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Olfactory hallucinations are not uncommon for persons with neurological

disorders. Loss of smell around the holidays must be a horrible thing! Lucky

that Ben and Jerry's can still be appreciated though!

Suzanne Grimmesey-Kirk, MFT

Quality Care Management

Voice: 884-1647

FAX: 884-1633

>>> cblanger@... 11/21/00 02:54PM >>>

,

Rob has COMPLETELY lost his sense of smell. It actually happened

over a period of months, if not years. I remember a skunk incident

about 7 years ago, where the whole family could smell it strongly but

he couldn't smell it at all. He was diagnosed with MSA almost 3

years ago.

He still enjoys food, and says he can taste it although not as well

as before. He loves ice cream and can easily finish off 2 or 3 pints

of Ben and Jerry's a week. (His current favorite is Dilbert, Totally

Nuts -- vanilla with lots and lots of various knids of nuts.)

Just recently he has had a couple of instances of olfactory

hallucinations, where he smells something that is not there. These

have been very fleeting, and are a new happening which I plan to

mention to the doctor when we see him next week.

Carol & Rob (Getting ready to smell the turkey cooking...)

> Hi All:

>

> I've been wondering if anyone else out there in MSA-land has been

> experiencing any loss of taste or smell. I've been noticing this

over

> the last 3 or 4 months and everything seems to be losing flavour.

Also,

> I don't seem to notice smells like I used to. I'm like a lot of

others

> - a little stuffed in the morning, but that clears within in an

hour and

> I don't have a cold so that's not the problem. Any answers would be

> appreciated.

> (Ont.Can.)

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My husband smells no fragrances or odors at all.

Marilyn in TN

----------

>

>To: Shydrager <shydrageregroups>

>Subject: Another question

>Date: Tue, Nov 21, 2000, 9:31 AM

>

>Hi All:

>

>I've been wondering if anyone else out there in MSA-land has been

>experiencing any loss of taste or smell. I've been noticing this over

>the last 3 or 4 months and everything seems to be losing flavour. Also,

>I don't seem to notice smells like I used to. I'm like a lot of others

>- a little stuffed in the morning, but that clears within in an hour and

>I don't have a cold so that's not the problem. Any answers would be

>appreciated.

> (Ont.Can.)

>

>

>

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Greetings ,

Just some notes regarding your post:

> I've been wondering if anyone else out there in MSA-land has been

> experiencing any loss of taste or smell. I've been noticing this over

> the last 3 or 4 months and everything seems to be losing flavour.

Yes. Of course, it's hard to determine how much of that is just age

related. But when others start to cringe over a smell / taste, and I don't

even notice it ... ?? Well, clearly something changed!

> I'm like a lot of others - a little stuffed in the morning, but that

clears

> within in an hour and I don't have a cold so that's not the problem.

this can indicate breathing through the mouth during the night. If

you are not breathing through your nose it will tend to clog up until you

get going in the morning.

You should see a doctor if this continues, and you start to feel tired all

the time, especially if others complain about snoring or you have headaches

in the morning. This would indicate problem with breathing during your

sleep. It's easily managed. Left unmanaged, it seriously depletes your

energy, and can be life threatening.

Not saying you are there yet. Just giving you some things to monitor.

Regards,

=jbf=

B. Fisher

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Greetings ,

Just some notes regarding your post:

> I've been wondering if anyone else out there in MSA-land has been

> experiencing any loss of taste or smell. I've been noticing this over

> the last 3 or 4 months and everything seems to be losing flavour.

Yes. Of course, it's hard to determine how much of that is just age

related. But when others start to cringe over a smell / taste, and I don't

even notice it ... ?? Well, clearly something changed!

> I'm like a lot of others - a little stuffed in the morning, but that

clears

> within in an hour and I don't have a cold so that's not the problem.

this can indicate breathing through the mouth during the night. If

you are not breathing through your nose it will tend to clog up until you

get going in the morning.

You should see a doctor if this continues, and you start to feel tired all

the time, especially if others complain about snoring or you have headaches

in the morning. This would indicate problem with breathing during your

sleep. It's easily managed. Left unmanaged, it seriously depletes your

energy, and can be life threatening.

Not saying you are there yet. Just giving you some things to monitor.

