Guest guest Posted July 12, 2003 Report Share Posted July 12, 2003 Hi Elodia, I got rid of incredimail it was messing up so much of my mail and now i'm just using netscape for composing my mail. Yes i seem to be improving. I am far from beter of corse but i am much better to what i was. How are you? Jan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2003 Report Share Posted July 16, 2003 Quint, Hi dear, there you said it for me. I really wish he would have, whats it to him. Hope you are doing well. much love and support, Jan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2003 Report Share Posted July 16, 2003 Quint, Hi dear, there you said it for me. I really wish he would have, whats it to him. Hope you are doing well. much love and support, Jan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2003 Report Share Posted July 17, 2003 Marla, Glad to hear you are having some good days too. I like you know its from the hand of the Lord. I have so many people praying for me and i'm praying for you as well as everyone else in our group. Keep the faith sister and will keep on praying for you too. Give all praise and glory to God, Jan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2003 Report Share Posted July 17, 2003 Marla, Glad to hear you are having some good days too. I like you know its from the hand of the Lord. I have so many people praying for me and i'm praying for you as well as everyone else in our group. Keep the faith sister and will keep on praying for you too. Give all praise and glory to God, Jan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2003 Report Share Posted July 19, 2003 Jeanna, I have free long distance 24/7 all over the united states. Also just a word of caution i think i remember a post with sending you his number. Well i talked to him a few times and then he started scarring me, use your judgement of course. But i feel the Holy Ghost in this that your surgery will be a success, but it never hurts to have some encouragement Lord knows I need it from time to time. God bless you my sister, Jan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2003 Report Share Posted July 21, 2003 Shirley, Yes I know its really starting to worry me as well the nurse was talking about the doc may need to debribement and I know that will make it even bigger and I don't see this thing healing anytime soon, actually I'm scared. Thanks for your concern, I really appreciate it. Jan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2003 Report Share Posted July 22, 2003 Jan do not let it go. It needs t be looked at. Sharon > > > Date: Mon Jul 21, 9:20 PM > To: Neurosarcoidosis > Subject: Re: Jan > > Shirley, > Yes I know its really starting to worry me as well the nurse was talking > about the doc may need to debribement and I know that will make it even > bigger and I don't see this thing healing anytime soon, actually I'm scared. > Thanks for your concern, I really appreciate it. > Jan > > Shirley, Yes I know its really starting to worry me as well the nurse was talking about the doc may need to debribement and I know that will make it even bigger and I don't see this thing healing anytime soon, actually I'm scared. Thanks for your concern, I really appreciate it. Jan ~~~~ *** ~~~ *** ~~~ *** ~~~~ The Neurosarcoidosis Community Live Group Chat:- Mondays & Fridays 10pm EST USA http://www.elderwyn.com/neurosarcoidosis/chat.php Message Archives and Digest Attachment Pictures:- http://groups.yahoo.com/group/Neurosarcoidosis/messages Members Database:- Listings of locations, phone numbers, and instant messengers. http://groups.yahoo.com/group/Neurosarcoidosis/database Bookmarks:- Add a website URL you have found useful. http://groups.yahoo.com/group/Neurosarcoidosis/links Personal Complaints or problems:- Please email the moderators mailto:Neurosarcoidosis-owner Subscription Details:- 1) Individual email - means that every email sent to the list you receive. 2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email. 3) Web only/No mail - means that you can pop into eGroups at your convenience and receive no email. To modify your subscription settings please visit:- http://groups.yahoo.com/group/Neurosarcoidosis/join To subscribe email neurosarcoidosis-subscribe To unsubscribe email neurosarcoidosis-unsubscribe The moderators will not be doing it for you! ~~~~ *** ~~~ *** ~~~ *** ~~~~ Come stand by my side where I am going, Take my hand if I should stumble and fall, It's the strength and love that you share, That gives me what I need most of all. - Hoyt Axton ~~~~ *** ~~~ *** ~~~ *** ~~~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2003 Report Share Posted July 24, 2003 Kim, I'm so sorry you're sick. I'm sorry any of us have this aweful illness i just found out yesturday there is a lady just 12 miles from me has this illness, i'm gonna phone her today and even ask her if she would like to join our group. I understand the part of wanting your life back, cause i have said that many times. I was diagnosed in 1990 with biopsy of lymph nodes in my