Guest guest Posted June 29, 2003 Report Share Posted June 29, 2003 Jane, <<IPT...Has anyone in the group had any experience with this therapy? >> I think Kathy O. was going to do this...use the search box w/ search string " kitties " (leave off the quotes) to pull up some of her posts. <<I feel that he is best advised to stick to proven therapies and save the $ for a possible trip to Sloan Kettering or elsewhere, if we choose>> I would agree, especially if an " alternative " is going to cost a lot of money. Some patients try cheap alt stuff, like diet, herbs from the health food store, etc., usually together with some type of conventional therapy...I think that's fine, I've done it myself, and its no big deal. But when an alt starts costing serious money, I would be a LOT more leery and demand at least SOME evidence that the therapy " works " before paying. It is unlikely you will find " gold standard " evidence in the form of randomized clinical trials, but the alt practitioner should at least be able to put you in touch with some patients who were obviously helped by the therapy (e.g. verified by scans, etc). One of the best references I've seen on how to choose alt therapies, along with a lot of other stuff, is Steve Dunn's Cancerguide Main Page http://www.cancerguide.org/mainmenu.html Alternative Therapies http://www.cancerguide.org/alternative.html Especially see the first 3 links on the Alt Therapies page, including Steve's talk at the CMBM conference " Seperating the Wheat from the Chaff " . <<a retoperitoneal tumor and a small spot in the liver. It is inoperable, and radiation won't help>> Now this I question. You have to remember, " treatability " depends on the doctor you go to, different doctors will have different opinions on who THEY can treat. If disease is limited to a SMALL retroperitoneal tumor and liver met, don't be too quick to give up on conventional approaches. Don't know if this could help or not, but awhile back I was following the story of a patient who had abdominal recurrence & was turned down for surgery by a whole string of surgeons. She finally got an appt with this guy http://www.surgery.upmc.edu/contact/display.asp?PhysID=5 who agreed to operate (was successful as I recall). I have no personal knowledge or experience with Dr Bartlett, but based on the info on his page + the experience of the patient I read about, this sounds like a promising lead which might be worth following up on. I have a feeling there is SOMEONE out there who is a bit more aggressive than your husband's current doctor. You do have to be willing to go nationwide with your search, as aggressive surgical oncologists usually aren't easy to find! <<radiation won't help>> The CONVENTIONAL form of radiation won't help, but have you explored Stereotactic Radiation? http://ourworld.compuserve.com/homepages/suthercon/crad6303.htm Most doctors have never heard of SR, so they could NOT advise you as to whether or not it could be done in your husband's case. I had a small liver met treated with SR at Indiana university, and the procedure WORKED to kill the treated met so I know it is possible! With only 2 mets, I think your husband might be a good candidate (and the radiation is covered by your insurance). As noted in the link above, its probably not a " cure " for non-localized (or metastatic) cancer, but it can at least stop the treated mets so that they do not cause future problems and by so doing might be able to increase survival time. Best, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2003 Report Share Posted June 29, 2003 Jane, <<IPT...Has anyone in the group had any experience with this therapy? >> I think Kathy O. was going to do this...use the search box w/ search string " kitties " (leave off the quotes) to pull up some of her posts. <<I feel that he is best advised to stick to proven therapies and save the $ for a possible trip to Sloan Kettering or elsewhere, if we choose>> I would agree, especially if an " alternative " is going to cost a lot of money. Some patients try cheap alt stuff, like diet, herbs from the health food store, etc., usually together with some type of conventional therapy...I think that's fine, I've done it myself, and its no big deal. But when an alt starts costing serious money, I would be a LOT more leery and demand at least SOME evidence that the therapy " works " before paying. It is unlikely you will find " gold standard " evidence in the form of randomized clinical trials, but the alt practitioner should at least be able to put you in touch with some patients who were obviously helped by the therapy (e.g. verified by scans, etc). One of the best references I've seen on how to choose alt therapies, along with a lot of other stuff, is Steve Dunn's Cancerguide Main Page http://www.cancerguide.org/mainmenu.html Alternative Therapies http://www.cancerguide.org/alternative.html Especially see the first 3 links on the Alt Therapies page, including Steve's talk at the CMBM conference " Seperating the Wheat from the