Re: Graves ect

[Guest guest]

Freaky stuff *is* happening!! Thursday I woke up with a terrible pain in my

left wrist. Like, burning inside the bone. It stretched up through my

hand, not quite reaching the knuckle bones, and down my wrist a bit. Hurt

like the dickens. The *next* morning, I woke up att 5:00 am and the *other*

hand was having the same thing happen! I couldn't lift things, I could

barely do anything!! It was agony! I took a couple of Advil, and though it

still hurt like the dickens, I was ok to do stuff the rest of the day. By

Sunday, it was pretty much all over. What on *earth* was it???? Anyone

have this happen to them???

Kari

>>>Hi Gang, I had something strange happen last night. One of my ears was

extremely hot and red the other was freezing cold. I can't believe all

the goofy stuff that happens.

[Guest guest]

Whoa Kari,

I have been having something similar happen for the last 3 months but it is

in the fingers...usually my ring fingers, first one hand then the other will

do it within 2/3 days...no way did I think it had anything to do with GD but

now I am not so sure...anyone else have any ideas. I can vouch for how very

painful this is.

Jody

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[Guest guest]

Hi Wilma,

Welcome to the group. There is such a wide variety of what you can expect,

depending on the treatment you choose to follow. The best thing I can

recommend to you in on the home page for this group, just about messages you

can type in a message number and click go...I would type in number 1 and

just start reading and reading and reading, writing down questions as they

jump out at you and asking them of the people in this group. Someone here

will always respond.

Don't let your dr. try to rush you into RAI or surgery as both are

permanent. The best course of action would be for them to start you on

ATD's (Tapazol or PTU)to bring your numbers into a more normal range while

you learn and educate yourself on this disease and make decisions that YOU

are comfortable with. Keep in mind at all times that your dr. works for

YOU...it is best to work together.

Here you will learn a lot about the ATD's and alternatives others have

chosen, how it works for them...check our B's post, I think about

message 192 ( HELP if that isn't the one with your story in it). Take

your time, learn and don't panic. Your not alone in this anymore.

You also may want to share what you have been going through that led to your

diagnosis. Oh, tell your dr. right up front that you want a copy of ALL of

your lab work, you will beable to chart things down the road with dosage

changes, how your feeling and where your numbers lie. It all sounds so

confusing right now, but before long it will make sense.

Take care,

Jody

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[Guest guest]

I was just diagnosed with GD 12 days ago. Would someone please tell me

what to expect??!!

I'll see my doctor again on Friday - he has not told me much YET.

Thanx a heap for any information any of you an supply!

-Wilma.

[Guest guest]

Oh please do let us know about the B-12. I get the leg cramps also,

more like charlie horses times 10...in the calfs and a LOT of time in the

arch of my feet. When this happens I drink a lot of orange juice and eat

baked potatos and that seems to keep them at bay for awhile. This problem

with my fingers is just so wierd!!! I can't bend them, can't touch them,

sometimes they last for 2/3 days other times they are gone in a matter of

hours. Ibuprophen helps to dull the pain but does not take it away. I

never attributed it to GD but after reading Kari and Debbies posts...who

knows. Will any of us ever know all about this disease?

Thanks for keeping us posted...oh, could you ask the dr. if B-12 gelcaps

would work the same way?

BTW, hubby wanted to give me a gift certificate for a full body massage for

my b-day...told him no way, as much as I would love one, my muscles hurt so

much lately I can't stand even when he gives me a shoulder rub. It just

hurts more

Jody

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[Guest guest]

When I have the pains Kit I couldn't make a fist if my life depended on

it...and my fingers swell quite often, more so in this hot, humid weather we

are having right now.

Jody

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[Guest guest]

Hi Wilma:

I was diagnosed last November. After the blood test, I had to do a nuclear

scan (thyroid uptake test) to confirm Grave's (as opposed to a tumor).