chest. But symptom wise i think i have had it a lot longer. There are days i just wanna quit, no more doc,meds,tests, etc. But i have to keep trying to fight this thing and not let it win. I had remission once I want it again. Anytime you wanna talk just let me know i'm here for you. Much love and support. Jan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2003 Report Share Posted July 24, 2003 Kim, I'm so sorry you're sick. I'm sorry any of us have this aweful illness i just found out yesturday there is a lady just 12 miles from me has this illness, i'm gonna phone her today and even ask her if she would like to join our group. I understand the part of wanting your life back, cause i have said that many times. I was diagnosed in 1990 with biopsy of lymph nodes in my chest. But symptom wise i think i have had it a lot longer. There are days i just wanna quit, no more doc,meds,tests, etc. But i have to keep trying to fight this thing and not let it win. I had remission once I want it again. Anytime you wanna talk just let me know i'm here for you. Much love and support. Jan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2003 Report Share Posted July 24, 2003 I had remission once I want it again Jan, I'm with you-- I want it for you too!! Hugs, Tracie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2003 Report Share Posted July 24, 2003 I had remission once I want it again Jan, I'm with you-- I want it for you too!! Hugs, Tracie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2003 Report Share Posted July 24, 2003 Thanks Tracie, I would love to have remission for all of us. much love and support to ya, Jan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2003 Report Share Posted July 24, 2003 Thanks Tracie, I would love to have remission for all of us. much love and support to ya, Jan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 2, 2003 Report Share Posted September 2, 2003 I haven't seen a post from Jan in ages? Hope she is ok? -- RE: Jan I was just wondering if anyone has heard from Jan. It's unusual not to hear from her for so long. I hope she is okay. She's a sweetheart. Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2003 Report Share Posted September 8, 2003 Dear Jan, We are about the same time out (I just had my year last week) and we are the same height. My goal is 165 and I'm told that this is a very reasonable one by my doctor. I still want to lose 70 more lbs., but I started at 386 so even our losses are close. I've got quite a few people in my in-person support group who have gotten to the goal they wanted and then kept losing, and then there are those that never quite make it to their goal. Everyone is individual and it's hard to answer that facet of your question. However, if you find that you reach and pass your goal, and you keep losing, what I've been told is that you decrease your protein intake somewhat and increase your carb intake until you find the place where you actually settle. Seems pretty easy to me, but I'll have to judge how easy it really is once I hopefully get there. Great job on your weightloss, kiddo. live each day like it's your last... love like you've never been hurt... Deb in Hazlet, NJ " Debbie Dancer " distal rny September 3, 2002 386/235/165 BMI 60/34.7/24 -151 -92.5 " Angel to Bill, Debbie (10/14/03) Ilene, Roy, and Ro Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2003 Report Share Posted September 18, 2003 Elodia, Thank you dear, I knew or at least thought i remembered mountain oysters being hog testicles cause i was raised on a farm and really didn't like it too much at times, but it just kept throwing me about the Rocky part so I thought i was missing something. The old noodle upstairs ain't what it used to be......LOL Many thanks, Jan ============================================================ Date: 2003/09/18 Thu PM 10:11:12 EDT To: Neurosarcoidosis Subject: Jan ============================================================ Thru God all things are possible... Jan Jan Dear, This is rather sensitive but you did ask. Mountain oysters are hog testicles. Two members of this group who's names I will not mention (but they are both nuttier than I am)keep trying to get me to eat them along with another horrible thing called grits. Elodia ~~~~ *** ~~~ *** ~~~ *** ~~~~ The Neurosarcoidosis Community Live Group Chat:- Mondays & Fridays 10pm EST USA http://www.elderwyn.com/neurosarcoidosis/chat.php Message Archives and Digest Attachment Pictures:- http://groups.yahoo.com/group/Neurosarcoidosis/messages Members Database:- Listings of locations, phone numbers, and instant messengers. http://groups.yahoo.com/group/Neurosarcoidosis/database Bookmarks:- Add a website URL you have found useful. http://groups.yahoo.com/group/Neurosarcoidosis/links Personal Complaints or problems:- Please email the moderators mailto:Neurosarcoidosis-owner Subscription Details:- 1) Individual email - means that every email sent to the list you receive. 2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email. 