Chaff " . <<a retoperitoneal tumor and a small spot in the liver. It is inoperable, and radiation won't help>> Now this I question. You have to remember, " treatability " depends on the doctor you go to, different doctors will have different opinions on who THEY can treat. If disease is limited to a SMALL retroperitoneal tumor and liver met, don't be too quick to give up on conventional approaches. Don't know if this could help or not, but awhile back I was following the story of a patient who had abdominal recurrence & was turned down for surgery by a whole string of surgeons. She finally got an appt with this guy http://www.surgery.upmc.edu/contact/display.asp?PhysID=5 who agreed to operate (was successful as I recall). I have no personal knowledge or experience with Dr Bartlett, but based on the info on his page + the experience of the patient I read about, this sounds like a promising lead which might be worth following up on. I have a feeling there is SOMEONE out there who is a bit more aggressive than your husband's current doctor. You do have to be willing to go nationwide with your search, as aggressive surgical oncologists usually aren't easy to find! <<radiation won't help>> The CONVENTIONAL form of radiation won't help, but have you explored Stereotactic Radiation? http://ourworld.compuserve.com/homepages/suthercon/crad6303.htm Most doctors have never heard of SR, so they could NOT advise you as to whether or not it could be done in your husband's case. I had a small liver met treated with SR at Indiana university, and the procedure WORKED to kill the treated met so I know it is possible! With only 2 mets, I think your husband might be a good candidate (and the radiation is covered by your insurance). As noted in the link above, its probably not a " cure " for non-localized (or metastatic) cancer, but it can at least stop the treated mets so that they do not cause future problems and by so doing might be able to increase survival time. Best, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2003 Report Share Posted June 30, 2003 Hi RE " a retoperitoneal tumor and a small spot in the liver. It is inoperable, and radiation won't help. " I suppose that the statement " It is inoperable, and radiation won't help " refers to the retroperitoneal tumor. I would think that your money might be better used getting a second opinion from a major cancer center, or the physician that mentions. Maybe you can get a copy of your file, including scans on CD, and send it to some physicians. I don't know if that insulin approach works. I have people trying to sell me chi machines and infra-red light machines. They are sold by pyramid schemes and have wonderful testimonials. I am told that cancer cells cannot survive infra-red light, but normal cells do. I am always leary / not interested in these approaches. Barry > My husband has recurrent colon cancer with a retoperitoneal tumor and > a small spot in the liver. It is inoperable, and radiation won't > help. Only palliative care when he begins to get symptomatic will be > given. > > My question is this: He recently heard of this Insulin Potentiate > Therapy, which costs easily $1,000 a treatment up front (!) each > time. I believe only 29 drs in the US practice this, and do not > think any hospitals or medical universities use it. I feel that he > is best advised to stick to proven therapies (together with his > prescribed Tagamet), and save the $ for a possible trip to Sloan > Kettering or elsewhere, if we choose. > > Has anyone in the group had any experience with this therapy? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2003 Report Share Posted June 30, 2003 Hi RE " a retoperitoneal tumor and a small spot in the liver. It is inoperable, and radiation won't help. " I suppose that the statement " It is inoperable, and radiation won't help " refers to the retroperitoneal tumor. I would think that your money might be better used getting a second opinion from a major cancer center, or the physician that mentions. Maybe you can get a copy of your file, including scans on CD, and send it to some physicians. I don't know if that insulin approach works. I have people trying to sell me chi machines and infra-red light machines. They are sold by pyramid schemes and have wonderful testimonials. I am told that cancer cells cannot survive infra-red light, but normal cells do. I am always leary / not interested in these approaches. Barry > My husband has recurrent colon cancer with a retoperitoneal tumor and > a small spot in the liver. It is inoperable, and radiation won't > help. Only palliative care when he begins to get symptomatic will be > given. > > My question is this: He recently heard of this Insulin Potentiate > Therapy, which costs easily $1,000 a treatment up front (!) each > time. I believe only 29 drs in the US practice this, and do not > think any hospitals or medical universities use it. I feel that he > is best advised to stick to proven therapies (together with his > prescribed Tagamet), and save the $ for a possible trip to Sloan > Kettering or elsewhere, if we choose. > > Has anyone in the group had any experience with this therapy? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2003 Report Share Posted June 30, 2003 -Thank you very much, . That is so very helpful. I graduated from Indiana University, so have a soft spot for it. We shall look into that special radiation treatment right away. Jane -- In colon_cancer_support , " altman23 " <altman23@y...> wrote: > Jane, > > <<IPT...Has anyone in the group had any experience with this therapy? > >> > > I think Kathy O. was going to do this...use the search box w/ search > string " kitties " (leave off the quotes) to pull up some of her posts. > > <<I feel that he is best advised to stick to proven therapies and > save the $ for a possible trip to Sloan Kettering or elsewhere, if we > choose>> > > I would agree, especially if an " alternative " is going to cost a lot > of money. > > Some patients try cheap alt stuff, like diet, herbs from the health > food store, etc., usually together with some type of conventional > therapy...I think that's fine, I've done it myself, and its no big > deal. But when an alt starts costing serious money, I would be a LOT > more leery and demand at least SOME evidence that the therapy " works " > before paying. It is unlikely you will find " gold standard " evidence > in the form of randomized clinical trials, but the alt practitioner > should at least be able to put you in touch with some patients who > were obviously helped by the therapy (e.g. verified by scans, etc). > > One of the best references I've seen on how to choose alt therapies, > along with a lot of other stuff, is Steve Dunn's Cancerguide > > Main Page > http://www.cancerguide.org/mainmenu.html > > Alternative Therapies > http://www.cancerguide.org/alternative.html > > Especially see the first 3 links on the Alt Therapies page, including > Steve's talk at the CMBM conference " Seperating the Wheat from the > Chaff " . > > <<a retoperitoneal tumor and a small spot in the liver. It is > inoperable, and radiation won't help>> > > Now this I question. You have to remember, " treatability " depends > on the doctor you go to, different doctors will have different > opinions on who THEY can treat. > > If disease is limited to a SMALL retroperitoneal tumor and liver met, > don't be too quick to give up on conventional approaches. > > Don't know if this could help or not, but awhile back I was following > the story of a patient who had abdominal recurrence & was turned down > for surgery by a whole string of surgeons. She finally got an appt > with this guy > > http://www.surgery.upmc.edu/contact/display.asp?PhysID=5 > > who agreed to operate (was successful as I recall). I have no > personal knowledge or experience with Dr Bartlett, but based on the > info on his page + the experience of the patient I read about, this > sounds like a promising lead which might be worth following up on. I > have a feeling there is SOMEONE out there who is a bit more > aggressive than your husband's current doctor. You do have to be > willing to go nationwide with your search, as aggressive surgical > oncologists usually aren't easy to find! > > <<radiation won't help>> > > The CONVENTIONAL form of radiation won't help, but have you explored > Stereotactic Radiation? > > http://ourworld.compuserve.com/homepages/suthercon/crad6303.htm > > Most doctors have never heard of SR, so they could NOT advise you as > to whether or not it could be done in your husband's case. > > I had a small liver met treated with SR at Indiana university, and > the procedure WORKED to kill the treated met so I know it is > possible! With only 2 mets, I think your husband might be a good > candidate (and the radiation is covered by your insurance). As noted > in the link above, its probably not a " cure " for non-localized (or > metastatic) cancer, but it can at least stop the treated mets so that > they do not cause future problems and by so doing might be able to > increase survival time. > > Best, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2003 Report Share Posted June 30, 2003 -Thank you very much, . That is so very helpful. I graduated from Indiana University, so have a soft spot for it. We shall look into that special radiation treatment right away. Jane -- In colon_cancer_support , " altman23 " <altman23@y...