Regards,

=jbf=

B. Fisher

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,

Just thought I'd put my two cents in here, so to speak. Many years ago, my

dad experienced a loss of his sense of smell. This was long before he was

diagnosed with Shy Drager's. If I recall correctly, he was treated for

awhile with some sort of zinc preparation at the time. I have read in a

medical journal that sense of smell can be a sort of early warning sign of

SDS; the impression I got while reading was that several people with this

syndrome had experienced this at some point. Smiles and hugs, Diane

Re: Another question

> Greetings ,

>

> Just some notes regarding your post:

>

> > I've been wondering if anyone else out there in MSA-land has been

> > experiencing any loss of taste or smell. I've been noticing this over

> > the last 3 or 4 months and everything seems to be losing flavour.

>

> Yes. Of course, it's hard to determine how much of that is just age

> related. But when others start to cringe over a smell / taste, and I

don't

> even notice it ... ?? Well, clearly something changed!

>

> > I'm like a lot of others - a little stuffed in the morning, but that

> clears

> > within in an hour and I don't have a cold so that's not the problem.

>

> this can indicate breathing through the mouth during the night. If

> you are not breathing through your nose it will tend to clog up until you

> get going in the morning.

>

> You should see a doctor if this continues, and you start to feel tired all

> the time, especially if others complain about snoring or you have

headaches

> in the morning. This would indicate problem with breathing during your

> sleep. It's easily managed. Left unmanaged, it seriously depletes your

> energy, and can be life threatening.

>

> Not saying you are there yet. Just giving you some things to monitor.

>

>

> Regards,

> =jbf=

>

> B. Fisher

>

>

>

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Hi : Saw my doctor this week to get my flu shot ( & pneumonia shot) and he

claims I have allergies. I was never aware of them before but he's given me

Nasonex to try.

As for the unthinking cruelty of people, I'm convinced that one can't

understand another until they've walked a mile in their shoes. And yes, it was

certainly hurtful, but that was 8 years ago and the raw grief has worn down to

great memories of a wonderful guy and to hoping that the people who were

hurtful will never have to walk that mile. In this life of ours it really

doesn't matter if the event is exciting, loving or hurtful, no one knows how

they will handle it until it happens to them. But human nature seems to make

us judge without experience. Hey - this is getting way too deep!!!! It

happened - it's over!

And if I don't get busy I won't have this quilt finished before Christmas. My

hobby is quilt-making - I've done 6 queen size quilts and 2 singles in the last

18 months.

(Ont.Can.)

Fisher wrote:

> Greetings ,

>

> Just some notes regarding your post:

>

> > I've been wondering if anyone else out there in MSA-land has been

> > experiencing any loss of taste or smell. I've been noticing this over

> > the last 3 or 4 months and everything seems to be losing flavour.

>

> Yes. Of course, it's hard to determine how much of that is just age

> related. But when others start to cringe over a smell / taste, and I don't

> even notice it ... ?? Well, clearly something changed!

>

> > I'm like a lot of others - a little stuffed in the morning, but that

> clears

> > within in an hour and I don't have a cold so that's not the problem.

>

> this can indicate breathing through the mouth during the night. If

> you are not breathing through your nose it will tend to clog up until you

> get going in the morning.

>

> You should see a doctor if this continues, and you start to feel tired all

> the time, especially if others complain about snoring or you have headaches

> in the morning. This would indicate problem with breathing during your

> sleep. It's easily managed. Left unmanaged, it seriously depletes your

> energy, and can be life threatening.

>

> Not saying you are there yet. Just giving you some things to monitor.

>

> Regards,

> =jbf=

>

> B. Fisher

>

>

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Hi : Saw my doctor this week to get my flu shot ( & pneumonia shot) and he

claims I have allergies. I was never aware of them before but he's given me

Nasonex to try.

As for the unthinking cruelty of people, I'm convinced that one can't

understand another until they've walked a mile in their shoes. And yes, it was

certainly hurtful, but that was 8 years ago and the raw grief has worn down to

great memories of a wonderful guy and to hoping that the people who were

hurtful will never have to walk that mile. In this life of ours it really

doesn't matter if the event is exciting, loving or hurtful, no one knows how

they will handle it until it happens to them. But human nature seems to make

us judge without experience. Hey - this is getting way too deep!!!! It

happened - it's over!

And if I don't get busy I won't have this quilt finished before Christmas. My

hobby is quilt-making - I've done 6 queen size quilts and 2 singles in the last

18 months.

(Ont.Can.)

Fisher wrote:

> Greetings ,

>

> Just some notes regarding your post:

>

> > I've been wondering if anyone else out there in MSA-land has been

> > experiencing any loss of taste or smell. I've been noticing this over

> > the last 3 or 4 months and everything seems to be losing flavour.

>

> Yes. Of course, it's hard to determine how much of that is just age

> related. But when others start to cringe over a smell / taste, and I don't

> even notice it ... ?? Well, clearly something changed!