Thereafter, I was given a choice of two options, radioactive iodine (RAI),

anti-thyroid drug (ATD). I chose ATDs because I didn't like the sound of

RAI, and am still incredibly grateful about it now that I know more.

I don't know how severe your symptoms are, but many of us were put on a

beta blocker to slow our heartrate. You may also need help with emotional

swings that can go from depression to rage. I was ravenous for sugar and

consumed huge amounts of chocolate and coca cola, which I regret now

because I have gained 30 lbs that is hard to lose. So, my advice in a

nutshell:

Do your own research and don't agree to RAI without really checking your

facts.

Watch for symptoms like racing heart or emotional changes and get help for

them.

Watch what you eat if you can.

Have faith, there will be a time when you will feel more in control because

you are better informed and have some experience dealing with GD.

This group is really amazing and supportive, for me, this group was the

most important ingredient in my dealing with GD. I hope you will feel the

same support here. Also, you might want to check out the book " The Thyroid

Solution " by Dr. Arem, it's really a great primer, available at amazon.com.

Good luck!

At 08:35 PM 09/11/2000 -0500, you wrote:

>I was just diagnosed with GD 12 days ago. Would someone please tell me

>what to expect??!!

>I'll see my doctor again on Friday - he has not told me much YET.

>Thanx a heap for any information any of you an supply!

>

>-Wilma.

>

>

>

[Guest guest]

Jody and Kari,

I get pains in my wrist that hurt all the way to my elbow, I associated it

with carpal tunnel. Never thought it could have something to do with GD.

Sometimes, I do get horrible pain in my fingers and they will swell. Same

here, can't pick up things, just very painful.

Debbie

---------

Add me to the list the damp weather brough back my carpal tunnel so I have a

pain in the back of my hand and shooting down my little finger,it's hard to

make fist they feel stiff do you girl's find that ?

Btu the burning ear I had that with surgical meno a few years ago.

Kit

[Guest guest]

Jody and Kari,

I get pains in my wrist that hurt all the way to my elbow, I associated it

with carpal tunnel. Never thought it could have something to do with GD.

Sometimes, I do get horrible pain in my fingers and they will swell. Same

here, can't pick up things, just very painful.

Debbie

> _________________________________________________________________________

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>

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>

>

> -------------------------------------

> The Graves' list is intended for informational purposes only and is not

> intended to replace expert medical care.

> Please consult your doctor before changing or trying new treatments.

> ----------------------------------------

>

[Guest guest]

Hi Gang as you know I get terrible leg cramps. The massage therapist

said that my legs felt like bone not muscle. I so stiff I could hardly

walk . Well I went to to naturopath doctor and he did give me some

solutions that seem to help. I have always believed that latic acid was

the root of my problem. I joined a running club last Thursday and if I

could have moved my legs enough I would have jumped off something high

on Friday. The endo said no it wasn't lactic acid it was probably the

tap. But he offered no solutions likewise the gp and the doctor of

internal medicine.( I'm a diabetic,we have all kinds of doctors) I

have a friend who suffered similar problem. Her gp was giving her

quinine and it helped her to some extent. But her gp did some research

and now she is getting B12 shots and feels human again. Now her gp is in

the same office as mine. I am going Friday and I'm going to request a

shot too. I will let you know results. If this works this lowly gp could

become a hero.

[Guest guest]

Weird, isn't it? Sometimes it's just in one finger!! I have that, from

time to time, too. And the week before the wrist incident, I had it in one

knee for two days!! It feels like...like hives feel, but inside the bone?

Kari

--------------------------------------------------------->

>>>Whoa Kari, I have been having something similar happen for the last 3

months but it is

in the fingers...usually my ring fingers, first one hand then the other will

do it within 2/3 days...no way did I think it had anything to do with GD but

now I am not so sure...anyone else have any ideas. I can vouch for how very

painful this is.

[Guest guest]

I'm not on any of the ATD's Kari, had RAI in May '96, so isn't that. Wonder

if it is a different auto-immune disease that has yet to be named cause so

many drs. think we are hysterical and these are hysterical symptoms?

