Guest guest Posted September 30, 2003 Report Share Posted September 30, 2003 Oh yes, my balance is terrible. The nerves are just dying and your brain isn't getting enough information to balance you... dale balance Hi Gang, Had a question about something. Up to this point I have been doing quite well with my PLS. I only have fasciculations, hyper-reflexes, clonus, and wear an AFO on my right leg as it started to turn inward, great toe upward and others grabbing under. I have not taken any falls, but now I notice that I loose my balance when I lean forward...like, when I give someone a hug, I can't seem to recover from that slight leaning forward and have to hang on to reposition myself. You suppose this is part of the progression and have others experienced that? Thanks! Cookie **************************** Man's way leads to a hopeless end..God's way leads to an endless hope. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2003 Report Share Posted September 30, 2003 Ann: Isn't the most important thing is that you are still getting " those kisses " ? What difference does it make if your standing or sitting. With my 14 grandkids, I take them any way I can get them. And also, when I look back at the Team/Walk and visualize 5 of them walking for me and other PLSer's, my heart sings!!! Rita Luv & Hugs! ************************************* Some people succeed in spite of their handicap. Others succeed because of them. It's better to have Laugh Wrinkles than Worry Warts! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2003 Report Share Posted September 30, 2003 rita you are absolutely correct. i really enjoy my 4 grandkids i have lost most of my speech and my little ones call it grandma ann talk. however i would love to read a bedtime store or carry them around but i have them and adore them nothing better Re: balance > Ann: > > Isn't the most important thing is that you are still getting " those > kisses " ? What difference does it make if your standing or sitting. > With my 14 grandkids, I take them any way I can get them. > > And also, when I look back at the Team/Walk and visualize 5 of them > walking for me and other PLSer's, my heart sings!!! > > Rita > > Luv & Hugs! > > > > > ************************************* > Some people succeed in spite of their handicap. Others succeed because > of them. > > > It's better to have Laugh Wrinkles than Worry Warts! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2003 Report Share Posted September 30, 2003 rita you are absolutely correct. i really enjoy my 4 grandkids i have lost most of my speech and my little ones call it grandma ann talk. however i would love to read a bedtime store or carry them around but i have them and adore them nothing better Re: balance > Ann: > > Isn't the most important thing is that you are still getting " those > kisses " ? What difference does it make if your standing or sitting. > With my 14 grandkids, I take them any way I can get them. > > And also, when I look back at the Team/Walk and visualize 5 of them > walking for me and other PLSer's, my heart sings!!! > > Rita > > Luv & Hugs! > > > > > ************************************* > Some people succeed in spite of their handicap. Others succeed because > of them. > > > It's better to have Laugh Wrinkles than Worry Warts! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2003 Report Share Posted September 30, 2003 Ann: Good for you! When we were at the Team/Walk, Thurza showed my kids her machine that talks for her (I have been totally fascinated by it). Had you ever considered one? If your speech is so bad, you might consider one. She said her insurance paid for it. I know if I was in that situation, where my speech was effected, I wouldn't hesitate for one minute to use one. Thats how I deal with having PLS, whatever helps me to keep functioning I buy or do it. Thank God we live in this time (2003) where being physically disabled is not a " curse any more " . Rita Luv & Hugs! ************************************* Some people succeed in spite of their handicap. Others succeed because of them. It's better to have Laugh Wrinkles than Worry Warts! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2003 Report Share Posted September 30, 2003 Ann: Good for you! When we were at the Team/Walk, Thurza showed my kids her machine that talks for her (I have been totally fascinated by it). Had you ever considered one? If your speech is so bad, you might consider one. She said her insurance paid for it. I know if I was in that situation, where my speech was effected, I wouldn't hesitate for one minute to use one. Thats how I deal with having PLS, whatever helps me to keep functioning I buy or do it. Thank God we live in this time (2003) where being physically disabled is not a " curse any more " . Rita Luv & Hugs! ************************************* Some people succeed in spite of their handicap. Others succeed because of them. It's better to have Laugh Wrinkles than Worry Warts! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2003 Report Share Posted September 30, 2003 Ann: Guess you caught me on a chatty day. Just one more thing. Last month we had a birthday party for my husband and my daughter. Colin my new grandson wouldn't stop crying (2 months). I took him, and rode around the yard in my wheel chair and every time I did this he stopped crying, when I stopped her started crying again, it was so funny. I am still able to hold him, and thank God for that. Rita Luv & Hugs! ************************************* Some people succeed in spite of their handicap. Others succeed because of them. It's better to have Laugh Wrinkles than Worry Warts! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2003 Report Share Posted September 30, 2003 rita i have a communication device or i could not exist at all. there are problems with it but it is better than nothing. not good in noisy restaurants but it works well on the phone and at my sons homes i know how amazing science. that is why i know we will find a cure for this mess ann hill Re: balance > Ann: > > Good for you! When we were at the Team/Walk, Thurza showed my kids her > machine that talks for her (I have been totally fascinated by it). Had > you ever considered one? If your speech is so bad, you might consider > one. She said her insurance paid for it. I know if I was in that > situation, where my speech was effected, I wouldn't hesitate for one > minute to use one. Thats how I deal with having PLS, whatever helps me > to keep functioning I buy or do it. Thank God we live in this time > (2003) where being physically disabled is not a " curse any more " . > > Rita > > Luv & Hugs! > > > > > ************************************* > Some people succeed in spite of their handicap. Others succeed because > of them. > > > It's better to have Laugh Wrinkles than Worry Warts! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2003 Report Share Posted September 30, 2003 Cookie, That was how my balance started going. I was at a trade show and leaning over my table talking to someone. When I straightened up I almost went straight over backward. Very scary! Also, if I caught my toe or even brushed my leg or arm against something as I walked it could throw my balance off and down I would go. Balance is a fine motor skill so it will be one of the ones you will see progressing more easily. When I bend over now I hold onto something or lean against something solid. Not so many surprises that way. Regards, Sue Ellen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2003 Report Share Posted October 1, 2003 I once sneezed while standing in the living room and fell backwards onto the coffee table! Don P. Balance I agree with so many who have shared their balance problems in that I'm experiencing the same things, especially leaning forward. Newest problem is needing to hold on to something when I sneeze! Dorothy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2003 Report Share Posted October 1, 2003 I once sneezed while standing in the living room and fell backwards onto the coffee table! Don P. Balance I agree with so many who have shared their balance problems in that I'm experiencing the same things, especially leaning forward. Newest problem is needing to hold on to something when I sneeze! Dorothy Quote Link to comment Share on other sites More sharing options...
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