Re: Graves ect

September 13, 2000

>I have had pain that is sometimes terrible like fire in the bone and the

muscle or tendons very stiff, in my fingers - usually one at a time and

starting at the knuckle,

Yes! It's so random! One day, it'll be the left thumb...the next week, the

right ring finger.

>I was diagnosed in late May this year with GD and my thyroid is still

unstable. I'm on PTU (and on Thyroxin - T4 at present because I went hypo).

I feel shocking and only just make it to work and back.

I know how you feel. Well, I used to know. I got a lot better.

However, those are our two common threads with this: we're both on PTU and

we both have Graves. It *must* be a side effect or symptom of one or the

other.

>I spoke with the endo and the pain recently and he said I was probably

getting the flu - but now I read these posts from so many about the same

pains and I'm thinking - no way - it ain't the flu!

Hah! They always say 'flu' if they don't know.

>Hope you are feeling better.

Thanks. It did go away. What's so strange is how it appeared...first the

left wrist, then the next day the right wrist, then the next day, completely

gone from both. Can't wait to see what happens next.

Kari

September 14, 2000

HI Kari just looking at all the messages about the joint and muscle pains

and I am amazed. I suffered debilitating muscle and joint pain for 10

months without answers. The endos said I was hyper and that the symptoms

must be arthritis, carpel tunnel or fibromyalgia. I went through a mess of

tests ( my mom had rheum arthritis and sis has lupus like syndr.) and found

nothing. So it was assumed fibro. I was put on six different meds with

minimal relief. I even starting getting worse. Then I looked at my Thyroid

numbers and the only correlation my GP and I came up with was my T3 and T4

were dropping below the mid normal range but no readable TSH. My FT4 was

at low end of range. All the endos kept putting me on more PTU to lower the

numbers more and at the same time I was getting worse and worse with the

fibro symptoms. It was GP who took me off the PTU after weaning down. When

my thryoid levels reached back to mid upper normal range ALL the symptoms

you describe went away. It was amazing. The endos say being hyper is so

bad but having hypo symptoms were far more unbearable. Could it very well

be that all of us with GD have endos who are trying to keep our thyroid

levels lower than our bodies need? I am convinced. Just another side note,

one of the side effects of PTU can be lupus like sypmtoms. But for me the

symptoms started when I was originally off PTU for six months. Something

you could ask your endos about though.

RE: Graves ect

>

> >>>>This is the kind of pain I have been having. i don't know what sets it

> off, but codeine won't touch it. It generally happens in my wrists or my

> knees, so I don't think it is carple tunnels as my hubby suggests (the

last

> couple of times the pain was in my wrists). It usually lasts about a

> day or 2 then goes away. it is what I've been considering taking

glucosomene

> for (have't gotten around to it yet, the pain goes away and I don't get

> around to doing anything then). It gets esp worse abut bed time (esp when

it

> hits my knees) as I can't find a position that doesn't hurt. Gravity on

the

> joint is the worst. I've been to the point of crying it hurts so much.

>

> Ok, this has become too much to be a coincidence. We're having the exact

> same pains. Maybe it's not the disease, though. Could it *possibly* be a

> side effect of a drug? Are we all on PTU or propranolol? (although I'm

off

> that one, now....recently....) Everyone who's having these pains, I mean.

>

> Kari

>

> -------------------------------------

> The Graves' list is intended for informational purposes only and is not

intended to replace expert medical care.

> Please consult your doctor before changing or trying new treatments.

> ----------------------------------------

>

September 16, 2000

Hi

I really think it is more to do with the Graves. I have had the pains on and off

for over 12 months (long before I

was on PTU).

Caroline

{USER_FIRSTNAME} {USER_LASTNAME} wrote:

>

> HI Kari just looking at all the messages about the joint and muscle pains

> and I am amazed. I suffered debilitating muscle and joint pain for 10

> months without answers. The endos said I was hyper and that the symptoms

> must be arthritis, carpel tunnel or fibromyalgia. I went through a mess of

> tests ( my mom had rheum arthritis and sis has lupus like syndr.) and found

> nothing. So it was assumed fibro. I was put on six different meds with

> minimal relief. I even starting getting worse. Then I looked at my Thyroid

> numbers and the only correlation my GP and I came up with was my T3 and T4

> were dropping below the mid normal range but no readable TSH. My FT4 was

> at low end of range. All the endos kept putting me on more PTU to lower the

> numbers more and at the same time I was getting worse and worse with the

> fibro symptoms. It was GP who took me off the PTU after weaning down. When

> my thryoid levels reached back to mid upper normal range ALL the symptoms

> you describe went away. It was amazing. The endos say being hyper is so

> bad but having hypo symptoms were far more unbearable. Could it very well

> be that all of us with GD have endos who are trying to keep our thyroid

> levels lower than our bodies need? I am convinced. Just another side note,

> one of the side effects of PTU can be lupus like sypmtoms. But for me the

> symptoms started when I was originally off PTU for six months. Something

> you could ask your endos about though.

> RE: Graves ect

>

> >

> > >>>>This is the kind of pain I have been having. i don't know what sets it

> > off, but codeine won't touch it. It generally happens in my wrists or my

> > knees, so I don't think it is carple tunnels as my hubby suggests (the

> last

> > couple of times the pain was in my wrists). It usually lasts about a

> > day or 2 then goes away. it is what I've been considering taking

> glucosomene

> > for (have't gotten around to it yet, the pain goes away and I don't get

> > around to doing anything then). It gets esp worse abut bed time (esp when

> it

> > hits my knees) as I can't find a position that doesn't hurt. Gravity on

> the

> > joint is the worst. I've been to the point of crying it hurts so much.

> >

> > Ok, this has become too much to be a coincidence. We're having the exact

> > same pains. Maybe it's not the disease, though. Could it *possibly* be a

> > side effect of a drug? Are we all on PTU or propranolol? (although I'm

> off

> > that one, now....recently....) Everyone who's having these pains, I mean.

> >

> > Kari

> >

> > -------------------------------------

> > The Graves' list is intended for informational purposes only and is not

> intended to replace expert medical care.

> > Please consult your doctor before changing or trying new treatments.

> > ----------------------------------------

> >

>

> -------------------------------------

> The Graves' list is intended for informational purposes only and is not

intended to replace expert medical care.

> Please consult your doctor before changing or trying new treatments.

> ----------------------------------------

September 16, 2000