3) Web only/No mail - means that you can pop into eGroups at your convenience and receive no email. To modify your subscription settings please visit:- http://groups.yahoo.com/group/Neurosarcoidosis/join To subscribe email neurosarcoidosis-subscribe To unsubscribe email neurosarcoidosis-unsubscribe The moderators will not be doing it for you! ~~~~ *** ~~~ *** ~~~ *** ~~~~ Come stand by my side where I am going, Take my hand if I should stumble and fall, It's the strength and love that you share, That gives me what I need most of all. - Hoyt Axton ~~~~ *** ~~~ *** ~~~ *** ~~~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2003 Report Share Posted October 31, 2003 Hi thanks for your kind words and prayers. I don't know if anyone can help me unless i can find someone i can live with. I'm so pathetic 40 years old and can't live alone i'm sorry but the loneliness is a night mare. I never make any demands on anyone i always keep to myself unless invited God i'd do anything than to be sent back there alone. At least i have until the first of the year here with Corrina she promised me that. God i'm shaking so bad. I wasn't asking her for a lifelong commitment of living with her i'm sure someday soon i would meet a guy and then i'd be ok to move on or if not that a suitable room mate. I know i should have enough faith to let God work it out cause i know he can, but i'm scared of Janruary coming and having no one to be with me. God i'm so sick right now and i'm sorry to be a baby and bother you guys but i need some kind of release. Thanks for listening, pray i don't lose my sanity. Love ya, Lord, let me let you Lead me! Jan Bovitz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2003 Report Share Posted October 31, 2003 Hi thanks for your kind words and prayers. I don't know if anyone can help me unless i can find someone i can live with. I'm so pathetic 40 years old and can't live alone i'm sorry but the loneliness is a night mare. I never make any demands on anyone i always keep to myself unless invited God i'd do anything than to be sent back there alone. At least i have until the first of the year here with Corrina she promised me that. God i'm shaking so bad. I wasn't asking her for a lifelong commitment of living with her i'm sure someday soon i would meet a guy and then i'd be ok to move on or if not that a suitable room mate. I know i should have enough faith to let God work it out cause i know he can, but i'm scared of Janruary coming and having no one to be with me. God i'm so sick right now and i'm sorry to be a baby and bother you guys but i need some kind of release. Thanks for listening, pray i don't lose my sanity. Love ya, Lord, let me let you Lead me! Jan Bovitz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2003 Report Share Posted October 31, 2003 Jan there is someone out there for you as there was for me. Don't ever say that is a stupid way to find my missing piece of soul. I found my soul on line and she is my life and strength. you will too. The creator has plans for you to fill someone's life with all the happiness and they yours. a.f.a. gregg Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2003 Report Share Posted October 31, 2003 Jan, As you know Prayers are powerful, so keep the faith and the prayers and know God will find something different for you before Jan. You are in my Prayers, Love Ya, Marla Re: Jan Hi thanks for your kind words and prayers. I don't know if anyone can help me unless i can find someone i can live with.I'm so pathetic 40 years old and can't live alone i'm sorry but the loneliness is a night mare. I never make any demands on anyone i always keep to myself unless invited God i'd do anything than to be sent back there alone. At least i have until the first of the year here with Corrina she promised me that.God i'm shaking so bad. I wasn't asking her for a lifelong commitment of living with her i'm sure someday soon i would meet a guy and then i'd be ok to move on or if not that a suitable room mate.I know i should have enough faith to let God work it out cause i know he can, but i'm scared of Janruary coming and having no one to be with me.God i'm so sick right now and i'm sorry to be a baby and bother you guys but i need some kind of release.Thanks for listening, pray i don't lose my sanity.Love ya,Lord, let me let you Lead me!Jan Bovitz ~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://www.elderwyn.com/neurosarcoidosis/chat.phpMessage Archives and Digest Attachment Pictures:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Bookmarks:-Add a website URL you have found useful.http://groups.yahoo.com/group/Neurosarcoidosis/linksPersonal Complaints or problems:-Please email the moderatorsmailto:Neurosarcoidosis-owner Subscription Details:-1) Individual email - means that every email sent to the list you receive.2) Daily Digest - sends you 25 messages in one single email for you to browse. This is an excellent option if you receive alot of email.3) Web only/No mail - means that you can pop into eGroups at your convenience and receive no email.To modify your subscription settings please visit:- http://groups.yahoo.com/group/Neurosarcoidosis/joinTo subscribe email neurosarcoidosis-subscribe To unsubscribe email neurosarcoidosis-unsubscribe The moderators will not be doing it for you!