to offer to counsel anyone in need. I'm SO

glad you're getting a new lady Fellow and hope you get the best

possible care at the new hospital. You've been through more than

enough unprofessionalism and insensitivity for one lady. I know,

because so have I! It's insane to have to make advocating for

oneself a full-time job, which it is with this disease.

Lou,

I hate it that you're coughing and feeling so crappy. There's so much

fear that can creep into those of us battling for our breath. I hope

those meds kick in RIGHT AWAY! Sending gentle hugs to you and

prayers for God's peace. Remember that God IS in the mix and that

it's all in God's time - tougher to live and accept than to say, I

realize.

We're here for you.

Beth,

Bravo, you're settled and pretty stable... both very good. It's great

news that your trip to Duke went well, although I certainly hope

you won't have another long-term diagnosis to deal with. Enough

already! We want all the details either way, of course.

Jon and Teri,

Congratulations. This sounds like a very good move for you, Jon.

Now be a good boy so Teri won't kick you out of the house! Is

everything still rosy for the baby?

You all mean so much to me. You have touched me deeply.

Love and blessings,

Gwynne IPF 7/04 listed for transplant 3/07 Texas