>

> > I'm like a lot of others - a little stuffed in the morning, but that

> clears

> > within in an hour and I don't have a cold so that's not the problem.

>

> this can indicate breathing through the mouth during the night. If

> you are not breathing through your nose it will tend to clog up until you

> get going in the morning.

>

> You should see a doctor if this continues, and you start to feel tired all

> the time, especially if others complain about snoring or you have headaches

> in the morning. This would indicate problem with breathing during your

> sleep. It's easily managed. Left unmanaged, it seriously depletes your

> energy, and can be life threatening.

>

> Not saying you are there yet. Just giving you some things to monitor.

>

> Regards,

> =jbf=

>

> B. Fisher

>

>

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,

Do you design your quilts on the computer? in Aussieland does.

Take care, Bill and Charlotte

------------------------------------------------------------------

Riding wrote:

> Hi : Saw my doctor this week to get my flu shot ( & pneumonia shot) and

he

> claims I have allergies. I was never aware of them before but he's given me

> Nasonex to try.

>

> As for the unthinking cruelty of people, I'm convinced that one can't

> understand another until they've walked a mile in their shoes. And yes, it

was

> certainly hurtful, but that was 8 years ago and the raw grief has worn down to

> great memories of a wonderful guy and to hoping that the people who were

> hurtful will never have to walk that mile. In this life of ours it really

> doesn't matter if the event is exciting, loving or hurtful, no one knows how

> they will handle it until it happens to them. But human nature seems to make

> us judge without experience. Hey - this is getting way too deep!!!! It

> happened - it's over!

> And if I don't get busy I won't have this quilt finished before Christmas. My

> hobby is quilt-making - I've done 6 queen size quilts and 2 singles in the

last

> 18 months.

> (Ont.Can.)

>

> Fisher wrote:

>

> > Greetings ,

> >

> > Just some notes regarding your post:

> >

> > > I've been wondering if anyone else out there in MSA-land has been

> > > experiencing any loss of taste or smell. I've been noticing this over

> > > the last 3 or 4 months and everything seems to be losing flavour.

> >

> > Yes. Of course, it's hard to determine how much of that is just age

> > related. But when others start to cringe over a smell / taste, and I don't

> > even notice it ... ?? Well, clearly something changed!

> >

> > > I'm like a lot of others - a little stuffed in the morning, but that

> > clears

> > > within in an hour and I don't have a cold so that's not the problem.

> >

> > this can indicate breathing through the mouth during the night. If

> > you are not breathing through your nose it will tend to clog up until you

> > get going in the morning.

> >

> > You should see a doctor if this continues, and you start to feel tired all

> > the time, especially if others complain about snoring or you have headaches

> > in the morning. This would indicate problem with breathing during your

> > sleep. It's easily managed. Left unmanaged, it seriously depletes your

> > energy, and can be life threatening.

> >

> > Not saying you are there yet. Just giving you some things to monitor.

> >

> > Regards,

> > =jbf=

> >

> > B. Fisher

> >

> >

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,

Do you design your quilts on the computer? in Aussieland does.

Take care, Bill and Charlotte

------------------------------------------------------------------

Riding wrote:

> Hi : Saw my doctor this week to get my flu shot ( & pneumonia shot) and

he

> claims I have allergies. I was never aware of them before but he's given me

> Nasonex to try.

>

> As for the unthinking cruelty of people, I'm convinced that one can't

> understand another until they've walked a mile in their shoes. And yes, it

was

> certainly hurtful, but that was 8 years ago and the raw grief has worn down to

> great memories of a wonderful guy and to hoping that the people who were

> hurtful will never have to walk that mile. In this life of ours it really

> doesn't matter if the event is exciting, loving or hurtful, no one knows how

> they will handle it until it happens to them. But human nature seems to make

> us judge without experience. Hey - this is getting way too deep!!!! It

> happened - it's over!

> And if I don't get busy I won't have this quilt finished before Christmas. My

> hobby is quilt-making - I've done 6 queen size quilts and 2 singles in the

last

> 18 months.

> (Ont.Can.)

>

> Fisher wrote:

>

> > Greetings ,

> >

> > Just some notes regarding your post:

> >

> > > I've been wondering if anyone else out there in MSA-land has been

> > > experiencing any loss of taste or smell. I've been noticing this over

> > > the last 3 or 4 months and everything seems to be losing flavour.

> >

> > Yes. Of course, it's hard to determine how much of that is just age

> > related. But when others start to cringe over a smell / taste, and I don't

> > even notice it ... ?? Well, clearly something changed!

