Re: Re: Aches and Pains and cramps too!

September 14, 2000

Hi Viva,

Just that one paragraph says a lot!!! If you can find out what site that is

from or book and author would you let me know?

I haven't had time to look through the book, have my grandson for 2 days,

but he will leave tomorrow evening so will do so over the weekend for you.

Questions: Do you every get pains under your shoulder blades when you wake

up in the morning also? I get them there and from my shoulder to up my neck

every morning...but only if I sleep on my left side and it is only the left

side involved. I have been attributing all of these aches and pains to

getting older, now I don't think so at all.

Take care, ttyl

Jody

_________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com.

Share information about yourself, create your own public profile at

http://profiles.msn.com.

September 14, 2000

Thanks, Viva. That bit of information did help.

Does anyone else experience hand numbness on the steering wheel when driving?

September 15, 2000

I never did experience any of this arm and hand numbness when I was hyper

but since I have gone hypo (after RAI) I have been having all of the

symptoms that have been mentioned dealing with my arms and hands: hands go

numb while on the steering wheel, I wake up with my arms numb all of the

time from sleeping, etc. It is also very hard for me to raise my arms to

do stuff like washing and drying my hair, putting on makeup, etc. I never

had any of these symptoms before going hypo.

I was waking up every morning feeling like I had been run over by a truck

(my back and shoulders were killing me). Since my doctor has upped my

Synthroid I have experienced less muscle aches though.

e

Re: Re: " Aches and Pains " and cramps too!

>

> Thanks, Viva. That bit of information did help.

>

> Does anyone else experience hand numbness on the steering wheel when

driving?

>

> -------------------------------------

> The Graves' list is intended for informational purposes only and is not

intended to replace expert medical care.

> Please consult your doctor before changing or trying new treatments.

> ----------------------------------------

>

September 15, 2000

,

I wrote an article about this the other day. Both PTU and Tapazole, and beta

blockers, can cause drug related lupus which is not the same as systemic

lupus but you do get arthritis symptoms. Themestream has changed, but the

article can be found by going into my health, other conditions, and thyroid.

The title is Antibiotics and other Drugs That Cause Lupus or something like

that.

September 15, 2000

>Questions: Do you every get pains under your shoulder blades when you wake

up in the morning also? I get them there and from my shoulder to up my neck

every morning...but only if I sleep on my left side and it is only the left

side involved. I have been attributing all of these aches and pains to

getting older, now I don't think so at all.

I have constant aches and pains too (it's back, at the moment, in the ring

and middle finger of my left hand....). And I wake up with the tightest

neck and shoulder muscles. I thought it was my pillow or my bed, but I

changed my pillow, and that didn't help. And my shoulderblades ache, too.

Boy, we're all a mess, aren't we.

Kari

September 15, 2000

I'm printing this out and showing it to my doctor, coz that's *exactly* how

I've been feeling lately. I could barely fold the towels out of the laundry

yesterday! It literally hurt my upper arms, to lift the towels up. Hm.

The doc hasn't called me with my lab results from 2 weeks ago. I suppose

she would, if I had gone hypo.

Kari

Re: Re: " Aches and Pains " and cramps too!

I never did experience any of this arm and hand numbness when I was hyper

but since I have gone hypo (after RAI) I have been having all of the

symptoms that have been mentioned dealing with my arms and hands: hands go

numb while on the steering wheel, I wake up with my arms numb all of the

time from sleeping, etc. It is also very hard for me to raise my arms to

do stuff like washing and drying my hair, putting on makeup, etc. I never

had any of these symptoms before going hypo.

I was waking up every morning feeling like I had been run over by a truck

(my back and shoulders were killing me). Since my doctor has upped my

Synthroid I have experienced less muscle aches though.

e

Re: Re: " Aches and Pains " and cramps too!

>

> Thanks, Viva. That bit of information did help.

>

> Does anyone else experience hand numbness on the steering wheel when

driving?

>

> -------------------------------------

> The Graves' list is intended for informational purposes only and is not

intended to replace expert medical care.

> Please consult your doctor before changing or trying new treatments.

> ----------------------------------------

>

-------------------------------------

The Graves' list is intended for informational purposes only and is not

intended to replace expert medical care.

Please consult your doctor before changing or trying new treatments.