> wrote: > Jane, > > <<IPT...Has anyone in the group had any experience with this therapy? > >> > > I think Kathy O. was going to do this...use the search box w/ search > string " kitties " (leave off the quotes) to pull up some of her posts. > > <<I feel that he is best advised to stick to proven therapies and > save the $ for a possible trip to Sloan Kettering or elsewhere, if we > choose>> > > I would agree, especially if an " alternative " is going to cost a lot > of money. > > Some patients try cheap alt stuff, like diet, herbs from the health > food store, etc., usually together with some type of conventional > therapy...I think that's fine, I've done it myself, and its no big > deal. But when an alt starts costing serious money, I would be a LOT > more leery and demand at least SOME evidence that the therapy " works " > before paying. It is unlikely you will find " gold standard " evidence > in the form of randomized clinical trials, but the alt practitioner > should at least be able to put you in touch with some patients who > were obviously helped by the therapy (e.g. verified by scans, etc). > > One of the best references I've seen on how to choose alt therapies, > along with a lot of other stuff, is Steve Dunn's Cancerguide > > Main Page > http://www.cancerguide.org/mainmenu.html > > Alternative Therapies > http://www.cancerguide.org/alternative.html > > Especially see the first 3 links on the Alt Therapies page, including > Steve's talk at the CMBM conference " Seperating the Wheat from the > Chaff " . > > <<a retoperitoneal tumor and a small spot in the liver. It is > inoperable, and radiation won't help>> > > Now this I question. You have to remember, " treatability " depends > on the doctor you go to, different doctors will have different > opinions on who THEY can treat. > > If disease is limited to a SMALL retroperitoneal tumor and liver met, > don't be too quick to give up on conventional approaches. > > Don't know if this could help or not, but awhile back I was following > the story of a patient who had abdominal recurrence & was turned down > for surgery by a whole string of surgeons. She finally got an appt > with this guy > > http://www.surgery.upmc.edu/contact/display.asp?PhysID=5 > > who agreed to operate (was successful as I recall). I have no > personal knowledge or experience with Dr Bartlett, but based on the > info on his page + the experience of the patient I read about, this > sounds like a promising lead which might be worth following up on. I > have a feeling there is SOMEONE out there who is a bit more > aggressive than your husband's current doctor. You do have to be > willing to go nationwide with your search, as aggressive surgical > oncologists usually aren't easy to find! > > <<radiation won't help>> > > The CONVENTIONAL form of radiation won't help, but have you explored > Stereotactic Radiation? > > http://ourworld.compuserve.com/homepages/suthercon/crad6303.htm > > Most doctors have never heard of SR, so they could NOT advise you as > to whether or not it could be done in your husband's case. > > I had a small liver met treated with SR at Indiana university, and > the procedure WORKED to kill the treated met so I know it is > possible! With only 2 mets, I think your husband might be a good > candidate (and the radiation is covered by your insurance). As noted > in the link above, its probably not a " cure " for non-localized (or > metastatic) cancer, but it can at least stop the treated mets so that > they do not cause future problems and by so doing might be able to > increase survival time. > > Best, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2003 Report Share Posted June 30, 2003 Thanks for the encouraging thoughts, Barry. We shall investigate more. No, the surgeon turned us down for both the retroperitoneal tumor and the small one in the liver. He seemed to feel that the rtp. one is in the worst possible location (in the midst of the small intestine, surrounded by it) and the other one would be " heroic " surgery. For someone who is 71 and with a bad heart, they are nervous. just had 6 days in the hospital with 2 TIA's (mini strokes). He is now on Coumadin and feeling fine. Thank God for this fine group. Jane > > My husband has recurrent colon cancer with a retoperitoneal tumor > and > > a small spot in the liver. It is inoperable, and radiation won't > > help. Only palliative care when he begins to get symptomatic will > be > > given. > > > > My question is this: He recently heard of this Insulin Potentiate > > Therapy, which costs easily $1,000 a treatment up front (!) each > > time. I believe only 29 drs in the US practice this, and do not > > think any hospitals or medical universities use it. I feel that > he > > is best advised to stick to proven therapies (together with his > > prescribed Tagamet), and save the $ for a possible trip to Sloan > > Kettering or elsewhere, if we choose. > > > > Has anyone in the group had any experience with this therapy? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2003 Report Share Posted June 30, 2003 Thanks for the encouraging thoughts, Barry. We shall investigate more. No, the surgeon turned us down for both the retroperitoneal tumor and the small one in the liver. He seemed to feel that the rtp. one is in the worst possible location (in the midst of the small intestine, surrounded by it) and the other one would be " heroic " surgery. For someone who is 71 and with a bad heart, they are nervous. just had 6 days in the hospital with 2 TIA's (mini strokes). He is now on Coumadin and feeling fine. Thank God for this fine group. Jane > > My husband has recurrent colon cancer with a retoperitoneal tumor > and > > a small spot in the liver. It is inoperable, and radiation won't > > help. Only palliative care when he begins to get symptomatic will > be > > given. > > > > My question is this: He recently heard of this Insulin Potentiate > > Therapy, which costs easily $1,000 a treatment up front (!) each > > time. I believe only 29 drs in the US practice this, and do not > > think any hospitals or medical universities use it. I feel that > he > > is best advised to stick to proven therapies (together with his > > prescribed Tagamet), and save the $ for a possible trip to Sloan > > Kettering or elsewhere, if we choose. > > > > Has anyone in the group had any experience with this therapy? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2003 Report Share Posted July 1, 2003 What I was thinking was that the liver tumor, although it might not be resectable, might still be treateable by radiofrequency ablation RFA). And the retroperitoneal tumor might be treatable by stereotactic radioablation (SR). Barry > My husband has recurrent colon cancer with a retoperitoneal tumor and > a small spot in the liver. It is inoperable, and radiation won't > help. Only palliative care when he begins to get symptomatic will be > given. > > My question is this: He recently heard of this Insulin Potentiate > Therapy, which costs easily $1,000 a treatment up front (!) each > time. I believe only 29 drs in the US practice this, and do not > think any hospitals or medical universities use it. I feel that he > is best advised to stick to proven therapies (together with his > prescribed Tagamet), and save the $ for a possible trip to Sloan > Kettering or elsewhere, if we choose. > > Has anyone in the group had any experience with this therapy? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2003 Report Share Posted July 1, 2003 What I was thinking was that the liver tumor, although it might not be resectable, might still be treateable by radiofrequency ablation RFA). And the retroperitoneal tumor might be treatable by stereotactic radioablation (SR). Barry > My husband has recurrent colon cancer with a retoperitoneal tumor and > a small spot in the liver. It is inoperable, and radiation won't > help. Only palliative care when he begins to get symptomatic will be > given. > > My question is this: He recently heard of this Insulin Potentiate > Therapy, which costs easily $1,000 a treatment up front (!) each > time. I believe only 29 drs in the US practice this, and do not > think any hospitals or medical universities use it. I feel that he > is best advised to stick to proven therapies (together with his > prescribed Tagamet), and save the $ for a possible trip to Sloan > Kettering or elsewhere, if we choose. > > Has anyone in the group had any experience with this therapy? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2003 Report Share Posted July 1, 2003 -Thank you, Barry. We did ask about the RFA, and they seemed to rule it out, but we are definitely looking into the SR. is continuing with the Tagamet. Today, I read in TIME that Proscar, the prostate drug, is now thought to increase the aggressivity of tumors. This has given me food for thought, and makes me want to see how sure they are about this troubling finding. Jane -- In colon_cancer_support , " bcranbrook " <canada.book@a...> wrote: > > What I was thinking was that the liver tumor, although it might not > be resectable, might still be treateable by radiofrequency ablation > RFA). And the retroperitoneal tumor might be treatable by > stereotactic radioablation (SR). > > Barry > > > > > > > My husband has recurrent colon cancer with a retoperitoneal tumor > and > > a small spot in the liver. It is inoperable, and radiation won't > > help. Only palliative care when he begins to get symptomatic will > be > > given. > > > > My question is this: He recently heard of this Insulin Potentiate > > Therapy, which costs easily $1,000 a treatment up front (!) each > > time. I believe only 29 drs in the US practice this, and do not > > think any hospitals or medical universities use it. I feel that > he > > is best advised to stick to proven therapies (together with his > > prescribed Tagamet), and save the $ for a possible trip to Sloan > > Kettering or elsewhere, if we choose. > > > > Has anyone in the group had any experience with this therapy? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2003 Report Share Posted July 2, 2003 > My question is this: He recently heard of this Insulin Potentiate > Therapy, which costs easily $1,000 a treatment up front (!) each > time. I believe only 29 drs in the US practice this, and do not > think any hospitals or medical universities use it. I feel that he > is best advised to stick to proven therapies (together with his > prescribed Tagamet), and save the $ for a possible trip to Sloan > Kettering or elsewhere, if we choose. > > Has anyone in the group had any experience with this therapy? Jane, I have been too busy to keep up with the board, so excuse my lateness in replying regarding IPT (Insulin Potentiation Therapy). I am going to begin IPT treatments tomorrow. Along with this I have implemented dietary changes (mostly vegan), ozone therapy, homeopathic medicines, and many supplements all through an alternative medicine doctor. My oncologist at s Hopkins is aware of my treatment and is supportive. The chemo agents they will be using for my IPT are 5FU and Methotrexate. I am trying this basically because I have already failed 5FU/Leu., Camptosar, Oxalyplatin, Bevicizumab, Xeloda, and an Iressa type drug. (I was dx 6/01, stage 3, mets to retroperitonal nodes 6/02, lungs 12/02, currently nodes not a problem but lungs have continued to progress despite all that chemo ( ). I do have to pay privately up front, but they have contracted with a company to submit it to insurance, and expect it to be covered. Cost should be around $1100.00 per IPT tx. There is a very good book available on Amazon.com " Treating Cancer with Insulin Potentiation Therapy " by Ross Hauser, MD. I think the whole concept of IPT is interesting, and decided to give it a try for at least six weeks. I am not expecting any side effects, which is a plus as I want to continue to be able to enjoy the summer with my kids. I have a CT scan scheduled for 8/4 - so we'll see fairly soon if it's working. I will certainly keep you all posted, and will try to post how the treatment felt, etc. tomorrow and also how the insurance coverage goes (we are using a home equity loan for this - decided I was worth at least what we paid for our last vehicle ;o)!!). I agree with the other responders to your husbands situation though, seems like that little bit of recurrance could be treated very aggressively. Even when disease is systemic, I think it prolongs life to remove tumor load whenever possible. All part of making this horrible disease into a chronic condition - which is a goal for many of us who are in a situation where a cure is unlikely. Take Care, Kathy O. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2003 Report Share Posted July 5, 2003 -Many thanks for your reply, and I wish you the very best in your treatment. Jane -- In colon_cancer_support , " Kathy " <oconnor@b...> wrote: > > > My question is this: He recently heard of this Insulin Potentiate > > Therapy, which costs easily $1,000 a treatment up front (!) each > > time. I believe only 29 drs in the US practice this, and do not > > think any hospitals or medical universities use it. I feel that > he > > is best advised to stick to proven therapies (together with his > > prescribed Tagamet), and save the $ for a possible trip to Sloan > > Kettering or elsewhere, if we choose. > > > > Has anyone in the group had any experience with this therapy? > > Jane, > I have been too busy to keep up with the board, so excuse my > lateness in replying regarding IPT (Insulin Potentiation Therapy). > I am going to begin IPT treatments tomorrow. Along with this I have > implemented dietary changes (mostly vegan), ozone therapy, > homeopathic medicines, and many supplements all through an > alternative medicine doctor. My oncologist at s Hopkins is > aware of my treatment and is supportive. The chemo agents they will > be using for my IPT are 5FU and Methotrexate. I am trying this > basically because I have already failed 5FU/Leu., Camptosar, > Oxalyplatin, Bevicizumab, Xeloda, and an Iressa type drug. (I was dx > 6/01, stage 3, mets to retroperitonal nodes 6/02, lungs 12/02, > currently nodes not a problem but lungs have continued to progress > despite all that chemo ( ). I do have to pay privately up front, > but they have contracted with a company to submit it to insurance, > and expect it to be covered. Cost should be around $1100.00 per IPT > tx. There is a very good book available on Amazon.com " Treating > Cancer with Insulin Potentiation Therapy " by Ross Hauser, MD. I > think the whole concept of IPT is interesting, and decided to give > it a try for at least six weeks. I am not expecting any side > effects, which is a plus as I want to continue to be able to enjoy > the summer with my kids. I have a CT scan scheduled for 8/4 - so > we'll see fairly soon if it's working. I will certainly keep you > all posted, and will try to post how the treatment felt, etc. > tomorrow and also how the insurance coverage goes (we are using a > home equity loan for this - decided I was worth at least what we > paid for our last vehicle ;o)!!). > I agree with the other responders to your husbands situation though, > seems like that little bit of recurrance could be treated very > aggressively. Even when disease is systemic, I think it prolongs > life to remove tumor load whenever possible. All part of making > this horrible disease into a chronic condition - which is a goal > for many of us who are in a situation where a cure is unlikely. > Take Care, > Kathy O. Quote Link to comment Share on other sites More sharing options...
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