> >

> > > I'm like a lot of others - a little stuffed in the morning, but that

> > clears

> > > within in an hour and I don't have a cold so that's not the problem.

> >

> > this can indicate breathing through the mouth during the night. If

> > you are not breathing through your nose it will tend to clog up until you

> > get going in the morning.

> >

> > You should see a doctor if this continues, and you start to feel tired all

> > the time, especially if others complain about snoring or you have headaches

> > in the morning. This would indicate problem with breathing during your

> > sleep. It's easily managed. Left unmanaged, it seriously depletes your

> > energy, and can be life threatening.

> >

> > Not saying you are there yet. Just giving you some things to monitor.

> >

> > Regards,

> > =jbf=

> >

> > B. Fisher

> >

> >

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Greetings !

> Saw my doctor this week to get my flu shot ( & pneumonia shot)

> and he claims I have allergies. I was never aware of them before

> but he's given me Nasonex to try.

Sure hope it does help. Medications seem to be so variable with this

disorder ...

> ... no one knows how they will handle it until it happens

> to them. But human nature seems to make us judge

> without experience.

Yup. My point is to just help explain why we do things like that ... and I

*definitely* include myself in that.

> Hey - this is getting way too deep!!!! It happened - it's over!

And you have a very healthy attitude. Move on and continue to live life.

> ... My hobby is quilt-making - I've done 6 queen size quilts

> and 2 singles in the last 18 months.

WOW! That's good for a new hobby. Enjoy it, don't let it overwhelm you.

Regards,

=jbf=

B. Fisher

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,

WOW! That many quilts in 18 months! I'm impressed! I'm working on a baby

quilt for my future grandchild. My Mom and I used to quilt together but

she is no longer able to do that type of stitching. She is still good at

helping pick out the fabrics though. I love to quilt but don't have the

artistic touch for bringing the colors together. Mom taught my oldest

daughter to quilt when she was thirteen. Ana competed with quilts in

Indiana and Texas at two different ACE School Conventions.

Sylvia

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Bill: No I don't design on the computer yet. I get my ideas from dozens of

quilt

magazines I've collected over the years and enjoy designing my own. Love

putting the

colours (colors) together. One of these days I'll get a program for the

computer,

but then I'd probably spend all my time playing with it instead of quilting.

Catch

22. I have the materials to make one for each of my 6 grandchildren, but I'm

busy on

1 right now and have 2 more orders before I start on them. I also have several

very

sore fingers because I hand-quilt all of them. (Ont.Can.)

Werre wrote:

> ,

>

> Do you design your quilts on the computer? in Aussieland does.

>

> Take care, Bill and Charlotte

> ------------------------------------------------------------------

>

> Riding wrote:

>

> > Hi : Saw my doctor this week to get my flu shot ( & pneumonia shot) and

he

> > claims I have allergies. I was never aware of them before but he's given me

> > Nasonex to try.

> >

> > As for the unthinking cruelty of people, I'm convinced that one can't

> > understand another until they've walked a mile in their shoes. And yes, it

was

> > certainly hurtful, but that was 8 years ago and the raw grief has worn down

to

> > great memories of a wonderful guy and to hoping that the people who were

> > hurtful will never have to walk that mile. In this life of ours it really

> > doesn't matter if the event is exciting, loving or hurtful, no one knows how

> > they will handle it until it happens to them. But human nature seems to

make

> > us judge without experience. Hey - this is getting way too deep!!!! It

> > happened - it's over!

> > And if I don't get busy I won't have this quilt finished before Christmas.

My

> > hobby is quilt-making - I've done 6 queen size quilts and 2 singles in the

last

> > 18 months.

> > (Ont.Can.)

> >

> > Fisher wrote:

> >

> > > Greetings ,

> > >

> > > Just some notes regarding your post:

> > >

> > > > I've been wondering if anyone else out there in MSA-land has been

> > > > experiencing any loss of taste or smell. I've been noticing this over

> > > > the last 3 or 4 months and everything seems to be losing flavour.

> > >

> > > Yes. Of course, it's hard to determine how much of that is just age

> > > related. But when others start to cringe over a smell / taste, and I

don't

> > > even notice it ... ?? Well, clearly something changed!

> > >

> > > > I'm like a lot of others - a little stuffed in the morning, but that

> > > clears

> > > > within in an hour and I don't have a cold so that's not the problem.

> > >

> > > this can indicate breathing through the mouth during the night. If

> > > you are not breathing through your nose it will tend to clog up until you

> > > get going in the morning.