----------------------------------------

September 15, 2000

To all, I can't recall where I read this , maybe 's newletter?, but

there is a doc who has correlated increased fibromyaligia or fibro symptoms

sinced endos starting using more RAI and giving replacement meds according

to so called normal TSH numbers. Also there are more fibro symptoms with

using T4 replacement only versus T4-T3 combo meds. Every person is

different. Some people are hypo if above 1.0 or 2.0 where others may be

hyper with same TSH levels. Same goes for T4 and T3 levels. If only the

docs would prescribe meds according to our symptoms instead the numbers. I

am quite certain that all these symptoms all are feeling are related to hypo

not the GD. I have a friend who just has Hashi's and she has all the same

symptoms when her replacement meds are too low. I have both GD and Hashi's

and I can tell axactly when my Hashi antibodies are going up I start to feel

the pain in my muscles and joints. I have had pain in my back, shoulder

blades and neck where I couldn't function and felt like crying ( and did at

times) . When I was Hyper I would have some weakness but never had the

intense and aching pain and achiness. In a way it is nice to know that I am

not nuts hearing others are having similar experiences but it is shame that

we should have to suffer at all. Hopefully things will start to change with

the endos and some relief is in site?! karen

Re: Re: " Aches and Pains " and cramps too!

>

> >

> > Thanks, Viva. That bit of information did help.

> >

> > Does anyone else experience hand numbness on the steering wheel when

> driving?

> >

> > -------------------------------------

> > The Graves' list is intended for informational purposes only and is not

> intended to replace expert medical care.

> > Please consult your doctor before changing or trying new treatments.

> > ----------------------------------------

> >

>

> -------------------------------------

> The Graves' list is intended for informational purposes only and is not

> intended to replace expert medical care.

> Please consult your doctor before changing or trying new treatments.

> ----------------------------------------

>

> -------------------------------------

> The Graves' list is intended for informational purposes only and is not

intended to replace expert medical care.

> Please consult your doctor before changing or trying new treatments.

> ----------------------------------------

>

September 15, 2000

>>>Boy, we're all a mess, aren't we.<<<

Kari,

LOL...yeah we are, but isn't it nice we are a mess together and not

suffering alone or in silence

Jody

_________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com.

Share information about yourself, create your own public profile at

http://profiles.msn.com.

September 15, 2000

:

Where did you hear that PTU can cause lupus like syptoms?

At 02:05 PM 09/15/2000 -0400, you wrote:

>To all, I can't recall where I read this , maybe 's newletter?, but

>there is a doc who has correlated increased fibromyaligia or fibro symptoms

September 15, 2000

,

Your so right about treating by symptoms, not lab values. I have found an

endo who does that now, what a relief. Next month I will begin treatment

with T3/T4 combo and can't wait. I know it is going to take time finding

the right combination of each but at least I feel like we are doing

something

Jody

_________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com.

Share information about yourself, create your own public profile at

http://profiles.msn.com.

September 15, 2000

In a message dated 9/15/00 6:43:30 PM Eastern Daylight Time,

hearnwic@... writes:

<< Hi Debbie, I do take lots of calcium. Maybe it isn't absorbing. >>

, do you take Calcium with Vitamin D? I think that makes it absorb

better.

Say, guys, have you all been to Graves'yard Humor? 'Nothing like doing an

eyeball jigsaw puzzle or playing the eyeball boogie to cheer you up! If you

have something to contribute, don't hesitate.

http://members.delphi.com/redhen1/index.html

September 15, 2000

In a message dated 9/15/00 6:43:30 PM Eastern Daylight Time,

hearnwic@... writes:

<< Hi Debbie, I do take lots of calcium. Maybe it isn't absorbing. >>

, do you take Calcium with Vitamin D? I think that makes it absorb

better.

Say, guys, have you all been to Graves'yard Humor? 'Nothing like doing an

eyeball jigsaw puzzle or playing the eyeball boogie to cheer you up! If you

have something to contribute, don't hesitate.

http://members.delphi.com/redhen1/index.html

September 15, 2000

,

Doesn't it just floor you that the TSH is *THE* test to indicate how we

*should* be feeling!!! Even with my new endo, that is what she does because

it is a *good* indicator of things...I thank God for my insurance, because I

can request a FT3 (in my limited knowledge I feel that test is the best to

go by, maybe I'm wrong) any time I want one and they will pay...and my new

endo will do one on request.

Does any one (Elaine?) know what is involved in the FT3 that very few labs

do this...mine get set to San Capistrano...and why the cost of this

test is so expensive? Be interested in knowing this.

Jody

_________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com.

Share information about yourself, create your own public profile at

http://profiles.msn.com.

September 15, 2000

,

Doesn't it just floor you that the TSH is *THE* test to indicate how we

*should* be feeling!!! Even with my new endo, that is what she does because

it is a *good* indicator of things...I thank God for my insurance, because I

can request a FT3 (in my limited knowledge I feel that test is the best to

go by, maybe I'm wrong) any time I want one and they will pay...and my new

endo will do one on request.

Does any one (Elaine?) know what is involved in the FT3 that very few labs

do this...mine get set to San Capistrano...and why the cost of this

test is so expensive? Be interested in knowing this.

Jody

_________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com.

Share information about yourself, create your own public profile at

http://profiles.msn.com.

