Guest guest Posted July 12, 2003 Report Share Posted July 12, 2003 Rita/Lavon/et ux: Like Rita, I have not run from doctor to doctor over the last 4 years. I went to Mayo Clinic, saw 2 doctors from there, and got my diagnosis within 3 months. That's four years ago. Since then, I have tried Baclofen(made no difference), cOQ10 ( no difference), Creatinine, Tonic Water, and NADH, all with no difference. However, I am fortunate, like Rita, to have progressed slowly. I feel confident in what my Neurologist has said, as well as the folks at NIH. When and if I begin to progress more rapidly, I will seek advice. I get pissed now and then that I have this disease, but for the most part, I don't even think of it. I forget I have it at times. I am fortunate, and very thankful for that. Love to all, Laurel Quote Link to comment Share on other sites More sharing options...
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