> > >

> > > You should see a doctor if this continues, and you start to feel tired all

> > > the time, especially if others complain about snoring or you have

headaches

> > > in the morning. This would indicate problem with breathing during your

> > > sleep. It's easily managed. Left unmanaged, it seriously depletes your

> > > energy, and can be life threatening.

> > >

> > > Not saying you are there yet. Just giving you some things to monitor.

> > >

> > > Regards,

> > > =jbf=

> > >

> > > B. Fisher

> > >

> > >

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: Actually this isn't a new hobby. Learned from my Mom at a very early

age. My husband and I owned a retail business called Firehall Quilts and

Crafts. Firehall because the building had been Belleville's original firehall

and quilts and crafts was what we sold and taught. I also make a lot of

clothes for my grandkids. I'd be lost without my sewing machine, computer and

books. (Ont. Can.)

Fisher wrote:

> Greetings !

>

> > Saw my doctor this week to get my flu shot ( & pneumonia shot)

> > and he claims I have allergies. I was never aware of them before

> > but he's given me Nasonex to try.

>

> Sure hope it does help. Medications seem to be so variable with this

> disorder ...

>

> > ... no one knows how they will handle it until it happens

> > to them. But human nature seems to make us judge

> > without experience.

>

> Yup. My point is to just help explain why we do things like that ... and I

> *definitely* include myself in that.

>

> > Hey - this is getting way too deep!!!! It happened - it's over!

>

> And you have a very healthy attitude. Move on and continue to live life.

>

> > ... My hobby is quilt-making - I've done 6 queen size quilts

> > and 2 singles in the last 18 months.

>

> WOW! That's good for a new hobby. Enjoy it, don't let it overwhelm you.

>

> Regards,

> =jbf=

>

> B. Fisher

>

>

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,

I can remember when we were kids, we would cut the squares and mom would sew

everything

together on the machine. Then we would stuff the quilt and she would sew up the

last

edge. Since there were five kids, this was a year round chore almost. :o) Only

patterns

were squares and diamonds, and much of the color was whatever clothes that had

worn out

:o)

I tried sew some at times, but could never sew straight lines even with the

machine. Mom

was an farn girl and could do anything, cook, sew, bake, chase kids, and wring a

chicken's neck

Have fun, Bill and Charlotte

================================================

Riding wrote:

> Bill: No I don't design on the computer yet. I get my ideas from dozens of

quilt

> magazines I've collected over the years and enjoy designing my own. Love

putting the

> colours (colors) together. One of these days I'll get a program for the

computer,

> but then I'd probably spend all my time playing with it instead of quilting.

Catch

> 22. I have the materials to make one for each of my 6 grandchildren, but I'm

busy on

> 1 right now and have 2 more orders before I start on them. I also have

several very

> sore fingers because I hand-quilt all of them. (Ont.Can.)

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Hi Gals. I do not do quilts but I have made afghans for all of my kids

and their kids and wives. Crocheted. I agree, the hands do get weary but

the work is worth it when you see the smile as your gift is received.

Love to the sewers in the "family"

Barb

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Hi Bill:

I was a farm girl, too. I can cook, sew, bake (made bread with 2 of my

granddaughters the

other day) but I never did learn to wring a chicken's neck or milk a cow. I had

7 brothers

to do that. (I also had 3 sisters, I'm #8).

I recently made a quilt for a friend by enlarging pictures of flowers - 10

different kinds

including pansy, irid, daffodil, rose, poppy, daisy, lily, bleeding heart, etc.

and hand-

appliqued them (2 of each) to make 20 blocks. I put them together with yellow

strips and

border and made curtains to match the yellow. It took me 2 1/2 months of steady

work. NOW

she wants another one. Guess that's what I get for being creative.

Took a break last night. My daughter's kids had a birthday part to go to so she

and I went

out for Chinese and shopping and I had her all to myself. Brought back memories

for both of

us and we really enjoyed it. ( Ont.Can.)

Werre wrote:

> ,

>

> I can remember when we were kids, we would cut the squares and mom would sew

everything

> together on the machine. Then we would stuff the quilt and she would sew up

the last

> edge. Since there were five kids, this was a year round chore almost. :o)

Only patterns

> were squares and diamonds, and much of the color was whatever clothes that had

worn out

> :o)

>

> I tried sew some at times, but could never sew straight lines even with the

machine. Mom

> was an farn girl and could do anything, cook, sew, bake, chase kids, and wring

a

> chicken's neck

>

> Have fun, Bill and Charlotte

> ================================================

>

> Riding wrote:

>

> > Bill: No I don't design on the computer yet. I get my ideas from dozens of

quilt

> > magazines I've collected over the years and enjoy designing my own. Love

putting the

> > colours (colors) together. One of these days I'll get a program for the

computer,

> > but then I'd probably spend all my time playing with it instead of quilting.