Jody

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[Guest guest]

I was thinking Carpal Tunnel, too, but now with more people with GD having

it, maybe it's not? Or maybe it's just a coincidence that we all have CT.

It's pretty common, I'm guessing.

Kari

>>I get pains in my wrist that hurt all the way to my elbow, I associated it

with carpal tunnel. Never thought it could have something to do with GD.

Sometimes, I do get horrible pain in my fingers and they will swell. Same

here, can't pick up things, just very painful.

[Guest guest]

>Add me to the list the damp weather brough back my carpal tunnel so I have

a pain in the back of my hand and shooting down my little finger,it's hard

to make fist they feel stiff do you girl's find that ?

It wasn't so much stiff as it was very painful to bend my wrists. I do

wonder if it's something calcium related. I've been drinking a LOT of milk

lately (more than usual). But also, someone asked where I was on my cycle,

and the wrist thing hit just before my period did. I'm sure all these

things are inter-related, so I'm not even going to try to guess. could

still be carpal tunnel. It's gone, now, and good riddance to it.

Kari

[Guest guest]

Kari, I don't think it's genetic. It's caused when excess uric acid builds up

and makes crystalline deposits. It's associated with the use of diuretics and

certain other meds.

[Guest guest]

,

I thought you only got gout in your toes? Hmmmm but isn't that also from

lack of fresh fruit, which I do eat?

Jody

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[Guest guest]

My sis has it too. Maybe this would be a good question for the polls. Jen,

Sis w/ GD 29/25

RE: Graves ect

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I was thinking Carpal Tunnel, too, but now with more people with GD having

it, maybe it's not? Or maybe it's just a coincidence that we all have CT.

It's pretty common, I'm guessing.

Kari

>>I get pains in my wrist that hurt all the way to my elbow, I associated it

with carpal tunnel. Never thought it could have something to do with GD.

Sometimes, I do get horrible pain in my fingers and they will swell. Same

here, can't pick up things, just very painful.

-------------------------------------

The Graves' list is intended for informational purposes only and is not

intended to replace expert medical care.

Please consult your doctor before changing or trying new treatments.

----------------------------------------

[Guest guest]

Elaine,

Gout is associated with diuretics? I have been on an ace inhibitor with a

light dose of a diuretic in it for over a year now. Could this be causing a

lot of the muscle and joint pain do you think?

Jody

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[Guest guest]

Elaine,

Gout is associated with diuretics? I have been on an ace inhibitor with a

light dose of a diuretic in it for over a year now. Could this be causing a

lot of the muscle and joint pain do you think?

Jody

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[Guest guest]

> Freaky stuff *is* happening!! Thursday I woke up with a terrible pain in my

> left wrist. Like, burning inside the bone. It stretched up through my

> hand, not quite reaching the knuckle bones, and down my wrist a bit. Hurt

> like the dickens. The *next* morning, I woke up att 5:00 am and the *other*

> hand was having the same thing happen! I couldn't lift things, I could

> barely do anything!! It was agony! I took a couple of Advil, and though it

> still hurt like the dickens, I was ok to do stuff the rest of the day. By

> Sunday, it was pretty much all over. What on *earth* was it???? Anyone

> have this happen to them???

>

> Kari

This is the kind of pain I have been having. i don't know what sets it

off, but codeine won't touch it. It generally happens in my wrists or my

knees, so I don't think it is carple tunnels as my hubby suggests (the

last couple of times the pain was in my wrists). It usually lasts about a

day or 2 then goes away. it is what I've been considering taking

glucosomene for (have't gotten around to it yet, the pain goes away and I

don't get around to doing anything then). It gets esp worse abut bed time

(esp when it hits my knees) as I can't find a position that doesn't

hurt. Gravity on the joint is the worst. I've been to the point of crying

it hurts so much.