~~~~ *** ~~~ *** ~~~ *** ~~~~Come stand by my side where I am going,Take my hand if I should stumble and fall,It's the strength and love that you share,That gives me what I need most of all.- Hoyt Axton~~~~ *** ~~~ *** ~~~ *** ~~~~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2003 Report Share Posted November 1, 2003 Thank you so much Gregg but i have a very short dead line i cannot live alone anylonger like i did there for nearly 6 months i still can't stop trembling I know you are right i just hope its real soon like by the first of the year. Please God in heaven i can't make it alone. Thank you, Lord, let me let you Lead me! Jan Bovitz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2003 Report Share Posted November 1, 2003 Thanks Marla yes prayer is powerful I will continue praying. Thanks to all of you, its just so hard but i am desperate. But I know i need to trust in the Lord. Love ya, Lord, let me let you Lead me! Jan Bovitz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2003 Report Share Posted November 1, 2003 Hi Jan, Do you ever soak in a tub? Whenever I'm frightened of anything (or sad or agitated), I've found it's a good idea to throw a couple of handfuls of salt into a nice deep bath, light some candles and put on some music you Love. We like "Tribal Winds; Music from Native American Flutes", but you pick what you like. Soak as long as you like, and relax. Don't try to tell yourself what you SHOULD be feeling or saying or doing. Just Be. Holding a hefty chunk of Rose Quartz when you go to bed is also a great idea - very soothing, as it carries the same vibration as Love and isn't stingy about sharing it. If you can release enough to allow your mind to be still, you will be able to feel Spirit around you, Loving and comforting you. Writing, just like you've done here, is a perfect way to process and release! Soaking in water aids release at the cellular level! Have you figured out WHY you are so afraid of being alone? The quickest and most efficient way to release old issues and emotions is to express them and accept what you're expressing with Love and compassion (as if you have two selves - the one doing and the one observing). Do you do any kind of art? Express what you feel in whatever way you need! Let your adult Self comfort your child Self and, that way, your child Self can evolve. Anything held outside of Love can't evolve, so the answer is to Love and care for all parts of your Self, especially the ones you like least so that they can grow and become parts you can be proud of! I have been on this particular path for 8 years, now, and when I began, I produced more tears day after day for more days than I imagined possible, but there came a time when I was calm and began to become stronger. I've learned that, when you teach your Self to allow emotions to FLOW rather than bottling them up, the unpleasant ones are amazingly fleeting! I hope this is helpful in some way for you - I was inspired to tell you this, and usually that means it's beneficial for me to speak! My Heart goes out to you. Love & Light surround you! Jeri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2003 Report Share Posted November 3, 2003 i came to my online family when i had nowhere else to turn. Jan, your online family is trying to help you. That is why so many of us have instructed you to get into your doctor. i'm sorry if it caused undue worry to anyone it was not my intent. Jan, you're screaming out for someone to rescue you from yourself. We all get to a place where we feel that we need someone to hold us thru this journey. the level of holding you are asking for is one that takes a professionally trained therapist to do. i'm trying to take care of my health. Jan, for you to best honor yourself, and if you want to bring your faith into this-- to honor God, then you need to get to your MD and get a change of medication. You need to see a Therapist and work thru this self-worthlessness issue. i do need an adjustment in medicine. WOW! IF YOU TAKE THE MAYBE OUT OF THIS-- YOU SAID YOURSELF-- YOU NEED THE ADJUSTMENT IN MEDICATION. Jan, my speaking so directly may feel hurtful and insensitive. It would be more insensitive for all of us to continue to enable you to stay in the place you're at. You seriously need the help of professionals. You can make the choice as to whether or not you seek help. Having Faith and trusting in that Faith, means taking responsibilty for where you're at. If there is a medication adjustment that can be made, then you need to make the appointment. If it's counselling that you need, then you seek counselling. Prayer works when you put ACTION behind it. Tracie Quote Link to comment Share on other sites More sharing options...
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