Catch

> > 22. I have the materials to make one for each of my 6 grandchildren, but

I'm busy on

> > 1 right now and have 2 more orders before I start on them. I also have

several very

> > sore fingers because I hand-quilt all of them. (Ont.Can.)

>

>

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,

If you want to turn a picture into a quilt easily, take the picture and tell a

photo software

program that you want a small number of pixels per inch (like 10 or 12). That

will give you a

bunch of squares that from a distance will look like a photo.

:o) We make our own bread all the time (but with a bread machine). Our

favorites are cinnamon

raisin and rye. Both have to be eaten in about two days.

My mom could grab a chicken on the run, wring it's neck and chop off the head in

one motion. I

could never get over the fact that the chicken could then still run. We got

chicks for Easter

one year and raised them until vacation time and she killed them and fried them

to take with

us. None of the kids would eat chicken for a year.

Mom was raised in New Haven, Missouri until her father was killed about 1925 and

they moved into

St. Louis. The boys were too young to work the farm amd mom was the second

oldest of seven at

13.

Take care, Bill and Charlotte

-------------------------------------------------------------------------------

Riding wrote:

> Hi Bill:

>

> I was a farm girl, too. I can cook, sew, bake (made bread with 2 of my

granddaughters the

> other day) but I never did learn to wring a chicken's neck or milk a cow. I

had 7 brothers

> to do that. (I also had 3 sisters, I'm #8).

>

> I recently made a quilt for a friend by enlarging pictures of flowers - 10

different kinds

> including pansy, irid, daffodil, rose, poppy, daisy, lily, bleeding heart,

etc. and hand-

> appliqued them (2 of each) to make 20 blocks. I put them together with yellow

strips and

> border and made curtains to match the yellow. It took me 2 1/2 months of

steady work. NOW

> she wants another one. Guess that's what I get for being creative.

>

> Took a break last night. My daughter's kids had a birthday part to go to so

she and I went

> out for Chinese and shopping and I had her all to myself. Brought back

memories for both of

> us and we really enjoyed it. ( Ont.Can.)

>

> Werre wrote:

>

> > ,

> >

> > I can remember when we were kids, we would cut the squares and mom would sew

everything

> > together on the machine. Then we would stuff the quilt and she would sew up

the last

> > edge. Since there were five kids, this was a year round chore almost. :o)

Only patterns

> > were squares and diamonds, and much of the color was whatever clothes that

had worn out

> > :o)

> >

> > I tried sew some at times, but could never sew straight lines even with the

machine. Mom

> > was an farn girl and could do anything, cook, sew, bake, chase kids, and

wring a

> > chicken's neck

> >

> > Have fun, Bill and Charlotte

> > ================================================

> >

> > Riding wrote:

> >

> > > Bill: No I don't design on the computer yet. I get my ideas from dozens

of quilt

> > > magazines I've collected over the years and enjoy designing my own. Love

putting the

> > > colours (colors) together. One of these days I'll get a program for the

computer,

> > > but then I'd probably spend all my time playing with it instead of

quilting. Catch

> > > 22. I have the materials to make one for each of my 6 grandchildren, but

I'm busy on

> > > 1 right now and have 2 more orders before I start on them. I also have

several very

> > > sore fingers because I hand-quilt all of them. (Ont.Can.)

> >

> >

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  • 2 years later...

hi, i have another question -- i had my surgery on the 22nd - monday will

be a week -- even though i'm still just on clear liquid and my protein

drinks shouldn't i feel different -- do any of you get a full feeling? so

far i haven't had that -- the only thing different is i get the indigestion

pain when i have to burp - i'm scared to over do it --- and no BM yet......i

don't want to happen to me like with my c-section -- although i was eating

reg meals but it took about 2 weeks to have a BM even though i was taking

stool softener & laxative -- i had what they call an impaction - basically a

very large hard as a rock poo-poo stuck -- i thought i would die on the

toilet and almost called 911 and would have if it hadn't been so

embarrassing - i finally was able to get done with that to have diarrhea

after - so the meds were working and just blocked. i'm thinking with only

liquids it shouldn't be that difficult - so i want to hear BM stories (LOL)

and sorry if that was TMI -- as a nurse there is no topic i won't talk about

visit our website

www.geocities.com/tanyarn96/countryside.html

www.poncetihomes.com

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As I'm a preop, waiting for insurance approval and going through my

rounds of testing, I can't answer your questions. But I can say that

if I can have this done, I, too, will be very focused on poo poo

issues right after the surgery (to me having a normal BM, can often

be the primary determination of whether the day is going to be good

or not). So bring on the stories!