September 15, 2000

I had these symptoms, not being able to raise my arms above my head, just

felt like I had no strength left, I know I don't have the strength I used

too. That's why I thought I was going hyper again, but they took me off the

PTU said all my lab tests were in the normal range. Maybe this is just

another GD symptom mystery. My muscles in my arms (upper and lower) ache so

bad sometimes feels like it is in the bone. My legs same things. My

husband has notices the muscles in my upper legs seem awful tight, I can't

even bend the right one as much as the left one.

Debbie

----------

>

>To: " 'graves_supportegroups' " <graves_supportegroups>

>Subject: RE: Re: " Aches and Pains " and cramps too!

>Date: Fri, Sep 15, 2000, 9:37 AM

>

> I'm printing this out and showing it to my doctor, coz that's *exactly* how

> I've been feeling lately. I could barely fold the towels out of the laundry

> yesterday! It literally hurt my upper arms, to lift the towels up. Hm.

> The doc hasn't called me with my lab results from 2 weeks ago. I suppose

> she would, if I had gone hypo.

>

> Kari

>

> Re: Re: " Aches and Pains " and cramps too!

>

> I never did experience any of this arm and hand numbness when I was hyper

> but since I have gone hypo (after RAI) I have been having all of the

> symptoms that have been mentioned dealing with my arms and hands: hands go

> numb while on the steering wheel, I wake up with my arms numb all of the

> time from sleeping, etc. It is also very hard for me to raise my arms to

> do stuff like washing and drying my hair, putting on makeup, etc. I never

> had any of these symptoms before going hypo.

>

> I was waking up every morning feeling like I had been run over by a truck

> (my back and shoulders were killing me). Since my doctor has upped my

> Synthroid I have experienced less muscle aches though.

>

> e

>

> e

>

> Re: Re: " Aches and Pains " and cramps too!

>

>>

>> Thanks, Viva. That bit of information did help.

>>

>> Does anyone else experience hand numbness on the steering wheel when

> driving?

>>

>> -------------------------------------

>> The Graves' list is intended for informational purposes only and is not

> intended to replace expert medical care.

>> Please consult your doctor before changing or trying new treatments.

>> ----------------------------------------

>>

>

> -------------------------------------

> The Graves' list is intended for informational purposes only and is not

> intended to replace expert medical care.

> Please consult your doctor before changing or trying new treatments.

> ----------------------------------------

>

> -------------------------------------

> The Graves' list is intended for informational purposes only and is not

> intended to replace expert medical care.

> Please consult your doctor before changing or trying new treatments.

> ----------------------------------------

>

September 15, 2000

So, it's not actually Lupus, but " Lupus-like symtoms " ?

Kari

Re: Re: " Aches and Pains " and cramps too!

,

I wrote an article about this the other day. Both PTU and Tapazole, and beta

blockers, can cause drug related lupus which is not the same as systemic

lupus but you do get arthritis symptoms. Themestream has changed, but the

article can be found by going into my health, other conditions, and thyroid.

The title is Antibiotics and other Drugs That Cause Lupus or something like

that.

-------------------------------------

The Graves' list is intended for informational purposes only and is not

intended to replace expert medical care.

Please consult your doctor before changing or trying new treatments.

----------------------------------------

September 15, 2000

Thanks Elaine, I'll look up the article. Just realized though that since

I'm only on 50mg-100mg/day, it may not be too applicable to me.

At 03:51 PM 09/15/2000 EDT, you wrote:

>

>,

>I wrote an article about this the other day. Both PTU and Tapazole, and beta

>blockers, can cause drug related lupus which is not the same as systemic

>lupus but you do get arthritis symptoms. Themestream has changed, but the

>article can be found by going into my health, other conditions, and thyroid.

>The title is Antibiotics and other Drugs That Cause Lupus or something like

>that.

>

>-------------------------------------

>The Graves' list is intended for informational purposes only and is not

intended to replace expert medical care.

>Please consult your doctor before changing or trying new treatments.

>----------------------------------------

>

Shen

Holy Macro!

September 15, 2000

Jody,

A few years ago most all the labs ran FT3's as part of a thyroid profile. But

then managed care came along and insurance companies and medicare decided

panels were extraneous. And the Endos decided that a TSH was sufficient for

diagnosing thyroid disease with an FT4 enough to confirm if the TSH was

abnormal from hypoT or hyperT rather than a pituitary disorder. So with no

one ordering FT3's it got too expense to keep the reagents on hand since they

have a short shelf-life and no one can afford to throw out half empty kits.

Thus, only the large reference labs who run lots of tests could afford to

keep doing them. However, some local labs who do a lot of outpatient work

still run them. The lab I worked at in Pocatello, ID was still running them.

As a rule, in a big city, just one hospital usually runs tests that aren't in

much demand. So if you get your labs done at an outpatient hospital lab, you

could call the other hospitals in town.

From this you can assume too, that cost cutting measures are far more

important than how we feel when it comes to patients on replacement therapy.

Elaine

September 15, 2000