C

[Guest guest]

>>>>This is the kind of pain I have been having. i don't know what sets it

off, but codeine won't touch it. It generally happens in my wrists or my

knees, so I don't think it is carple tunnels as my hubby suggests (the last

couple of times the pain was in my wrists). It usually lasts about a

day or 2 then goes away. it is what I've been considering taking glucosomene

for (have't gotten around to it yet, the pain goes away and I don't get

around to doing anything then). It gets esp worse abut bed time (esp when it

hits my knees) as I can't find a position that doesn't hurt. Gravity on the

joint is the worst. I've been to the point of crying it hurts so much.

Ok, this has become too much to be a coincidence. We're having the exact

same pains. Maybe it's not the disease, though. Could it *possibly* be a

side effect of a drug? Are we all on PTU or propranolol? (although I'm off

that one, now....recently....) Everyone who's having these pains, I mean.

Kari

[Guest guest]

Hm!!! Is gout genetic?? My dad had it, a while ago.

kari

Re: Graves ect

You know this sort of sound like gout to me. I swear it is some kind of

acid buildup.

[Guest guest]

You know this sort of sound like gout to me. I swear it is some kind of

acid buildup.

[Guest guest]

No I think that you can get gout anywhere. However, the fruit thing is

scurvy.

But Jody I only said I thought the way the pains were acting sounded

like gout.

[Guest guest]

Hi Kari

I have had pain that is sometimes terrible like fire in the bone and the muscle

or tendons very stiff, in my fingers

- usually one at a time and starting at the knuckle, in my wrists and in my

shoulders. My upper legs and upper arms

get so sore and tired.

The pain doesn't seem to attack all at once and usually lasts overnight or about

8hrs. I remember getting this more

than 12 months ago. About this time last year I had a the mother of all cramps!

My calf muscle was so bad I ended up

screaming in pain until it stopped (which it did thank God). The cramps only

happen occasionally.

I was diagnosed in late May this year with GD and my thyroid is still unstable.

I'm on PTU (and on Thyroxin - T4 at

present because I went hypo). I feel shocking and only just make it to work and

back.

I spoke with the endo and the pain recently and he said I was probably getting

the flu - but now I read these posts

from so many about the same pains and I'm thinking - no way - it ain't the flu!

I guess because GD is an auto immune disorder it does make sense that the

antibodies can impact anything in our

bodies. The little buggers are 'floating' all over us after all.

I have been encouraged to have regular massage and I am also getting a spa bath

for my bathroom. I don't like the

idea of regular pain killers so anything to avoid this would be good.

I wish all the endos could actually experience this disease (but just for a

short time - i wouldn't wish this on

anyone), because they seem so quick to dismiss as irrelevant, so quick to say

get rid of the thyroid and so quick to

be flippant about our quality of life.

Hope you are feeling better.

Cheers

Caroline

Kari Sagen wrote:

>

> >>>>This is the kind of pain I have been having. i don't know what sets it

> off, but codeine won't touch it. It generally happens in my wrists or my

> knees, so I don't think it is carple tunnels as my hubby suggests (the last

> couple of times the pain was in my wrists). It usually lasts about a

> day or 2 then goes away. it is what I've been considering taking glucosomene

> for (have't gotten around to it yet, the pain goes away and I don't get

> around to doing anything then). It gets esp worse abut bed time (esp when it

> hits my knees) as I can't find a position that doesn't hurt. Gravity on the

> joint is the worst. I've been to the point of crying it hurts so much.

>

> Ok, this has become too much to be a coincidence. We're having the exact

> same pains. Maybe it's not the disease, though. Could it *possibly* be a

> side effect of a drug? Are we all on PTU or propranolol? (although I'm off

> that one, now....recently....) Everyone who's having these pains, I mean.

>

> Kari

>

> -------------------------------------

> The Graves' list is intended for informational purposes only and is not

intended to replace expert medical care.

> Please consult your doctor before changing or trying new treatments.

> ----------------------------------------