W.

Birmingham

Dr. Schmitt

(playing the waiting game and hoping it doesn't turn into the crying

game)

> hi, i have another question -- i had my surgery on the 22nd -

monday will

> be a week -- even though i'm still just on clear liquid and my

protein

> drinks shouldn't i feel different -- do any of you get a full

feeling? so

> far i haven't had that -- the only thing different is i get the

indigestion

> pain when i have to burp - i'm scared to over do it --- and no BM

yet......i

> don't want to happen to me like with my c-section -- although i was

eating

> reg meals but it took about 2 weeks to have a BM even though i was

taking

> stool softener & laxative -- i had what they call an impaction -

basically a

> very large hard as a rock poo-poo stuck -- i thought i would die on

the

> toilet and almost called 911 and would have if it hadn't been so

> embarrassing - i finally was able to get done with that to have

diarrhea

> after - so the meds were working and just blocked. i'm thinking

with only

> liquids it shouldn't be that difficult - so i want to hear BM

stories (LOL)

> and sorry if that was TMI -- as a nurse there is no topic i won't

talk about

>

>

>

> visit our website

> www.geocities.com/tanyarn96/countryside.html

>

www.poncetihomes.com

>

>

>

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,

I am 8 weeks out and still dont get a " full " feeling. It is more of

a satisfied feeling or i just stop because i have over done it by a

bite or two in the past and got sick. It is very different than

before surgery.

About the BM stories...lol I did have a bowel movement before i

left the hospital. Did you do a bowel prep?? I did that fleet soda

stuff ohhh myyyy ggggggg talk about clean as a whistle..lol. The

movements were soft. I passed a lot of mucus as i was healing.

Since you are a nurse, maybe you have some insite... or maybe you

did tell me already. They are having me do the stool sample

testing. They are also checking for all the hepetitus too. I am

having blood in my bowels and alot of mucus again. They are not

sure the cause since i am eating, drinking and have no pain.

Please feel free to ask anything. My memories of early post op are

fading and your questions keep my memory sharp :)

Best wishes and keep up the good work!!

Lori - MI

Open Distal RnY

August 1, 2003

289/248/145

> hi, i have another question -- i had my surgery on the 22nd -

monday will

> be a week -- even though i'm still just on clear liquid and my

protein

> drinks shouldn't i feel different -- do any of you get a full

feeling? so

> far i haven't had that -- the only thing different is i get the

indigestion

> pain when i have to burp - i'm scared to over do it --- and no BM

yet......i

> don't want to happen to me like with my c-section -- although i

was eating

> reg meals but it took about 2 weeks to have a BM even though i was

taking

> stool softener & laxative -- i had what they call an impaction -

basically a

> very large hard as a rock poo-poo stuck -- i thought i would die

on the

> toilet and almost called 911 and would have if it hadn't been so

> embarrassing - i finally was able to get done with that to have

diarrhea

> after - so the meds were working and just blocked. i'm thinking

with only

> liquids it shouldn't be that difficult - so i want to hear BM

stories (LOL)

> and sorry if that was TMI -- as a nurse there is no topic i won't

talk about

>

>

>

> visit our website

> www.geocities.com/tanyarn96/countryside.html

>

www.poncetihomes.com

>

>

>

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Share on other sites

my uncle called tonight tto check on me - he had this done 4 yrs ago and was

500-600 lbs with a 68 " waist - today he is 207 lbs and still losing. all his

health problems are gone....i told him about drinking all day and not

knowing if its possible to drink too much and that i haven't had that full

feeling and he said when i start burping that means i drank too much -- when

i'm on a reg diet he said its easier to tell b/c it will make you sick and

miserable. i have had burping occassionally and its painful but ok after its

out - and i'm passing gas which is good - no BM yet but he said it took him

a week and not to be scared b/c it will be black and stink big time - the

smell of blood is BAD....

with the stool sample they are checking for blood and probably parasites or

bacteria that would cause bloody stool. is the blood red? i was told that

issn't good - i would probably back up my diet to liquid or soft until they

see what is wrong -- have you had a blood test - CBC to see any changes

there?

visit our website

www.geocities.com/tanyarn96/countryside.html

www.poncetihomes.com

-- Re: another question

,

I am 8 weeks out and still dont get a " full " feeling. It is more of

a satisfied feeling or i just stop because i have over done it by a

bite or two in the past and got sick. It is very different than

before surgery.

