RE: how to get school to pay

[Guest guest]

Michele,

You first must come up with a list of a hundred reasons why Aubrie needs the

evaluation. (exaggerating... but be thorough). Send a formal letter to

your district with this information. Let them know that you have the

" opportunity " as you will do them a huge favor by bringing Aubrie to the

school to be evaluated. Otherwise the district will have to incur the

expenses of bringing the person/persons to you, which they would be billed

for. Include any letters from physicians stating she needs the evaluation

and any therapists etc., and that this is school related, not medically

related (they like to throw the medical back at you to forego paying).

Luckily since is in a school for the deaf who has a number of

deaf/blind kids, we have a great deal of backing for these situations

because if the child is to stay in their school, they are always looking for

more assistance on educating them.

I am not sure what your motives are, but if they include vision (most

likely) is Aubrie followed by the Commission for the Blind? They might pay

for the evaluation as well. We have had 2 assessments done which they have

paid for. Hope this was of some help.

Debbie Matasker

how to get school to pay

We will be going to a wedding in CT this fall and I am going to try to

coordinate an eval of Aubrie at Perkins while we are there. Any tips on how

to get that eval paid by the school district?

Michele W

Aubrie's mom 6 yrs

[Guest guest]

I've never had contact with the Commission for the Blind. Thanks for the lead

and the good tips!

Michele

how to get school to pay

We will be going to a wedding in CT this fall and I am going to try to

coordinate an eval of Aubrie at Perkins while we are there. Any tips on how

to get that eval paid by the school district?

Michele W

Aubrie's mom 6 yrs

[Guest guest]

Michele,

Going through you services for the blind might help, or do whatever you can.

First I would contact Perkins though to find out if it is feasible for

scheduling that. It does take a while. Them if things are good you should know

that most evaluations, ESPECIALLY Psychological, do not have norms to evaluate

our children with. Unless you are a specialists who not only understands

deaf/blind, but CHARGE, then many of those evaluations mean little. I cant tell

you

the numerous specialists who thought they knew what they were doing who had

no clue. Then came Perkins. Thiers was the first eval (age 14!),

report/recomendations that actually was about Patty. I couldn't believe they

got her so

perfectly. Not only do they take the whole child into account, they have many

children who have CHARGE syndrome being serviced at their school . The PT

understands the impact of vision on their mobility, the speech understands the

sensory motor issues.... BUT again remember most of all there is not psych

eval, anywhere, that can be done for our children with accuracy. There are no

norms. But with that a psych can be done at Perkins by individuals who are

specialists who understand the impact of all the disabling conditions, and make

accurate reports/recommendations from the eval.

I just said no one can do it but them. That was true then and it still

is now. So, I told them no one in our district will do a psych eval. I

refused for years. Finally they allowed Perkins to perform the triennial. I

think

they were looking to prove me wrong and place Patty in a contained setting.

It didn't work out that way.

I know I am rambling. It is early in the morning here. But I would do

anything to get them involved. They are the true specialists in CHARGE.

Oh, and are you looking at sign language yet?

By the way, what about a visit here? How long are you going to be in CT?

Bonnie, Mom to a 21, patty CHARGE 18, and wife to

[Guest guest]

Thanks for the reminders of the things we talked about at the conference! I

forgot about the sign lang issue -- didn't totally forget, but didn't think of

it related to this. And I didn't think about being so near to you! Let me see

how our schedule works out. With a wedding, the family stuff will take up most

of our time. Then there's the issue of cost the longer we stay... It would be

fabulous to see you and your family again! I'll be in touch-

Michele

Re: how to get school to pay

Michele,

Going through you services for the blind might help, or do whatever you can.

First I would contact Perkins though to find out if it is feasible for

scheduling that. It does take a while. Them if things are good you should

know

that most evaluations, ESPECIALLY Psychological, do not have norms to evaluate

our children with. Unless you are a specialists who not only understands

deaf/blind, but CHARGE, then many of those evaluations mean little. I cant

tell you

the numerous specialists who thought they knew what they were doing who had

no clue. Then came Perkins. Thiers was the first eval (age 14!),

report/recomendations that actually was about Patty. I couldn't believe they

got her so

perfectly. Not only do they take the whole child into account, they have many

children who have CHARGE syndrome being serviced at their school . The PT

understands the impact of vision on their mobility, the speech understands the

sensory motor issues.... BUT again remember most of all there is not psych

eval, anywhere, that can be done for our children with accuracy. There are no

norms. But with that a psych can be done at Perkins by individuals who are

specialists who understand the impact of all the disabling conditions, and

make

accurate reports/recommendations from the eval.

I just said no one can do it but them. That was true then and it still

is now. So, I told them no one in our district will do a psych eval. I

refused for years. Finally they allowed Perkins to perform the triennial. I

think

they were looking to prove me wrong and place Patty in a contained setting.

It didn't work out that way.

I know I am rambling. It is early in the morning here. But I would do

anything to get them involved. They are the true specialists in CHARGE.

Oh, and are you looking at sign language yet?

By the way, what about a visit here? How long are you going to be in CT?

Bonnie, Mom to a 21, patty CHARGE 18, and wife to

[Guest guest]

Thanks, Bonnie!

pam