About the BM stories...lol I did have a bowel movement before i

left the hospital. Did you do a bowel prep?? I did that fleet soda

stuff ohhh myyyy ggggggg talk about clean as a whistle..lol. The

movements were soft. I passed a lot of mucus as i was healing.

Since you are a nurse, maybe you have some insite... or maybe you

did tell me already. They are having me do the stool sample

testing. They are also checking for all the hepetitus too. I am

having blood in my bowels and alot of mucus again. They are not

sure the cause since i am eating, drinking and have no pain.

Please feel free to ask anything. My memories of early post op are

fading and your questions keep my memory sharp :)

Best wishes and keep up the good work!!

Lori - MI

Open Distal RnY

August 1, 2003

289/248/145

> hi, i have another question -- i had my surgery on the 22nd -

monday will

> be a week -- even though i'm still just on clear liquid and my

protein

> drinks shouldn't i feel different -- do any of you get a full

feeling? so

> far i haven't had that -- the only thing different is i get the

indigestion

> pain when i have to burp - i'm scared to over do it --- and no BM

yet......i

> don't want to happen to me like with my c-section -- although i

was eating

> reg meals but it took about 2 weeks to have a BM even though i was

taking

> stool softener & laxative -- i had what they call an impaction -

basically a

> very large hard as a rock poo-poo stuck -- i thought i would die

on the

> toilet and almost called 911 and would have if it hadn't been so

> embarrassing - i finally was able to get done with that to have

diarrhea

> after - so the meds were working and just blocked. i'm thinking

with only

> liquids it shouldn't be that difficult - so i want to hear BM

stories (LOL)

> and sorry if that was TMI -- as a nurse there is no topic i won't

talk about

>

>

>

> visit our website

> www.geocities.com/tanyarn96/countryside.html

>

www.poncetihomes.com

>

>

>

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Share on other sites

> my uncle called tonight tto check on me - he had this done 4 yrs ago and was

> 500-600 lbs with a 68 " waist - today he is 207 lbs and still losing.

That is so relieving to hear. I am embarrassed about my size, but I am in the

same

range, and should be having my surgery before the end of the year. I was (and

am)

worried about the plateaus we can hit, especially given my slow metabolism, but

more than that I have been worried about what happens once my pouch stretches

out

a little. What keeps me from total worry is that even when the pouch stretches,

it will

only allow about 8 ounces of food, and that is about a year and a half to two

years in

the future. (And that can be further delayed with cautious eating.) But knowing

that

your uncle was able to get down to the 200 range is marvelous! I am happy for

him,

and it boosts my thoughts knowing it's possible. Thank you SO much for sharing!

Dep

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hi, glad i could help....and he did not exercize at all -- not that i'm

advocating that but the dr's were amazed that he has lost that much and

still losing -- he eats whatever he wants until he hurts then he knows to

stop and he said he craves a donut at times and he eats it anyway knowing it

will cause him to dump but he said its worth it to him - he said he really

doesn't have an appetitie like he did b4 anyway. he brought up a tummy tuck

and told me they do the surgery here for free if you donate the skin to the

burn center but he said he hears its extremely painful - i told him he doesn

t look like he has any and he said he does - i don't see it - it must be

below the belt but looking at him with clothes you would never know that man

was that big - his arms don't even have that hanging skin and he just had a

hernia repair and he lifted his shirt to show me the lap sites and that

looked normal so i guess he has what i have - belly hanging low over my

c-section scars - he said he isn't having anything done to fix it.

he was telling me that later i can still have cheesecake or whatever and i

said no b/c i really don't want to start bad eating habits - i have started

over and i hope it will help me have control.

i'm so glad you will be having your surgery by the end of the year - heres

to a new us.

visit our website

www.geocities.com/tanyarn96/countryside.html

www.poncetihomes.com

-- Re: another question

> my uncle called tonight tto check on me - he had this done 4 yrs ago and

was

> 500-600 lbs with a 68 " waist - today he is 207 lbs and still losing.

That is so relieving to hear. I am embarrassed about my size, but I am in

the same

range, and should be having my surgery before the end of the year. I was

(and am)

worried about the plateaus we can hit, especially given my slow metabolism,

but

more than that I have been worried about what happens once my pouch

stretches out

a little. What keeps me from total worry is that even when the pouch

stretches, it will

only allow about 8 ounces of food, and that is about a year and a half to

two years in

the future. (And that can be further delayed with cautious eating.) But

knowing that

your uncle was able to get down to the 200 range is marvelous! I am happy

for him,

and it boosts my thoughts knowing it's possible. Thank you SO much for

sharing!

Dep

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